I have PV and take Besremi with blood counts under control. Four days ago I had an unknown medical event that ended with an ambulance visit.
I was at home doing an easy workout with dumb bells in my latest attempt to improve my activity level and minimize muscle loss. Weight amounts were light (10-15 lbs) and I was spacing exercises out since I experience shortness of breath with light activity.
I started feeling out of breath, and sat on the floor to recover. For the next 5 minutes my breathing became heavier and I was slightly dizzy. My hands and arms began to go numb, then my feet, lower legs and face. I felt horrible and was unable to breath normal and could hardly speak between breaths. I tried to stand but was wobbly and had to lean on a wall for balance.
Eventually my hands were so numb that my fingers and wrist curled inward towards my forearms. I could force them open but when I relaxed they would curl inward again. My wife called for paramedics and they arrived about 10 minutes later. Shortly after, the numbness decreased some, I was breathing a little better, but was shaking visibly.
I was given a 12 lead EKG which was normal, BP was 150/80, pulse 77, glucose 78. Paramedics offered a transport to ER, but said my condition wasn't critical and blood testing was likely the only further testing they would do, so I declined.
A half hour later I felt better, although very weak and tired for the evening and next day. I called my MPN specialist's office and their nurse says this sound like a neurological event. I can't get a visit with my primary care doctor for over two months. I am hesitant to exercise again without knowing what caused this.
Has anyone experienced something similar, and what was the outcome?