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A-fib free since ablation 18 months ago but now suggesting Apixaban

rocketiii profile image
28 Replies

I have found this forum so useful since having my first paroxsymal a-fib occurrence two years ago at age 63. I had several occurrences of a-fib with fast heart rate of 110-150 bpm. Fortunately these all self-corrected to NSR within 1-4 hours. I am fit and not overweight and the a-fib usually happened when I lay in bed.

I have private medical care. My EP is Dr Shabeeh and following a range of tests he advised my heart is structurally ok. He gave me a pill in the pocket to take when having an episode but this made me feel drousy so I didn’t take it. He said my CHADS score meant that I did not need to take an anti-COAG. He recommended an ablation which he performed at London Bridge Hospital 18 months ago.

The ablation went well and I have been a-fib free since then. I had to take Apixaban for some time after the ablation as a precaution. I did find my resting heart rate was raised from 60 bpm to 80 bpm for a few months but it’s now back to original.

I recently had a NHS review with another doctor and although a-fib free they are suggesting I start taking Apixaban as I will be 65 in a couple of months. So I didn’t take Apixaban when I had a-fib episodes but now at 65 without a-fib it is suggested I start taking it.

So I’m trying to work out the risk vs benefit and would welcome any thoughts on this.

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rocketiii
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28 Replies
CDreamer profile image
CDreamer

As soon as you hit 65 your CHADS score rises.

I had a similar history in that no AF for 12 months after ablation so I stopped taking anticoagulant - 2 months later I had a TIA. I was 63 at the time and my EP had warned me that as soon as I hit 65 they wanted me back on anticoagulant.

If you had no reason to not take it - why raise your stroke risk?

riffjack846 profile image
riffjack846 in reply to CDreamer

Sounds like my experience. No afib for 2 years and then wham a mini-stroke. I've taken Eliquis religiously since then even though I've been afib free since my ablation. It's not worth the risk or worry about another TIA.

FindingCaradoc profile image
FindingCaradoc

Presumably you have at least one other risk factor (e.g high BP) which will take your CHADS VASC score to at least 2 when you turn 65 (of course there is no magic in the actual date!)? - at this point the balance of stroke vs bleeding risk tips in favour of taking an anti coagulant. My situation is similar (not 65 for a couple of years but other risk factors) although I am already on Apixaban due to these risk factors (and after a successful-so far-ablation). I would rather not be, particularly as I am very active, but on balance it seems to be the right thing to do.

rocketiii profile image
rocketiii in reply to FindingCaradoc

Just to confirm, My CHADS score will be 1 when I reach 65. BP etc not a factor.

FindingCaradoc profile image
FindingCaradoc in reply to rocketiii

Then with my lay person’s understanding I’m not sure why you need anti coagulation… sounds like you need to query and/or get another opinion

As has been said, once you reach 65 your CHADs increases by 1 point and most medics tend to encourage patients to take an anticoagulant. Many AF patients assume that if they have had a successful ablation then anticoagulation isn’t necessary but this is not the case. Once diagnosed with AF, the increased risk of having a stroke remains even after a “successful” ablation. Also bear in mind, arrhythmias can occur whilst you are asleep and you would be unaware. It is, of course, your choice but most are keen to avoid having a stroke.

in reply to

why not seek a second opinion from your EP……

TracyAdmin profile image
TracyAdminPartner

Thank you for your message posted on the Forum, I can see some of the members have offered great advice based upon their own experiences. If you would like to contact Patient Services on 01789 867 502 or email on info@afa.org.uk , we will be very happy to help. In the meantime, please visit the AF Association webpage to download our 'Preventing an AF-Related Stroke' booklet: api.heartrhythmalliance.org...

I would also recommend registering for the 'Living with... AF' patient educational online event, that is free to view with unlimited access. You will have access to up to date information from the medical experts heartrhythmalliance.org/afa...

booklet
waveylines profile image
waveylines

Once I hit 65 plus being female immediately affected my Vhad score & EP said I must go on anti-co ag. I've struggled with them due to bleeding so on half dose now.... I have mild P-Afib.Thing is your stroke risk rises so that's why they push them.

healingharpist profile image
healingharpist in reply to waveylines

Several cardiologists have informed me, in the last few years, that there's been further discussion of whether being female should actually count in the CHADS/VASC score, and that it tends to be leaning away from female being a significant risk factor (or at least equal to the other factors). I was actually advised not to really consider it. I have the idea that sometimes certain kinds of guidelines are put in place by committees that are designing horses... Diane S.

waveylines profile image
waveylines in reply to healingharpist

🤣😂 love it!

It's the usual problem of trying to make us all fit in one hole. Such generic assessments has to be flawed & include people who dont need to be on anti-coag. The statins one is equally very poor! It's gives u 10points if you tick the Afib box without ticking anything else! In other words if you have Afib, no matters it's form, degree or cause you will be told to go on statins! Did big pharma design it??

healingharpist profile image
healingharpist in reply to waveylines

All so true, waveylines... I'm interested in your being on 1/2 dose of AC; I bruise easily and maybe 1/2 dose would be adequate protection (not on any at the moment). As you say--never any consideration of our Afib's "form, degree or cause". My BP is low, my HR is usually 83-105 when in afib, and I have yet to hear a discussion of how factors such as these affect the need for AC's. Guess we have to keep doing that research!... Diane S.

waveylines profile image
waveylines in reply to healingharpist

My cardiologist would say it's an inadequate dose......I know this because I asked him. My GP says its better than not taking it at all....he's retired now but a wise GP. I agree with him. The bruising I could take....but the horrible vampire mouth aching teeth & being fast tracked twice in 6 months for bleeding I could not take. Whether it's right what I'm doi g is probably on the fringe because dosing is done in a blanket way.

healingharpist profile image
healingharpist in reply to waveylines

Could I ask if you have any side effects from taking the 1/2 dose? Diane

rocketiii profile image
rocketiii

Thank you for all these comments. I’ve also spoken to Tracy on the Patient Services line and I now have a clearer idea of the benefits and (small) risks. I think I will take the Apixaban.

JOY2THEWORLD49 profile image
JOY2THEWORLD49

Hi

With no AF for a year the only fear is that it may return with no warning.

It sounds, and you realise it, that it is a precaution against it returning.

Being female gives you a score or 1 and then your age 1 = 2 and he might another 1 because you were an AF patient.

Its your choice.

cheri JOY

JOY2THEWORLD49 profile image
JOY2THEWORLD49

Hi

My stroke happened @ 2pm.

I was not on any meds.

My average heart rate at night is 47.

cheri. JOY 74 was 70. found with AF.

Singwell profile image
Singwell

It is simply because you are female and older. The statistics indicate you are more at risk due to these factors. My GP recently calculated my cardiovascular risk score, informed me I'm in danger pf heart failure within the next 10 years and therefore need statins. I'm 66, had an ablation last march, no AF since May and feeling pretty good. My BP tends to be high so I stayed on ACs. Ignored the nonsense re statins though!Only you can make the decision.

Auriculaire profile image
Auriculaire in reply to Singwell

Did he actually say heart failure or a heart attack? There is some evidence from Japanese studies that statins actually contribute to congestive heart failure. There is a physiological mechanism why this might happen . Statins interfere in the same metabolic pathway in the liver that produces co enzyme Q10 as well as cholesterol. Co enzyme Q 10 is important in the process that converts food into energy and is crucial for good muscle function. Which is the most important muscle in our body?

oscarfox49 profile image
oscarfox49

I started suffering from AF in 1995 when I was in my late 40s. Apart from rate control with Sotalol and lots of periods of uncomfortable AF when stressed, I had no problems. Then having retired and at the age of 74, I was suddenly struck with an ischaemic stroke, something no doctor had warned me about. And all because I did not have something as simple and relatively harmless as apixaban, which I now have taken daily since 2020.

My advice to you would be to carefully weigh the health risks as apixaban is a very safe drug compared to very many others, and just because your AF is 'fixed' for the present, the episode when you don't even notice it, could be the one causing a stroke, particularly as you get older.

I just wish someone had advised me to take apixaban a few years ago, as although I am somewhat 'recovered' from the stroke, my life has been changed for ever. You do NOT want to go there! :)

Ppiman profile image
Ppiman

From what I have been told and read, a single episode of AF is sufficient to confer the need for anticoagulation for life if the Chads score points to it. Also, I gather that no one truly knows the risk of thromboembolism in an individual case as the cause might be multifactorial, and include anatomical aspects of the atrial appendage, perhaps even, amazingly, the AF itself not being the cause.

There is plenty online, especially Google Scholar about this. It's unfortunate to have to take such a profound (and expensive!) drug, but that seems to be the reality.

Steve

Slidingdoors99 profile image
Slidingdoors99

You only had to wait six months for your ablation? That’s amazing!

So glad that it’s working for you!

I would probably say to take the anticoagulant- just in case!

BlueINR profile image
BlueINR in reply to Slidingdoors99

Guess things are different in the US. I've had 3 ablations, and longest I ever had to wait was a few days.

BlueINR profile image
BlueINR

My thought? Much better to take a pill than have afib.

doubledeck profile image
doubledeck in reply to BlueINR

I will be the same once I reach 65, consultant said anticoagulants at 65, age and female are the 2 rise factors I believe. Better than a stroke, although I will be disappointed when the time comes.

rocketiii profile image
rocketiii in reply to doubledeck

I should have said that I am male, hence CHADS score at 65 will be 1. The responses here are very reassuring over the benefit of anti-coagulants.

BlueINR profile image
BlueINR

I have been taking warfarin since 2009. It's no big deal. Don't understand what there is to be disappointed about in taking a pill that can prevent a possible lethal event.

etheral profile image
etheral

Having g a prior TIA puts you at huge risk for a full blown stroke.

I'm pleased for your sake that you are taking Tracy's advice, etheral

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