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Aches and pains?
I am a year and half post transplant and on
Cellcept
and Belatacept. Does anyone else have any joint pains that seem new or worse since transplant?
I am a year and half post transplant and on
Cellcept
and Belatacept. Does anyone else have any joint pains that seem new or worse since transplant?
JennieZ
in
Kidney Transplant
5 years ago
BK virus after kidney transplant
My current medication is 1000mg
Cellcept
twice a day, 10mg Prednisone/day and 7mg Tacro/day (4 morning and 3 night). Does anyone know if it's common to have that much of BK virus in urine or anyone experienced the same thing?
My current medication is 1000mg
Cellcept
twice a day, 10mg Prednisone/day and 7mg Tacro/day (4 morning and 3 night). Does anyone know if it's common to have that much of BK virus in urine or anyone experienced the same thing?
Colin_CX
in
Kidney Transplant
5 years ago
Anyone on Otezla?
He said that Otezla is much safer than the
Cellcept
I am on it also requires no regular bloodwork and will also have no effect on my immune system. It sounds very good, has anyone been on it? Has it helped you?
He said that Otezla is much safer than the
Cellcept
I am on it also requires no regular bloodwork and will also have no effect on my immune system. It sounds very good, has anyone been on it? Has it helped you?
Miataman
in
Behçet's UK
5 years ago
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10 months post and...anemia??
Between getting C diff in the first weeks post transplant, 2 utis, having to switch from
cellcept
to azathioprine due to stomach issues, medication induced fatigue where I was sleeping 16 hrs per day and side effects to boot (which are included but not limited to: tremors- which I still have despite
Between getting C diff in the first weeks post transplant, 2 utis, having to switch from
cellcept
to azathioprine due to stomach issues, medication induced fatigue where I was sleeping 16 hrs per day and side effects to boot (which are included but not limited to: tremors- which I still have despite
Ladybug_05
in
Kidney Disease
5 years ago
Tacrolimus for lupus nephritis Class V? Cellcept isnt working.
May 19 put on
cellcept
and enalapril. Protein/creatinine ratio started in Feb 2019 at around 2-3 and now after 5 months of being on
cellcept
no improvement-actually may be tending higher-so 2.5-6.
May 19 put on
cellcept
and enalapril. Protein/creatinine ratio started in Feb 2019 at around 2-3 and now after 5 months of being on
cellcept
no improvement-actually may be tending higher-so 2.5-6.
NewEngland3
in
LUPUS UK
5 years ago
Pregnancy/IVF post transplant and Cellcept/Mycophenolate concerns.
My husband recently had a transplant an is on
Cellcept
/Mycophenolate. It appears it is not recommended to conceive/donate sperm when on those. Any advice? Thanks
My husband recently had a transplant an is on
Cellcept
/Mycophenolate. It appears it is not recommended to conceive/donate sperm when on those. Any advice? Thanks
tgeraghty
in
Kidney Transplant
5 years ago
Cellcept side effects
I am on day 2 of
Cellcept
for lupus nephritis and I haven't been feeling so good today. I won't go into too many details, but my stomach is very upset and I've been feeling very nauseous and vomiting a lot.
I am on day 2 of
Cellcept
for lupus nephritis and I haven't been feeling so good today. I won't go into too many details, but my stomach is very upset and I've been feeling very nauseous and vomiting a lot.
November90
in
LUPUS UK
5 years ago
Have you had under 1.0 white blood count?
WBC has been low since mid August despite removing him from
cellcept
, and improving the CMV number of 16,500 to 487 last week. Now he stays at home except for blood work M,W,F instead of once a week.
WBC has been low since mid August despite removing him from
cellcept
, and improving the CMV number of 16,500 to 487 last week. Now he stays at home except for blood work M,W,F instead of once a week.
Gardner-NY
in
Kidney Transplant
5 years ago
Coping with medication side effects
I am 28 and I am on day 2 taking
Cellcept
(an immunosuppressant) for lupus nephritis and I haven't been feeling so good since yesterday. I won't go into too many details, but my stomach is very upset and I've been feeling very nauseous and vomiting a lot.
I am 28 and I am on day 2 taking
Cellcept
(an immunosuppressant) for lupus nephritis and I haven't been feeling so good since yesterday. I won't go into too many details, but my stomach is very upset and I've been feeling very nauseous and vomiting a lot.
November90
in
Anxiety Support
5 years ago
Live Vaccine
Patient is currently on high dose
cellcept
and prednisone
Patient is currently on high dose
cellcept
and prednisone
Addiction88
in
LUPUS UK
5 years ago
Cellcept or Azathioprine
I was put back on Budesonide then
Cellcept
. I began feeling so ill, nauseous, no energy, pretty rubbish, so I decided
Cellcept
wasn't worth it and stopped.
I was put back on Budesonide then
Cellcept
. I began feeling so ill, nauseous, no energy, pretty rubbish, so I decided
Cellcept
wasn't worth it and stopped.
Wonderfullife68
in
British Liver Trust
5 years ago
Shingles with your CTD anyone?
So I'm off my
Cellcept
(as it interferes with the antivirals) and the couple small ulcers I had originally gone in with turned into over a 2 foot band of blisters in a 6 hour period.
So I'm off my
Cellcept
(as it interferes with the antivirals) and the couple small ulcers I had originally gone in with turned into over a 2 foot band of blisters in a 6 hour period.
panda2
in
LUPUS UK
5 years ago
Insomnia on CellCept? Sleeping pills that helped?HELP
I have been on
cellcept
for around 1 month, I started it for lupus nephritis. I noticed sleep issues as I was titrating up from 500mg, I am now on 1gram BID and have HORRIBLE insomnia--not falling asleep at all , just laying in bed exhausted with closed eyes.
I have been on
cellcept
for around 1 month, I started it for lupus nephritis. I noticed sleep issues as I was titrating up from 500mg, I am now on 1gram BID and have HORRIBLE insomnia--not falling asleep at all , just laying in bed exhausted with closed eyes.
NewEngland3
in
LUPUS UK
5 years ago
Short term memory
Week 8 on myfenax/
cellcept
..exhaustion and short term memory a struggle- really impacting my work..its quite upsetting and stressful.
Week 8 on myfenax/
cellcept
..exhaustion and short term memory a struggle- really impacting my work..its quite upsetting and stressful.
Hidden
in
LUPUS UK
5 years ago
Painful livedoid vasculitis
I’m was on azathioprine but now on prednisolone 45mg and Mycophenolate mofetil(
Cellcept
). Has anyone experienced this? Seeing rheumatologist soon to increase mycophenolate mofetil and hopefully reduce steroids as my face is like a moon now.
I’m was on azathioprine but now on prednisolone 45mg and Mycophenolate mofetil(
Cellcept
). Has anyone experienced this? Seeing rheumatologist soon to increase mycophenolate mofetil and hopefully reduce steroids as my face is like a moon now.
Sunphoenix
in
LUPUS UK
5 years ago
CELLCEPT
Hi everyone, I will be starting IV
Cellcept
next week. Just wondered how much success you guys have had with this? How long before you felt any benefit?
Hi everyone, I will be starting IV
Cellcept
next week. Just wondered how much success you guys have had with this? How long before you felt any benefit?
doggydootwentytwo
in
LUPUS UK
5 years ago
Diagnosed with Scleroderma but am having really bad muscle pains to the point where I’m in bed 4days!!! Hopefully u can relate?
I’m on
cellcept
500 4 times a day!!! In the beginning it was everything real tight n achy plus fatigue but everything eventually started to get better in that area.
I’m on
cellcept
500 4 times a day!!! In the beginning it was everything real tight n achy plus fatigue but everything eventually started to get better in that area.
Dc012885
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Greffe de rein il y a juste 1 mois et demi
Bonjour tout le monde je m'appel drissi je suis de casablanca maroc je viens d'avoir une greffe renale il y a juste 2 mois et demi je prends comme traitement : - Prograf 2 mg matin et 2 mg le soir - -
Cellcept
1 g matin et 1 g soir - Rovalcyte 450 mg 1 comprimé le matin et un autre le soir - Bactrim
Bonjour tout le monde je m'appel drissi je suis de casablanca maroc je viens d'avoir une greffe renale il y a juste 2 mois et demi je prends comme traitement : - Prograf 2 mg matin et 2 mg le soir - -
Cellcept
1 g matin et 1 g soir - Rovalcyte 450 mg 1 comprimé le matin et un autre le soir - Bactrim
Drissi
in
Kidney Transplant
5 years ago
Sirolimus
Hi, I’m almost 6 months post transplant and my creatinine is around 2.2 and my doctors want me to go on sirolimus and stop my
cellcept
. I wanted to know is anyone taking sirolimus and have you had side effects?
Hi, I’m almost 6 months post transplant and my creatinine is around 2.2 and my doctors want me to go on sirolimus and stop my
cellcept
. I wanted to know is anyone taking sirolimus and have you had side effects?
Curvychic_76
in
Kidney Transplant
5 years ago
OK, anyone have any experience with Cellcept or Ibrutinib?
Saw my hematologist this morning. We discussed my rheumatologist's suggestions as to medication to suppress my APS. He added two to consider to the mix.
Saw my hematologist this morning. We discussed my rheumatologist's suggestions as to medication to suppress my APS. He added two to consider to the mix.
Holley
in
Hughes Syndrome APS Forum
5 years ago
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