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Atrioventricular (AV) heart block
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ALP and when to add 2nd line therapy
I was diagnosed Feb. 2022 ALP was 307. Started URSO right away. ALP went down quickly - In July 2022 it was 107 but October 2022 was 119 and April 2023 was 120. So my specialist wanted to add ocaliva. I convinced him to give it another 6 months before adding anything and he agreed. So I am praying
I was diagnosed Feb. 2022 ALP was 307. Started URSO right away. ALP went down quickly - In July 2022 it was 107 but October 2022 was 119 and April 2023 was 120. So my specialist wanted to add ocaliva. I convinced him to give it another 6 months before adding anything and he agreed. So I am praying
Heaslea
in
PBC Foundation
1 year ago
Bnp level
Hi,I had wolff Parkinson white, suffered years of bad palpitations until I got offered an ablation, unfortunately the ablation wasnt straight forward due to my extra pathway being so close to my
AV
node, high risk of
heart
block
, anyhow decided it takes the risk as I was told I'd be 5 x more likely to
Hi,I had wolff Parkinson white, suffered years of bad palpitations until I got offered an ablation, unfortunately the ablation wasnt straight forward due to my extra pathway being so close to my
AV
node, high risk of
heart
block
, anyhow decided it takes the risk as I was told I'd be 5 x more likely to
Nomis21
in
British Heart Foundation
8 months ago
Op cancelled & statistics
My AVR scheduled for 2nd May has been cancelled because my CRP level is high. I've asked what the level is, and how it compares to a normal level and acceptable/inoperable level, but the surgeon's secretary didn't know, neither did the pre-op team at the hospital, and I don't know when/if I'll be seeing
My AVR scheduled for 2nd May has been cancelled because my CRP level is high. I've asked what the level is, and how it compares to a normal level and acceptable/inoperable level, but the surgeon's secretary didn't know, neither did the pre-op team at the hospital, and I don't know when/if I'll be seeing
Carion
in
British Heart Foundation
1 year ago
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Nerve block.
Has anyone had a coeliac plexus nerve block for chronic Pancreas pain, and if so did it help?
Has anyone had a coeliac plexus nerve block for chronic Pancreas pain, and if so did it help?
jimister
in
Chronic Pancreatitis Support
1 year ago
av node ablation
I had av node ablation one month ago. Since then, I’ve been extremely tired and sob on exertion? has anyone else had the same? thanks for your time
I had av node ablation one month ago. Since then, I’ve been extremely tired and sob on exertion? has anyone else had the same? thanks for your time
Hidden
in
AF Association
1 year ago
Valve Surgery
I am due to have a tricuspid valve replacement with open heart surgery in the next few weeks. I have been getting some conflicting info regarding wearing a bra or not after the procedure and what type if necessary is best. I was wondering if any of the ladies on hear might be able to advise me, ant
I am due to have a tricuspid valve replacement with open heart surgery in the next few weeks. I have been getting some conflicting info regarding wearing a bra or not after the procedure and what type if necessary is best. I was wondering if any of the ladies on hear might be able to advise me, ant
Jennywren2953
in
British Heart Foundation
1 year ago
Genetic Testing
Hello my husband had heart bypass surgery last year and a heart attack after angiogram. His grandad, dad and sister all have heart conditions. The hospital said last year they would be doing genetic testing and our two children (9&12) would be tested. We still haven’t heard any and when my husband finally
Hello my husband had heart bypass surgery last year and a heart attack after angiogram. His grandad, dad and sister all have heart conditions. The hospital said last year they would be doing genetic testing and our two children (9&12) would be tested. We still haven’t heard any and when my husband finally
Ljs383
in
British Heart Foundation
1 year ago
Your experience of having Ablate and Pace please
Hello My condition has worsened I am in permanent AF have been for a few years, also have Heart failure due to this Consultant consultation a few weeks ago - now in Tachymyopathy I have been told it is best to have AV node ablation now although I have fought having this for years I do have a pacemaker
Hello My condition has worsened I am in permanent AF have been for a few years, also have Heart failure due to this Consultant consultation a few weeks ago - now in Tachymyopathy I have been told it is best to have AV node ablation now although I have fought having this for years I do have a pacemaker
SMwils
in
AF Association
1 year ago
Not prepared for the anxiety that follows heart surgery
Almost 9 weeks post mitral valve repair and Aortic valve replacement. It was all quite sudden. I was hardly prepared for the valve repair but woke after 8 hours of surgery to find I had also had Aortic valve replacement! That was a lot to cope with! Now I have so much anxiety! I have always been quite
Almost 9 weeks post mitral valve repair and Aortic valve replacement. It was all quite sudden. I was hardly prepared for the valve repair but woke after 8 hours of surgery to find I had also had Aortic valve replacement! That was a lot to cope with! Now I have so much anxiety! I have always been quite
Mishy2610
in
British Heart Foundation
1 year ago
chest pain
now I’m familiar with chest pain and when I do get it I am scared but this morning it was really sore then an hour later i feel asleep for 3 hours I’ve just woke up and feel so incredibly anxious and worrying about that chest pain as it was extremely painful. I still have it just now even when resting
now I’m familiar with chest pain and when I do get it I am scared but this morning it was really sore then an hour later i feel asleep for 3 hours I’ve just woke up and feel so incredibly anxious and worrying about that chest pain as it was extremely painful. I still have it just now even when resting
caitsxxx1
in
Anxiety Support
1 year ago
An Update to Tokyo Update
It's 5 months today since my mini-maze with Dr Ohtsuka in Tokyo. Yippee !!! 🎂 I will save the song and dance for the 6 month milestone, save to say that I am in NSR each and every day for the whole day. I take zero medications and do not require an anti-coagulant as my left atrial appendage was removed
It's 5 months today since my mini-maze with Dr Ohtsuka in Tokyo. Yippee !!! 🎂 I will save the song and dance for the 6 month milestone, save to say that I am in NSR each and every day for the whole day. I take zero medications and do not require an anti-coagulant as my left atrial appendage was removed
saulger
in
AF Association
1 year ago
Flecainide stopped working
I have been on Flecainide for years & my AF well controlled. Now it has started to cause other arrhythmias so I have to stop it This happened a few years ago & as soon as it was stopped my AF occurred regularly & made me feel very unwell I was able then to restart it but this time it’s not possible
I have been on Flecainide for years & my AF well controlled. Now it has started to cause other arrhythmias so I have to stop it This happened a few years ago & as soon as it was stopped my AF occurred regularly & made me feel very unwell I was able then to restart it but this time it’s not possible
Koladog
in
Atrial Fibrillation Support
1 year ago
Apixaban and the risk of bleeding
[u]"Covid blood-thinner drug treatment dangerous and does not work". This[/u] scary headline in the Guardian today turns out to be specifically about Apixaban being used in relation to hospitalized patients recovering from covid. The article begins: “A blood-thinning drug given as a potential life-saver
[u]"Covid blood-thinner drug treatment dangerous and does not work". This[/u] scary headline in the Guardian today turns out to be specifically about Apixaban being used in relation to hospitalized patients recovering from covid. The article begins: “A blood-thinning drug given as a potential life-saver
Sambaqui
in
AF Association
2 years ago
BP mystery solved heads will roll!
A few days ago I posted on here regarding BP shooting up,and staying up . Around 190 to 200 systolic and 105 to 125 systolic.Thank you all for your fabulous support and information, where would I be without you all?! So many took the time to reply. Right. As I was told to revert to original dose of
A few days ago I posted on here regarding BP shooting up,and staying up . Around 190 to 200 systolic and 105 to 125 systolic.Thank you all for your fabulous support and information, where would I be without you all?! So many took the time to reply. Right. As I was told to revert to original dose of
wilsond
in
AF Association
1 year ago
Phrenic Nerve damage on top of everything else.
Morning all Please help me pick the bones out of this one. Just wondered if anyone on here had their Phrenic nerve damaged during their open heart surgery? I saw my Thoracic surgeon yesterday, and he said it was quite common, but I've never heard anyone talking about it on here. It causes paralysis
Morning all Please help me pick the bones out of this one. Just wondered if anyone on here had their Phrenic nerve damaged during their open heart surgery? I saw my Thoracic surgeon yesterday, and he said it was quite common, but I've never heard anyone talking about it on here. It causes paralysis
Sljp0000
in
British Heart Foundation
1 year ago
Where to source otc warfarin 1 mg or 0.5 mg
I need to buy 1mg or 0.5 warfarin. My mom 13 years ago had mitral valve and aortic valve replacement and requires to take warfarin but recently we found that her fit size should be 1 mg and or 0.5mg which is not in her residential location. I'm willing to trade 5 my warfarin for 1 mg or 0.5 mg. I can
I need to buy 1mg or 0.5 warfarin. My mom 13 years ago had mitral valve and aortic valve replacement and requires to take warfarin but recently we found that her fit size should be 1 mg and or 0.5mg which is not in her residential location. I'm willing to trade 5 my warfarin for 1 mg or 0.5 mg. I can
Hamayeshguy
in
Anticoagulation Support
1 year ago
Fed up with BPressure
Well!My bp has been really stable for over 12 months ,120 /130 70/80. So reduced Losartan from 100mg to 50mg ( 25mg twice a day) on Dr's advice. Monitor regularly. Few weeks back,Monitor packed up but didn't replace immediately, didn't feel the need urgently. However last week felt a bit tired and
Well!My bp has been really stable for over 12 months ,120 /130 70/80. So reduced Losartan from 100mg to 50mg ( 25mg twice a day) on Dr's advice. Monitor regularly. Few weeks back,Monitor packed up but didn't replace immediately, didn't feel the need urgently. However last week felt a bit tired and
wilsond
in
AF Association
1 year ago
Heart Bypass Soon
Hi all I’ve got my pre op on Thursday at Wythenshawe Hospital Manchester for valve replacement and heart bypass. I’m female 56 years old and obese was a smoker but stopped 3 weeks ago. I’m so scared so much that i keep thinking what if I don’t survive the procedure I’ve written letters to my mum husband
Hi all I’ve got my pre op on Thursday at Wythenshawe Hospital Manchester for valve replacement and heart bypass. I’m female 56 years old and obese was a smoker but stopped 3 weeks ago. I’m so scared so much that i keep thinking what if I don’t survive the procedure I’ve written letters to my mum husband
Shanty123
in
British Heart Foundation
1 year ago
Bigscar recent BP readings astonishing
My stories on here somewhere nearly 77 triple heart bypass in 1977 ie nearly 46 years ago.On loads of drugs.Just been out on quite a tough bike ride not a long distance but up quite a testing hill. On return BP 137/ 76 considering effort put in the pre hypertension didn’t worry me, sat down and rested
My stories on here somewhere nearly 77 triple heart bypass in 1977 ie nearly 46 years ago.On loads of drugs.Just been out on quite a tough bike ride not a long distance but up quite a testing hill. On return BP 137/ 76 considering effort put in the pre hypertension didn’t worry me, sat down and rested
Bigscar
in
British Heart Foundation
1 year ago
Metoprolol
I have a CT angiogram tomorrow at 0830 and have been given two tablets of Metoprolol (50mg) to take 12 hrs and then 2hrs before the procedure. This is apparently to slow the heart down (to below 60bpm). I rang the hospital and told them that I already take Sotalol and my heart rate is generally slow
I have a CT angiogram tomorrow at 0830 and have been given two tablets of Metoprolol (50mg) to take 12 hrs and then 2hrs before the procedure. This is apparently to slow the heart down (to below 60bpm). I rang the hospital and told them that I already take Sotalol and my heart rate is generally slow
Samazeuilh2
in
AF Association
2 years ago
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