Hello everyone. I'm pretty new so I thought I would say a quick hello. I am here because I got COVID in late October and had a pretty rough time with it. I am still suffering with labored breathing. The challenge is more pulling air into my lungs than breathlessness.
During the acute infection, I didn't end up going into the hospital because I was too scared to be isolated and die alone. Also, I didn't understand the difference between shortness of breath, breathlessness, and difficulty breathing. And since I could still do things during the day (symptoms got worse at night) the triage nurse said it sounded moderate and not severe, so telehealth doc prescribed me a round of dexamethasone. PCP dismissed breathing issues as anxiety on Dec. 1 and, after some back and forth, I finally got a chest CT, PFT, and got into a pulmonologist in early Feb.
I haven't got an official diagnosis, but the pulmonologist suspected Asthma. My Chest CT came back clear and so did my PFT, except for a high DLCO and elevated airway resistance. The major problem is that it feels like my chest is still very inflamed. I've had burning pain in my bronchial tubes and more general lung pain (possibly pleursy). It's also still harder to breathe in. Inhaled steroids help some - I started on Advair but have since switched to try Alvesco+Incruse (LAMA) since I'm a little concerned about the possibility of bronchiolitis. I'm also concerned it's a little too late to reverse the symptoms and that the breathing difficulties because I can't tell if they are getting worse.
Anyway, hello all. Also, if anyone has any thoughts on what to ask the pulmonologist to help me figure out what is going on or ideas on how to move forward, I would really appreciate it.