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Doctor suggesting HIFU
Hello All, I was diagnosed in Oct. 2017 with Gleason score of 6 and PSA 5.8. PSA was gradually going up and up. Had blood work done June 6th 2023 for a shoulder surgery and PSA was 15.3 had a PSA test done on July 24th 2023 for fusion biopsy on July 31st 2023 and it went up to 18.3 (1 month jumped
Hello All, I was diagnosed in Oct. 2017 with Gleason score of 6 and PSA 5.8. PSA was gradually going up and up. Had blood work done June 6th 2023 for a shoulder surgery and PSA was 15.3 had a PSA test done on July 24th 2023 for fusion biopsy on July 31st 2023 and it went up to 18.3 (1 month jumped
jbsnv
in
Prostate Cancer Network
10 months ago
should I stop Zytiga early?
hello, i’m new here and encouraged by all the experience and caring nature of the conversations. Would love if anyone has wisdom around a decision to stop Zytiga early? I am 56 and was diagnosed 2/21 with Gleason 9 no lymph nodes invasion, but some vesicle invasion and perhaps a little outside margins
hello, i’m new here and encouraged by all the experience and caring nature of the conversations. Would love if anyone has wisdom around a decision to stop Zytiga early? I am 56 and was diagnosed 2/21 with Gleason 9 no lymph nodes invasion, but some vesicle invasion and perhaps a little outside margins
PaulJR
in
Advanced Prostate Cancer
10 months ago
de novo metastatic prostate cancer
hello, I was diagnosed in march with a very aggressive and advanced case, with many skeletal lesions - high volume/high risk. I’ve been on degarelix/Firmagon and Abiraterone for the past 3.5 months and it seems to be working well - just had my 3 month scans. And the terrible fatigue is under control
hello, I was diagnosed in march with a very aggressive and advanced case, with many skeletal lesions - high volume/high risk. I’ve been on degarelix/Firmagon and Abiraterone for the past 3.5 months and it seems to be working well - just had my 3 month scans. And the terrible fatigue is under control
NewGame
in
Advanced Prostate Cancer
1 year ago
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anyone suffering from frequent Nausea
7 yrs. + on firmagon and switched to lupron 8 months ago. Everything stable with the stage 4 PC. Can handle the hot sweats,low energy and no libido. My biggest problem is frequent nausea . Just wondering if anyone else has the same side effect and how they deal with it. I have never had any radiation
7 yrs. + on firmagon and switched to lupron 8 months ago. Everything stable with the stage 4 PC. Can handle the hot sweats,low energy and no libido. My biggest problem is frequent nausea . Just wondering if anyone else has the same side effect and how they deal with it. I have never had any radiation
Dannyboy48
in
Advanced Prostate Cancer
1 year ago
Erleada - very unwell
Hi My husband was diagnosed about 9 years ago with PC 4+3 with possible Met to hip bone. Have been on Decapeptyl 6 months injections. Have had Xandi and now Erleada. Was on this for a year, but due to nausea, vomiting and awful taste in his mouth which affected his appetite and made diabetic control
Hi My husband was diagnosed about 9 years ago with PC 4+3 with possible Met to hip bone. Have been on Decapeptyl 6 months injections. Have had Xandi and now Erleada. Was on this for a year, but due to nausea, vomiting and awful taste in his mouth which affected his appetite and made diabetic control
Hidden
in
Advanced Prostate Cancer
8 months ago
PSMA scan result
I have been diagnosed with mCSPC in May 2023 and been on Lupron for 3 months and Zytiga/ Pre since last 2 months. My PSA was initially 21.5 and as of last week is down to 0.3. I had my PSMA scan done again today and was hoping that some lesions in regional and distant Lymph nodes would be gone but
I have been diagnosed with mCSPC in May 2023 and been on Lupron for 3 months and Zytiga/ Pre since last 2 months. My PSA was initially 21.5 and as of last week is down to 0.3. I had my PSMA scan done again today and was hoping that some lesions in regional and distant Lymph nodes would be gone but
ST0705
in
Advanced Prostate Cancer
10 months ago
PSMA Results
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
Bcgkelly
in
Prostate Cancer And Gay Men
8 months ago
PSMA RESULTS
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
Bcgkelly
in
Advanced Prostate Cancer
8 months ago
PSA doubled 3 months after chemo - normal or a concern?
I don’t see Dr Dorff until next week, but had labs drawn today. I’m prepping any questions I might have for the appointment. My PSA has more than doubled in 3 months from 0.014 to 0.039. Testosterone at time of both tests was <7. At these low levels, is that doubling in 3 months a concern? I’m
I don’t see Dr Dorff until next week, but had labs drawn today. I’m prepping any questions I might have for the appointment. My PSA has more than doubled in 3 months from 0.014 to 0.039. Testosterone at time of both tests was <7. At these low levels, is that doubling in 3 months a concern? I’m
Gl448
in
Advanced Prostate Cancer
11 months ago
Decision Time Very Soon
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
rsgdmd
in
Advanced Prostate Cancer
10 months ago
Help! Hubby's PSA doubling time one week!
Diagnosed 2016, RP G4+5, aRT, ADT + zytiga, holiday, ADT + Erleada. mCRPC Recently completed 6 week Lutetium trial June 2023. Complete response, undetectable PSA!!! Healthy eating, clean living, good exercise. 67 years. No genetic mutations detected. Doubling time before LU was 2 weeks and I realized
Diagnosed 2016, RP G4+5, aRT, ADT + zytiga, holiday, ADT + Erleada. mCRPC Recently completed 6 week Lutetium trial June 2023. Complete response, undetectable PSA!!! Healthy eating, clean living, good exercise. 67 years. No genetic mutations detected. Doubling time before LU was 2 weeks and I realized
cancervictim
in
Advanced Prostate Cancer
10 months ago
Here we go.......
FULL DISCLOSURE, LONG POST Had a TRUS biopsy end of September after AS of a rising PSA. Had a 3T MRI in November 2021 which showed a PIRADS 3 left base and PIRADS 2 right mid, prostate volume 40mL. 4K in August of this year was 57.1 with PSA of 7.8. DICIPHER from biopsy was .84. Clinical stage
FULL DISCLOSURE, LONG POST Had a TRUS biopsy end of September after AS of a rising PSA. Had a 3T MRI in November 2021 which showed a PIRADS 3 left base and PIRADS 2 right mid, prostate volume 40mL. 4K in August of this year was 57.1 with PSA of 7.8. DICIPHER from biopsy was .84. Clinical stage
ToolBeltZia
in
Prostate Cancer Network
8 months ago
Xtandi and insomnia
Anybody else have severe insomnia from enzalutamide? I'm only getting ~3 hours sleep since starting. Pretty deep fatigue too. Any advice on ways to manage this?
Anybody else have severe insomnia from enzalutamide? I'm only getting ~3 hours sleep since starting. Pretty deep fatigue too. Any advice on ways to manage this?
Djangler
in
Advanced Prostate Cancer
1 year ago
Feeling sore and tired
I am a 51-year-old that is closing in on five years dealing with this.. a quick history, I was diagnosed October 2018, Gleason nine and had four spots showing in the scans and my bones. I have been on Lupron since the beginning, I had radiation to my prostate as well as the other four spots back in
I am a 51-year-old that is closing in on five years dealing with this.. a quick history, I was diagnosed October 2018, Gleason nine and had four spots showing in the scans and my bones. I have been on Lupron since the beginning, I had radiation to my prostate as well as the other four spots back in
Oct18
in
Advanced Prostate Cancer
10 months ago
is Farmagon better than Lupron ?
i have been on Farmagon for 3 months and feels much better and supposed to take Erleada Apalutamide 60 mg also. My PSA is 2.9 and my testosterone is low. Now another doctor wants me to switch me to Lupron. Which one would be better .? In my hospital I see a different doctor everytime. another doc
i have been on Farmagon for 3 months and feels much better and supposed to take Erleada Apalutamide 60 mg also. My PSA is 2.9 and my testosterone is low. Now another doctor wants me to switch me to Lupron. Which one would be better .? In my hospital I see a different doctor everytime. another doc
Raminagrobis
in
Advanced Prostate Cancer
10 months ago
What's next for crumbling bones when Zytiga was not tolerable?
My dad just stopped his Zytiga due to nausea, and other intolerable side effects. He just got his first two shots that they give for osteoporosis...due to a spontaneous fracture in his pelvis. He's using a walker but has gotten relatively stronger from the day it happened a month ago...from doing exercises
My dad just stopped his Zytiga due to nausea, and other intolerable side effects. He just got his first two shots that they give for osteoporosis...due to a spontaneous fracture in his pelvis. He's using a walker but has gotten relatively stronger from the day it happened a month ago...from doing exercises
dadsdrdawn
in
Advanced Prostate Cancer
1 year ago
Uric Acid [UA] & PCa Mortality
I once had a gouty foot. It was self-induced - I was having a brief but intense craving for high-purine foods, particularly anchovies. (Perhaps PCa was driving the craving - lol.) At some point I looked at the PCa / Uric Acid [UA] literature (more than I expected), but it was mixed & failed to impress
I once had a gouty foot. It was self-induced - I was having a brief but intense craving for high-purine foods, particularly anchovies. (Perhaps PCa was driving the craving - lol.) At some point I looked at the PCa / Uric Acid [UA] literature (more than I expected), but it was mixed & failed to impress
pca2004
in
Fight Prostate Cancer
1 year ago
Gleason score 8 and lots of questions...
Hi all! First time posting here but I have been lurking the last month or so and thanks so much to all of you who take the time to contribute. It has helped me ramp up the learning curve so quickly and the comradery and support here are powerful. My story: 63 year old reasonably healthy male. PSA
Hi all! First time posting here but I have been lurking the last month or so and thanks so much to all of you who take the time to contribute. It has helped me ramp up the learning curve so quickly and the comradery and support here are powerful. My story: 63 year old reasonably healthy male. PSA
Scuttfarkus
in
Prostate Cancer Network
10 months ago
Talzenna
Has anyone tried Talzenna ? My dad was just started and after 2 weeks his PSA spiked 47 points to 105. He’s been battling hard, Lynparza worked like a miracle for 7 months then had to decrease dose d/t low hemoglobin and low RBC, had to have transfusions twice. Then Lynparza stopped working after
Has anyone tried Talzenna ? My dad was just started and after 2 weeks his PSA spiked 47 points to 105. He’s been battling hard, Lynparza worked like a miracle for 7 months then had to decrease dose d/t low hemoglobin and low RBC, had to have transfusions twice. Then Lynparza stopped working after
Mikerest
in
Advanced Prostate Cancer
10 months ago
RT without HT
I am approaching 78. My last PSA is 13,37. It was 1.4 in 2018 ie the last time I had a test. Prostate size 36 cc, prostate density 0.39. The MRI indicated a 14mm tumour fully contained within the prostate in the lower left quadrant, with ‘something on the right that I have been informed is possibly
I am approaching 78. My last PSA is 13,37. It was 1.4 in 2018 ie the last time I had a test. Prostate size 36 cc, prostate density 0.39. The MRI indicated a 14mm tumour fully contained within the prostate in the lower left quadrant, with ‘something on the right that I have been informed is possibly
Nordman
in
Prostate Cancer Network
8 months ago
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