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Besremi
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INF and vision improvement
It corresponds well to my
Besremi
therapy, in particular the recent dose increases (100 to 120) I have a 45 year old Rx for nearsightedness, not strong, but it's now 1/2 that. Dr said I don't really need Rx, but tired night driving is still worth having it.
It corresponds well to my
Besremi
therapy, in particular the recent dose increases (100 to 120) I have a 45 year old Rx for nearsightedness, not strong, but it's now 1/2 that. Dr said I don't really need Rx, but tired night driving is still worth having it.
EPguy
in
MPN Voice
2 years ago
Besremi - CBC after the 5th dose kept at 200 mcg
HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropeitin; I am now 64 years old; Only phlebotomy and aspirin for 4 years until
Besremi
in Feb 2022. Most concerning before
Besremi
was platelets of 1100. Allele Burden was 70% before
Besremi
.
HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropeitin; I am now 64 years old; Only phlebotomy and aspirin for 4 years until
Besremi
in Feb 2022. Most concerning before
Besremi
was platelets of 1100. Allele Burden was 70% before
Besremi
.
Pat032018
in
MPN Voice
2 years ago
Considering Besremi
Since I am able to get a prescription for
Besremi
at a reasonable cost I am considering starting it to hopefully (eventually) cut down the number of phlebotomy I need.
Since I am able to get a prescription for
Besremi
at a reasonable cost I am considering starting it to hopefully (eventually) cut down the number of phlebotomy I need.
wateron
in
MPN Voice
2 years ago
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Flying with Besremi in USA
My first time with flying with
Besremi
in the USA following the PharmaEssentia recommendation that the medication not go through the X-ray scanner. Supposed to ask for a visual inspection. It was no big deal.
My first time with flying with
Besremi
in the USA following the PharmaEssentia recommendation that the medication not go through the X-ray scanner. Supposed to ask for a visual inspection. It was no big deal.
hunter5582
in
MPN Voice
2 years ago
Besremi and Pfizer Booster shot - Question
Requesting anyone to please share any positive/negative experience for a (2nd booster or 4th total from start) Pfizer booster shot while being treated with
Besremi
? Thank you very much.
Requesting anyone to please share any positive/negative experience for a (2nd booster or 4th total from start) Pfizer booster shot while being treated with
Besremi
? Thank you very much.
Pat032018
in
MPN Voice
2 years ago
Iron Levels
Eventually I will reach a point of homeostasis, maintaining a reasonable iron level and controlling erythrocytosis and thrombocytosis with the right
Besremi
dose. It is all a balancing act.
Eventually I will reach a point of homeostasis, maintaining a reasonable iron level and controlling erythrocytosis and thrombocytosis with the right
Besremi
dose. It is all a balancing act.
hunter5582
in
MPN Voice
2 years ago
Is there a form I need for Pegasys like there is for Besremi for me and my Dr to fill out?
Since my insurance denied my request for
Besremi
, I have decided to try Pegasys. Thanks! Kim
Since my insurance denied my request for
Besremi
, I have decided to try Pegasys. Thanks! Kim
Wewo01
in
MPN Voice
2 years ago
Besremi 1st month w/out Phleb since starting
Started
Besremi
January 29th. Previously on Pegasys at 135mcg effective dose. The attached image spells everything out for the most part with the counts and corresponding dosage previous to labs. One variable I'm unsure of is my latest lab was taken only 4 days after my last dose at 375.
Started
Besremi
January 29th. Previously on Pegasys at 135mcg effective dose. The attached image spells everything out for the most part with the counts and corresponding dosage previous to labs. One variable I'm unsure of is my latest lab was taken only 4 days after my last dose at 375.
jon1972
in
MPN Voice
2 years ago
Experience with Pegasys or Besremi with Hypothyroidism, vitiligo, Alopecia.
Hi, Do any of you have autoimmune diseases and take Pegasys or
Besremi
? If so, how have you done? Thank you! Jeanie
Hi, Do any of you have autoimmune diseases and take Pegasys or
Besremi
? If so, how have you done? Thank you! Jeanie
JeanieRN
in
MPN Voice
2 years ago
HCT responses on PEG and Besremi
In recent posts it seems Bes is weak in reducing HCT for many while it cuts the other counts ok. I'm in CHR so far on low doses (all blood counts ok) but WBC especially responds (too) well. Question for members on INF is: How is your experience for HCT, PLT and WBC with Bes and/or with PEG? Is HCT
In recent posts it seems Bes is weak in reducing HCT for many while it cuts the other counts ok. I'm in CHR so far on low doses (all blood counts ok) but WBC especially responds (too) well. Question for members on INF is: How is your experience for HCT, PLT and WBC with Bes and/or with PEG? Is HCT
EPguy
in
MPN Voice
2 years ago
How often should we have erythropoietin and LDH checked?
I have been off HU since March 11 because it was making me feel horrible and I was supposed to start
Besremi
which was denied by insurance. So, I’m only having phlebotomies and taking aspirin. Any input would be appreciated! Thank you! Kim
I have been off HU since March 11 because it was making me feel horrible and I was supposed to start
Besremi
which was denied by insurance. So, I’m only having phlebotomies and taking aspirin. Any input would be appreciated! Thank you! Kim
Wewo01
in
MPN Voice
2 years ago
Recent trip and Besremi effects
We went on our regular yearly camping trip to Grand Canyon last week. (See our micro RV at camp) It started ok but then I had the longest set of bad days since Dx. For the first time I was clearly weakened, not just maliased. I skipped exercise for several days, that has never happened in 20 years
We went on our regular yearly camping trip to Grand Canyon last week. (See our micro RV at camp) It started ok but then I had the longest set of bad days since Dx. For the first time I was clearly weakened, not just maliased. I skipped exercise for several days, that has never happened in 20 years
EPguy
in
MPN Voice
2 years ago
Pegasys first dose and bad nausea
My
Besremi
was denied for the 2nd time with UHC Currently in the 3rd appeal with my husband’s self insured company. In the meantime I started on Pegasys 45 mcg last night and woke up very nauseous. Any suggestions of which med is good for nausea.
My
Besremi
was denied for the 2nd time with UHC Currently in the 3rd appeal with my husband’s self insured company. In the meantime I started on Pegasys 45 mcg last night and woke up very nauseous. Any suggestions of which med is good for nausea.
JeanieRN
in
MPN Voice
2 years ago
Insurance denied Besremi
I just got the denial letter from my insurance that they will not cover
Besremi
. I will have to take their covered formulary drug, Pegasys, and I guess do miserably before they will approve. It’s a disappointment…sigh… Bummed! Kim
I just got the denial letter from my insurance that they will not cover
Besremi
. I will have to take their covered formulary drug, Pegasys, and I guess do miserably before they will approve. It’s a disappointment…sigh… Bummed! Kim
Wewo01
in
MPN Voice
2 years ago
Update 6.4
My plan at this point is to continue with the 110mcg dose of
Besremi
. If the HCT continues to creep up above 45%, then my plan is to bump the
Besremi
dose up to 125mcg and closely monitor my response. I will work in close collaboration with my MPN care team on this plan as needed.
My plan at this point is to continue with the 110mcg dose of
Besremi
. If the HCT continues to creep up above 45%, then my plan is to bump the
Besremi
dose up to 125mcg and closely monitor my response. I will work in close collaboration with my MPN care team on this plan as needed.
hunter5582
in
MPN Voice
2 years ago
Besremi vs Hydroxyurea
Also interesting is that
Besremi
is designed to treat the root cause of PV versus HU primarily treating downstream symptoms. https://www.youtube.com/watch?v=Kdu8suso21w
Also interesting is that
Besremi
is designed to treat the root cause of PV versus HU primarily treating downstream symptoms. https://www.youtube.com/watch?v=Kdu8suso21w
pepper-
in
MPN Voice
2 years ago
MPN Voice Christmas message 2022
A new interferon product called
Besremi
is also being appraised, initially by the SMC in Scotland, so we hope to have news on that front before long.
A new interferon product called
Besremi
is also being appraised, initially by the SMC in Scotland, so we hope to have news on that front before long.
Mazcd
MPNVoice
in
MPN Voice
2 years ago
Another Comparison of PEG to Besremi
I had this in a reply thread, figured it's worth its own. This recent report shows PEG and Bes are not the same in the context of Hep C. -- No way to say whether it's relevant to us, esp since Hep C treatment adds oral ribavirin, and it's a small trial. But it seems to show the two are good for Hep
I had this in a reply thread, figured it's worth its own. This recent report shows PEG and Bes are not the same in the context of Hep C. -- No way to say whether it's relevant to us, esp since Hep C treatment adds oral ribavirin, and it's a small trial. But it seems to show the two are good for Hep
EPguy
in
MPN Voice
2 years ago
Besremi shot #7
Hi everyone, 7th
Besremi
shot was last Friday and I did 125 mcg. I stayed at 100 mcg for about a month or more, but increased it a bit to avoid a phlebotomy as my iron levels are finally returning. Got CBC today. HCT was down a bit to 41.9 which means I can avoid getting phlebotomy...for now.
Hi everyone, 7th
Besremi
shot was last Friday and I did 125 mcg. I stayed at 100 mcg for about a month or more, but increased it a bit to avoid a phlebotomy as my iron levels are finally returning. Got CBC today. HCT was down a bit to 41.9 which means I can avoid getting phlebotomy...for now.
Elizka
in
MPN Voice
2 years ago
Anyone else experience worse side effects on Besremi as compared to Pegasys?
Anyone else feel better on Pegasys as compared to
Besremi
?
Anyone else feel better on Pegasys as compared to
Besremi
?
monarch5000
in
MPN Voice
2 years ago
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