Search
Search
About
Log in
Join
Experiences with
Benign prostatic hyperplasia
Posts
Communities
16,065 public posts
Filter results
Appropriate Treatment
I was diagnosed with stage 4 prostate cancer PSA 29.1 which had metastatised to lymph nodes, ribs & spine after a few months on Abiraterone and Prednisone my PSA count dropped to 0.06 After 30 months my PSA started to rise at 10.2 my treatment was declared ineffective Lutetium 177 treatment was recommended
I was diagnosed with stage 4 prostate cancer PSA 29.1 which had metastatised to lymph nodes, ribs & spine after a few months on Abiraterone and Prednisone my PSA count dropped to 0.06 After 30 months my PSA started to rise at 10.2 my treatment was declared ineffective Lutetium 177 treatment was recommended
154Eleventh
in
Advanced Prostate Cancer
6 months ago
Consult urologist or medical oncologist ?
My dad , 83 , was detected with prostate cancer with mets to bones and psa 18. Is it better to take treatment through a medical oncologist or a urologist ?
My dad , 83 , was detected with prostate cancer with mets to bones and psa 18. Is it better to take treatment through a medical oncologist or a urologist ?
Tinkudi
in
Advanced Prostate Cancer
4 months ago
10th year
Ten years ago I had my Gleason 9 prostate removed. PSA was .1 for a while. It crept up over .2, and I began taking lupron. The drug brought PSA back down to >.01 for a year or so. As the level started going up again, I received whole pelvis bed radiation, moving PSA to undetectable. After a year or so
Ten years ago I had my Gleason 9 prostate removed. PSA was .1 for a while. It crept up over .2, and I began taking lupron. The drug brought PSA back down to >.01 for a year or so. As the level started going up again, I received whole pelvis bed radiation, moving PSA to undetectable. After a year or so
Jvaughan0
in
Advanced Prostate Cancer
6 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
PSA Testing Scandal Repost
This was my first post two years ago. It was about the scandal of my diagnosis. I don't think much has changed. Basically PSA testing is a good thing. https://healthunlocked.com/advanced-prostate-cancer/posts/148930895/psa-testing-scandal-lost-years-of-life-updated-re-qol [i]Posted later - please see
This was my first post two years ago. It was about the scandal of my diagnosis. I don't think much has changed. Basically PSA testing is a good thing. https://healthunlocked.com/advanced-prostate-cancer/posts/148930895/psa-testing-scandal-lost-years-of-life-updated-re-qol [i]Posted later - please see
JohnInTheMiddle
in
Advanced Prostate Cancer
4 months ago
Do testosterone supplements help raise testosterone levels after use of Lupron with radiation?
trying to decide to decide between surgery and radiation w/Lupron as a treatment for prostate cancer. I’m particularly concerned with how long it takes to restore testerone levels after 6 months on Lupron. Does the use of testerone supplements help restore T levels more quickly?
trying to decide to decide between surgery and radiation w/Lupron as a treatment for prostate cancer. I’m particularly concerned with how long it takes to restore testerone levels after 6 months on Lupron. Does the use of testerone supplements help restore T levels more quickly?
Godfather2
in
Prostate Cancer Network
7 months ago
Improving Symptoms with Rising PSA
If prostate symptoms [i]
(less urinary frequency/less urgent urination/finally can sleep through night)
[/i] are improving, but PSA is increasing
(from 10 to15)
over last few years where at
10
MRI was negative, what does kind of pattern indicate or suggests?
If prostate symptoms [i]
(less urinary frequency/less urgent urination/finally can sleep through night)
[/i] are improving, but PSA is increasing
(from 10 to15)
over last few years where at
10
MRI was negative, what does kind of pattern indicate or suggests?
back2health
in
Advanced Prostate Cancer
6 months ago
Please help us decide on next treatment
Hi, my Dad was diagnosed back in 2021 with stage IV, Gleason 9, oligometastatic. He had 6 weeks of radiation at the time of diagnosis and has been for the past 2.5 years on Abiraterone, Prednisone and Lupron. As I mentioned in my prior post my Dad’s PSA started going up. He had a PSMA Pet scan and it
Hi, my Dad was diagnosed back in 2021 with stage IV, Gleason 9, oligometastatic. He had 6 weeks of radiation at the time of diagnosis and has been for the past 2.5 years on Abiraterone, Prednisone and Lupron. As I mentioned in my prior post my Dad’s PSA started going up. He had a PSMA Pet scan and it
Simonapo
in
Advanced Prostate Cancer
6 months ago
Interesting paper/discovery - two types of PCa
Found by AI: https://medicalxpress.com/news/2024-02-ai-reveals-prostate-cancer-disease.html [i]Artificial Intelligence has helped scientists reveal a new form of aggressive prostate cancer that could revolutionize how the disease is diagnosed and treated in the future.[/i] [i]The study published in
Found by AI: https://medicalxpress.com/news/2024-02-ai-reveals-prostate-cancer-disease.html [i]Artificial Intelligence has helped scientists reveal a new form of aggressive prostate cancer that could revolutionize how the disease is diagnosed and treated in the future.[/i] [i]The study published in
Don_1213
in
Prostate Cancer Network
7 months ago
Gummie relief for degarelix shots?
DH has so much pain with each monthly shot and can't take nsaids. Is there anything that won't make him loopy to use after shots for a few days? He is ready to go back to lupron, it hurts so much. Mail order preferred.Thanks!
DH has so much pain with each monthly shot and can't take nsaids. Is there anything that won't make him loopy to use after shots for a few days? He is ready to go back to lupron, it hurts so much. Mail order preferred.Thanks!
Chipnick
in
Advanced Prostate Cancer
7 months ago
Dr. "Snuffy" Myers daughter talks about the day she heard about her Dad's diagnosis
https://youtu.be/k0vmB-fgxQc Click here to subscribe: https://www.youtube.com/c/malecare?sub_confirmation=1 Jessie Myers, daughter of prostate cancer legend Dr. "Snuffy" Myers, talks about the day she heard about her Dad's diagnosis and how she and her family came to terms with death and prostate
https://youtu.be/k0vmB-fgxQc Click here to subscribe: https://www.youtube.com/c/malecare?sub_confirmation=1 Jessie Myers, daughter of prostate cancer legend Dr. "Snuffy" Myers, talks about the day she heard about her Dad's diagnosis and how she and her family came to terms with death and prostate
Darryl
Partner
in
Prostate Cancer Network
7 months ago
Dr. "Snuffy" Myers daughter talks about the day she heard about her Dad's diagnosis
https://youtu.be/k0vmB-fgxQc Click here to subscribe: https://www.youtube.com/c/malecare?sub_confirmation=1 Jessie Myers, daughter of prostate cancer legend Dr. "Snuffy" Myers, talks about the day she heard about her Dad's diagnosis and how she and her family came to terms with death and prostate
https://youtu.be/k0vmB-fgxQc Click here to subscribe: https://www.youtube.com/c/malecare?sub_confirmation=1 Jessie Myers, daughter of prostate cancer legend Dr. "Snuffy" Myers, talks about the day she heard about her Dad's diagnosis and how she and her family came to terms with death and prostate
Darryl
Partner
in
Advanced Prostate Cancer
7 months ago
My Scan Story
Hi all...great info shared here that has helped me after my RP...I went from PSA of 2.4 in 2021 to a 4.91 in 10/23..Dr did a 12 core biopsy cause of 3 bro's and Dad all with PC. 2 cores came back with Gleason 7 and an 8. They did a PSMA test with nuclear dye that showed it confined to gland.(also did
Hi all...great info shared here that has helped me after my RP...I went from PSA of 2.4 in 2021 to a 4.91 in 10/23..Dr did a 12 core biopsy cause of 3 bro's and Dad all with PC. 2 cores came back with Gleason 7 and an 8. They did a PSMA test with nuclear dye that showed it confined to gland.(also did
wharr
in
Prostate Cancer Network
5 months ago
The De-Escalate Trial: Intermittently Stopping Prostate Cancer Treatments to Improve QoL
as the title says: https://www.urotoday.com/video-lectures/asco-gu-2024/video/mediaitem/3875-the-de-escalate-trial-intermittently-stopping-prostate-cancer-treatments-to-improve-quality-of-life-guillaume-grisay.html
as the title says: https://www.urotoday.com/video-lectures/asco-gu-2024/video/mediaitem/3875-the-de-escalate-trial-intermittently-stopping-prostate-cancer-treatments-to-improve-quality-of-life-guillaume-grisay.html
Maxone73
in
Advanced Prostate Cancer
7 months ago
What AI Says About Supplements and Off-Label Drug Use Regarding Prostate Cancer
Sure wish I had this tool over 2 years ago when I started reading up although you can't 100% trust the answers. The tools are getting smarter. I'm a software developer and have early access to Google's Gemini Pro 1.5 AI model that was relased Feb 15 2024 claiming to have better 'scores' than all the
Sure wish I had this tool over 2 years ago when I started reading up although you can't 100% trust the answers. The tools are getting smarter. I'm a software developer and have early access to Google's Gemini Pro 1.5 AI model that was relased Feb 15 2024 claiming to have better 'scores' than all the
jazj
in
Advanced Prostate Cancer
7 months ago
PSA is back
I was 51 yr old diagnosed with Prostate cancer state 1 with a PSA 4.7. Gleasons mixed of 3+3's and 3+4's.I had robotic prostatectomy. Psa was undetectable until January 2023 and slowly creeped back up to .19 now in April 2024 . Just started Hormonal Therapy with radiation scheduled for August.
I was 51 yr old diagnosed with Prostate cancer state 1 with a PSA 4.7. Gleasons mixed of 3+3's and 3+4's.I had robotic prostatectomy. Psa was undetectable until January 2023 and slowly creeped back up to .19 now in April 2024 . Just started Hormonal Therapy with radiation scheduled for August.
LBbeachbum
in
Prostate Cancer Network
5 months ago
Oncologist visit today
Finished visit with oncologist. We are going to monitor PSA every 6 weeks to watch for doubling time. Next meds may be abiraterone and prednisone, but that still remains to be determined.
Finished visit with oncologist. We are going to monitor PSA every 6 weeks to watch for doubling time. Next meds may be abiraterone and prednisone, but that still remains to be determined.
ppulatie
in
Advanced Prostate Cancer
5 months ago
Dad,83 - is biopsy necessary ?
My dad , 83 had an elevated psa at 18. Dr ordered MRI which showed a pirads 5 with 2-3 bone metastases in the pelvic region and femur. Went to an oncologist who said to do a PSMA and then to start him on Lupron and bicalutamide. And maybe radiation for the bone met pain. He said he did not really
My dad , 83 had an elevated psa at 18. Dr ordered MRI which showed a pirads 5 with 2-3 bone metastases in the pelvic region and femur. Went to an oncologist who said to do a PSMA and then to start him on Lupron and bicalutamide. And maybe radiation for the bone met pain. He said he did not really
Tinkudi
in
Advanced Prostate Cancer
5 months ago
Rise in psa
I had rp in 2021 with recurrence 12 months later to 1 lymph node. RT to 9lymph nodes and zoladex hormone therapy for 18 months. Psa has been undetectable for 12 months but just rose to 0.03. Do I need to wait until it rises to 2.0 as I've seen advice before or is there a more proactive approach? Thanks
I had rp in 2021 with recurrence 12 months later to 1 lymph node. RT to 9lymph nodes and zoladex hormone therapy for 18 months. Psa has been undetectable for 12 months but just rose to 0.03. Do I need to wait until it rises to 2.0 as I've seen advice before or is there a more proactive approach? Thanks
Runner1957
in
Advanced Prostate Cancer
5 months ago
What Next After Xtandi Fail?
Morning all. Don't post much but now is the time. Been fighting the Beast since Nov 2016. On Lupron from the beginning and Xtandi since Nov 2019. Hit Nadir of .21 in Dec 2022. Since then, PSA has been jumping around, but trending upward. End of 2023, it was at .67. Feb 2024, PSA up to .87. Yesterday
Morning all. Don't post much but now is the time. Been fighting the Beast since Nov 2016. On Lupron from the beginning and Xtandi since Nov 2019. Hit Nadir of .21 in Dec 2022. Since then, PSA has been jumping around, but trending upward. End of 2023, it was at .67. Feb 2024, PSA up to .87. Yesterday
ppulatie
in
Advanced Prostate Cancer
5 months ago
Some Reference Material - NECP/SCCP
-----
I am constantly updating this post as I come across additional relevant material.
----- Emerging Insights in Small-Cell Carcinoma of the Genitourinary Tract: From Diagnosis to Novel Therapeutic Horizons, 2024 https://ascopubs.org/doi/10.1200/EDBK_430336#:~:text=Small%2Dcell%20carcinoma
-----
I am constantly updating this post as I come across additional relevant material.
----- Emerging Insights in Small-Cell Carcinoma of the Genitourinary Tract: From Diagnosis to Novel Therapeutic Horizons, 2024 https://ascopubs.org/doi/10.1200/EDBK_430336#:~:text=Small%2Dcell%20carcinoma
skiingfiend
in
Advanced Prostate Cancer
7 months ago
1
...
37
38
39
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
13125 results
Prostate Cancer Network
1341 results
Fight Prostate Cancer
530 results
View top 10 communities
Sort by
Most Relevant
Newest