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Shortness of breath and pounding heart?
Hi, for the last week or so I have been feeling extremely short of breath both at rest, but is exacerbated by exercise. My heart is also constantly pounding, its not beating any faster than usual but it just feels like its working a lot harder and I can hear it at all times of the day, and also feel
Hi, for the last week or so I have been feeling extremely short of breath both at rest, but is exacerbated by exercise. My heart is also constantly pounding, its not beating any faster than usual but it just feels like its working a lot harder and I can hear it at all times of the day, and also feel
sarah4856
in
Anxiety Support
3 years ago
Dronederone
Hi all Two months ago I was prescribed 400mg Dronederone twice daily to slow down the frequency of AF episodes and also their duration. These were coupled with 5mg Bisoprolol and my usual Apixiban. Sunday evening at 7pm an episode started and as I write Tuesday 11am still ongoing. So it would seem this
Hi all Two months ago I was prescribed 400mg Dronederone twice daily to slow down the frequency of AF episodes and also their duration. These were coupled with 5mg Bisoprolol and my usual Apixiban. Sunday evening at 7pm an episode started and as I write Tuesday 11am still ongoing. So it would seem this
Kia62
in
AF Association
3 years ago
Any Knowledge of CLL in the eyes?
A biopsy confirmed a diagnosis of CLL in both lower eyelids. This is a rare event. Neither my hematologist-oncologist or CLL Specialist have ever had a patient with it. They tell me that acalabrutinib, which I'll start next week, is sufficient treatment. From what I've read, I'm still uncomfortable
A biopsy confirmed a diagnosis of CLL in both lower eyelids. This is a rare event. Neither my hematologist-oncologist or CLL Specialist have ever had a patient with it. They tell me that acalabrutinib, which I'll start next week, is sufficient treatment. From what I've read, I'm still uncomfortable
cll2013
in
CLL Support
3 years ago
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Beta HCG doubling time was 1.7 days in week 4 but it increased to 2.5 days in 5th week
Beta HCG doubling time was 1.7 days in week 4 but it increased to 2.5 days in 5th week, today is day 19 post 5dt and observed spotting for 2mins. Hcg @ day 11-118 Day 14- 391 Day 19- 1604 Is it ok.. This one is my 6th IVF cycle. And 1st time I reached to this level. Is it ok or sth went wrong
Beta HCG doubling time was 1.7 days in week 4 but it increased to 2.5 days in 5th week, today is day 19 post 5dt and observed spotting for 2mins. Hcg @ day 11-118 Day 14- 391 Day 19- 1604 Is it ok.. This one is my 6th IVF cycle. And 1st time I reached to this level. Is it ok or sth went wrong
Priyasharma
in
Fertility Network UK
3 years ago
Side Effects of Bendamustine?
I am asking for a friend who has follicular lymphoma and has been W&W for nine years. They start Rituxan and Bendamustine next week. With all the treatment I have had, I have never had this one, so I am wondering if you could share what your experiences were. Thanks much.
I am asking for a friend who has follicular lymphoma and has been W&W for nine years. They start Rituxan and Bendamustine next week. With all the treatment I have had, I have never had this one, so I am wondering if you could share what your experiences were. Thanks much.
KevinCLLITP
in
CLL Support
3 years ago
immunohistochemistry need help understanding
I am seeing my doctor on Tuesday but was able to get some results online from my bone marrow biopsy - Additional tests ordered: Cytogenetics and FISH (CLL panel) Can someone help me understand the findings below - thank you Marker Result Description CD20 Positive Pan B Cell Antigen (L26) CD3 T-cells
I am seeing my doctor on Tuesday but was able to get some results online from my bone marrow biopsy - Additional tests ordered: Cytogenetics and FISH (CLL panel) Can someone help me understand the findings below - thank you Marker Result Description CD20 Positive Pan B Cell Antigen (L26) CD3 T-cells
kp58ny
in
CLL Support
3 years ago
Cost for treatment
Hi everyone, i am hoping you can help. My dad was diagnosed with CLL about a month ago. He just received his information package in the mail from the specialist which indicated that he requires insurance to cover any medical expenses. We are from Ontario Canada so wondering what the cost is for the
Hi everyone, i am hoping you can help. My dad was diagnosed with CLL about a month ago. He just received his information package in the mail from the specialist which indicated that he requires insurance to cover any medical expenses. We are from Ontario Canada so wondering what the cost is for the
Rubymom
in
CLL Support
3 years ago
Just joined
Hi, I am about to start treatment with acalabrutinib for my cll, I was originally told I would be treated with venetoclax and Obinutuzumab but I also receive treatment for my bladder cancer so my consultant said I wouldn’t be able to receive the v+o while also receiving the BCG for bladder cancer. I
Hi, I am about to start treatment with acalabrutinib for my cll, I was originally told I would be treated with venetoclax and Obinutuzumab but I also receive treatment for my bladder cancer so my consultant said I wouldn’t be able to receive the v+o while also receiving the BCG for bladder cancer. I
Mtk1
in
CLL Support
3 years ago
World CLL Day
Good morning, 1st September, where is the year going. Getting used to it being dull now, longing for some sun. Blood tests this morning and then possibly a journalist in conjunction with Leukaemia Care calling to do an interview for Spot Leukaemia Early campaign month. Have already made a video which
Good morning, 1st September, where is the year going. Getting used to it being dull now, longing for some sun. Blood tests this morning and then possibly a journalist in conjunction with Leukaemia Care calling to do an interview for Spot Leukaemia Early campaign month. Have already made a video which
kitchengardener2
in
CLL Support
3 years ago
Red painful Feet
I have been on WOW for 6 years now with blood results relatively OK. However for last 2 years I have painful feet, soles and side and base of toe. Feet do not like heat. Cycles of socks on; to heat feet and socks off: to stop pain and red/purple colour. GP suggested fungus or venous leaking or dermititis
I have been on WOW for 6 years now with blood results relatively OK. However for last 2 years I have painful feet, soles and side and base of toe. Feet do not like heat. Cycles of socks on; to heat feet and socks off: to stop pain and red/purple colour. GP suggested fungus or venous leaking or dermititis
Marchmouse
in
CLL Support
3 years ago
Frontline treatment of Chronic Lymphocytic Leukemia (CLL/SLL) in 2021
JCO Oncology Practice has recently published two important papers: a clinical review article by Elizabeth A Brem MD and Susan O'Brien MD and a commentary by Nitin Jain MD which outline the current frontline therapies for CLL. Nitin Jain's excellent summary, titled '
[i]Evolving Treatment Paradigm
JCO Oncology Practice has recently published two important papers: a clinical review article by Elizabeth A Brem MD and Susan O'Brien MD and a commentary by Nitin Jain MD which outline the current frontline therapies for CLL. Nitin Jain's excellent summary, titled '
[i]Evolving Treatment Paradigm
CLLerinOz
Administrator
in
CLL Support
3 years ago
Leukemia and Lymphoma Society 3 D models help improve our understanding of Chronic Lymphocytic Leukemia (CLL/SLL)
The Leukemia and Lymphoma Society of the USA https://www.lls.org (well worth joining - it's free) has recently released 3D/animated models to help us better visualise how blood cancers impact on our health. The following links are to annotated models of specific interest to those of us with CLL/SLL
The Leukemia and Lymphoma Society of the USA https://www.lls.org (well worth joining - it's free) has recently released 3D/animated models to help us better visualise how blood cancers impact on our health. The following links are to annotated models of specific interest to those of us with CLL/SLL
AussieNeil
Partner
in
CLL Support
3 years ago
Where does CLL apoptosis take place?
After watching the video (Living With Chronic Lymphocytic Leukemia) I’m curious as to where the CLL cells death (apoptosis) takes place? In the blood? In the marrow? In the lymph nodes? In the spleen? All of the above? The part of the video (below*) is what got me thinking about this. “Dr. Vose: Bruton's
After watching the video (Living With Chronic Lymphocytic Leukemia) I’m curious as to where the CLL cells death (apoptosis) takes place? In the blood? In the marrow? In the lymph nodes? In the spleen? All of the above? The part of the video (below*) is what got me thinking about this. “Dr. Vose: Bruton's
Lavinia-Blue
in
CLL Support
3 years ago
Tested early but deep down I know it’s over !
Gutted!! I know this comes ups all the time but I tested early at 6dp5dt and got a negative. I know it’s early and my advice to others is to not to loss hope just yet but it’s so difficult isn’t it. I kind want some reassurance that I’m not out but at the same time deep down I know it’s unlikely now.
Gutted!! I know this comes ups all the time but I tested early at 6dp5dt and got a negative. I know it’s early and my advice to others is to not to loss hope just yet but it’s so difficult isn’t it. I kind want some reassurance that I’m not out but at the same time deep down I know it’s unlikely now.
Coles2020
in
Fertility Network UK
3 years ago
HLH & CLL
Hi All, CLL diagnosed in 2014 and HLH on top of that in 2018. HLH makes CLL look like a cold it's nasty and I thank God for every day that I'm still here and as of yet not needed a transplant. I'm now 43 years of age. Is anyone out there in the same boat? Have a great weekend all! 😊
Hi All, CLL diagnosed in 2014 and HLH on top of that in 2018. HLH makes CLL look like a cold it's nasty and I thank God for every day that I'm still here and as of yet not needed a transplant. I'm now 43 years of age. Is anyone out there in the same boat? Have a great weekend all! 😊
Shirty78
in
CLL Support
3 years ago
New Diagnosis - Everything Normal except cytology
Just diagnosed this month, age 49. My lymphocytes are elevated and my cytology shows “atypical” CLL. All my other labs were good and I am mutated with normal FISH results. My doc says this is all good but I feel like I’m waiting for the other shoe to drop. Like someone is going to come to me and say,
Just diagnosed this month, age 49. My lymphocytes are elevated and my cytology shows “atypical” CLL. All my other labs were good and I am mutated with normal FISH results. My doc says this is all good but I feel like I’m waiting for the other shoe to drop. Like someone is going to come to me and say,
Keggs2020
in
CLL Support
3 years ago
Low hcg help please
Hi everyone; My story is i had my period on the 13th of september, then on the 8th of october i thought i was having another period and had had a negative blood test 2 days before. Then on the 16th i started spotting, took a pregnancy test and it was faint. Went to the doctors, they immediately did
Hi everyone; My story is i had my period on the 13th of september, then on the 8th of october i thought i was having another period and had had a negative blood test 2 days before. Then on the 16th i started spotting, took a pregnancy test and it was faint. Went to the doctors, they immediately did
Rebecca7327
in
Baby and Us
3 years ago
Low hcg levels, unsure
Hi everyone; My story is i had my period on the 13th of september, then on the 8th of october i thought i was having another period and had had a negative blood test 2 days before. Then on the 16th i started spotting, took a pregnancy test and it was faint. Went to the doctors, they immediately did a
Hi everyone; My story is i had my period on the 13th of september, then on the 8th of october i thought i was having another period and had had a negative blood test 2 days before. Then on the 16th i started spotting, took a pregnancy test and it was faint. Went to the doctors, they immediately did a
Rebecca7327
in
Fertility, Miscarriage & IVF Support
3 years ago
HCG levels, first pregnancy.
Hi everyone; My story is i had my period on the 13th of september, then on the 8th of october i thought i was having another period and had had a negative blood test 2 days before. Then on the 16th i started spotting, took a pregnancy test and it was faint. Went to the doctors, they immediately did
Hi everyone; My story is i had my period on the 13th of september, then on the 8th of october i thought i was having another period and had had a negative blood test 2 days before. Then on the 16th i started spotting, took a pregnancy test and it was faint. Went to the doctors, they immediately did
Rebecca7327
in
Fertility Network UK
3 years ago
LIOTHYRONINE SODIUM (Generic) by Sigma Pharm (T3) contains Mannitol - What?
Hi all, I've started using T3 and I got the 5mcg pills from Sigma Pharm. I've just looked up what's in them and found that they contain mannitol. So I've googled mannitol and not found anything that goes to explaining why it should be in my T3 pills. I'm a bit freaked out at some of the uses listed
Hi all, I've started using T3 and I got the 5mcg pills from Sigma Pharm. I've just looked up what's in them and found that they contain mannitol. So I've googled mannitol and not found anything that goes to explaining why it should be in my T3 pills. I'm a bit freaked out at some of the uses listed
June25
in
Thyroid UK
3 years ago
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