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Low Neutrophil
So upset because I have low neutrophil and need to postpone starting date of Kisqali, next Wednesday. Just had lab work for 2nd cyle of Ibrance and the Dr. wants my count to improve before I start a new cycle. I have just started these medications so I am quite disappointed. Any thoughts?
So upset because I have low neutrophil and need to postpone starting date of Kisqali, next Wednesday. Just had lab work for 2nd cyle of Ibrance and the Dr. wants my count to improve before I start a new cycle. I have just started these medications so I am quite disappointed. Any thoughts?
jltorcz
in
SHARE Metastatic Breast Cancer
5 months ago
Ibrance and bruising
I have been on Ibrance and Letrozole for 6 years now with NED!!! I'm so grateful for that and counting on many more! I'm wondering if any others of you on that protocol have issues with cyclical bruising. I get tons of bruises on my hands and arms at the END of my week off of Ibrance. It will all
I have been on Ibrance and Letrozole for 6 years now with NED!!! I'm so grateful for that and counting on many more! I'm wondering if any others of you on that protocol have issues with cyclical bruising. I get tons of bruises on my hands and arms at the END of my week off of Ibrance. It will all
Mermaiden
in
SHARE Metastatic Breast Cancer
5 months ago
Heart rate 214bpm
Hi, should I be worried? This afternoon went into a AF episode after my last one 3 weeks ago, currently on waiting list for my second ablation, now 17 months in.usually when I’m in an episode my heart rate tops is 140 bpm. Suddenly whilst in AF my heart went up 214 bpm, felt faint and very hot. Phoned
Hi, should I be worried? This afternoon went into a AF episode after my last one 3 weeks ago, currently on waiting list for my second ablation, now 17 months in.usually when I’m in an episode my heart rate tops is 140 bpm. Suddenly whilst in AF my heart went up 214 bpm, felt faint and very hot. Phoned
Lesleyray
in
AF Association
8 months ago
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Staying on Ibrance & Anastrozole after 2 recurrences
I’ve been on Ibrance and Anastrozole for the last 6 years for metastatic endometrial cancer. I started out on the Ibrance125 mg and after a couple of years, had a problem recovering on the week off, so my dose was reduced to 100 mg. By spring this year, the counts could not recover on the week off,
I’ve been on Ibrance and Anastrozole for the last 6 years for metastatic endometrial cancer. I started out on the Ibrance125 mg and after a couple of years, had a problem recovering on the week off, so my dose was reduced to 100 mg. By spring this year, the counts could not recover on the week off,
Merma
in
SHARE Metastatic Breast Cancer
5 months ago
Technology question
We went away for the weekend . I was aware of tachycardia in the night ( only lasted few minutes) I always try to capture any palpitations if I can. This was the wee small hours so all electrical equipment was switched off . A tv , two phones and chargers, several lamps. I was about 22 feet away from
We went away for the weekend . I was aware of tachycardia in the night ( only lasted few minutes) I always try to capture any palpitations if I can. This was the wee small hours so all electrical equipment was switched off . A tv , two phones and chargers, several lamps. I was about 22 feet away from
Peony4575
in
AF Association
8 months ago
I am switching to Kisqali next week after 2 months on Ibrance
I am 79 years old and my breast cancer is back in my lungs.After new research and studies, my doctor thought I should try the Kisqali and Femera.I agreed but am instructed to take the anti nausea med. before the Kisqali everyday. I haven't needed it with Ibrance. What have you experienced?
I am 79 years old and my breast cancer is back in my lungs.After new research and studies, my doctor thought I should try the Kisqali and Femera.I agreed but am instructed to take the anti nausea med. before the Kisqali everyday. I haven't needed it with Ibrance. What have you experienced?
jltorcz
in
SHARE Metastatic Breast Cancer
5 months ago
Feedback on ORSERDU (elacestrant)
Feedback on ORSERDU (Elacestrant) Good afternoon! I just got my GUARDANT360 Test back and tested positive for the ESR1 gene mutation. I don’t meet with my oncologist for another month but he told me when I took the test that a positive on the ESR1 gene would make me a canditate for ORSERDU (Elacestrant
Feedback on ORSERDU (Elacestrant) Good afternoon! I just got my GUARDANT360 Test back and tested positive for the ESR1 gene mutation. I don’t meet with my oncologist for another month but he told me when I took the test that a positive on the ESR1 gene would make me a canditate for ORSERDU (Elacestrant
PlutosNose
in
SHARE Metastatic Breast Cancer
5 months ago
Hello friends. It's me again. Bone Biopsy + Dr. nonsense.
Ok, so I have not posted my situation for awhile because I was/am still waiting for tests. Quick review-Luminal A Hr Es+ 90-100% Pr+80-90%,ki67<10% HER2 neg(2+,sish neg) her2 low, I guess. This was the original in 2016. Had chemo, rads, anastrozle up to 2019 when dx mbc. Ibrance + fasoldex, then xeloda
Ok, so I have not posted my situation for awhile because I was/am still waiting for tests. Quick review-Luminal A Hr Es+ 90-100% Pr+80-90%,ki67<10% HER2 neg(2+,sish neg) her2 low, I guess. This was the original in 2016. Had chemo, rads, anastrozle up to 2019 when dx mbc. Ibrance + fasoldex, then xeloda
Hopeful4Cure
in
SHARE Metastatic Breast Cancer
5 months ago
Dysautonomia in Sjögren's - Genital Sore/dry symptoms
Because of the shame or embarrassment sometimes involved in talking about vulvar or vaginal symptoms, I have not really gone into depth with my Rheumatologist. I am just wondering whether anyone has any tips of how to soothe:- Burning of the vagina or vulvaI Itchy vulva or vagina I am also going through
Because of the shame or embarrassment sometimes involved in talking about vulvar or vaginal symptoms, I have not really gone into depth with my Rheumatologist. I am just wondering whether anyone has any tips of how to soothe:- Burning of the vagina or vulvaI Itchy vulva or vagina I am also going through
Energy14
in
LUPUS UK
8 months ago
Regular care
I was diagnosed with AF around four years ago now, by a cardiologist in a major teaching hospital. I was put on anticoagulants and referred back to my GP. The local surgery check my meds yearly and I have an annual blood test, but that’s it. I am wondering whether I should ask to be referred back to
I was diagnosed with AF around four years ago now, by a cardiologist in a major teaching hospital. I was put on anticoagulants and referred back to my GP. The local surgery check my meds yearly and I have an annual blood test, but that’s it. I am wondering whether I should ask to be referred back to
AstroFish
in
Atrial Fibrillation Support
8 months ago
bumped up moms scans
So I had shared that her markers had went up last week. When she had the progression in July she also had a plural effusion. Which she’s had drained only twice in 6 months. But her ribs have started being sore. So she goes into tomorrow for ultra sound to see if the fluid has built back up. So her
So I had shared that her markers had went up last week. When she had the progression in July she also had a plural effusion. Which she’s had drained only twice in 6 months. But her ribs have started being sore. So she goes into tomorrow for ultra sound to see if the fluid has built back up. So her
Flower1513
in
SHARE Metastatic Breast Cancer
5 months ago
update
am now on 15mg norspan patch, this is keeping the leg at a bearable level. I still have to fight the tugging and pulling 24/7 but it is not so severe that I want to end it all when the patch is on. They seem to have given up now and not trying anything else. I have arranged nerve conduction studies
am now on 15mg norspan patch, this is keeping the leg at a bearable level. I still have to fight the tugging and pulling 24/7 but it is not so severe that I want to end it all when the patch is on. They seem to have given up now and not trying anything else. I have arranged nerve conduction studies
Hidden
in
Neuropathy Support
8 months ago
update
I am now on 15mg norspan patch, this is keeping the leg at a bearable level. I still have to fight the tugging and pulling 24/7 but it is not so severe that I want to end it all when the patch is on. They seem to have given up now and not trying anything else. I have arranged nerve conduction studies
I am now on 15mg norspan patch, this is keeping the leg at a bearable level. I still have to fight the tugging and pulling 24/7 but it is not so severe that I want to end it all when the patch is on. They seem to have given up now and not trying anything else. I have arranged nerve conduction studies
Hidden
in
Restless Legs Syndrome
8 months ago
Piqray/Alpelisib (plus Fulvestrant injections) Trial so far
Hello everyone. From Stevie and me. Just popping in to let you all know that I am nearly 2 months into my Piqray journey. (The trial is called CAPTURE here in Melbourne) After having a terrible, terrible slump when I came off 5 1/2 years of Ibrance and Anastrozole, due to new mets in my liver, after
Hello everyone. From Stevie and me. Just popping in to let you all know that I am nearly 2 months into my Piqray journey. (The trial is called CAPTURE here in Melbourne) After having a terrible, terrible slump when I came off 5 1/2 years of Ibrance and Anastrozole, due to new mets in my liver, after
Timtam56
in
SHARE Metastatic Breast Cancer
6 months ago
Oh no, I don't want this 😭
Hi, I've had a heart monitor fitted since beginning of June this year. The specialist says I've had a couple of 150+ HR events, and one event of no heartbeat for 3 seconds. My resting HR is often 37bpm, blood pressure is just about perfect 120/80. I don't get out of breath, though can get low blood sugar
Hi, I've had a heart monitor fitted since beginning of June this year. The specialist says I've had a couple of 150+ HR events, and one event of no heartbeat for 3 seconds. My resting HR is often 37bpm, blood pressure is just about perfect 120/80. I don't get out of breath, though can get low blood sugar
jointpain
in
AF Association
8 months ago
Update on Spinal nerve block
In the past, I asked if others had the spinal radio-frequency ablation procedure for back pain. I had bad back pain and was considering doing it and wonder if anyone had issues with it. Well, I'm happy to report that I had the procedure yesterday and have experienced immediate pain relief. . I have
In the past, I asked if others had the spinal radio-frequency ablation procedure for back pain. I had bad back pain and was considering doing it and wonder if anyone had issues with it. Well, I'm happy to report that I had the procedure yesterday and have experienced immediate pain relief. . I have
drmind
in
Kidney Dialysis
8 months ago
Question about tumors
Hello everyone & Happy New Year!! I haven’t posted before, but I’m on here a lot reading posts to educate myself on treatments. My Mom was diagnosed Feb 2023 de novo stage 4 breast cancer to bones only. She had 2 1/2 rounds of Ibrance from April 23- June 23 (stopped Ibrance in July 23 due to shortness
Hello everyone & Happy New Year!! I haven’t posted before, but I’m on here a lot reading posts to educate myself on treatments. My Mom was diagnosed Feb 2023 de novo stage 4 breast cancer to bones only. She had 2 1/2 rounds of Ibrance from April 23- June 23 (stopped Ibrance in July 23 due to shortness
MBC2023
in
SHARE Metastatic Breast Cancer
6 months ago
lobular
hi ladies. Well after 6 years on faslodex and ibrance they found cancer in my stomach lining and ascites. Is anyone dealing with this I am so nervous and scared. They want to put me in a new drug. Thanks so much. Marianne
hi ladies. Well after 6 years on faslodex and ibrance they found cancer in my stomach lining and ascites. Is anyone dealing with this I am so nervous and scared. They want to put me in a new drug. Thanks so much. Marianne
marianne88
in
SHARE Metastatic Breast Cancer
6 months ago
Update finally on treatment
Hello ladies and gentlemen, I am finally on treatment, it took nearly 4 months from dx to treatment (due to moving from South Carolina to Seattle area). I am on Ibrance (Dec. 13th) and letrozole (Nov. 16th). And I am on palliative care for pain management since I have neuropathy in my left arm and hand
Hello ladies and gentlemen, I am finally on treatment, it took nearly 4 months from dx to treatment (due to moving from South Carolina to Seattle area). I am on Ibrance (Dec. 13th) and letrozole (Nov. 16th). And I am on palliative care for pain management since I have neuropathy in my left arm and hand
monkeygirl62
in
SHARE Metastatic Breast Cancer
6 months ago
bone marrow
I was on ibrance for 3 1/2 years. Stopped working and was switched to Orserdu. I’ve been on this drug for almost 4 months. Tumor markers down and natera results trending down as well. I had a PET scan yesterday and it showed improvement to the Mets in my lung but also showed where one had increased
I was on ibrance for 3 1/2 years. Stopped working and was switched to Orserdu. I’ve been on this drug for almost 4 months. Tumor markers down and natera results trending down as well. I had a PET scan yesterday and it showed improvement to the Mets in my lung but also showed where one had increased
1glajon
in
SHARE Metastatic Breast Cancer
6 months ago
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