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Lupus and Breast Cancer
I put a post here on this subject a while ago, looking for anyone who had both. There wasn't anyone directly, maybe that's changed now. I'm just sounding off because I'm on my 4th chemotherapy round, which involves my Nemesis: Steroids. I don't tolerate them very well at all. I had to struggle just
I put a post here on this subject a while ago, looking for anyone who had both. There wasn't anyone directly, maybe that's changed now. I'm just sounding off because I'm on my 4th chemotherapy round, which involves my Nemesis: Steroids. I don't tolerate them very well at all. I had to struggle just
awareness75
in
LUPUS UK
2 years ago
Zytiga to Xtandi
Hello all! Just had my father’s latest oncology appointment today. After many years of being on Zytiga, the doc has recommended we switch to Xtandi. Radiology shows one new spot in his tailbone (which we expected as he’s been experiencing a bit of pain there). Note: his cancer metastasized in summer
Hello all! Just had my father’s latest oncology appointment today. After many years of being on Zytiga, the doc has recommended we switch to Xtandi. Radiology shows one new spot in his tailbone (which we expected as he’s been experiencing a bit of pain there). Note: his cancer metastasized in summer
PHnerd
in
Advanced Prostate Cancer
2 years ago
Switch of corticosteroids from prednisone to dexamethasone
Diagnosed December 2017, see my profile. Since radiotherapy December 2020, it has taken around fourteen months for my PSA to go from 0.07 to 1.2, with slow and steady progression of about 25% every four weeks. Obviously exponentially, I'd like to make sure it doesn't go from 7 to 1200 the next fourteen
Diagnosed December 2017, see my profile. Since radiotherapy December 2020, it has taken around fourteen months for my PSA to go from 0.07 to 1.2, with slow and steady progression of about 25% every four weeks. Obviously exponentially, I'd like to make sure it doesn't go from 7 to 1200 the next fourteen
Tonyliv
in
Advanced Prostate Cancer
2 years ago
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Paclitaxel Acute Pain Syndrome
Hi everyone. I began Taxol Friday. I was not at all apprehensive since I had taken the drug 11 years ago. I thought I knew what to expect. I left the clinic on a steroid high. No pain. Very little fatigue. I even had dinner guests. But the clock struck 10 p.m. and pain began building. By 3 a.m. it was
Hi everyone. I began Taxol Friday. I was not at all apprehensive since I had taken the drug 11 years ago. I thought I knew what to expect. I left the clinic on a steroid high. No pain. Very little fatigue. I even had dinner guests. But the clock struck 10 p.m. and pain began building. By 3 a.m. it was
Arisgram
in
SHARE Metastatic Breast Cancer
2 years ago
Eczema, Rosacea or both?
I'll start by saying I've had eczema all my life (25, male) and as I've gotten older it's been manageable with a topical steroid cream,
Betamethasone
. In Autumn of 2020 I started getting periorbital dermatitis on my eyelids (eventually diagnosed by an NHS dermatologist).
I'll start by saying I've had eczema all my life (25, male) and as I've gotten older it's been manageable with a topical steroid cream,
Betamethasone
. In Autumn of 2020 I started getting periorbital dermatitis on my eyelids (eventually diagnosed by an NHS dermatologist).
tigerbalm123
in
Changing Faces
2 years ago
Proposed Increase in Dexamethasone Dosage for a Brain Tumour
I'm currently on four 2 mg tablets per day, they are planning to increase this to aid my walking and mobility . What are the likely impacts/short or long term & what is the maximum dose? Should I go for the increased dose? Any comments/advise would be very welcome
I'm currently on four 2 mg tablets per day, they are planning to increase this to aid my walking and mobility . What are the likely impacts/short or long term & what is the maximum dose? Should I go for the increased dose? Any comments/advise would be very welcome
Beatless
in
The Roy Castle Lung Cancer Foundation
2 years ago
How to restart unresponsive adrenals?
I have tried reducing from where i'm currently at, 1mg
Betamethasone
, for a long time but life is rubbish once the withdrawls kick in so 1mg is where life is at. Any thoughts?
I have tried reducing from where i'm currently at, 1mg
Betamethasone
, for a long time but life is rubbish once the withdrawls kick in so 1mg is where life is at. Any thoughts?
ThatsMeStuffed
in
PMRGCAuk
3 years ago
PSA is increasing with Docetaxel, what should we do now ?
My father is now 66 years old, back in Dec 2020 he was diagnosed with Advanced PC now his PSA rised to 6.630 ng/mL on Docetaxel, what are our options given that my father is not in USA (in Egypt) ? or how should we proceed if someone has a positive experience after Docetaxel stop working ? Here's the
My father is now 66 years old, back in Dec 2020 he was diagnosed with Advanced PC now his PSA rised to 6.630 ng/mL on Docetaxel, what are our options given that my father is not in USA (in Egypt) ? or how should we proceed if someone has a positive experience after Docetaxel stop working ? Here's the
mgaa
in
Advanced Prostate Cancer
2 years ago
Interesting post from another site.
12:46 Sat 7 May * 48% stuffthatworks.health POLYMYALGIA RHEUMATICA LERO O Ed582 • 2d As a physician with PMR I continue to be astounded by its exquisite sensitivity of the disease to very small changes in prednisone dose. Over my long career I have prescribed prednisone for other conditions where 40
12:46 Sat 7 May * 48% stuffthatworks.health POLYMYALGIA RHEUMATICA LERO O Ed582 • 2d As a physician with PMR I continue to be astounded by its exquisite sensitivity of the disease to very small changes in prednisone dose. Over my long career I have prescribed prednisone for other conditions where 40
Ronzy
in
PMRGCAuk
2 years ago
Post Surgery
Posted for the first time over a month ago and recently had trab surgery on my left eye Tues 26th. Surgery was not the most pleasant of experiences but necessary and the pressure was down to 8 the next day from a high of 38 so good news so far. The consultant was happy with how my eye looked and I could
Posted for the first time over a month ago and recently had trab surgery on my left eye Tues 26th. Surgery was not the most pleasant of experiences but necessary and the pressure was down to 8 the next day from a high of 38 so good news so far. The consultant was happy with how my eye looked and I could
Cendeck
in
Glaucoma UK
2 years ago
Question regarding dexamethasone eye drops
Hi everyone, Hope you are all well, or as much as you can be. I wonder if someone can help me, I’ve just had cataract surgery last Thursday, all is well but I’m just wondering if dexamethasone eye drops 6 x daily for 2 weeks and then 4 x daily for another 4 weeks will affect my prednisolone intake,
Hi everyone, Hope you are all well, or as much as you can be. I wonder if someone can help me, I’ve just had cataract surgery last Thursday, all is well but I’m just wondering if dexamethasone eye drops 6 x daily for 2 weeks and then 4 x daily for another 4 weeks will affect my prednisolone intake,
2013mayo
in
PMRGCAuk
2 years ago
Next Move
I've been on Lupron, Zytiga, Prednisone for 3 years now and it appears that it has run it's course. I am grateful that it has worked for this long, but it appears I will be needing to make a move to the next therapy. My PSA has gone from 14 to 71 over the last six months and ALP has jumped to 190 after
I've been on Lupron, Zytiga, Prednisone for 3 years now and it appears that it has run it's course. I am grateful that it has worked for this long, but it appears I will be needing to make a move to the next therapy. My PSA has gone from 14 to 71 over the last six months and ALP has jumped to 190 after
Kentucky1
in
Advanced Prostate Cancer
2 years ago
Steroid use in Glioblastoma Battle
Good Morning Everyone. I was just wondering what kind of steroid doses people are on for countering the swelling on the brain around the tumour. My dad (a 78 year old diagnosed in October) had to stop radiotherapy 5 sessions into a course of 15 in January after an initially successful debulking. We cut
Good Morning Everyone. I was just wondering what kind of steroid doses people are on for countering the swelling on the brain around the tumour. My dad (a 78 year old diagnosed in October) had to stop radiotherapy 5 sessions into a course of 15 in January after an initially successful debulking. We cut
Hast23388
in
Glioblastoma Support
2 years ago
New and Saying Hello after COVID
Hello everyone. I'm pretty new so I thought I would say a quick hello. I am here because I got COVID in late October and had a pretty rough time with it. I am still suffering with labored breathing. The challenge is more pulling air into my lungs than breathlessness. During the acute infection,
Hello everyone. I'm pretty new so I thought I would say a quick hello. I am here because I got COVID in late October and had a pretty rough time with it. I am still suffering with labored breathing. The challenge is more pulling air into my lungs than breathlessness. During the acute infection,
TumbleDrum
in
Lung Conditions Community Forum
2 years ago
Follow up to: Help I’m not sure what to do next.
Hi everyone. I have started a new post as wasn’t sure update would show if I responded to original thread. I saw Rod Hughes yesterday. Lovely man, bit condescending but at least he listened. Agreed it’s possible I have GCA as well as PMR but wasn’t interested in pursuing further diagnostics for this
Hi everyone. I have started a new post as wasn’t sure update would show if I responded to original thread. I saw Rod Hughes yesterday. Lovely man, bit condescending but at least he listened. Agreed it’s possible I have GCA as well as PMR but wasn’t interested in pursuing further diagnostics for this
Paininthenck
in
PMRGCAuk
2 years ago
My Jevtana/Carboplatin results to date. Plus participation in Bipolar Androgen Therapy testing
This is from my previous post which is much more detailed if you’re interested. I’ll pick up where that left off. [“Jan 2022 PSA was 497.55 Alkaline Phosphatase was 92 after 4 infusions of Cabazataxcel. After seeing the results of my last CT scan done on Jan. 2022, my Oncologists told me she had
This is from my previous post which is much more detailed if you’re interested. I’ll pick up where that left off. [“Jan 2022 PSA was 497.55 Alkaline Phosphatase was 92 after 4 infusions of Cabazataxcel. After seeing the results of my last CT scan done on Jan. 2022, my Oncologists told me she had
Mount_Rainier
in
Advanced Prostate Cancer
2 years ago
Update on dad: no chemo yet!
I recently wrote on this forum for the first time with my dad’s history. For the many others who don’t know my dad’s progression: “My dad was diagnosed with prostate cancer 10 years ago in 2012, with pelvic metastasis in 2018. He’s been on all types of medications, and he shares very little about it
I recently wrote on this forum for the first time with my dad’s history. For the many others who don’t know my dad’s progression: “My dad was diagnosed with prostate cancer 10 years ago in 2012, with pelvic metastasis in 2018. He’s been on all types of medications, and he shares very little about it
PHnerd
in
Advanced Prostate Cancer
2 years ago
Steroids help low responders ( success story)
Hello my beautiful warriors, I’ve been on this forum for more than two years now, religiously reading and following everyone’s updates. Honestly, I was feeling down, depressed and without energy to even write a post or introduce myself. But, after having a successful 3rd round of IVF, I would really
Hello my beautiful warriors, I’ve been on this forum for more than two years now, religiously reading and following everyone’s updates. Honestly, I was feeling down, depressed and without energy to even write a post or introduce myself. But, after having a successful 3rd round of IVF, I would really
dexy1389
in
Fertility Network UK
2 years ago
Docetaxel and headaches?
I had my first cycle of Docetaxel Chemotherapy last Wednesday. I have been waking in the early morning with a blinding headache and struggled to sleep at all after that. This has happened for 5 nights in a row now. I rang up my care team yesterday who said they would contact my specialist but I've not
I had my first cycle of Docetaxel Chemotherapy last Wednesday. I have been waking in the early morning with a blinding headache and struggled to sleep at all after that. This has happened for 5 nights in a row now. I rang up my care team yesterday who said they would contact my specialist but I've not
konichiwa12
in
Advanced Prostate Cancer
2 years ago
My father has metastasized prostate cancer. What are the odds with chemo?
Hello all, I recently found this forum and this is my first post. My dad was diagnosed with prostate cancer 10 years ago in 2012, with pelvic metastasis in 2018. He’s been on all types of medications, and he shares very little about it with me unfortunately - it’s likely because I’ll be worried. But
Hello all, I recently found this forum and this is my first post. My dad was diagnosed with prostate cancer 10 years ago in 2012, with pelvic metastasis in 2018. He’s been on all types of medications, and he shares very little about it with me unfortunately - it’s likely because I’ll be worried. But
PHnerd
in
Advanced Prostate Cancer
3 years ago
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