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Cerebral vasculitis
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Could you have Vasculitis? It’s tough to diagnose and comes with a host of nasty symptoms – but just what is Vasculitis?
Interesting article published today by BT.com Home page for the end of Vasculitis Awareness Month also input from John Mills Chairman of Vasculitis UK who also happens to have Wegener's Granulomatosis http://home.bt.com/lifestyle/wellbeing/could-you-have-vasculitis-11363983660870
Interesting article published today by BT.com Home page for the end of Vasculitis Awareness Month also input from John Mills Chairman of Vasculitis UK who also happens to have Wegener's Granulomatosis http://home.bt.com/lifestyle/wellbeing/could-you-have-vasculitis-11363983660870
Suzym2u
Vasculitis UK
in
Vasculitis UK
9 years ago
Cerebral Vasculitis (mis)diagnosis/RCVS/vasospasms
I was told this was common with
cerebral
vasculitis
. I was admitted to the critical care unit and put on a slew of different medications, such as celebrex and nimodipine. They also started me on high doses of steroids to treat
cerebral
vasculitis
.
I was told this was common with
cerebral
vasculitis
. I was admitted to the critical care unit and put on a slew of different medications, such as celebrex and nimodipine. They also started me on high doses of steroids to treat
cerebral
vasculitis
.
Jennabug954
in
Vasculitis UK
9 years ago
Vasculitis and the ears and eyes
I am sorry that I seem to be back again...still no diagnosis but then I have largely given up seeing any doc over last year as I feel so dissillusioned, However, in addition to my chronic pain at the back of my nose somewhere, I now have frequent bouts of double or blurred vision. optician says eyes
I am sorry that I seem to be back again...still no diagnosis but then I have largely given up seeing any doc over last year as I feel so dissillusioned, However, in addition to my chronic pain at the back of my nose somewhere, I now have frequent bouts of double or blurred vision. optician says eyes
Tinkytink
in
Vasculitis UK
9 years ago
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Updated page on the VUK website for Central Nervous System Vasculitis
Updated page on the
Vasculitis
UK website for Central Nervous System
Vasculitis
also known as
Cerebral
Vasculitis
please follow this link for more details. http://www.vasculitis.org.uk/about-vasculitis/central-nervous-system-vasculitis
Updated page on the
Vasculitis
UK website for Central Nervous System
Vasculitis
also known as
Cerebral
Vasculitis
please follow this link for more details. http://www.vasculitis.org.uk/about-vasculitis/central-nervous-system-vasculitis
Suzym2u
Vasculitis UK
in
Vasculitis UK
9 years ago
ANCA neg
I have read with interest the discussion about ANCA neg. I was diagnosed two years ago and what I have found out is the medics do a load of blood tests and depending on the results you are given a label. Sorry to say this but you have to fit the book.
I have read with interest the discussion about ANCA neg. I was diagnosed two years ago and what I have found out is the medics do a load of blood tests and depending on the results you are given a label. Sorry to say this but you have to fit the book.
Hidden
in
Vasculitis UK
9 years ago
Vasculitis East Midlands Support Group - Saturday May 2nd.
Just wanted to say what an excellent meeting we had on Saturday. Lots of fun, chat, conversation and a really great session on how to cope with stress. A big thank you to Alice, Specialist Rheumatology Nurse for leading this session. So many benefited from this. :-) We were a group of 26, youngest was
Just wanted to say what an excellent meeting we had on Saturday. Lots of fun, chat, conversation and a really great session on how to cope with stress. A big thank you to Alice, Specialist Rheumatology Nurse for leading this session. So many benefited from this. :-) We were a group of 26, youngest was
Suzym2u
Vasculitis UK
in
Vasculitis UK
9 years ago
Stupid Dr
Am in a relapse phase with my Wegeners. Had Rituximab infusion x2 Jan and Feb and am currently on pred 20 mg. Currently in hospital with acute shortness of breath. Dr s thought it was a blod clot but CT clear. Dr came around last night to tell me this but then said there's something wrong there but
Am in a relapse phase with my Wegeners. Had Rituximab infusion x2 Jan and Feb and am currently on pred 20 mg. Currently in hospital with acute shortness of breath. Dr s thought it was a blod clot but CT clear. Dr came around last night to tell me this but then said there's something wrong there but
Llinos
in
Vasculitis UK
9 years ago
Cyclophosphamide side effects
Had my first Cyclophosphamide infusion last week, felt fine on the day but was so sick the following day that I couldn't even keep a sip of water down. Since then I've been so weak and shaky that the washing up is starting to pile - I just can't stand up long enough to get it sorted. The fridge is bare
Had my first Cyclophosphamide infusion last week, felt fine on the day but was so sick the following day that I couldn't even keep a sip of water down. Since then I've been so weak and shaky that the washing up is starting to pile - I just can't stand up long enough to get it sorted. The fridge is bare
woollysox
in
Vasculitis UK
9 years ago
Vasculitis and Trying to conceive
Hi, I am new to this but I have been trying to control my vasculitis for about 2 years now. I have small vessel Vasculitis where I get the rash and also my stomach inflames. I am on steriods currently, I was just wondering if any one has had any issues with conceiving with vasculitis. I am trying to
Hi, I am new to this but I have been trying to control my vasculitis for about 2 years now. I have small vessel Vasculitis where I get the rash and also my stomach inflames. I am on steriods currently, I was just wondering if any one has had any issues with conceiving with vasculitis. I am trying to
Phpetty86
in
Vasculitis UK
9 years ago
North east specialist Wegeners/GPA??
I feel like I keep bobbing in and out of this forum looking for answers to health problems for myself, my sister and my son who have very similar symptoms at different stages of progression. My sis is now due to see Dr Lordon at Newcastle as she has pronounced lung involvement so may yet get a diagnosis
I feel like I keep bobbing in and out of this forum looking for answers to health problems for myself, my sister and my son who have very similar symptoms at different stages of progression. My sis is now due to see Dr Lordon at Newcastle as she has pronounced lung involvement so may yet get a diagnosis
Tinkytink
in
Vasculitis UK
9 years ago
Update for the Vasculitis Patient Symposium April 18th 2015
Vasculitis Patient Symposium 2015 Speakers: Dr Neil Basu (Aberdeen) Dr Nina Brown (Manchester) Dr Maria Cinta Cid (Barcelona) Dr Thomas Hauser (Zurich) RNS Julie Ingall (Portsmouth) Dr Rachel Jones (Cambridge) Dr Peter Lanyon (Nottingham) Dr
Vasculitis Patient Symposium 2015 Speakers: Dr Neil Basu (Aberdeen) Dr Nina Brown (Manchester) Dr Maria Cinta Cid (Barcelona) Dr Thomas Hauser (Zurich) RNS Julie Ingall (Portsmouth) Dr Rachel Jones (Cambridge) Dr Peter Lanyon (Nottingham) Dr
Suzym2u
Vasculitis UK
in
Vasculitis UK
9 years ago
New to all this
Hi all, have just been diagnosed with
cerebral
vasculitis
and am trying to find as much info as I can - not easy as there seems to be very little clarity out there.
Hi all, have just been diagnosed with
cerebral
vasculitis
and am trying to find as much info as I can - not easy as there seems to be very little clarity out there.
woollysox
in
Vasculitis UK
10 years ago
Vasculitis in Children
We have noticed there are one or two members of the community who have children with Vasculitis so we thought we might share this page from the VUK website - this page includes Henoch Schönlein purpura (HSP), Kawasaki disease (KD), Polyarteritis nodosa (PAN) , ANCA associated vasculitis (AAV) and Takayasu
We have noticed there are one or two members of the community who have children with Vasculitis so we thought we might share this page from the VUK website - this page includes Henoch Schönlein purpura (HSP), Kawasaki disease (KD), Polyarteritis nodosa (PAN) , ANCA associated vasculitis (AAV) and Takayasu
Suzym2u
Vasculitis UK
in
Vasculitis UK
9 years ago
Oxford Vasculitis Seminar March 29th 2015
Really interesting, informative and excellent Oxford Vasculitis Support Group meeting yesterday - around 40 attended this meeting... ..... Speakers were Prof Raashid Luqmani - discussing the training website for assessment of Vasculitis ( BVAS/VDI) , Dr Christina Ponte - giving an update
Really interesting, informative and excellent Oxford Vasculitis Support Group meeting yesterday - around 40 attended this meeting... ..... Speakers were Prof Raashid Luqmani - discussing the training website for assessment of Vasculitis ( BVAS/VDI) , Dr Christina Ponte - giving an update
Suzym2u
Vasculitis UK
in
Vasculitis UK
10 years ago
My mum
Hi there. My mum has been recently diagnosed with Wegeners granulomatosis. She's in her 50's and I am beyond worried and upset about her prognosis. I'm not well educated in the facts and progress about her condition so any help or info would be so greatly appreciated. Thanks in advance.
Hi there. My mum has been recently diagnosed with Wegeners granulomatosis. She's in her 50's and I am beyond worried and upset about her prognosis. I'm not well educated in the facts and progress about her condition so any help or info would be so greatly appreciated. Thanks in advance.
hgibbo
in
Vasculitis UK
10 years ago
Can Rituximab be used if you are ANCA negative?
Does anyone have any knowledge about whether Rituximab can be used if you are ANCA negative? I have CSS for nearly 2 years, but luckily a mild severity. My consultant has suggested I should perhaps change from Azathioprine since it does not appear to be controlling the CSS based on CRP levels (never
Does anyone have any knowledge about whether Rituximab can be used if you are ANCA negative? I have CSS for nearly 2 years, but luckily a mild severity. My consultant has suggested I should perhaps change from Azathioprine since it does not appear to be controlling the CSS based on CRP levels (never
JontyW
in
Vasculitis UK
10 years ago
Possible vasculitis overlap?
Hi, I am new to this site but have a question to which I can't find an answer on Google. After a long history of UCTD/SLE, I find my symptoms are changing and are now looking possibly more akin to vasculitis. I am aware that there is a great deal of overlap with lupus but I would like to know if vasculitis
Hi, I am new to this site but have a question to which I can't find an answer on Google. After a long history of UCTD/SLE, I find my symptoms are changing and are now looking possibly more akin to vasculitis. I am aware that there is a great deal of overlap with lupus but I would like to know if vasculitis
Fennella02
in
Vasculitis UK
10 years ago
Vasculitis - East Midlands Support Group meeting May 2nd 2015
The theme for this meeting will be relaxation and managing stress - with Rheumatology Specialist Nurse Alice Muir and Holistic Therapist Lisa Ranyell John Mills Chairman of Vasculitis UK will also be giving feed back from the Vasculitis Patient Symposium , the International Vasculitis Conference and
The theme for this meeting will be relaxation and managing stress - with Rheumatology Specialist Nurse Alice Muir and Holistic Therapist Lisa Ranyell John Mills Chairman of Vasculitis UK will also be giving feed back from the Vasculitis Patient Symposium , the International Vasculitis Conference and
Suzym2u
Vasculitis UK
in
Vasculitis UK
10 years ago
Rituxamab
My diagnoses is Mixed connective tissue disorder with lung involvement and all the other add ons such as raynauds phenomenon, joint pains, hair loss and thinning, sjogren's syndrome, nodlues in thyroid glands,
cerebral
vasculitis
and others.
My diagnoses is Mixed connective tissue disorder with lung involvement and all the other add ons such as raynauds phenomenon, joint pains, hair loss and thinning, sjogren's syndrome, nodlues in thyroid glands,
cerebral
vasculitis
and others.
Maureenpearl
in
LUPUS UK
10 years ago
Vasculitis Patient Symposium - London - April 2015
Hope you do not mind me sharing this post but Vasculitis UK are hosting a Vasculitis Patient Symposium in London in April 2015, to coincide with the International Vasculitis Medical Conference.http://www.vasculitis2015.org/ This is the programme and details of the speakers for the "patient symposium
Hope you do not mind me sharing this post but Vasculitis UK are hosting a Vasculitis Patient Symposium in London in April 2015, to coincide with the International Vasculitis Medical Conference.http://www.vasculitis2015.org/ This is the programme and details of the speakers for the "patient symposium
John_Mills
in
Behçet's UK
10 years ago
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