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Introducing myself. Have mostly lurked for a couple of months, but time to formally say I'm here and start asking my own questions.
Hello all, my name is Dave. I've just updated my profile with all medical info on my case. Hate that I need to be in this particular club, but glad there's such a great resource to learn from in the form of this forum. I'm stage IVB (cT3b, cN1, cM1b, PSA: 3.8, Grade Group: 4) - no hint of cancer until
Hello all, my name is Dave. I've just updated my profile with all medical info on my case. Hate that I need to be in this particular club, but glad there's such a great resource to learn from in the form of this forum. I'm stage IVB (cT3b, cN1, cM1b, PSA: 3.8, Grade Group: 4) - no hint of cancer until
Gl448
in
Advanced Prostate Cancer
2 years ago
PSMA scan
Insurance denied my test, again, even after showing, as requested, rising PSA post surgery (.64 at 90 days after RALP then .9 after another 4 weeks). Then when RO called them, 3 days in a row, they say they are having computer issues. Ugh. Wondering if I should be patient in the appeal or start the
Insurance denied my test, again, even after showing, as requested, rising PSA post surgery (.64 at 90 days after RALP then .9 after another 4 weeks). Then when RO called them, 3 days in a row, they say they are having computer issues. Ugh. Wondering if I should be patient in the appeal or start the
runtrails
in
Advanced Prostate Cancer
2 years ago
Dad has brain cancer, heart issues, and now PSA has increased. Concerned about medication complications..
Hello friends! It's been a long time since I've posted. It's hard to keep up with my dad's health on my end.. we've had so many close calls that his prostate cancer has felt like a bump on the head compared to all the rest of his concerns! So, to bring everyone up to speed as quickly as I can, dad
Hello friends! It's been a long time since I've posted. It's hard to keep up with my dad's health on my end.. we've had so many close calls that his prostate cancer has felt like a bump on the head compared to all the rest of his concerns! So, to bring everyone up to speed as quickly as I can, dad
Lynsi13
in
Advanced Prostate Cancer
2 years ago
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Restaging
MO tells us that there is no value in PSMA PET now. Her plan is to reimage CT chest, pelvis, abdomen, and repeat bone scan and compare to initial in May. All were negative then. MRI showed IV PCa and 2 inguinal nodes: started 30 days Casodex, now on second Eligard. Local pelvis and LN Rad to start
MO tells us that there is no value in PSMA PET now. Her plan is to reimage CT chest, pelvis, abdomen, and repeat bone scan and compare to initial in May. All were negative then. MRI showed IV PCa and 2 inguinal nodes: started 30 days Casodex, now on second Eligard. Local pelvis and LN Rad to start
warrior22
in
Advanced Prostate Cancer
2 years ago
lymph nodes
After prostate surgery 2007, radiation 2009 general area, PSA went up 4.6. Started on Lupron, hot flashes, very very tiredness, switched to Casodex. PSA went down back up and dow again, from .23 to .83 recently. Went in for nuclear scan, showed lymph nodes only area positive. What is the treatment now
After prostate surgery 2007, radiation 2009 general area, PSA went up 4.6. Started on Lupron, hot flashes, very very tiredness, switched to Casodex. PSA went down back up and dow again, from .23 to .83 recently. Went in for nuclear scan, showed lymph nodes only area positive. What is the treatment now
Papadave
in
Advanced Prostate Cancer
2 years ago
Confused on next step
OK, Cliff Notes Version: dx in 2009. Failed surgery/SRT. Have done GREAT using Casodex 2 weeks then Lupron + Casodex (50 mg/day), usually 9-12 months. Numerous HT vacations. 3 times scans found a very few ext. lymph node hot spots. Each time did a 3-month Lupron shot + Casodex + SBRT one month after
OK, Cliff Notes Version: dx in 2009. Failed surgery/SRT. Have done GREAT using Casodex 2 weeks then Lupron + Casodex (50 mg/day), usually 9-12 months. Numerous HT vacations. 3 times scans found a very few ext. lymph node hot spots. Each time did a 3-month Lupron shot + Casodex + SBRT one month after
compiler
in
Advanced Prostate Cancer
2 years ago
Vacation or Zytiga...Onco says Zytiga...
Overwhelmed and any input appreciated. Husband diagnosed Stage IV mets to Lymph nodes in May 2022. Did 28 days of Casodex then 3 months of Lupron received another injection last month. PSA now .02 and husband tried Zytiga in past month and went off due to High BP. Onco says no vacation because data
Overwhelmed and any input appreciated. Husband diagnosed Stage IV mets to Lymph nodes in May 2022. Did 28 days of Casodex then 3 months of Lupron received another injection last month. PSA now .02 and husband tried Zytiga in past month and went off due to High BP. Onco says no vacation because data
marinerswife
in
Advanced Prostate Cancer
2 years ago
Dad with new diagnosis of stage 4 prostate cancer
Hi everyone, I am so glad I have found this community. My dad is currently admitted to the hospital right now, we have just found out that he has metastatic disease in his lungs, lymph nodes in his abdomen and chest, and all throughout his bones. His PSA is 550! We are all currently reeling from whats
Hi everyone, I am so glad I have found this community. My dad is currently admitted to the hospital right now, we have just found out that he has metastatic disease in his lungs, lymph nodes in his abdomen and chest, and all throughout his bones. His PSA is 550! We are all currently reeling from whats
lvnbba
in
Advanced Prostate Cancer
2 years ago
not sure my Onco (or I)understood the Denmeade BAT paper.
Help. Not sure that my Onco understands BAT. This is a short summary of my treatments Jan 2019 to present. Dec 2018 PSA 176 Gleason 9. Casodex only one month (PSA 33) Lupron (PSA Nadir 0.76) Lupron + Zytiga, Orchiectomy + Zytiga (PSA Nadir with Zytiga = 2.74) Zytiga failed but continued
Help. Not sure that my Onco understands BAT. This is a short summary of my treatments Jan 2019 to present. Dec 2018 PSA 176 Gleason 9. Casodex only one month (PSA 33) Lupron (PSA Nadir 0.76) Lupron + Zytiga, Orchiectomy + Zytiga (PSA Nadir with Zytiga = 2.74) Zytiga failed but continued
Frigataflyer
in
Advanced Prostate Cancer
2 years ago
Rezvilutamide: new anti-androgen is better than Casodex added to ADT for newly diagnosed high-met HSPC. But is field too crowded?
Jiangsu Hengrui Medicine, a Chinese pharmaceutical manufacturer, published impressive results for its new drug Rezvilutamide. They randomized patients with 4 or more bone metastases to Rezvilutamide+ADT or Casodex+ADT. It increased 2-year radiographic progression-free survival by 56% and 2-year overall
Jiangsu Hengrui Medicine, a Chinese pharmaceutical manufacturer, published impressive results for its new drug Rezvilutamide. They randomized patients with 4 or more bone metastases to Rezvilutamide+ADT or Casodex+ADT. It increased 2-year radiographic progression-free survival by 56% and 2-year overall
Tall_Allen
in
Advanced Prostate Cancer
2 years ago
SOC options have run out, PSMA negative, declining health - what's next?
My husband was diagnosed with high grade prostate cancer in 4/06 Gleason 4+3=7 in 12/12 cores with 90 to 100% involvement of the tissue cores. His original clinical staging was T2c versus T3. PSA at that time was 6.4. -First treatment was brachytherapy and IMRT. Undetectable PSA never reached. -Recurrance
My husband was diagnosed with high grade prostate cancer in 4/06 Gleason 4+3=7 in 12/12 cores with 90 to 100% involvement of the tissue cores. His original clinical staging was T2c versus T3. PSA at that time was 6.4. -First treatment was brachytherapy and IMRT. Undetectable PSA never reached. -Recurrance
Hidden
in
Advanced Prostate Cancer
2 years ago
tingling/numb fingers
After 18 months with daily 50mg bicalutamide mono therapy have tingling/numbness in pinky and ring finger of left hand. PSA remains below 0.1. Fingers work fine. It’s just irritating not debilitating. I read tingling is a listed Casodex side effect. Very reluctant to stop use because PSA remains very
After 18 months with daily 50mg bicalutamide mono therapy have tingling/numbness in pinky and ring finger of left hand. PSA remains below 0.1. Fingers work fine. It’s just irritating not debilitating. I read tingling is a listed Casodex side effect. Very reluctant to stop use because PSA remains very
kreg001
in
Advanced Prostate Cancer
2 years ago
Casodex 50mg
My husband is starting treatment again as his latest ct scan shows 2 positive pelvic lymph nodes, negative bone scan. He has started treatment and has been on Casodex for a month and had his first zolodex injection two days ago. Before the injection he started getting a rash on his neck today it
My husband is starting treatment again as his latest ct scan shows 2 positive pelvic lymph nodes, negative bone scan. He has started treatment and has been on Casodex for a month and had his first zolodex injection two days ago. Before the injection he started getting a rash on his neck today it
Knittingque
in
Advanced Prostate Cancer
2 years ago
DOES MEDICARE COVER DEXA SCANS FOR MEN WITH PROSTATE CANCER
I have been on Casodex and Eligard since June 2022. My PSA was still high after RALP so I had a GA-68 PSMA PET Scan done which revealed one 11mm tumor in the Left pelvic Lymph Nodes and one 7mm Tumor in the Right pelvic Lymph Nodes. Those were the only 2 hot spots in my body. My Dr. scheduled me for
I have been on Casodex and Eligard since June 2022. My PSA was still high after RALP so I had a GA-68 PSMA PET Scan done which revealed one 11mm tumor in the Left pelvic Lymph Nodes and one 7mm Tumor in the Right pelvic Lymph Nodes. Those were the only 2 hot spots in my body. My Dr. scheduled me for
GMan-62
in
Advanced Prostate Cancer
2 years ago
Continue Casodex or move to Lupron?
Hi guys, All the details are in my profile but the thumbnail is - RP 3 1/2 years ago with persistent PSA thus radiation and Lupron for a year. One year off, rising PSA at 1.6. Opted for monotherapy Casodex 50 mg. Two months later, PSA dropped to 0.5 so we stayed with it for another 6 months whereupon
Hi guys, All the details are in my profile but the thumbnail is - RP 3 1/2 years ago with persistent PSA thus radiation and Lupron for a year. One year off, rising PSA at 1.6. Opted for monotherapy Casodex 50 mg. Two months later, PSA dropped to 0.5 so we stayed with it for another 6 months whereupon
Bruce66
in
Advanced Prostate Cancer
2 years ago
New to the site and diagnosis
SUPER fit 66 year old. Only symptom was slow urine for past couple of years ( assumed due to age ). Take NO meds and have NO medical conditions. Went to for testosterone pellet for better daily gym weight lifting and running and had a PSA of 100. WTH? Then the journey started. MRI showed Pca and
SUPER fit 66 year old. Only symptom was slow urine for past couple of years ( assumed due to age ). Take NO meds and have NO medical conditions. Went to for testosterone pellet for better daily gym weight lifting and running and had a PSA of 100. WTH? Then the journey started. MRI showed Pca and
Hidden
in
Advanced Prostate Cancer
2 years ago
Between a rock and another rock...
Was just told by my uro-onc that Casodex is about to kill me by shutting down my liver, based on 3 liver enzyme readings (ALT=177; AST=144; ALK.PH.=482). If I stop taking it, PCa will kill me. Right now, PSA is undetectable. Casodex monotherapy has worked for 4 yrs, but now I have very little choice
Was just told by my uro-onc that Casodex is about to kill me by shutting down my liver, based on 3 liver enzyme readings (ALT=177; AST=144; ALK.PH.=482). If I stop taking it, PCa will kill me. Right now, PSA is undetectable. Casodex monotherapy has worked for 4 yrs, but now I have very little choice
JPOM
in
Advanced Prostate Cancer
2 years ago
T and PSA basically undetectable. Is adding testosterone or having a colonoscopy 3 years post treatment a good or bad idea for the elderly?
Cancer in late 2019 was G9 with no indication of escaping the capsule. PSA was <10. Treatment initially casodex followed by one session high dose brachy, 25 sessions IMRT and 18 months Lupron. Currently PSA undetectable and T still <2.5. Pushing through a regular exercise routine but have no energy
Cancer in late 2019 was G9 with no indication of escaping the capsule. PSA was <10. Treatment initially casodex followed by one session high dose brachy, 25 sessions IMRT and 18 months Lupron. Currently PSA undetectable and T still <2.5. Pushing through a regular exercise routine but have no energy
VN6465
in
Prostate Cancer Network
2 years ago
Treatment Options for Gynecomastia
I have been on Lupron/Eligard since November 2018 with a nine month and a one year break. Gynecomastia (breast enlargement) has not been a serious problem until now. During the last six months gynecomastia getting worse even during ADT break. I just restarted my Lupron shot a week ago. I have also been
I have been on Lupron/Eligard since November 2018 with a nine month and a one year break. Gynecomastia (breast enlargement) has not been a serious problem until now. During the last six months gynecomastia getting worse even during ADT break. I just restarted my Lupron shot a week ago. I have also been
dac500
in
Advanced Prostate Cancer
2 years ago
Update w/ Questions: Tumor growth w/o PSA rise; Chemo Round 2, Cabazitaxel This Time
Hi Everyone, It has been a looong time since I posted, missed you guys. Sorry this is long, I am confused and a little scared. Quick recap: diagnosed in 2010 at age 44, got robotic RP, then eventually radiation, then chemo (taxotere/docetaxel) and adt (Lupron) in 2016. My psa stayed slow growing for
Hi Everyone, It has been a looong time since I posted, missed you guys. Sorry this is long, I am confused and a little scared. Quick recap: diagnosed in 2010 at age 44, got robotic RP, then eventually radiation, then chemo (taxotere/docetaxel) and adt (Lupron) in 2016. My psa stayed slow growing for
BillNIttles
in
Advanced Prostate Cancer
2 years ago
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