Ibrance

[Phillipians4and6]

Hi all! Does anyone deal with neuropathy while on ibrance and faslodex

[Itisfinished]

I have neuropathy real bad in my feet. I think it is a combination of spinal surgery and the Ibrance.

[Phillipians4and6 in reply to Itisfinished]

Thank you for your response ❤️

[Merma]

Hi,I’ve been on Ibrance and Anastrazole for over 3 ½ yrs. Yes, I have peripheral neuropathy in my feet and a little in my hands. I also had it from chemo before I started Ibrance. The pain comes and goes.

An acupressure mat helps. Acupuncture also helps. I just retired from teaching in an elementary school and the neuropathy intensified the pain from standing all day. So, try to get good rest.

Best wishes.

[Phillipians4and6 in reply to Merma]

Thank you for your response. I also had some before I started ibrance. Mostly in my finger tips. I am a high school principal and I think work also factored so it’s funny you would say that. I’ve been in ibrance for a little over a year and half and we’ve been home from the pandemic. Now were back full swing. Thank you again.

[Merma in reply to Phillipians4and6]

Hi again. How are you doing? Ibrance can really mess up the blood counts, especially the wbc. It was one of the factors that made me decide to retire. Are you able to stay safe?

[Phillipians4and6 in reply to Merma]

Good morning. It means so much to me that you check in on me. I’m set to get the booster 3rd vaccine on Friday. I wear my mask and try to stay away from kids as much as possible. I have four assistant principals and they do a great job and standing in for me.

[Merma in reply to Phillipians4and6]

❤️ All educators need to support each other - especially during these crazy times.

[Phillipians4and6]

Thank you so much Sandra. I did have chemo with my first diagnosis and had some neuropathy before the Ibrance

[hopenowandtomorrow]

Yes, I have it in my fingertips & toes. It started with my original chemo & has gotten worse on IBrance. 🙏❤️🙏

[Phillipians4and6 in reply to hopenowandtomorrow]

❤️❤️❤️❤️ thank you. I really appreciate your response. Makes me feel better.

[SusieIM]

I have some neuropathy from the chemo, important to let your doc know. Keep us posted on how you are doing. Sending hugs.

[Phillipians4and6 in reply to SusieIM]

Hi Susie. Thank you. I let her know. I am have scans later in September. She said If it got worse before then to call her.

[Phillipians4and6 in reply to SusieIM]

And I definitely will keep you all posted on what she says.

[Phillipians4and6 in reply to SusieIM]

Hi. Just wanted you all to know that I got my mri results. Everything was great. Praise God. They’re prescribing gabapentine

[SusieIM in reply to Phillipians4and6]

Praise God! Glad to hear this.

[mariootsi]

Yes. I have neuropathy in my hands! So annoying. I am on Ibrance and Faslodex. Previously though, I had chemo during my first dx. Had slight neuropathy then, but it went away. Now it's back!

[Phillipians4and6 in reply to mariootsi]

Thank you so much. Yes it’s annoying!! Not really painful but annoying. That’s the right word.

[SusieIM in reply to mariootsi]

yes Neuropathy is annoying.

[mariootsi in reply to SusieIM]

It sure is!

[SusieIM in reply to mariootsi]

It is mariootsi! 😘

[Aquadog]

I'm also on Ibrance and letrozole ( just finished cycle 55 yesterday) and, if you're referring to random pain and aches in my feet - yup, I've got them. I actually thought it was the letrozole, but I was off Ibrance an extra week last month because of low numbers, and my feet were so much better. During the day it helps to wear sneakers with extra support and at night I put a lidocaine patch across the top of each foot. Not perfect, but at least the pain doesn't wake me up!

[Phillipians4and6 in reply to Aquadog]

Ok. I really appreciate you responding. It means a lot. Thank you so much

[Jeremiah2911]

Hi! First off prayers for you and your staff that you have an easier school year! I’m a former teacher/counselor and know how challenging the education world can be on a good day, so y’all are just SAINTS & ANGELS for what you’re handling now 🙏🏻❤️ I too am dealing with pins & needles feeling in my feet not really my hands. Have been on Ibrance & Faslodex for almost 3 years (super thankful). It’s more bothersome than painful, but have noticed I feel or notice more at night which can effect my sleep. Like we need anything else to effect our sleep! 😜 Here’s suggestions I’ve received and tried:Magnesium cream rubbed on anywhere that’s tingling or painful (has helped some)

Warm not hot bath with magnesium flakes in bath (relaxing)

Compression socks especially on nights where it feels like my feet are electric (really helps)

Chiropractor because he & I think some of tingling is having the Faslodex shots for almost 3 years now (placement of these is key…many posts on here about this)

Need to go back to acupuncture for this personally but I swear by acupuncture in helping with cancer side effects

Hope this helps! Prop those puppies us when you can after a long day and keep taking care of you as well as I’m sure you’re doing with the kids in your school.

Blessings,

Alicia

[Phillipians4and6 in reply to Jeremiah2911]

Wow Alicia. Your response is everything. Thank you sooooo much. I appreciate this so much. I know we aren’t doctors but to hear someone else say it help eases the mind and anyone who believes in “for I know the plans I have for you says the Lord” is alright with me!!! I got my Faslodex today and the nurse mentioned acupuncture. Our football game was cancelled tonight bc of Covid so I took they off after the injection and resting!!! 😉 thanks so much again.

[Jeremiah2911 in reply to Phillipians4and6]

My favorite verse ❤️ All over my house & named one of our dogs (who I got when I was diagnosed the first time) Jeremiah. We adopted our daughter because of my cancer path, so we can never underestimate God’s plan for us. Yes I would prefer he consult me on the path 😜 but hey, blessings reveal themselves daily. Prayers for you sweet warrior!!! HE’S got your back!

[stardust1965]

I am also “Chemo naive” with no neuropathy. I’ll add that to my cancer vocabulary. I saw yet another oncologist on Monday and he asked me what my medical background was. I wanted to say the Sandra School of Cancer Advice! 😉

[Goldenhair]

Yes, when I got cancer the first time after I let my doctor know I had neuropathy in my hands and feet, she reduced my chemotherapy intake for fear that it would do long term damage. At least I could wear high heals without them hurting while numb. Smiles. When I had cancer a second time and am on Ibrance, I feel it in my feet primarily but it isn't every day; just once and a while. I wiggle my feet under the covers and it finally goes away. My brother is a child onset diabetic and he has neuropathy regularly. His doctor prescribed gabapention. My friend is an adult diabetic and she uses an over the counter product, trolamine salicylate (10%) a sports cream. This is just what others or I know. I hope this helps. Cheers! -GH