Experiences with

Chronic leukaemia

WARNING: PICTURE OF BLOOD I was supposed to have a period on December 3rd, but ended up starting on November 25th. My husband and I have sex on the 3rd, 5th, 8th, 11th, and 20th. My period was predicted to start on the 23rd but didn’t, so on the 25th I took a clear blue digital test and it was pregnant

A biopsy confirmed a diagnosis of CLL in both lower eyelids. This is a rare event. Neither my hematologist-oncologist or CLL Specialist have ever had a patient with it. They tell me that acalabrutinib, which I'll start next week, is sufficient treatment. From what I've read, I'm still uncomfortable

Hi. I'm have CKD stage 4, possibly 5. My gfr is 13. I'm on the national renal transplant list for a donated kidney. I have opted for peritoneal dialysis when it gets to gfr 9. I get restless legs in bed & sometimes when I'm sitting watching the TV at night. I've put some weights on my legs at night which

So after my bleed on Friday evening , I have not had any blood since .. I wore a pad all yesterday and today expecting to start bleeding again … but nothing . Is this a good sign ? Iv had no cramping either … I finally got a 3+ weeks on a clear blue digital on the Friday morning and after my bleed

I am asking for a friend who has follicular lymphoma and has been W&W for nine years. They start Rituxan and Bendamustine next week. With all the treatment I have had, I have never had this one, so I am wondering if you could share what your experiences were. Thanks much.

I am seeing my doctor on Tuesday but was able to get some results online from my bone marrow biopsy - Additional tests ordered: Cytogenetics and FISH (CLL panel) Can someone help me understand the findings below - thank you Marker Result Description CD20 Positive Pan B Cell Antigen (L26) CD3 T-cells

Hi everyone, i am hoping you can help. My dad was diagnosed with CLL about a month ago. He just received his information package in the mail from the specialist which indicated that he requires insurance to cover any medical expenses. We are from Ontario Canada so wondering what the cost is for the

Hi, I am about to start treatment with acalabrutinib for my cll, I was originally told I would be treated with venetoclax and Obinutuzumab but I also receive treatment for my bladder cancer so my consultant said I wouldn’t be able to receive the v+o while also receiving the BCG for bladder cancer. I

Good morning, 1st September, where is the year going. Getting used to it being dull now, longing for some sun. Blood tests this morning and then possibly a journalist in conjunction with Leukaemia Care calling to do an interview for Spot Leukaemia Early campaign month. Have already made a video which

I have been on WOW for 6 years now with blood results relatively OK. However for last 2 years I have painful feet, soles and side and base of toe. Feet do not like heat. Cycles of socks on; to heat feet and socks off: to stop pain and red/purple colour. GP suggested fungus or venous leaking or dermititis

An association between low T3 and cardiac disorders. They appear to very responsibly avoid unwarranted conclusions - which came first? - but at least the question is being asked. [i] • Open Access • Published: 08 November 2021 Low triiodothyronine levels correlate with high B-type natriuretic

So I got my letter from Haematology today about the 3rd primary covid vaccine. Moment of excitement, then read through frantically trying to find MPNs or PV on the list of eligible criteria. It wasn't there. Re-read the three page letter a little more frantically and finally found the word hydroxycarbamide

JCO Oncology Practice has recently published two important papers: a clinical review article by Elizabeth A Brem MD and Susan O'Brien MD and a commentary by Nitin Jain MD which outline the current frontline therapies for CLL. Nitin Jain's excellent summary, titled '[i]Evolving Treatment Paradigm

Hi, looking for any advice really. Been ttc for 6 years now and this is our fourth ivf cycle. Previous cycle was our first ever bfp but ended in a MMC at 6 weeks in September. We had an FET on the 2nd December and were excited but cautious to see our second BFP. Fast forward to Saturday just gone and

I had Fet on 14th oct and on 5th nov I miscarriage after BFP and gud beta HCG value, it was my 6th IVF cycle and 6th Fet, now I have 2frozen embreyo, shd I go for transfer in subsequent cycle after miscarriage. My clinic is ready for Fet in this cycle only. Please advise.

The Leukemia and Lymphoma Society of the USA https://www.lls.org (well worth joining - it's free) has recently released 3D/animated models to help us better visualise how blood cancers impact on our health. The following links are to annotated models of specific interest to those of us with CLL/SLL

I have been taking Turmeric Shots for sometime and found them a tremendous benefit in easing the inflammation for my OA. However in March I started taking Ruxolitinib and Pharmacy at Guys said I must stop taking the Turmeric. I'm gutted. I stopped about a month ago and the pain has returned big time

After watching the video (Living With Chronic Lymphocytic Leukemia) I’m curious as to where the CLL cells death (apoptosis) takes place? In the blood? In the marrow? In the lymph nodes? In the spleen? All of the above? The part of the video (below*) is what got me thinking about this. “Dr. Vose: Bruton's

We will be joined by: Jules Cuthbert, Specialist Pharmacist – High Cost Drugs, University Hospitals Bristol NHS Foundation Trust Hayley Clifford, Nurse Specialist – The Department of Immunology, Birmingham Heartlands Hospital Esther Beswick, acute leukaemia patient Nick York, chronic leukaemia patient

We will be joined by: Jules Cuthbert, Specialist Pharmacist – High Cost Drugs, University Hospitals Bristol NHS Foundation Trust Hayley Clifford, Nurse Specialist – The Department of Immunology, Birmingham Heartlands Hospital Esther Beswick, acute leukaemia patient Nick York, chronic leukaemia patient