Experiences with

Brivirac

In 2016 I was taken off Epilim, I have JME epilepsy, I was on it for circa. eight years, with lamictal, but my hands shook so bad, fears it was Parkinson's disease, [my father had Parkinson's disease] I was 'tested' then subsequently again in 2021 both negative, I was put on Fycompa in 2016, the shaking

Have very shaky hands can hardly type, various medical mishaps since then, in Jan 2018 had double seizure, broken skull, [later in July 2021 CT scan found this caused irreparable brain damage, Terminal] but typing almost impossible! In 2016 taken off Epilim, almost Parkinson's disease shaking hands,

Am terminally ill, irreparable brain damage, epilepsy, so can't do much exercise! Was on metformin from start of diabetes 2 in 2020, found my blood sugar level was 88, have been dieting lost 2 half stone, cholesterol not too bad, so they have put me on just Jardiance 10mg a day! Am taking medication

Hi, Is there anyone on here been changed to briviact from keppra? If so, did the change improve your condition? I have been on lamictal and keppra for years at the highest doses. Unfortunately, although my condition is stable with few seizures over months I have yet to get seizure freedom, so my consultant

I have high blood pressure, take lisinopril, but my hands/fingers have a mind of their own, I want to use them but they shake, the more angry I get at them the worse they get! I have JME epilepsy it is probably a side effect of the medication, Vimpat and Briviact, that is causing it? I was on Fycompa

My specialist had retired in 2013, but my GP thought it was Parkinson's disease as my father had dad it, negative test, but found it was a reaction built up over the years of Epilim, my new specialist in Dec. 2016 put me on Fycompa and Lamictal, within a couple of weeks I wanted to take up drawing classes

I have Juvenile Myoclonic Epilepsy and from 2013 was on Epilim and Lamictal but due to the severe tremors of my hands especially my left hand was scanned for Parkinson's disease, which proved negative [my father had had Parkinson's disease] my medication was changed to Fycompa and Lamictal which at first

I have recently been told I have diabetes, then told to go into isolation for 12 weeks, because of Covid 19 in March. I was put on metformin 1000 mg a day, I also have epilepsy, which I take Vimpat 400 mg and Briviact 75 mg, and Lisinopril 10 mg for high blood pressure. I have 70/75% lung capacity due

I have epilepsy [Vimpat 400 mg, Briviact 75 mg] (for fifty years), schwannomatosis, high blood pressure [lisinopril 10 mg], diabetes [Metformin 1000 mg], etc. My Father had Parkinson's disease, but I was checked for it DAT scan which proved negative. I use the laptop a lot, am 63 years of age, but medically

I was on Fycompa and Lamictal for F.M.Epilepsy, I was taken off both in pretty quick successession, in the end of 2018, beginning of 2019, a bumpy ride, but my specialist was more worried about the Briviact, being that it was a newer product in the field, BUT what are the side effects of Vimpat? I have

I have scholiosis on my spine since birth, and cannot sleep on my back, I am 63 so have ALWAYS slept on my right hand side. On 7th December I slept on my left hand side, and proceeded to have a seizure while on my living room chair, I strongly suspect this was caused due to my sleeping on my left hand

My son has had seizures (mostly grand mal) about every 3-4 days for about 12 years. He is on vimpat, Briviact, onfi and they just added Depokote with the thoughts of removing one of the others. He has been seizure free for a little over a month. The bloodwork came back okay and said to stay on all 4

Hi, Does anyone know if I could take Levo, Vimpat and Briviact together in the mornings? Only just began the Vimpat today and told by my new Neurologist that it's best to take Levo in the morning... Thank you for your help. Best wishes, Tina

I am 63 years of age had Schwannamatosis [and Juvenile Myoclonic Epilepsy] since 14, diagnosed since 2017, I feel I should be sharing my experiences with this rare condition with fellow sufferers and specialists, I am retired live on my own, even have a high pain threshold, examples were that I slashed

Hello, does anyone have experience with Briviact? My son was on Keppra, vimpat and Onfi and still having seizures and they recently took him off of keppra and onto Fycompa and he had more seizures that before and now we are going to start Briviact. Does anyone have any experience they would like to share

I have JME for 49 years, since the age of fourteen when I 'bashed' my head. I am nearly 63. Since April 2018 I have been taking Vimpat 400 mg and Briviact 50mg I have not had any seizures, I started on Vimpat in Nov. 2017, but had about 10 seizures, between then, but it was from April 30 2018 that the

I am having side effects when I was changed my dosage from 1 50mg at night to 25mg morning and 25mg night, about 6 weeks ago. 50mg at night was fine but hyper active caused lack of sleep, no seizures since started in April 2018, moved to 25mg twice a day, but now irratible, sleep bad, odd dreams, and

April 2018 I started taking 50 mg Briviact with 400 Vimpat, I have JME, for 49 years, I was diagnosed with pancreatitis in September 2018, bringing up blood in flem, pain in back, temperature, [scan nothing except kidney stone, no gall stones, had been off alcohol for 3 years anyway?] out of hospital

I have had JME for nearly fifty years, but I was on Keppra, then Epilim, then Fycompa, all with Lamictal from circa 2012 that caused the question? I was taken off these medications, BUT it was when I was on the Lamictal solely when I would have these attacks, I would still be having my Grand mal attacks

In my absolute boredom, I have FME and PIP? In the immense generosity of the government, I have been supplied with PIP which means I lose approximately £75 per week in my 'benefit' with absolutely nothing to do, have been registered as not been able to work at all since December 2013, I decided to use