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Besremi
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Peg vs Besremi side effects?
Anyone been in both peg and
Besremi
? If so what side effects were common and what were different? I have CALR Positive ET and was on weekly 45mcg peg for 4 years and it worked well.
Anyone been in both peg and
Besremi
? If so what side effects were common and what were different? I have CALR Positive ET and was on weekly 45mcg peg for 4 years and it worked well.
George1976
in
MPN Voice
1 year ago
Counts looking good after 2nd dose of Besremi
My oncologist has cancelled the monthly phlebotomy and suggested I say at the same dosage for the next injection of
Besremi
(150 mg). I am feeling good and staying optimistic. Here are my counts:
My oncologist has cancelled the monthly phlebotomy and suggested I say at the same dosage for the next injection of
Besremi
(150 mg). I am feeling good and staying optimistic. Here are my counts:
MrsBerri
in
MPN Voice
2 years ago
Still off Besremi
I think I’m most worried that if I keep refusing the
Besremi
from my specialty pharmacy that they will take me off the list. I really wanted
Besremi
to work for me. All the other choices are not ones I prefer. I really like my doctor and love UNC Chapel Hill Cancer Hospital.
I think I’m most worried that if I keep refusing the
Besremi
from my specialty pharmacy that they will take me off the list. I really wanted
Besremi
to work for me. All the other choices are not ones I prefer. I really like my doctor and love UNC Chapel Hill Cancer Hospital.
Barbiebreath
in
MPN Voice
2 years ago
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Besremi
Anyone on 500 mcg of
Besremi
and feeling terrible bone and muscle pain?? Especially at night?? I also recently had a very bad gum infection in my mouth and had to have a wisdom tooth removed after two rounds of antibiotics, didn’t clear it. I feel so horrible on this medicine.
Anyone on 500 mcg of
Besremi
and feeling terrible bone and muscle pain?? Especially at night?? I also recently had a very bad gum infection in my mouth and had to have a wisdom tooth removed after two rounds of antibiotics, didn’t clear it. I feel so horrible on this medicine.
Ggrana3192
in
MPN Voice
2 years ago
AFIB, Besremi refused by insurance, and more
At first cardio doc thought it might be an issue due to
Besremi
, but they ruled that out as the incidence of arrhythmias in the
Besremi
trials was less than 1%. I don't have any other risk factors except what they landed on--age.
At first cardio doc thought it might be an issue due to
Besremi
, but they ruled that out as the incidence of arrhythmias in the
Besremi
trials was less than 1%. I don't have any other risk factors except what they landed on--age.
Elizka
in
MPN Voice
1 year ago
Besremi to the Rescue 🤞🏼
So, he has put in to fight insurance for
Besremi
. Amazingly within 24 hours I had a phone call and email stating pre approval for one year given. He stated 20% on
Besremi
study for PV having molecular response where Jak2 is no longer detected. Possible Remission. Here is hoping!
So, he has put in to fight insurance for
Besremi
. Amazingly within 24 hours I had a phone call and email stating pre approval for one year given. He stated 20% on
Besremi
study for PV having molecular response where Jak2 is no longer detected. Possible Remission. Here is hoping!
DiveGoddess
in
MPN Voice
2 years ago
Did I have TIA or something else?
I have PV and take
Besremi
with blood counts under control. Four days ago I had an unknown medical event that ended with an ambulance visit. I was at home doing an easy workout with dumb bells in my latest attempt to improve my activity level and minimize muscle loss.
I have PV and take
Besremi
with blood counts under control. Four days ago I had an unknown medical event that ended with an ambulance visit. I was at home doing an easy workout with dumb bells in my latest attempt to improve my activity level and minimize muscle loss.
PupsBestFriends
in
MPN Voice
1 year ago
2nd Dose of Besremi Today
Hi, 2 weeks ago, I had my first injection of 100 mg of
Besremi
. I had a CBC done and my numbers were 'normal' HCT 42.5 and platelets 380; best I had seen in years. Talked to my specialist and she suggested I go up to 150mg this time.
Hi, 2 weeks ago, I had my first injection of 100 mg of
Besremi
. I had a CBC done and my numbers were 'normal' HCT 42.5 and platelets 380; best I had seen in years. Talked to my specialist and she suggested I go up to 150mg this time.
MrsBerri
in
MPN Voice
2 years ago
JAK2 allele burden
I am pretty sure that
Besremi
could still take me to minimal residual desease, but unfortunately I don’t have access to it. Cheers, Bigcheat
I am pretty sure that
Besremi
could still take me to minimal residual desease, but unfortunately I don’t have access to it. Cheers, Bigcheat
Bigcheat
in
MPN Voice
1 year ago
Not so good news - after 11 months of Besremi, WBC, RBC, Hemoglobin, and HCT were all below normal
I just had 100 mcg of
Besremi
, and it was 150 mcg for around 6 months. I will have lab test on mid-February. Best wishes to all!
I just had 100 mcg of
Besremi
, and it was 150 mcg for around 6 months. I will have lab test on mid-February. Best wishes to all!
Pat032018
in
MPN Voice
1 year ago
First dose of Besremi today (100 mg)
Hi, I'm on my way to get a routine phlebotomy and an introduction on how to self-inject
Besremi
. My prescription has me starting at 100mg. I thought it was 50, but I misread. I hope all goes well!
Hi, I'm on my way to get a routine phlebotomy and an introduction on how to self-inject
Besremi
. My prescription has me starting at 100mg. I thought it was 50, but I misread. I hope all goes well!
MrsBerri
in
MPN Voice
2 years ago
Recombinant Interferon-β in the Treatment of Polycythemia Vera
The novel rIFN-α2b
Besremi
seems to be less toxic and perhaps also more effective than treatment with Pegasys, which is the only alternative today.
The novel rIFN-α2b
Besremi
seems to be less toxic and perhaps also more effective than treatment with Pegasys, which is the only alternative today.
Manouche
in
MPN Voice
2 years ago
MD Anderson visit
He agrees
Besremi
may treat both. But I do have bad news for our MPN world, he is retiring at the end of February. Thanks for all of your support
He agrees
Besremi
may treat both. But I do have bad news for our MPN world, he is retiring at the end of February. Thanks for all of your support
KLCTJC
in
MPN Voice
1 year ago
Platelet Numbers Increasing for the Better
Hi all, I wrote back a month ago worried about my lowering platelets and the doctor taking me off
Besremi
. My last injection was early November 500 mcg. My platelets got down to 53! They are coming up, now at 87, 2 weeks after the 53 reading.
Hi all, I wrote back a month ago worried about my lowering platelets and the doctor taking me off
Besremi
. My last injection was early November 500 mcg. My platelets got down to 53! They are coming up, now at 87, 2 weeks after the 53 reading.
marlenablue
in
MPN Voice
2 years ago
Low Platelets
Last spring, I got the opportunity to try
Besremi
. After 7 months, I am seeing normal white blood and red blood cell counts, hurray! But my platelet count is 53 as of today. My doctor has advised me to stop
Besremi
all together and get tested again to see if
Besremi
is causing the low platelets.
Last spring, I got the opportunity to try
Besremi
. After 7 months, I am seeing normal white blood and red blood cell counts, hurray! But my platelet count is 53 as of today. My doctor has advised me to stop
Besremi
all together and get tested again to see if
Besremi
is causing the low platelets.
marlenablue
in
MPN Voice
2 years ago
My new Rux journey
Compare
Besremi
, color part of this image to the simple hexagons of Rux. Bes is a huge biological molecule. Makes IFN more satisfying, paying for all that complexity. But simplicity is always an attribute. All these are silly thoughts with no medical relevance, but it has been on my mind.
Compare
Besremi
, color part of this image to the simple hexagons of Rux. Bes is a huge biological molecule. Makes IFN more satisfying, paying for all that complexity. But simplicity is always an attribute. All these are silly thoughts with no medical relevance, but it has been on my mind.
EPguy
in
MPN Voice
1 year ago
Update 7.6
I remain in a complete hematologic response at 150mcg
Besremi
. Tolerance remains the same, with mild lymphopenia, borderline neutropenia, and mild itching. I switched to Zyrtec (cetirizine) to control the itching.
I remain in a complete hematologic response at 150mcg
Besremi
. Tolerance remains the same, with mild lymphopenia, borderline neutropenia, and mild itching. I switched to Zyrtec (cetirizine) to control the itching.
hunter5582
in
MPN Voice
1 year ago
up coming appointment
Praying he doesn’t dismiss me and hopefully will let me try
Besremi
that is sitting in my fridge! Thanks for all of the support. I am just so anxious!
Praying he doesn’t dismiss me and hopefully will let me try
Besremi
that is sitting in my fridge! Thanks for all of the support. I am just so anxious!
KLCTJC
in
MPN Voice
1 year ago
MPN's and afib
There are a few papers on the subject, but if you are on
Besremi
to control your blood counts, does the risk go down? It is so tricky getting clear answers when diagnosed with another condition when you have an MPN.
There are a few papers on the subject, but if you are on
Besremi
to control your blood counts, does the risk go down? It is so tricky getting clear answers when diagnosed with another condition when you have an MPN.
Elizka
in
MPN Voice
2 years ago
Besremi and kidney function
I’ve just started
besremi
but have been concerned about my kidneys (GFR now 45, creatinine 1.22) Anyone out there in PV world had this issue with
besremi
? I’d like to stay on
besremi
but not at the cost of damaging my kidneys. Thanks for any input!
I’ve just started
besremi
but have been concerned about my kidneys (GFR now 45, creatinine 1.22) Anyone out there in PV world had this issue with
besremi
? I’d like to stay on
besremi
but not at the cost of damaging my kidneys. Thanks for any input!
P1pp1r
in
MPN Voice
2 years ago
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