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Casodex
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Confused on next step
Have done GREAT using
Casodex
2 weeks then Lupron +
Casodex
(50 mg/day), usually 9-12 months. Numerous HT vacations. 3 times scans found a very few ext. lymph node hot spots. Each time did a 3-month Lupron shot +
Casodex
+ SBRT one month after starting Lupron. OK, fast forward to now. PSA rising.
Have done GREAT using
Casodex
2 weeks then Lupron +
Casodex
(50 mg/day), usually 9-12 months. Numerous HT vacations. 3 times scans found a very few ext. lymph node hot spots. Each time did a 3-month Lupron shot +
Casodex
+ SBRT one month after starting Lupron. OK, fast forward to now. PSA rising.
compiler
in
Advanced Prostate Cancer
2 years ago
PSMA scan
Wondering if I should be patient in the appeal or start the prescribed
Casodex
and subsequent Lupron. Apparently even on approval it can take 6 to 8 weeks to get it done
Wondering if I should be patient in the appeal or start the prescribed
Casodex
and subsequent Lupron. Apparently even on approval it can take 6 to 8 weeks to get it done
runtrails
in
Advanced Prostate Cancer
2 years ago
Recurrence after 2.5 year break from ADT
After a 2.5 year break from
Casodex
and Lupron, my husband's PSA started increasing in August 2022. It's still low but is now at 2.9. His oncologist ordered several scans including a PSMA.
After a 2.5 year break from
Casodex
and Lupron, my husband's PSA started increasing in August 2022. It's still low but is now at 2.9. His oncologist ordered several scans including a PSMA.
Emmett50
in
Advanced Prostate Cancer
2 years ago
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Change from HER2 negative to HER2 positive?
Has anyone had a change from HER2 negative to HER2 positive? Taking Ibrance 100mg\monthly Faslodex injections for past 2 years. Tumor marker rise over past couple of months, CT scan showed 2cm met in liver all other bone Mets NED, liver biopsy results - my cancer changed to ER+/HER2+. Prior to biopsy
Has anyone had a change from HER2 negative to HER2 positive? Taking Ibrance 100mg\monthly Faslodex injections for past 2 years. Tumor marker rise over past couple of months, CT scan showed 2cm met in liver all other bone Mets NED, liver biopsy results - my cancer changed to ER+/HER2+. Prior to biopsy
MarshMom
in
SHARE Metastatic Breast Cancer
1 year ago
Poem (sort of)
Denied insurance now more debts Lupron with some
Casodex
., Lost my T, got hot flashes Radiation gave me rashes, P.S.M.A. another scan Time to make a new game plan, Geno types and hidden mets My muscles can no longer flex, A phase 3 trial, a new study For my small brain it all seems muddy
Denied insurance now more debts Lupron with some
Casodex
., Lost my T, got hot flashes Radiation gave me rashes, P.S.M.A. another scan Time to make a new game plan, Geno types and hidden mets My muscles can no longer flex, A phase 3 trial, a new study For my small brain it all seems muddy
runtrails
in
Advanced Prostate Cancer
2 years ago
lymph nodes
Started on Lupron, hot flashes, very very tiredness, switched to
Casodex
. PSA went down back up and dow again, from .23 to .83 recently. Went in for nuclear scan, showed lymph nodes only area positive. What is the treatment now, Radiation, Chemotherapy, different drug. ?
Started on Lupron, hot flashes, very very tiredness, switched to
Casodex
. PSA went down back up and dow again, from .23 to .83 recently. Went in for nuclear scan, showed lymph nodes only area positive. What is the treatment now, Radiation, Chemotherapy, different drug. ?
Papadave
in
Advanced Prostate Cancer
2 years ago
UPDATE AFTER IMRT
PSA was 8.11 which led to my Urology Oncologist (UO) starting me on
Casodex
& Eligard, and ordering a GA-68 PSMA-PET scan which was done in mid June (2 weeks after starting ADT).
PSA was 8.11 which led to my Urology Oncologist (UO) starting me on
Casodex
& Eligard, and ordering a GA-68 PSMA-PET scan which was done in mid June (2 weeks after starting ADT).
GMan-62
in
Advanced Prostate Cancer
2 years ago
Restaging
MRI showed IV PCa and 2 inguinal nodes: started 30 days
Casodex
, now on second Eligard. Local pelvis and LN Rad to start in November. We have reached out to RO to see if he agrees. She says now that PSA is 2, down from 100, no current benefit to PSMA.
MRI showed IV PCa and 2 inguinal nodes: started 30 days
Casodex
, now on second Eligard. Local pelvis and LN Rad to start in November. We have reached out to RO to see if he agrees. She says now that PSA is 2, down from 100, no current benefit to PSMA.
warrior22
in
Advanced Prostate Cancer
2 years ago
Casodex 50mg
He has started treatment and has been on
Casodex
for a month and had his first zolodex injection two days ago.
He has started treatment and has been on
Casodex
for a month and had his first zolodex injection two days ago.
Knittingque
in
Advanced Prostate Cancer
2 years ago
Vacation or Zytiga...Onco says Zytiga...
Did 28 days of
Casodex
then 3 months of Lupron received another injection last month. PSA now .02 and husband tried Zytiga in past month and went off due to High BP. Onco says no vacation because data does not favor it... but on here I have read otherwise... All input greatly appreciated.
Did 28 days of
Casodex
then 3 months of Lupron received another injection last month. PSA now .02 and husband tried Zytiga in past month and went off due to High BP. Onco says no vacation because data does not favor it... but on here I have read otherwise... All input greatly appreciated.
marinerswife
in
Advanced Prostate Cancer
2 years ago
tingling/numb fingers
I read tingling is a listed
Casodex
side effect. Very reluctant to stop use because PSA remains very low. Anyone else experience this with bicalutamide (
casodex
)? Did it get worse - spread? Did it go away? Any supplement or drug therapy help?
I read tingling is a listed
Casodex
side effect. Very reluctant to stop use because PSA remains very low. Anyone else experience this with bicalutamide (
casodex
)? Did it get worse - spread? Did it go away? Any supplement or drug therapy help?
kreg001
in
Advanced Prostate Cancer
2 years ago
FDA Approved Oral SERD - Elacestrant (ORSERDU) 1/27/23!!!
Hi fellow MBC’ers: Here’s the latest approval from the FDA on approval of the Oral SERD that takes the place of the monthly (painful) Faslodex injections: The drug is called “ORSERDU” https://www.fda.gov/drugs/resources-information-approved-drugs/fda-approves-elacestrant-er-positive-her2-negative-esr1
Hi fellow MBC’ers: Here’s the latest approval from the FDA on approval of the Oral SERD that takes the place of the monthly (painful) Faslodex injections: The drug is called “ORSERDU” https://www.fda.gov/drugs/resources-information-approved-drugs/fda-approves-elacestrant-er-positive-her2-negative-esr1
hopenowandtomorrow
in
SHARE Metastatic Breast Cancer
2 years ago
Verzenio loss of taste
Hi Ladies, I’ve been on been on Faslodex and Verzenio since August 2022 for MBC and after 3 months developed altered/loss of taste. I also was recently diagnosed with hyperthyroid and don’t know if that has anything to do with it. It’s been maddening ! Has anyone else experienced this and what have
Hi Ladies, I’ve been on been on Faslodex and Verzenio since August 2022 for MBC and after 3 months developed altered/loss of taste. I also was recently diagnosed with hyperthyroid and don’t know if that has anything to do with it. It’s been maddening ! Has anyone else experienced this and what have
Lavender24
in
SHARE Metastatic Breast Cancer
2 years ago
platlets
hi ladies. Strange thing happened the other day. I have been on ibrance and faslodex for over 5 years and usually all my blood work is good but this time my platlets were 515 and should be 440. My doctor isn’t concerned but of course I am. Has anyone ever had this issue. Thanks so much. Marianne
hi ladies. Strange thing happened the other day. I have been on ibrance and faslodex for over 5 years and usually all my blood work is good but this time my platlets were 515 and should be 440. My doctor isn’t concerned but of course I am. Has anyone ever had this issue. Thanks so much. Marianne
marianne88
in
SHARE Metastatic Breast Cancer
2 years ago
does Ibrance cause gastritis? FODMAP diet helps diarrhea from Ibrance.
I have estrogen positive MBC since 2018 and on Ibrance and Faslodex since that time. I have been in remission for 18 months. one year ago I had a colonoscopy and endoscopy which showed severe stomach inflammation. My symptoms were persistent nausea and frequent diarrhea. I took a course of proton pump
I have estrogen positive MBC since 2018 and on Ibrance and Faslodex since that time. I have been in remission for 18 months. one year ago I had a colonoscopy and endoscopy which showed severe stomach inflammation. My symptoms were persistent nausea and frequent diarrhea. I took a course of proton pump
cheflala
in
SHARE Metastatic Breast Cancer
2 years ago
Continue Casodex or move to Lupron?
What do you all think about continuing
Casodex
and watch the numbers monthly? If it rises, back on Lupron of course. But if
Casodex
is keeping it at bay, much fewer side effects to deal with. Is 1.6 a livable number, or should I go full-on Lupron and get it to 0?
What do you all think about continuing
Casodex
and watch the numbers monthly? If it rises, back on Lupron of course. But if
Casodex
is keeping it at bay, much fewer side effects to deal with. Is 1.6 a livable number, or should I go full-on Lupron and get it to 0?
Bruce66
in
Advanced Prostate Cancer
2 years ago
Who has ESR1 how are you doing
I just developed the ESR1 mutation and went on Faslodex and switched to Kisquali. I was wondering if anyone has this mutation and how your meds working. I’m only looking to hear about ESR1 stories and if it impacted your treatment or progression and how you are doing. If you do not have the mutation
I just developed the ESR1 mutation and went on Faslodex and switched to Kisquali. I was wondering if anyone has this mutation and how your meds working. I’m only looking to hear about ESR1 stories and if it impacted your treatment or progression and how you are doing. If you do not have the mutation
DDIL1
in
SHARE Metastatic Breast Cancer
2 years ago
tumor markers rising but scans show tumors stable/ shrinking?
Hello! So my tumor markers have been going up for the last 3 months but the last set of scans showed everything stable/shrinking. I feel well. I have lobular so I know it can be sneaky. I have been on Faslodex and Ibrance for a year. Doc doesn’t want to change med because of tumor markers. (
Hello! So my tumor markers have been going up for the last 3 months but the last set of scans showed everything stable/shrinking. I feel well. I have lobular so I know it can be sneaky. I have been on Faslodex and Ibrance for a year. Doc doesn’t want to change med because of tumor markers. (
Ticket123
in
SHARE Metastatic Breast Cancer
2 years ago
Prolactin-dependent malignancy- Case Report: Successful Termination of Untreatable Androgen-independent PCa with Cabergoline treatment
Beginning around 11/01/2017, androgen ablation along with chemotherapy was initiated; which included lupron,
casodex
, zytiga, prednisone, neulista, and Lu177-PSMA (prostate specific membrane antigen).
Beginning around 11/01/2017, androgen ablation along with chemotherapy was initiated; which included lupron,
casodex
, zytiga, prednisone, neulista, and Lu177-PSMA (prostate specific membrane antigen).
GeorgeGlass
in
Advanced Prostate Cancer
2 years ago
Faslodex and hip pain
Does anyone experience severe hip pain after faslodex shots? Not at the injection site, just muscle/nerve pain in hip area.
Does anyone experience severe hip pain after faslodex shots? Not at the injection site, just muscle/nerve pain in hip area.
troutgal
in
SHARE Metastatic Breast Cancer
2 years ago
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