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Besremi
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Besremi side effects?
I recall hunter saying that he feels better on
Besremi
than he has felt in 10 years, which is impressive. Has anyone here experienced any severe side effects from
Besremi
?
I recall hunter saying that he feels better on
Besremi
than he has felt in 10 years, which is impressive. Has anyone here experienced any severe side effects from
Besremi
?
Laluna5683
in
MPN Voice
6 months ago
Open mouth sores on Besremi?
Hello community
Besremi
has been such a positive change for my husband who switch to it from Hydroxyurea due to side effects that were unbearable.
Hello community
Besremi
has been such a positive change for my husband who switch to it from Hydroxyurea due to side effects that were unbearable.
Laluna5683
in
MPN Voice
29 days ago
Monday MRI
Prayers
Besremi
has helped and I am not potentially facing another medication. I have pretty much made my mind up I don’t want to take anything else for my MS right now. Want to see if
Besremi
will eventually work. I have no symptoms and feel great!
Prayers
Besremi
has helped and I am not potentially facing another medication. I have pretty much made my mind up I don’t want to take anything else for my MS right now. Want to see if
Besremi
will eventually work. I have no symptoms and feel great!
KLCTJC
in
MPN Voice
6 months ago
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Besremi benefits?
hello community, I’ve previously asked a question about
Besremi
vs Jakafi ( for my husband with PV, currently on hydroxyurea) and really appreciative the responses.
hello community, I’ve previously asked a question about
Besremi
vs Jakafi ( for my husband with PV, currently on hydroxyurea) and really appreciative the responses.
Laluna5683
in
MPN Voice
6 months ago
Update and Besremi associated Ads
Hi all - thought I would give an update from my last note regarding platelet crash while on
Besremi
500 ug. Also add some thoughts re AEs I feel associated with
Besremi
With platelets dropping Nov 3rd 2023 to 86 while on
Besremi
500 ug, my hematologist stopped medication.
Hi all - thought I would give an update from my last note regarding platelet crash while on
Besremi
500 ug. Also add some thoughts re AEs I feel associated with
Besremi
With platelets dropping Nov 3rd 2023 to 86 while on
Besremi
500 ug, my hematologist stopped medication.
gjh8733
in
MPN Voice
7 months ago
Besremi and Rux Combined
Then in December 2022 was switched to
Besremi
. I've been on Bes for a little over a year and gradually increased dosage to current 300 mcg. My platelets and HCT kept rising until my last blood work when finally the platelets and HCT dropped.
Then in December 2022 was switched to
Besremi
. I've been on Bes for a little over a year and gradually increased dosage to current 300 mcg. My platelets and HCT kept rising until my last blood work when finally the platelets and HCT dropped.
C_Anne_Orange
in
MPN Voice
5 months ago
started Besremi but worried about autoimmune diseases.
Worried about
Besremi
triggering autoimmune disease. Any similar experiences?
Worried about
Besremi
triggering autoimmune disease. Any similar experiences?
Yarw
in
MPN Voice
7 months ago
Team alpha!!!!
On my last MRI before
Besremi
I had a new one and it has shown improvement!!!! No active disease! Stable and improved!!!! Clearly medication has helped!!! I squealed and cried at the same time!!! Will see what neurologist says Monday but can’t see how they will not be happy!
On my last MRI before
Besremi
I had a new one and it has shown improvement!!!! No active disease! Stable and improved!!!! Clearly medication has helped!!! I squealed and cried at the same time!!! Will see what neurologist says Monday but can’t see how they will not be happy!
KLCTJC
in
MPN Voice
3 months ago
BESREMi now recommended as a Preferred First-line Cytoreductive Therapy for PV in Updated NCCN Clinical Practice Guidelines in Oncology
« The National Comprehensive Cancer Network Clinical Practice Guidelines in Oncology (NCCN Guidelines®) have recently been updated to include ropeginterferon alfa-2b-njft, marketed as
BESREMi
®, as a preferred first-line cytoreductive therapy option for the treatment of adults with symptomatic, low-risk
« The National Comprehensive Cancer Network Clinical Practice Guidelines in Oncology (NCCN Guidelines®) have recently been updated to include ropeginterferon alfa-2b-njft, marketed as
BESREMi
®, as a preferred first-line cytoreductive therapy option for the treatment of adults with symptomatic, low-risk
Manouche
in
MPN Voice
5 months ago
Thank you!!!❤️
She said she just got back from a conference in Madrid and she said that there is more and more research showing how effective
Besremi
is. She said it has been an amazing breakthrough drug. Thank you to everyone! This site has done so much for me!!! I appreciate all the amazing support!!!!
She said she just got back from a conference in Madrid and she said that there is more and more research showing how effective
Besremi
is. She said it has been an amazing breakthrough drug. Thank you to everyone! This site has done so much for me!!! I appreciate all the amazing support!!!!
KLCTJC
in
MPN Voice
1 month ago
Update 8.0 - Next chapter
While I would prefer to increase the
Besremi
dose, it would not be in my best interests. I am planning to keep the
Besremi
dose at 175mcg unless my MPN care team advises otherwise. I expect we will give it a bit of time to see if the NEUT comes back up above 1.00.
While I would prefer to increase the
Besremi
dose, it would not be in my best interests. I am planning to keep the
Besremi
dose at 175mcg unless my MPN care team advises otherwise. I expect we will give it a bit of time to see if the NEUT comes back up above 1.00.
hunter5582
in
MPN Voice
4 months ago
Interferon and the liver
question to all my MPN people on here who are taking pegasys or
besremi
, how do you manage elevated liver enzymes? Do they cycle up and down? Is there anything we can do to bring them down? What is acceptable to y’all? My hematologist says not to worry until they hit 2-300..
question to all my MPN people on here who are taking pegasys or
besremi
, how do you manage elevated liver enzymes? Do they cycle up and down? Is there anything we can do to bring them down? What is acceptable to y’all? My hematologist says not to worry until they hit 2-300..
dbus1417
in
MPN Voice
4 months ago
Update 8.2
Discussed with the hematologist whether it is PV,
Besremi
, or iron loss; the answer being "who knows." It is not enough to interfere since I can just push through it when I need to. We will continue to monitor the A1C and glucose numbers.
Discussed with the hematologist whether it is PV,
Besremi
, or iron loss; the answer being "who knows." It is not enough to interfere since I can just push through it when I need to. We will continue to monitor the A1C and glucose numbers.
hunter5582
in
MPN Voice
2 months ago
Need some good vibes❤️
I am actually hoping they may reduce my dose of
Besremi
even though I feel good. I am hoping my labs look the same but I swear things go crazy when I go to Houston! Hope everyone is having a blessed week! Had a rough day yesterday at work.😫.
I am actually hoping they may reduce my dose of
Besremi
even though I feel good. I am hoping my labs look the same but I swear things go crazy when I go to Houston! Hope everyone is having a blessed week! Had a rough day yesterday at work.😫.
KLCTJC
in
MPN Voice
1 month ago
A Bright Note & Travelling with Besremi
I had to fly with the
Besremi
then store it for 6 days once in Brussels. The
Besremi
stayed in the Yeti cooler bag with 2 ice-gel packs for over 12 hours with no problem. TSA security was no problem doing the visual inspection since it cannot go through x-ray.
I had to fly with the
Besremi
then store it for 6 days once in Brussels. The
Besremi
stayed in the Yeti cooler bag with 2 ice-gel packs for over 12 hours with no problem. TSA security was no problem doing the visual inspection since it cannot go through x-ray.
hunter5582
in
MPN Voice
1 month ago
Switch (forced) from Peg to Besremi?
Reached out to my MPN specialist, who said he was aware of the problem, that
Besremi
is readily available and he is already working on the paperwork to make the switch if needed (I have three weeks (2 shots) of Peg left at home)...he is confident that the switch would be no problem and would plan on
Reached out to my MPN specialist, who said he was aware of the problem, that
Besremi
is readily available and he is already working on the paperwork to make the switch if needed (I have three weeks (2 shots) of Peg left at home)...he is confident that the switch would be no problem and would plan on
Solyesh
in
MPN Voice
1 month ago
Update 8.1.5 - Month out from vensection
It seems that my best plan is top stay at 175mcg
Besremi
with a venesection about every 12 months. Hopefully, the length of time between venesections will get longer or become unneeded. Most importantly, I am feeling good. Quality of life is a primary treatment goal.
It seems that my best plan is top stay at 175mcg
Besremi
with a venesection about every 12 months. Hopefully, the length of time between venesections will get longer or become unneeded. Most importantly, I am feeling good. Quality of life is a primary treatment goal.
hunter5582
in
MPN Voice
3 months ago
Switch from Besremi to Ruxolitinib
Dear all After 18 months on
Besremi
my oncologist and I made the decision to move on and so am starting on Rux. In brief, I titrated up from 100 ug (Sep 2022) to 500 ug Bes and was at that dose for 9 months. I was CHR for the last 5 months of this period.
Dear all After 18 months on
Besremi
my oncologist and I made the decision to move on and so am starting on Rux. In brief, I titrated up from 100 ug (Sep 2022) to 500 ug Bes and was at that dose for 9 months. I was CHR for the last 5 months of this period.
gjh8733
in
MPN Voice
4 months ago
Sweating at night
I am on
Besremi
. I started to sweat at night. What does it mean with PV? 9 years from my diagnosis. What do you think about it, please? Recommendations
I am on
Besremi
. I started to sweat at night. What does it mean with PV? 9 years from my diagnosis. What do you think about it, please? Recommendations
SoledadBarcelona
in
MPN Voice
7 months ago
Needing some good vibes
Not sure why but I think I just want this crazy idea that
Besremi
will work for both conditions and I am praying that it reflects that. And if not hoping to make the right decision about what I want to do. This time there will not be an ice storm to get me out of it!
Not sure why but I think I just want this crazy idea that
Besremi
will work for both conditions and I am praying that it reflects that. And if not hoping to make the right decision about what I want to do. This time there will not be an ice storm to get me out of it!
KLCTJC
in
MPN Voice
3 months ago
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