Search
Search
About
Log in
Join
Experiences with
Brivirac
Posts
Communities
25 public posts
Filter results
Could Epilim and lacosamide/VIMPAT have something in common [type of medication?] that causes 'shakes',need to get some research done on it?
In 2016 I was taken off Epilim, I have JME epilepsy, I was on it for circa. eight years, with lamictal, but my hands shook so bad, fears it was Parkinson's disease, [my father had Parkinson's disease] I was 'tested' then subsequently again in 2021 both negative, I was put on Fycompa in 2016, the shaking
In 2016 I was taken off Epilim, I have JME epilepsy, I was on it for circa. eight years, with lamictal, but my hands shook so bad, fears it was Parkinson's disease, [my father had Parkinson's disease] I was 'tested' then subsequently again in 2021 both negative, I was put on Fycompa in 2016, the shaking
Adlon57
in
Epilepsy Action
9 months ago
Shaky hands side effects of Vimpat [Lacosamide] or Briviact [Brivaracetam] have been taking them since April 2018?
Have very shaky hands can hardly type, various medical mishaps since then, in Jan 2018 had double seizure, broken skull, [later in July 2021 CT scan found this caused irreparable brain damage, Terminal] but typing almost impossible! In 2016 taken off Epilim, almost Parkinson's disease shaking hands,
Have very shaky hands can hardly type, various medical mishaps since then, in Jan 2018 had double seizure, broken skull, [later in July 2021 CT scan found this caused irreparable brain damage, Terminal] but typing almost impossible! In 2016 taken off Epilim, almost Parkinson's disease shaking hands,
Adlon57
in
Epilepsy Action
9 months ago
Jardiance side effects? Off Metformin for diabetes 2, but high blood sugar 88, overweight, aged 67, scared reactions due other conditions?
Am terminally ill, irreparable brain damage, epilepsy, so can't do much exercise! Was on metformin from start of diabetes 2 in 2020, found my blood sugar level was 88, have been dieting lost 2 half stone, cholesterol not too bad, so they have put me on just Jardiance 10mg a day! Am taking medication
Am terminally ill, irreparable brain damage, epilepsy, so can't do much exercise! Was on metformin from start of diabetes 2 in 2020, found my blood sugar level was 88, have been dieting lost 2 half stone, cholesterol not too bad, so they have put me on just Jardiance 10mg a day! Am taking medication
Adlon57
in
Healthy Evidence
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Brivaracetam
Hi, Is there anyone on here been changed to briviact from keppra? If so, did the change improve your condition? I have been on lamictal and keppra for years at the highest doses. Unfortunately, although my condition is stable with few seizures over months I have yet to get seizure freedom, so my consultant
Hi, Is there anyone on here been changed to briviact from keppra? If so, did the change improve your condition? I have been on lamictal and keppra for years at the highest doses. Unfortunately, although my condition is stable with few seizures over months I have yet to get seizure freedom, so my consultant
RR25
in
Epilepsy Action
2 years ago
How do you stop tremors in my hands, every time I get pressurised under stress etc, my hands shake especially my fingers, I cannot type?
I have high blood pressure, take lisinopril, but my hands/fingers have a mind of their own, I want to use them but they shake, the more angry I get at them the worse they get! I have JME epilepsy it is probably a side effect of the medication, Vimpat and Briviact, that is causing it? I was on Fycompa
I have high blood pressure, take lisinopril, but my hands/fingers have a mind of their own, I want to use them but they shake, the more angry I get at them the worse they get! I have JME epilepsy it is probably a side effect of the medication, Vimpat and Briviact, that is causing it? I was on Fycompa
Adlon57
in
Healthy Evidence
3 years ago
I was on Epilim and Lamictal for my Juvenile Myoclonic Epilepsy, bad shaking hands, was it Parkinson's disease, found reaction to Epilim!
My specialist had retired in 2013, but my GP thought it was Parkinson's disease as my father had dad it, negative test, but found it was a reaction built up over the years of Epilim, my new specialist in Dec. 2016 put me on Fycompa and Lamictal, within a couple of weeks I wanted to take up drawing classes
My specialist had retired in 2013, but my GP thought it was Parkinson's disease as my father had dad it, negative test, but found it was a reaction built up over the years of Epilim, my new specialist in Dec. 2016 put me on Fycompa and Lamictal, within a couple of weeks I wanted to take up drawing classes
Adlon57
in
Epilepsy Action
3 years ago
Essential tremors for Epilim and Lamictal [2013-2016] now same thing for Vimpat and Briviact [2018- 2021 ......
I have Juvenile Myoclonic Epilepsy and from 2013 was on Epilim and Lamictal but due to the severe tremors of my hands especially my left hand was scanned for Parkinson's disease, which proved negative [my father had had Parkinson's disease] my medication was changed to Fycompa and Lamictal which at first
I have Juvenile Myoclonic Epilepsy and from 2013 was on Epilim and Lamictal but due to the severe tremors of my hands especially my left hand was scanned for Parkinson's disease, which proved negative [my father had had Parkinson's disease] my medication was changed to Fycompa and Lamictal which at first
Adlon57
in
Epilepsy Action
3 years ago
Is metformin okay for a person with a deformed chest and diabetes?
I have recently been told I have diabetes, then told to go into isolation for 12 weeks, because of Covid 19 in March. I was put on metformin 1000 mg a day, I also have epilepsy, which I take Vimpat 400 mg and Briviact 75 mg, and Lisinopril 10 mg for high blood pressure. I have 70/75% lung capacity due
I have recently been told I have diabetes, then told to go into isolation for 12 weeks, because of Covid 19 in March. I was put on metformin 1000 mg a day, I also have epilepsy, which I take Vimpat 400 mg and Briviact 75 mg, and Lisinopril 10 mg for high blood pressure. I have 70/75% lung capacity due
Adlon57
in
Healthy Evidence
4 years ago
Shaking hands!
I have epilepsy [Vimpat 400 mg, Briviact 75 mg] (for fifty years), schwannomatosis, high blood pressure [lisinopril 10 mg], diabetes [Metformin 1000 mg], etc. My Father had Parkinson's disease, but I was checked for it DAT scan which proved negative. I use the laptop a lot, am 63 years of age, but medically
I have epilepsy [Vimpat 400 mg, Briviact 75 mg] (for fifty years), schwannomatosis, high blood pressure [lisinopril 10 mg], diabetes [Metformin 1000 mg], etc. My Father had Parkinson's disease, but I was checked for it DAT scan which proved negative. I use the laptop a lot, am 63 years of age, but medically
Adlon57
in
Healthy Evidence
4 years ago
Vimpat and side effects?
I was on Fycompa and Lamictal for F.M.Epilepsy, I was taken off both in pretty quick successession, in the end of 2018, beginning of 2019, a bumpy ride, but my specialist was more worried about the Briviact, being that it was a newer product in the field, BUT what are the side effects of Vimpat? I have
I was on Fycompa and Lamictal for F.M.Epilepsy, I was taken off both in pretty quick successession, in the end of 2018, beginning of 2019, a bumpy ride, but my specialist was more worried about the Briviact, being that it was a newer product in the field, BUT what are the side effects of Vimpat? I have
Adlon57
in
Epilepsy Action
4 years ago
I have had JMEpilepsy since age 14, when I fractured my skull on the side of school swimming pool!
I have scholiosis on my spine since birth, and cannot sleep on my back, I am 63 so have ALWAYS slept on my right hand side. On 7th December I slept on my left hand side, and proceeded to have a seizure while on my living room chair, I strongly suspect this was caused due to my sleeping on my left hand
I have scholiosis on my spine since birth, and cannot sleep on my back, I am 63 so have ALWAYS slept on my right hand side. On 7th December I slept on my left hand side, and proceeded to have a seizure while on my living room chair, I strongly suspect this was caused due to my sleeping on my left hand
Adlon57
in
Epilepsy Action
5 years ago
Depokote
My son has had seizures (mostly grand mal) about every 3-4 days for about 12 years. He is on vimpat, Briviact, onfi and they just added Depokote with the thoughts of removing one of the others. He has been seizure free for a little over a month. The bloodwork came back okay and said to stay on all 4
My son has had seizures (mostly grand mal) about every 3-4 days for about 12 years. He is on vimpat, Briviact, onfi and they just added Depokote with the thoughts of removing one of the others. He has been seizure free for a little over a month. The bloodwork came back okay and said to stay on all 4
Comedy
in
Epilepsy Action
5 years ago
Levothyroxine, Vimpat and Briviact together?
Hi, Does anyone know if I could take Levo, Vimpat and Briviact together in the mornings? Only just began the Vimpat today and told by my new Neurologist that it's best to take Levo in the morning... Thank you for your help. Best wishes, Tina
Hi, Does anyone know if I could take Levo, Vimpat and Briviact together in the mornings? Only just began the Vimpat today and told by my new Neurologist that it's best to take Levo in the morning... Thank you for your help. Best wishes, Tina
Tinx71
in
Epilepsy Action
5 years ago
"You're a one off!"; Schwannamatosis; Briviact, long term memory gain; Lamictal/Lamotrigine, 'electric shock' episodes; alergic to morphine
I am 63 years of age had Schwannamatosis [and Juvenile Myoclonic Epilepsy] since 14, diagnosed since 2017, I feel I should be sharing my experiences with this rare condition with fellow sufferers and specialists, I am retired live on my own, even have a high pain threshold, examples were that I slashed
I am 63 years of age had Schwannamatosis [and Juvenile Myoclonic Epilepsy] since 14, diagnosed since 2017, I feel I should be sharing my experiences with this rare condition with fellow sufferers and specialists, I am retired live on my own, even have a high pain threshold, examples were that I slashed
Adlon57
in
Healthy Evidence
5 years ago
Briviact and dislocated shoulder
Hello, does anyone have experience with Briviact? My son was on Keppra, vimpat and Onfi and still having seizures and they recently took him off of keppra and onto Fycompa and he had more seizures that before and now we are going to start Briviact. Does anyone have any experience they would like to share
Hello, does anyone have experience with Briviact? My son was on Keppra, vimpat and Onfi and still having seizures and they recently took him off of keppra and onto Fycompa and he had more seizures that before and now we are going to start Briviact. Does anyone have any experience they would like to share
Comedy
in
Epilepsy Action
5 years ago
Long term memory gain?
I have JME for 49 years, since the age of fourteen when I 'bashed' my head. I am nearly 63. Since April 2018 I have been taking Vimpat 400 mg and Briviact 50mg I have not had any seizures, I started on Vimpat in Nov. 2017, but had about 10 seizures, between then, but it was from April 30 2018 that the
I have JME for 49 years, since the age of fourteen when I 'bashed' my head. I am nearly 63. Since April 2018 I have been taking Vimpat 400 mg and Briviact 50mg I have not had any seizures, I started on Vimpat in Nov. 2017, but had about 10 seizures, between then, but it was from April 30 2018 that the
Adlon57
in
Epilepsy Action
5 years ago
Briviact and dosage
I am having side effects when I was changed my dosage from 1 50mg at night to 25mg morning and 25mg night, about 6 weeks ago. 50mg at night was fine but hyper active caused lack of sleep, no seizures since started in April 2018, moved to 25mg twice a day, but now irratible, sleep bad, odd dreams, and
I am having side effects when I was changed my dosage from 1 50mg at night to 25mg morning and 25mg night, about 6 weeks ago. 50mg at night was fine but hyper active caused lack of sleep, no seizures since started in April 2018, moved to 25mg twice a day, but now irratible, sleep bad, odd dreams, and
Adlon57
in
Epilepsy Action
5 years ago
BRIVIACT and Kidney Stones?
April 2018 I started taking 50 mg Briviact with 400 Vimpat, I have JME, for 49 years, I was diagnosed with pancreatitis in September 2018, bringing up blood in flem, pain in back, temperature, [scan nothing except kidney stone, no gall stones, had been off alcohol for 3 years anyway?] out of hospital
April 2018 I started taking 50 mg Briviact with 400 Vimpat, I have JME, for 49 years, I was diagnosed with pancreatitis in September 2018, bringing up blood in flem, pain in back, temperature, [scan nothing except kidney stone, no gall stones, had been off alcohol for 3 years anyway?] out of hospital
Adlon57
in
Epilepsy Action
6 years ago
Lamictal and electric shock nighttime 'seizures'
I have had JME for nearly fifty years, but I was on Keppra, then Epilim, then Fycompa, all with Lamictal from circa 2012 that caused the question? I was taken off these medications, BUT it was when I was on the Lamictal solely when I would have these attacks, I would still be having my Grand mal attacks
I have had JME for nearly fifty years, but I was on Keppra, then Epilim, then Fycompa, all with Lamictal from circa 2012 that caused the question? I was taken off these medications, BUT it was when I was on the Lamictal solely when I would have these attacks, I would still be having my Grand mal attacks
Adlon57
in
Epilepsy Action
6 years ago
Sugar and Fycompa
In my absolute boredom, I have FME and PIP? In the immense generosity of the government, I have been supplied with PIP which means I lose approximately £75 per week in my 'benefit' with absolutely nothing to do, have been registered as not been able to work at all since December 2013, I decided to use
In my absolute boredom, I have FME and PIP? In the immense generosity of the government, I have been supplied with PIP which means I lose approximately £75 per week in my 'benefit' with absolutely nothing to do, have been registered as not been able to work at all since December 2013, I decided to use
Adlon57
in
Epilepsy Action
6 years ago
1
2
Next page
Filter results
Clear filters
Posted in
All communities
Epilepsy Action
17 results
Healthy Evidence
6 results
Epilepsy Research Institute
1 result
View top 10 communities
Sort by
Most Relevant
Newest