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Hi all This is a link to my vlog about speech problems associated with deep brain stimulation surgery. https://youtu.be/N3SJwYgvVPs Cheers, Ian
Hi all This is a link to my vlog about speech problems associated with deep brain stimulation surgery. https://youtu.be/N3SJwYgvVPs Cheers, Ian
Ianfrizell
in
Cure Parkinson's
5 years ago
Tetanus vaccine
Hi everyone, do you know if it is safe to get a tetanus vaccine when having APS? Will it effect my INR? I am on both warfarin and Clopidogrel. Thanks and have a wonderful summer š
Hi everyone, do you know if it is safe to get a tetanus vaccine when having APS? Will it effect my INR? I am on both warfarin and Clopidogrel. Thanks and have a wonderful summer š
Anjdur
in
Hughes Syndrome APS Forum
5 years ago
Help. Explosive episodes of anger. Is this dementia?
Help needed. My mom just started throwing fits about a week ago. Itās been consistent every day. She flips a switch all of a sudden and starts screaming and crying. She has moments of hallucinations and doesnāt recognize me. She is having arthritis pain in her shoulder and she will scream and yell for
Help needed. My mom just started throwing fits about a week ago. Itās been consistent every day. She flips a switch all of a sudden and starts screaming and crying. She has moments of hallucinations and doesnāt recognize me. She is having arthritis pain in her shoulder and she will scream and yell for
Leylaleyla
in
Cure Parkinson's
5 years ago
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Squirrel scratches? Chances of Rabies or Tetanus
Anyone bitten by a squirrel or mistakenly scratched by one in the UK? Out in Hyde Park on Sunday and very brave Squirrel ran up my leg when my back was turned. I do not interact with wildlife at all so as soon as that happened I screamed and it jumped off straight. The jump was very light and didn't
Anyone bitten by a squirrel or mistakenly scratched by one in the UK? Out in Hyde Park on Sunday and very brave Squirrel ran up my leg when my back was turned. I do not interact with wildlife at all so as soon as that happened I screamed and it jumped off straight. The jump was very light and didn't
Misg
in
Anxiety Support
5 years ago
Brain haemorrhage
Would love to share other people's experiences after suffering from a subarachnoid
brain
haemorrhage
, like I did 2 years ago, & still suffering with numerous side effects now x
Would love to share other people's experiences after suffering from a subarachnoid
brain
haemorrhage
, like I did 2 years ago, & still suffering with numerous side effects now x
Timmy4ever
in
Brain health
5 years ago
Admitted to hospital
Today I have Been admitted to hospital after another ambulance trip, this time with a possible
brain
haemorrhage
. Had a CT scan, awaiting results, had a ridiculous amount of painkillers but still have a terrible headache.
Today I have Been admitted to hospital after another ambulance trip, this time with a possible
brain
haemorrhage
. Had a CT scan, awaiting results, had a ridiculous amount of painkillers but still have a terrible headache.
Fusch
in
Hughes Syndrome APS Forum
5 years ago
SHINGLES ON MY FACE.
Has anyone had an experience with shingles on their face? I have been dealing with it for a couple of years. The sores are gone but the nerves in my face are highly sensitive. Even the nerves on my gums and teeth on that side of my face. I use triamcinolone acetonide on my face which helps a little
Has anyone had an experience with shingles on their face? I have been dealing with it for a couple of years. The sores are gone but the nerves in my face are highly sensitive. Even the nerves on my gums and teeth on that side of my face. I use triamcinolone acetonide on my face which helps a little
Rubyray
in
AF Association
5 years ago
Mollarets Meningitis
Hi everyone...im looking for any information and a Neurologist in the State of Florida who knows how to diagnose and treat Mollarets Meningitis..any and all help is greatly appreciated
Hi everyone...im looking for any information and a Neurologist in the State of Florida who knows how to diagnose and treat Mollarets Meningitis..any and all help is greatly appreciated
TheStarchild1
in
Meningitis Now
5 years ago
Answering Questions about Deep Brain Stimulation
https://www.michaeljfox.org/form/dbs-pdf-form?id=2&os_cid=tw-a1b1R0000086fBT
https://www.michaeljfox.org/form/dbs-pdf-form?id=2&os_cid=tw-a1b1R0000086fBT
Farooqji
in
Cure Parkinson's
5 years ago
Will an MRI help?
I have constant worry that I have a brain tumor and many symptoms that revolve around this. Have any others with health anxiety received MRI's did it help? Did it make it worse? Thanks
I have constant worry that I have a brain tumor and many symptoms that revolve around this. Have any others with health anxiety received MRI's did it help? Did it make it worse? Thanks
TP114
in
Anxiety Support
5 years ago
Invasive and nonāinvasive brain stimulation in Parkinson's disease: Clinical effects and future perspectives
Deep brain stimulation (DBS) can improve motor symptoms in moderate to advanced PD. However, the optimal stimulation paradigm for nonāmotor symptoms, freezing of gait and the optimal timing of DBS are still under investigations. The findings of pathological oscillations and abnormal frequency to amplitude
Deep brain stimulation (DBS) can improve motor symptoms in moderate to advanced PD. However, the optimal stimulation paradigm for nonāmotor symptoms, freezing of gait and the optimal timing of DBS are still under investigations. The findings of pathological oscillations and abnormal frequency to amplitude
Farooqji
in
Cure Parkinson's
5 years ago
About DBS
Does anyone undergone for DBS, 1. After DBS also should take medicine 2. Any side effects 3. How long it will take to recover post surgery 4. What is the IPG machine using, which machine is good
Does anyone undergone for DBS, 1. After DBS also should take medicine 2. Any side effects 3. How long it will take to recover post surgery 4. What is the IPG machine using, which machine is good
Vishwa228
in
Cure Parkinson's
5 years ago
Booking signing and talk Waterstones
Link for tickets or to order Room 23 : https://www.waterstones.com/events/room-23-surviving-a-
brain
-
haemorrhage
-an-evening-with-kavita-basi/newcastle . . #room23 #pleasesupport
Link for tickets or to order Room 23 : https://www.waterstones.com/events/room-23-surviving-a-
brain
-
haemorrhage
-an-evening-with-kavita-basi/newcastle . . #room23 #pleasesupport
Kavib
in
Headway
5 years ago
Booking signing & talk Waterstones
Link for tickets or to order Room 23 : https://www.waterstones.com/events/room-23-surviving-a-
brain
-
haemorrhage
-an-evening-with-kavita-basi/newcastle . . #room23 #pleasesupport
Link for tickets or to order Room 23 : https://www.waterstones.com/events/room-23-surviving-a-
brain
-
haemorrhage
-an-evening-with-kavita-basi/newcastle . . #room23 #pleasesupport
Kavib
in
Neuro Support
5 years ago
DBS for essential tremors?
I'm new to this site and am considering DBS. Has anyone had DBS (deep brain surgery) for essential tremors of hands, head (cervical dystonia) and voice? What result? My neurologists say it will help with my shaky head. I know DBS helps shaky hands, it's my shaky head that is annoying!
I'm new to this site and am considering DBS. Has anyone had DBS (deep brain surgery) for essential tremors of hands, head (cervical dystonia) and voice? What result? My neurologists say it will help with my shaky head. I know DBS helps shaky hands, it's my shaky head that is annoying!
piano_gal
in
National Tremor Foundation
5 years ago
Losing hope
Dx 2003 aged 46. until about 6 months ago i refused to be beaten. Now I am utterly beaten. For years Iāve taken madopar every 90 mins . I have always had sudden swings between off and on but was able to make them bearable ā with the odd blip - with extra madopar. I worked out years ago that protein interferes
Dx 2003 aged 46. until about 6 months ago i refused to be beaten. Now I am utterly beaten. For years Iāve taken madopar every 90 mins . I have always had sudden swings between off and on but was able to make them bearable ā with the odd blip - with extra madopar. I worked out years ago that protein interferes
pen1
in
Cure Parkinson's
5 years ago
Playing with the settings of my brain
Hi all This is a link to my vlog about DBS and speech issues. https://www.youtube.com/watch?v=Sn4IP7-px0w Cheers, Ian
Hi all This is a link to my vlog about DBS and speech issues. https://www.youtube.com/watch?v=Sn4IP7-px0w Cheers, Ian
Ianfrizell
in
Cure Parkinson's
5 years ago
Anxious I have a brain tumour
I'm 19, and I'm so anxious I have a brain tumour. About five months ago, I saw bright lights all over my room for a couple of seconds and it was gone. A few days later, I developed an odd feeling in my head - like a tingling, slight pressure in my head, all over my scalp and ears. It's so bad it feels
I'm 19, and I'm so anxious I have a brain tumour. About five months ago, I saw bright lights all over my room for a couple of seconds and it was gone. A few days later, I developed an odd feeling in my head - like a tingling, slight pressure in my head, all over my scalp and ears. It's so bad it feels
Hidden
in
Anxiety Support
5 years ago
DBS, has anyone considered this procedure to help with tremors?
I am scheduled to have this procedure next month. I have heard some good things from some PD patients and would like to hear other PD patientās prospective. My diagnosis was in early 2018. Right hand tremor, now taking 25/100 x 3 (3 times/day), my procedure will be on my left side. Meds work, but tire
I am scheduled to have this procedure next month. I have heard some good things from some PD patients and would like to hear other PD patientās prospective. My diagnosis was in early 2018. Right hand tremor, now taking 25/100 x 3 (3 times/day), my procedure will be on my left side. Meds work, but tire
PHN001
in
Cure Parkinson's
5 years ago
Limited vasculitus I
Hi there all. Im throwing a party tomorrow and my neice has informed me she has shingles on the end stages of the illness. She is worried about passing the disease onto me if she comes she has been informed not to mix with people with low immune systems.. Has anyone had experience of shingles and
Hi there all. Im throwing a party tomorrow and my neice has informed me she has shingles on the end stages of the illness. She is worried about passing the disease onto me if she comes she has been informed not to mix with people with low immune systems.. Has anyone had experience of shingles and
foweraker
in
Vasculitis UK
5 years ago
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