This is a big week! Having labs today which really isn’t a big deal but hoping all is stable. But Friday I will finally have that MRI. I am scared to death. Not sure why but I think I just want this crazy idea that Besremi will work for both conditions and I am praying that it reflects that. And if not hoping to make the right decision about what I want to do. This time there will not be an ice storm to get me out of it! However, the the total eclipse is today! My house is in the path of totality! Unfortunately I have to work but I think work is like 97-98% so still will be a sight to see! Looking at this as a positive once in a lifetime event! Maybe it will bring me good luck! Wishing everyone a happy Monday and eclipse day!!! Bless all of you!
Needing some good vibes: This is a big week... - MPN Voice
Needing some good vibes
No excuses get in the scanner!!! Sending hugs for Friday .I remember the eclipse we had in the UK it was very eerie when it went dark and all the birds stopped singing .
Wishing you the best. Even though I'm 4+ years into the pv, tests can still make me pretty nervous until I get the results so I understand where you're coming from. Hope all is good today. Happy eclipse day to you.
Wishing you all the best and sending good vibes your way!
Sending you good vibes as you go down the tube! I've been down the tube lots of times. Tons of fun! 🤪 Hope your news is as good as my news was from the last MRI.
Yeah, for your good news!!! Hoping for the same!!! Thanks!!!
Good luck on the labs and fingers crossed that Besremi will be successful in treating your MS. I know how much this means to you. X
A good vibe for our future is CART for autoimmune. It's a hot field in this area as it seems equal or even more potential than for cancer.
This is a different but relative of the new therapy being trialed for CALR ET.
This is a phase 2 trial for a potential curative MS therapy:
kyvernatx.com/patients/mult...
"We believe our approach may present a significant advantage over current standard-of-care therapies by aiming to directly deplete B cells and potentially resetting disease-contributing B cells"
Case studies on SLE and one on Sjogren's have been amazing. But the Co says in effect Sjogren's is unworthy of their attn (a constant issue with this evil disease) but for MS they are on it.
good luck and lots of positive vibes your way!
Morning
when we had a total eclipse some years ago in Uk I took my fairly young kids to a high point in an open area of Surrey thinking maybe this would be my only chance in my life time …
the weather wasn’t great so view not clear but the darkness that came the atmosphere still ,the silenced birds , will never be forgotten and the emotions expressed by the small crowd that had had the same thought as me was very special .
I spoke to my kids now in mid to late thirties yesterday as we watched independently it’s passage across New Mexico Us and Canada … leaving an emotion non can quite understand but feel better for . Hang on to these moments . It helps . L
Sending good vibes 🙏🤞
Sending positive vibes from across the pond🥰👍👍👍🤩
Sending you good vibes and saying prayer also. Besremi is helping me and hope it does the same for you. Best of Luck, Christy
prayers, let us know how it goes ✌🏽
The ECLIPSE PV trial- Besremi
25 with ET
Some Good News!!!
