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Online/Meet ups for people with Hypertrophic Cardiomyopathy struggling with Mental Health?
Hi everyone, so my partner was diagnosed with HC when he was 14. Been in great shape and only having medication for his condition up until 2016/2017, then 41, he was advised to have an ICD. Since then he's had 3 occasions where the device has delivered shock therapy and unfortunately the last 2 occasions
Hi everyone, so my partner was diagnosed with HC when he was 14. Been in great shape and only having medication for his condition up until 2016/2017, then 41, he was advised to have an ICD. Since then he's had 3 occasions where the device has delivered shock therapy and unfortunately the last 2 occasions
Chunkiedog
in
British Heart Foundation
7 months ago
Internet Myths about Red Meat
I know that many men, egged on by well-meaning caregivers and sometimes doctors, deprive themselves of red meat. Some (non-Hindus) have an almost religious attachment to plant-based diets. I expect they will object to this article. For that reason, it goes into the weeds of what constitutes Internet
I know that many men, egged on by well-meaning caregivers and sometimes doctors, deprive themselves of red meat. Some (non-Hindus) have an almost religious attachment to plant-based diets. I expect they will object to this article. For that reason, it goes into the weeds of what constitutes Internet
Tall_Allen
in
Advanced Prostate Cancer
3 months ago
Strong negative reaction to first Docetaxel treatment
I am participating in an NIH study combining Docetaxel with an immunotherapy. I had my first treatment of only Docetaxel this Tuesday. I lasted 2 minutes and 7cc before I had a severe reaction - severe flushing (glowing red from head to toe), difficulty breathing, sweating, uncontrollable shivering.
I am participating in an NIH study combining Docetaxel with an immunotherapy. I had my first treatment of only Docetaxel this Tuesday. I lasted 2 minutes and 7cc before I had a severe reaction - severe flushing (glowing red from head to toe), difficulty breathing, sweating, uncontrollable shivering.
4tunate1
in
Advanced Prostate Cancer
3 months ago
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Help with my test results please
Hi All I would like help with my latest blood tests results PLEASE and guidance of what to do next ??? I have Autoimmune Hashimotos 27 years ! So to keep this short I’ve recently ( past 3 months ) changed from Armour Thyroid ( took for 5 years ) to Tirosint ( I’m lactose intolerant ) previous
Hi All I would like help with my latest blood tests results PLEASE and guidance of what to do next ??? I have Autoimmune Hashimotos 27 years ! So to keep this short I’ve recently ( past 3 months ) changed from Armour Thyroid ( took for 5 years ) to Tirosint ( I’m lactose intolerant ) previous
joskie
in
Thyroid UK
3 months ago
Update on prognosis for my husband with stage 4 A cancer.
I met with the Cornell team and the oncologist was against surgery and now they are suggesting radiation for two weeks 5 times a day by MRI guided machine and ADT for two years. Have a consult with Memorial Sloane Kettering next week then will make our decision. Feeling confused as want hubby to make
I met with the Cornell team and the oncologist was against surgery and now they are suggesting radiation for two weeks 5 times a day by MRI guided machine and ADT for two years. Have a consult with Memorial Sloane Kettering next week then will make our decision. Feeling confused as want hubby to make
SherryKahn
in
Advanced Prostate Cancer
3 months ago
Toronto Prostate Cancer Specialist for Dad
My dad (68 years old) is visiting me (For my delivery in the first week of June) from India and he is going to be in Ontario, Canada for the next 3 months. He was diagnosed in Feb 2024 with a PSA of 24 and is completely asymptomatic. He is on hormone therapy with Gleason 8 and distant mets in his bones
My dad (68 years old) is visiting me (For my delivery in the first week of June) from India and he is going to be in Ontario, Canada for the next 3 months. He was diagnosed in Feb 2024 with a PSA of 24 and is completely asymptomatic. He is on hormone therapy with Gleason 8 and distant mets in his bones
Justgettingitright
in
Advanced Prostate Cancer
3 months ago
Help with results please 🙏
Hi, been Hashimotos/hypothyroid about 10 years. Was always on 225mg. Since perimenopause they've dropped me to 150 which I was reluctant but had to do. Stayed like this for 3 years but new Dr, new results - she wants to drop me again. Trying to balance HRT to help all pain and symptoms. Scared of how
Hi, been Hashimotos/hypothyroid about 10 years. Was always on 225mg. Since perimenopause they've dropped me to 150 which I was reluctant but had to do. Stayed like this for 3 years but new Dr, new results - she wants to drop me again. Trying to balance HRT to help all pain and symptoms. Scared of how
Julesb02
in
Thyroid UK
3 months ago
Latest GP appointment
I had a facevto face appointment with a GP on Monday. This was a new GP so thought I stood a chance if levo increase . No the case, I asked nicely, I quoted a few things, I asked for a trail on a increase, she wouldn't budge, she quoted that to have to much levo could make me unwell and they have to
I had a facevto face appointment with a GP on Monday. This was a new GP so thought I stood a chance if levo increase . No the case, I asked nicely, I quoted a few things, I asked for a trail on a increase, she wouldn't budge, she quoted that to have to much levo could make me unwell and they have to
Dawney63
in
Thyroid UK
3 months ago
Results after T3/T4 trial...is this it?
Hello, Medicheck results after T3/T4 trial since 15/11/23, reduced levo then from 150 to 125, added 5mg T3 23/11/23, red levo to 100mg 06/12/23, added 55mg T3 12/12/23. 30/12/23 not feeling best GP closed added 12.5 levo myself as thought maybe under medicated. Medicheck 08/02/24. T4 16.7
Hello, Medicheck results after T3/T4 trial since 15/11/23, reduced levo then from 150 to 125, added 5mg T3 23/11/23, red levo to 100mg 06/12/23, added 55mg T3 12/12/23. 30/12/23 not feeling best GP closed added 12.5 levo myself as thought maybe under medicated. Medicheck 08/02/24. T4 16.7
Klawd
in
Thyroid UK
7 months ago
coming off rotigotine patches
Hello, First post… Could someone please share their experience coming off rotigotine patches, and what helped you throughout this experience? Been on rotigotine for 4 or so years, and more recently started experiencing augmentation. Was on 2mg, in August GP suggested increasing to 3mg but that hardly
Hello, First post… Could someone please share their experience coming off rotigotine patches, and what helped you throughout this experience? Been on rotigotine for 4 or so years, and more recently started experiencing augmentation. Was on 2mg, in August GP suggested increasing to 3mg but that hardly
Artifcial
in
Restless Legs Syndrome
9 months ago
Prostrate Cancer treatment ADT
HiI am being treated for PC. After diagnose I was put on ADT treatment. This stops testosterone production. Had a bone scan and found I have osteopenia. I am taking a calcium citrate with vitamin D. Also once per week Alendronate 70mg. Has anyone else been in the same boat? Thanks
HiI am being treated for PC. After diagnose I was put on ADT treatment. This stops testosterone production. Had a bone scan and found I have osteopenia. I am taking a calcium citrate with vitamin D. Also once per week Alendronate 70mg. Has anyone else been in the same boat? Thanks
RWRB
in
Osteoporosis Support
3 months ago
Advice Needed Please
Hi. I’m hoping for some advice. I have an appointment next week to discuss starting on Prostap or Zolodex. I’ve been told I’d have to start HRT alongside it and I’m wondering what experiences people have have with this treatment. I can’t seem to make up my mind and the stress of worrying about it all
Hi. I’m hoping for some advice. I have an appointment next week to discuss starting on Prostap or Zolodex. I’ve been told I’d have to start HRT alongside it and I’m wondering what experiences people have have with this treatment. I can’t seem to make up my mind and the stress of worrying about it all
Laulou87
in
Endometriosis UK
3 months ago
Bad conversion on levo t4 to t3
Hi everyone, I posted a few weeks ago. But looking back wondered if it could be vaginal hrt cream (estradoil) or terbinefene . Anyone got any thoughts sont see endo for another two weeks. Hypo symptoms.
Hi everyone, I posted a few weeks ago. But looking back wondered if it could be vaginal hrt cream (estradoil) or terbinefene . Anyone got any thoughts sont see endo for another two weeks. Hypo symptoms.
Ganggywaller
in
Thyroid UK
3 months ago
Where Are My People?
I was diagnosed with major depressive disorder over 5 years ago. It started with speech therapy but didn’t seem to help. I’ve been medicated since then but it doesn’t feel like it’s doing its job anymore. The last couple years have been a rollercoaster with changing meds multiple times, worsening depression
I was diagnosed with major depressive disorder over 5 years ago. It started with speech therapy but didn’t seem to help. I’ve been medicated since then but it doesn’t feel like it’s doing its job anymore. The last couple years have been a rollercoaster with changing meds multiple times, worsening depression
RottieFlood37
in
Major Depressive Disorder (MDD) Support
9 months ago
QoL Tall Trees and PSA Update
https://youtu.be/TbFN3uYda_c?si=s0hWKrOIU7HRywjr https://www.nps.gov/seki/learn/nature/sherman.htm https://youtu.be/HHnA1yIO4Cc?si=AvUvLmeLel_z7NwI https://www.atlasobscura.com/articles/meet-general-sherman-the-largest-tree-in-the-world-by-volume Road trip babee, been in CA since 1976 and this is
https://youtu.be/TbFN3uYda_c?si=s0hWKrOIU7HRywjr https://www.nps.gov/seki/learn/nature/sherman.htm https://youtu.be/HHnA1yIO4Cc?si=AvUvLmeLel_z7NwI https://www.atlasobscura.com/articles/meet-general-sherman-the-largest-tree-in-the-world-by-volume Road trip babee, been in CA since 1976 and this is
dockam
in
Advanced Prostate Cancer
3 months ago
Breast lump
I am post menopause and have been taking HRT for 20years due to severe hot flushes! 6 months ago I felt a pea sized lump behind my nipple didn't worry too much then the lump started to get bigger. Went to GP who fast tracked me to Breast clinic with suspected Cancerous lump. I had my appointment yesterday
I am post menopause and have been taking HRT for 20years due to severe hot flushes! 6 months ago I felt a pea sized lump behind my nipple didn't worry too much then the lump started to get bigger. Went to GP who fast tracked me to Breast clinic with suspected Cancerous lump. I had my appointment yesterday
tamari
in
Women's Health
3 months ago
Stage 4 A Prostate cancer
My partner was diagnosed with stage 4 A prostate cancer with spread to pelvic lymph nodes. Oncologist has recommended surgery followed by radiation and hormone therapy for a good prognosis. He is 65 healthy and no symptoms. PSA was 11. Has a history of prostrate cancer. Was wondering if we should get
My partner was diagnosed with stage 4 A prostate cancer with spread to pelvic lymph nodes. Oncologist has recommended surgery followed by radiation and hormone therapy for a good prognosis. He is 65 healthy and no symptoms. PSA was 11. Has a history of prostrate cancer. Was wondering if we should get
SherryKahn
in
Advanced Prostate Cancer
3 months ago
xtandi plus talzenna
Has anyone else been down this treatment to add Talzenna to their adt treatments? I started only a few days ago. Side effects seem to be severe. Kidney pain, back pain, brain fog, fatigue. I stopped after only day three. Awaiting my MO to respond to the call for help. I feel way too medicated.
Has anyone else been down this treatment to add Talzenna to their adt treatments? I started only a few days ago. Side effects seem to be severe. Kidney pain, back pain, brain fog, fatigue. I stopped after only day three. Awaiting my MO to respond to the call for help. I feel way too medicated.
Apd66
in
Advanced Prostate Cancer
3 months ago
4 years post menopause, menstruation started again, any ideas why?
I’m asking for someone not on this forum. She is 52, went through menopause 4 years ago relatively easily. Now out of the blue it seems menstruation has started again, the full Monty, sore bosoms, cramps and bleeding. The bleeding she says is worse than even post natal, very heavy and she’s left feeling
I’m asking for someone not on this forum. She is 52, went through menopause 4 years ago relatively easily. Now out of the blue it seems menstruation has started again, the full Monty, sore bosoms, cramps and bleeding. The bleeding she says is worse than even post natal, very heavy and she’s left feeling
Espeegee
in
Menopause and Perimenopause Support
3 months ago
HRT, low white blood cell count & NDT
I have been having appointments with my GP to try and get an HRT prescription. She wanted a blood test doing first - I have been taking NDT for about 8 years (doing really well on it) and basically my GP didn't understand it, stopped calling me in for blood tests and I haven't been for years. The blood
I have been having appointments with my GP to try and get an HRT prescription. She wanted a blood test doing first - I have been taking NDT for about 8 years (doing really well on it) and basically my GP didn't understand it, stopped calling me in for blood tests and I haven't been for years. The blood
Raucous
in
Thyroid UK
3 months ago
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