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Chronic kidney disease (CKD)
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ET diagnosis
Hi, just wondering if anyone has any advice for me I have been diagnosed with ET last june with a platelet count of 987 put on low dose aspirin 75 mg.Since then my platlets have jumped about they went to 1280 back to 990 and have risen constantly to 1420 now no major symptoms, I am triple negative Has
Hi, just wondering if anyone has any advice for me I have been diagnosed with ET last june with a platelet count of 987 put on low dose aspirin 75 mg.Since then my platlets have jumped about they went to 1280 back to 990 and have risen constantly to 1420 now no major symptoms, I am triple negative Has
Mike1974
in
MPN Voice
1 year ago
Digoxin fears
Hello,am new to this forum, at mo feeling I am in the minority taking digoxin really feeling anxious about having to take prob have read Mr Google far too much I had an episode of AF was taken into a&e tried to right it by high dose of bisoprolol but had no affect, after 20 hrs erratic beats 140 to
Hello,am new to this forum, at mo feeling I am in the minority taking digoxin really feeling anxious about having to take prob have read Mr Google far too much I had an episode of AF was taken into a&e tried to right it by high dose of bisoprolol but had no affect, after 20 hrs erratic beats 140 to
Ssuegos
in
AF Association
1 year ago
Guanfacine and N-acetylcysteine (NAC-600 mg)
I recently posted a link to an article that talked about treating brain fog with a combination of Guanfacine, a prescription drug used for treating high blood pressure, and N-acetylcysteine (NAC-600 mg), which I gather is an over-the-counter supplement. Has anyone here had any experience with either
I recently posted a link to an article that talked about treating brain fog with a combination of Guanfacine, a prescription drug used for treating high blood pressure, and N-acetylcysteine (NAC-600 mg), which I gather is an over-the-counter supplement. Has anyone here had any experience with either
WiscGuy
in
Pernicious Anaemia Society
1 year ago
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DIAGNOSING CKD
WHY DO SO MANY SITES ON THE COMPUTER SAY THAT GREATER THAN 90 FOR GFR AND CREATINE IS NORMAL , AND YET MAYO CLINIC SAYS GREATER THAN 60 IS NORMAL ??
WHY DO SO MANY SITES ON THE COMPUTER SAY THAT GREATER THAN 90 FOR GFR AND CREATINE IS NORMAL , AND YET MAYO CLINIC SAYS GREATER THAN 60 IS NORMAL ??
PURPLELEMON
in
Kidney Disease
2 years ago
Flecainide stopped working
I have been on Flecainide for years & my AF well controlled. Now it has started to cause other arrhythmias so I have to stop it This happened a few years ago & as soon as it was stopped my AF occurred regularly & made me feel very unwell I was able then to restart it but this time it’s not possible
I have been on Flecainide for years & my AF well controlled. Now it has started to cause other arrhythmias so I have to stop it This happened a few years ago & as soon as it was stopped my AF occurred regularly & made me feel very unwell I was able then to restart it but this time it’s not possible
Koladog
in
Atrial Fibrillation Support
1 year ago
Orthodontics Appointment cancelled for the 4th time
Had a text earlier from the hospital again cancelling my orthodontics appointment again for 4th time, I have avascular necrosis of both hip's and the pain seems to be getting worse each day also I have an inguinal hernia on the worst hip side adding insult to injury the pain is becoming unbearable it
Had a text earlier from the hospital again cancelling my orthodontics appointment again for 4th time, I have avascular necrosis of both hip's and the pain seems to be getting worse each day also I have an inguinal hernia on the worst hip side adding insult to injury the pain is becoming unbearable it
Hidden
in
MPN Voice
1 year ago
Is this PMR?
Hello I'm new to this site and to the world of PMR. Hoping to get some guidance from this lovely community. My GP has diagnosed me with PMR at 42 and I'm not entirely convinced as I don't fit the symptoms of aches and stiffness in the shoulders and hips. This all started in March 23 where I woke
Hello I'm new to this site and to the world of PMR. Hoping to get some guidance from this lovely community. My GP has diagnosed me with PMR at 42 and I'm not entirely convinced as I don't fit the symptoms of aches and stiffness in the shoulders and hips. This all started in March 23 where I woke
Evie1977
in
PMRGCAuk
1 year ago
Food Delivery Services
My mom was recently diagnosed with Stage 4
CKD
. We are changing her diet to ensure she eats properly to help her kidneys function. She lives alone and doesn't really like cooking for herself. I would like to find a Food delivery service that specializes in the Renal diet.
My mom was recently diagnosed with Stage 4
CKD
. We are changing her diet to ensure she eats properly to help her kidneys function. She lives alone and doesn't really like cooking for herself. I would like to find a Food delivery service that specializes in the Renal diet.
MomSupport
in
Kidney Disease
2 years ago
Vasculitis and rheumatoid arthritis
Hi,Just a quick question, is anybody seen by vasculitis clinic and rheumatology, or just one or the other. I am only seen by rheumatology but at first diagnosis I was seen in the vasculitis clinic . I have poly granulamotis along with rheumatoid arthritis, but I am getting the feeling when I go to
Hi,Just a quick question, is anybody seen by vasculitis clinic and rheumatology, or just one or the other. I am only seen by rheumatology but at first diagnosis I was seen in the vasculitis clinic . I have poly granulamotis along with rheumatoid arthritis, but I am getting the feeling when I go to
tina73
in
Vasculitis UK
1 year ago
Cardioversion - preparation and aftercare - advice please!
Hi everyone, and hope a day of sunshine has raised spirits!I've been placed on a waiting list for cardioversion by my EP which I'm really happy about. I was diagnosed with AF last September or October (got a cat on my knee so can't get up to check the date!) and this rapidly progressed to persistent.
Hi everyone, and hope a day of sunshine has raised spirits!I've been placed on a waiting list for cardioversion by my EP which I'm really happy about. I was diagnosed with AF last September or October (got a cat on my knee so can't get up to check the date!) and this rapidly progressed to persistent.
Rainfern
in
AF Association
1 year ago
Peginterferon side effects!
Hi all, I have ET Jak2+ since 2021 and have been injecting 45mg Peginterferon weekly for 6 months and doing relatively ok until just recently. I now am experiencing severe aching arms and legs radiating down from my neck to my knees. It is so bad that I have to take pain killers daily. My blood pressure
Hi all, I have ET Jak2+ since 2021 and have been injecting 45mg Peginterferon weekly for 6 months and doing relatively ok until just recently. I now am experiencing severe aching arms and legs radiating down from my neck to my knees. It is so bad that I have to take pain killers daily. My blood pressure
Fairbank
in
MPN Voice
1 year ago
stroke
morning, My husband and i both have AF he has had it for about 7 years been on bisoprolol, rivaroxaban and atvorstatin for that time. On Saturday he had a stroke. I’m not really asking a question but its been such a shock, we don’t know why yet. He’s ok physically but cognitive skills are not good.
morning, My husband and i both have AF he has had it for about 7 years been on bisoprolol, rivaroxaban and atvorstatin for that time. On Saturday he had a stroke. I’m not really asking a question but its been such a shock, we don’t know why yet. He’s ok physically but cognitive skills are not good.
Dudtbin
in
Atrial Fibrillation Support
1 year ago
Flax Seeds and A-fib
Hi everyone, I was thinking of introducing milled flax seeds in to my diet as a health thing after watching a programme on them. However, after doing a Google search I am finding that certain sites are pointing towards it not being a good thing when on Anticoagulants. I’m on Apixiban,Bisoprolol and digoxin
Hi everyone, I was thinking of introducing milled flax seeds in to my diet as a health thing after watching a programme on them. However, after doing a Google search I am finding that certain sites are pointing towards it not being a good thing when on Anticoagulants. I’m on Apixiban,Bisoprolol and digoxin
Ailsablue
in
AF Association
1 year ago
exercise anxiety
I used to be a kean, regular runner and back in July 2020 I went running in extreme heat and didn’t feel as energised as normal and felt very lethargic and my heart rate showed readings of up to 208bpm and quite erratic. Again I just put this down to exhaustion. Anyway cutting a long story short, I felt
I used to be a kean, regular runner and back in July 2020 I went running in extreme heat and didn’t feel as energised as normal and felt very lethargic and my heart rate showed readings of up to 208bpm and quite erratic. Again I just put this down to exhaustion. Anyway cutting a long story short, I felt
Fondant
in
AF Association
1 year ago
Do you have persistent or long-standing AF?
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
Hidden
Partner
in
Arrhythmia Alliance
1 year ago
Finally captured AF - any athletes out there managing somehow?
This is what happened at the Brighton marathon. All went a bit Pete Tong and ended up in hospital with atrial fibrillation. I have had a couple of previous episodes over the last couple of years but uncaptured by an ECG. One of them, like this I suspect, triggered by being too cold, which I was at
This is what happened at the Brighton marathon. All went a bit Pete Tong and ended up in hospital with atrial fibrillation. I have had a couple of previous episodes over the last couple of years but uncaptured by an ECG. One of them, like this I suspect, triggered by being too cold, which I was at
Sixtyslidogirl
in
Atrial Fibrillation Support
1 year ago
Vaccines prior to Blood work
He has
CKD
stage 3B. Thank you for your input.
He has
CKD
stage 3B. Thank you for your input.
Hidden
in
Kidney Disease
2 years ago
Bioflex PMBT Device
Does anyone have any information or experience with the photobiomodulation (light delivered via low level laser) therapy device sold by the Bioflex Company located in Toronto, CA? Their claim is it energizes mitochondria, lowers inflammation, and promotes healing. Thanks - John G
Does anyone have any information or experience with the photobiomodulation (light delivered via low level laser) therapy device sold by the Bioflex Company located in Toronto, CA? Their claim is it energizes mitochondria, lowers inflammation, and promotes healing. Thanks - John G
reedboat2
in
Cure Parkinson's
1 year ago
PAIN PILLS
WHAT PAIN PILLS ARE OK WITH
CKD
? AFRAID TO TAKE ANYTHING
WHAT PAIN PILLS ARE OK WITH
CKD
? AFRAID TO TAKE ANYTHING
novemberlady1
in
Kidney Disease
2 years ago
Sleep Remedies?
Hello all The subject of sleep comes up regularly on this forum and, as yet, I'm not sure if I've heard of an effective remedy. I'm curently waking up between 3-4am and am very awake, like ready to start the day. Some days I've just got up and done things but by 10am or so I feel broken and horrible
Hello all The subject of sleep comes up regularly on this forum and, as yet, I'm not sure if I've heard of an effective remedy. I'm curently waking up between 3-4am and am very awake, like ready to start the day. Some days I've just got up and done things but by 10am or so I feel broken and horrible
Pickle500
in
Pernicious Anaemia Society
1 year ago
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