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Rising PSA
Year 7… No prostate. Clear everything in 2017 … but 6 months after surgery rising PSA. Casodex/Lupron/39 Rounds Radiation. Presently on Lupron/Nubeqa PSA rising PSMA Scan Clear CT scan with Contrast today plus Fractionated Blood Biopsy. PSA 10.8 Waiting on CT results but Dr. Aggarwal wants
Year 7… No prostate. Clear everything in 2017 … but 6 months after surgery rising PSA. Casodex/Lupron/39 Rounds Radiation. Presently on Lupron/Nubeqa PSA rising PSMA Scan Clear CT scan with Contrast today plus Fractionated Blood Biopsy. PSA 10.8 Waiting on CT results but Dr. Aggarwal wants
JolleySprings
in
Advanced Prostate Cancer
5 months ago
Battling two cancers on two fronts, simultaneously
Has anyone fought PCa and NEPc simultaneously? I have had PCa-classic since 2011. After lupron/lusinipril for years, I began Casodex . Bad reaction, switched to Zytiga. That affected my liver enzymes, so on to Xtandi. It worked well. So, this last August a lump was found under my jaw at the lymph node
Has anyone fought PCa and NEPc simultaneously? I have had PCa-classic since 2011. After lupron/lusinipril for years, I began Casodex . Bad reaction, switched to Zytiga. That affected my liver enzymes, so on to Xtandi. It worked well. So, this last August a lump was found under my jaw at the lymph node
CharlieBC
in
Advanced Prostate Cancer
5 months ago
Orgovyx + Abiaterone?
I have very high risk prostate cancer (Gleason 9, negative PSMA for spread, MRI suggests possible spread to seminal vessel, PSA in 7s before treatment). Due to cardiac history (stroke and heart attack) MO is being cautious and has started dosing Eligard at 1 Month intervals to make sure I am doing ok
I have very high risk prostate cancer (Gleason 9, negative PSMA for spread, MRI suggests possible spread to seminal vessel, PSA in 7s before treatment). Due to cardiac history (stroke and heart attack) MO is being cautious and has started dosing Eligard at 1 Month intervals to make sure I am doing ok
Hope49823
in
Advanced Prostate Cancer
6 months ago
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New Developments in My Husband's PCA Journey
Hello, I wanted to provide an update on my husband's progression and, hopefully, some of you may have some knowledge to share or have a similar profile. His psa has risen from <0.04 since RP for Stage 3b to 0.06 in 9/23. A recheck a week later showed a rise to 0.1. This was followed by a drop to <.04
Hello, I wanted to provide an update on my husband's progression and, hopefully, some of you may have some knowledge to share or have a similar profile. His psa has risen from <0.04 since RP for Stage 3b to 0.06 in 9/23. A recheck a week later showed a rise to 0.1. This was followed by a drop to <.04
103532
in
Advanced Prostate Cancer
6 months ago
My PSA tripled in 8 months
I had my RP in Jan 31, 2023, started hormonal therapy from April 17 with Diphereline every 28 days plus one Casodex daily. My PSA went down to 0.005 from May to November. Yesterday I had my blood test again and the report indicated my PSA has jumped to 0.159. I am panic. Can you explain what does
I had my RP in Jan 31, 2023, started hormonal therapy from April 17 with Diphereline every 28 days plus one Casodex daily. My PSA went down to 0.005 from May to November. Yesterday I had my blood test again and the report indicated my PSA has jumped to 0.159. I am panic. Can you explain what does
Formosan
in
Advanced Prostate Cancer
7 months ago
Several Peeing Wake Ups Nightly
Hi all - hoping for some breakthrough I haven't read yet ;) Recall I am 50yr old - PCA, Gleason 9 - casodex to start, now triplet (2nd session of 6) I am not getting the rest needed to fight this beast nor to function properly. I am waking several times each and every night to pee. I am on Flomax
Hi all - hoping for some breakthrough I haven't read yet ;) Recall I am 50yr old - PCA, Gleason 9 - casodex to start, now triplet (2nd session of 6) I am not getting the rest needed to fight this beast nor to function properly. I am waking several times each and every night to pee. I am on Flomax
Yzinger
in
Advanced Prostate Cancer
7 months ago
PSA analysis 6 months after radiation
In January I will be 6 months post radiation to the prostrate and complete pelvic area. I was on Lupron for 6 months - 1 month prior and 5 months post radiation. I also was on Casodex for one month prior to the start of Lupron to lessen the flare. At 3 months post radiation PSA and Testosterone were
In January I will be 6 months post radiation to the prostrate and complete pelvic area. I was on Lupron for 6 months - 1 month prior and 5 months post radiation. I also was on Casodex for one month prior to the start of Lupron to lessen the flare. At 3 months post radiation PSA and Testosterone were
Mgtd
in
Advanced Prostate Cancer
7 months ago
Treatment options
Hi- I have posted a few times about my brother who was diagnosed in March 2021. For 18 months he did really well on Abiterone. His PSA went from his initial diagnosis of 52 to under 0.03 for several months. He has Kaiser HMO and unfortunately his oncologist retired at the time his PSA starting trending
Hi- I have posted a few times about my brother who was diagnosed in March 2021. For 18 months he did really well on Abiterone. His PSA went from his initial diagnosis of 52 to under 0.03 for several months. He has Kaiser HMO and unfortunately his oncologist retired at the time his PSA starting trending
TerryR123
in
Advanced Prostate Cancer
8 months ago
History of my cancer becoming castrate resistant
Thinking that some people might be interested to know how my metastatic cancer became castrate resistant I posting a brief history. When on Lupron break, my PSA reached 1.1 on June 1, 2022. I had a CT scan which found a new lymph node enlargement [Retrocaval lymph node measures 0.5 x 1.1 cm (series
Thinking that some people might be interested to know how my metastatic cancer became castrate resistant I posting a brief history. When on Lupron break, my PSA reached 1.1 on June 1, 2022. I had a CT scan which found a new lymph node enlargement [Retrocaval lymph node measures 0.5 x 1.1 cm (series
dac500
in
Advanced Prostate Cancer
8 months ago
Side effects experienced once you add Zytiga to Orgovyx
My husband, age 73, is diagnosed with very high risk prostate cancer, Gleason 9, PSA 46.6 and being treated ay Mayo, Phoenix. He is almost done with 28 Proton Radiation treatments, was on Casodex a few weeks then started Orgovyx.( at least two years recommended) He is considering adding Zytiga. He
My husband, age 73, is diagnosed with very high risk prostate cancer, Gleason 9, PSA 46.6 and being treated ay Mayo, Phoenix. He is almost done with 28 Proton Radiation treatments, was on Casodex a few weeks then started Orgovyx.( at least two years recommended) He is considering adding Zytiga. He
CancerConcierge
in
Advanced Prostate Cancer
8 months ago
Thunking of getting an orchiectomy insted od radiation
Has anyone had an orchiectomy and if so how were your side effects and how is your life after the Big O.I'm scheduled to start Full Pelvic Radiation in 6 weeks but fear the long term side effects. I asked if anyone here had FPR and if so what were their side effects and life like since then. Thanks for
Has anyone had an orchiectomy and if so how were your side effects and how is your life after the Big O.I'm scheduled to start Full Pelvic Radiation in 6 weeks but fear the long term side effects. I asked if anyone here had FPR and if so what were their side effects and life like since then. Thanks for
woppaginny
in
Advanced Prostate Cancer
9 months ago
Just joined the club no one wants to be a member of in April 2023 - can Gleason 9 be cured ?
Doc says that our goal is a cure despite the fact that I am a Gleason 9 with Decipher score of 1 , the highest for metatastic spread. (PSMA PET was negative.) The highest my PSA has ever been was 5.48 in December 2022 and it dropped to .09 with Testosterone of 14 in August two months after a shot of
Doc says that our goal is a cure despite the fact that I am a Gleason 9 with Decipher score of 1 , the highest for metatastic spread. (PSMA PET was negative.) The highest my PSA has ever been was 5.48 in December 2022 and it dropped to .09 with Testosterone of 14 in August two months after a shot of
68Guitar
in
Advanced Prostate Cancer
9 months ago
My story of my 23 year battle with Pca.
I have decided to share this with the group because yesterday a guy shared his fear. In no way should you take any of this as a suggestion for treatment or refusal of treatment. I was diagnosed with Pca Gleason 3+3 July 13 2000 ar the age of 49. When the Dr. gave me the results I started sweating profusely
I have decided to share this with the group because yesterday a guy shared his fear. In no way should you take any of this as a suggestion for treatment or refusal of treatment. I was diagnosed with Pca Gleason 3+3 July 13 2000 ar the age of 49. When the Dr. gave me the results I started sweating profusely
Professorgary
in
Advanced Prostate Cancer
9 months ago
Update on PSA
Aug 4 - diagnosed PCa, gleason 9 Aug 5 - started casodex Aug 17 - started lupron 3 mth Had my first blood work done yesterday (Oct 5) and PSA is now at 0.56. Was over 9 in June. So, I kind of feel good in knowing that as expected the meds are working and lowering PSA. Meaning I can move forward
Aug 4 - diagnosed PCa, gleason 9 Aug 5 - started casodex Aug 17 - started lupron 3 mth Had my first blood work done yesterday (Oct 5) and PSA is now at 0.56. Was over 9 in June. So, I kind of feel good in knowing that as expected the meds are working and lowering PSA. Meaning I can move forward
Yzinger
in
Advanced Prostate Cancer
9 months ago
Research Trial
My father was involved in a research trial almost 10 years ago. He was commenced on both injection and oral Casodex . A part of the trial he There are links with early stage dementia and cognitive issues with Casodex. He had to discontinue same as he became psychotic. He was never the same man again.I
My father was involved in a research trial almost 10 years ago. He was commenced on both injection and oral Casodex . A part of the trial he There are links with early stage dementia and cognitive issues with Casodex. He had to discontinue same as he became psychotic. He was never the same man again.I
missdiaz
in
Advanced Prostate Cancer
10 months ago
Now my cancer is now under control, my wife no longer wants to be with me.
I was diagnosed with stage IV prostate cancer, bladder and pelvis in late 2019. I went straight on Casodex and 2 years of Eligard shots. 9 rounds of Docetaxel, kidney stents and VMAT radiation therapy. Following my last PET scan, no new growth was evident and my PSA has been under 1.0 for the last
I was diagnosed with stage IV prostate cancer, bladder and pelvis in late 2019. I went straight on Casodex and 2 years of Eligard shots. 9 rounds of Docetaxel, kidney stents and VMAT radiation therapy. Following my last PET scan, no new growth was evident and my PSA has been under 1.0 for the last
Doseydoe
in
Advanced Prostate Cancer
10 months ago
Little Update
Hi all - latest CT scan showed organs were clear which is good. My mets though have increased in size and there is also a new one. 3 in total that are seen. 2 on L5, 1 on pubic bone I think it is called. Doctor thought that isn't too surprising as I am only about 40days into treatment. Did Casodex
Hi all - latest CT scan showed organs were clear which is good. My mets though have increased in size and there is also a new one. 3 in total that are seen. 2 on L5, 1 on pubic bone I think it is called. Doctor thought that isn't too surprising as I am only about 40days into treatment. Did Casodex
Yzinger
in
Advanced Prostate Cancer
10 months ago
73, RP 2021, BCR peaked PSA 2.2 2023, scrambling
Hello writing you as you are very active, knowledgeable and experienced. Just respond if you like- PSMA 4/18 showed T10 lesion and right iliac lesion, low volume. MRI 5/28 confirmed, plus showed some probable spots lower left sacrum. Rad oncs I went to deferred to med oncs for systemic treatment
Hello writing you as you are very active, knowledgeable and experienced. Just respond if you like- PSMA 4/18 showed T10 lesion and right iliac lesion, low volume. MRI 5/28 confirmed, plus showed some probable spots lower left sacrum. Rad oncs I went to deferred to med oncs for systemic treatment
jackwfrench
in
Advanced Prostate Cancer
10 months ago
11 days after 1st Lupron jab-no side effects
It's been 11 days since my first Lupron jab, (1-month dosage) and I am not feeling a single side effect. Not only that, I didn't feel the injection in my hip, nor any soreness afterwards. Nothing. No Casodex. No flare. When I went for the jab my PSA was 10.6 and my T-level was 354. I'm wondering if
It's been 11 days since my first Lupron jab, (1-month dosage) and I am not feeling a single side effect. Not only that, I didn't feel the injection in my hip, nor any soreness afterwards. Nothing. No Casodex. No flare. When I went for the jab my PSA was 10.6 and my T-level was 354. I'm wondering if
Hidden
in
Advanced Prostate Cancer
10 months ago
confused
I was diagnosed with pc in 2020. Psa was 4.5 and Gleason 9 disease. MRI said no worrisome bone signalling whatever that means. Had surgery but psa persisted at 1.7. Path. Report showed regional spread but 3 lymph nones removed were clear. Eligard shot, Casodex for a month and 33 EBRT treatments
I was diagnosed with pc in 2020. Psa was 4.5 and Gleason 9 disease. MRI said no worrisome bone signalling whatever that means. Had surgery but psa persisted at 1.7. Path. Report showed regional spread but 3 lymph nones removed were clear. Eligard shot, Casodex for a month and 33 EBRT treatments
Izzysdad
in
Advanced Prostate Cancer
10 months ago
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