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Gca Flare after 5 years ?
I was diagnosed GCA by biopsy in December 2017 and had all the classic symptoms, one was migraine aura which stopped once on 60mg. I've been tapering very slowly and got to 1 mg in September this year. Two weeks ago I had a migraine aura, my first since 2018. The only other symptom is some scalp tenderness
I was diagnosed GCA by biopsy in December 2017 and had all the classic symptoms, one was migraine aura which stopped once on 60mg. I've been tapering very slowly and got to 1 mg in September this year. Two weeks ago I had a migraine aura, my first since 2018. The only other symptom is some scalp tenderness
Abbeys
in
PMRGCAuk
2 years ago
AV Node ablation.
I have a meeting with my EP in 3 weeks time to discuss my ongoing afib issues. I'm assuming he will be advising me to go ahead with an AV node ablation to help control my afib, which l now get every other day lasting on average for 4/5 hours. Although there are lots of positive stories here regarding
I have a meeting with my EP in 3 weeks time to discuss my ongoing afib issues. I'm assuming he will be advising me to go ahead with an AV node ablation to help control my afib, which l now get every other day lasting on average for 4/5 hours. Although there are lots of positive stories here regarding
Tenshun
in
AF Association
2 years ago
Age, cycling (ebikes) and afib.
Interesting article in one of my subscriptions...about how ebikes have made a difference in the lives of cyclists (like me) who are past their *best before date* on 2 wheels lol. One of the guys has afib, so thought I'd share; "The benefits of riding an electric bike also rang true in our chat with
Interesting article in one of my subscriptions...about how ebikes have made a difference in the lives of cyclists (like me) who are past their *best before date* on 2 wheels lol. One of the guys has afib, so thought I'd share; "The benefits of riding an electric bike also rang true in our chat with
beach_bum
in
AF Association
2 years ago
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Persistent atrial fibrillation
I have now been in persistent afib for almost 3 months and have yet to receive a consultants appointment though have received an appointment with a cardionurse on the 28th December!!! I have been self administering (what alternative) and apart from Edoxaban 30mg which I was prescribed by my GP in February
I have now been in persistent afib for almost 3 months and have yet to receive a consultants appointment though have received an appointment with a cardionurse on the 28th December!!! I have been self administering (what alternative) and apart from Edoxaban 30mg which I was prescribed by my GP in February
Swimsyroke
in
AF Association
2 years ago
Erratic Heart Rate - Afib or Tachycardia 24 hour heart monitor.
Since my Open Heart Surgery's twice in April 2019 for an Ascending Thoracic Aortic Aneurysm I've had Afib and Tachycardia issues and was on Amiodarone for a few and months and now on bisoprolol. It settled for a while but its gradually came back and more recently its gotten more frequent. My heart
Since my Open Heart Surgery's twice in April 2019 for an Ascending Thoracic Aortic Aneurysm I've had Afib and Tachycardia issues and was on Amiodarone for a few and months and now on bisoprolol. It settled for a while but its gradually came back and more recently its gotten more frequent. My heart
cjbroon
in
AF Association
2 years ago
polycystic liver disease
I’ve just been diagnosed. I would like to hear of others experience living with this. To operate or not?
I’ve just been diagnosed. I would like to hear of others experience living with this. To operate or not?
Sep9
in
British Liver Trust
2 years ago
Fitbit for a fib?
hi all. My husband has had paroxysmal a fib for last 4 years and takes digoxin. We use the Kardia mobile with great success. I’m wondering whether to get him either a Fitbit or more expensive Apple Watch so he can keep an eye on how high his rate goes while out on his daily walk. I don’t think it’s
hi all. My husband has had paroxysmal a fib for last 4 years and takes digoxin. We use the Kardia mobile with great success. I’m wondering whether to get him either a Fitbit or more expensive Apple Watch so he can keep an eye on how high his rate goes while out on his daily walk. I don’t think it’s
Janau
in
Atrial Fibrillation Support
2 years ago
Amiodarone - yes or no ?
Hi all. Just interested to hear from any forum members who have used / or are using Amiodarone to treat their afib. To help with afib it seems to be a last resort medication - I understand that it can and does cause bad side effects. However if you can tolerate these it appears to be the most effective
Hi all. Just interested to hear from any forum members who have used / or are using Amiodarone to treat their afib. To help with afib it seems to be a last resort medication - I understand that it can and does cause bad side effects. However if you can tolerate these it appears to be the most effective
Paulbounce
in
Atrial Fibrillation Support
2 years ago
With love and in loving memory.
Happy New Year to you my fellow travelers, patients and caregivers alike. I send hope that 2023 brings answers to your disease and it’s challenges. The names of those we lost to lung cancer this year are not all known but they will not be forgotten. Their words and their lives remain alive on this board
Happy New Year to you my fellow travelers, patients and caregivers alike. I send hope that 2023 brings answers to your disease and it’s challenges. The names of those we lost to lung cancer this year are not all known but they will not be forgotten. Their words and their lives remain alive on this board
Denzie
Volunteer
in
Lung Cancer Support
2 years ago
Multiple Studies Suggest Eliquis for Afib Can Reduce Stroke, Bleeding Risks Better Than Alternatives
Here is a link to the site re. these studies. https://www.healthline.com/health-news/new-study-suggests-eliquis-for-afib-can-reduce-stroke-bleeding-risks?slot_pos=article_2&utm_source=Sailthru%20Email&utm_medium=Email&utm_campaign=afib&utm_content=2022-11-03&apid=28242615&rvid=82ca3b83950fba421b7b3a5161d7787766fd74acef2a7ebecea328bbde865607
Here is a link to the site re. these studies. https://www.healthline.com/health-news/new-study-suggests-eliquis-for-afib-can-reduce-stroke-bleeding-risks?slot_pos=article_2&utm_source=Sailthru%20Email&utm_medium=Email&utm_campaign=afib&utm_content=2022-11-03&apid=28242615&rvid=82ca3b83950fba421b7b3a5161d7787766fd74acef2a7ebecea328bbde865607
MJZaw
in
AF Association
2 years ago
Pomi-T vs Pom Juice
I take 1 cup of Pom Juice most days based on the study attached. Doesn't taste great but I mix it with 1/2 c of Beet Juice. All organic. I have seen some talk about using the supplement Pomi-t. When I read the studies, too my non-scientific brain, it certainly looks like Pom Juice is the better of the
I take 1 cup of Pom Juice most days based on the study attached. Doesn't taste great but I mix it with 1/2 c of Beet Juice. All organic. I have seen some talk about using the supplement Pomi-t. When I read the studies, too my non-scientific brain, it certainly looks like Pom Juice is the better of the
Teufelshunde
in
Advanced Prostate Cancer
2 years ago
High risk treatment - go conventional or experimental?
Hello Folks, Lots of great posts and discussions on this site. I thought I'd come aboard and get some feedback. 58 yrs old great health except for Gleason 4+4 = 8, in 3/6 biopsy cores (one side of prostate). Not sure why they only took 6 cores. PSA 24.1 back in November. Did a bone scan and a question
Hello Folks, Lots of great posts and discussions on this site. I thought I'd come aboard and get some feedback. 58 yrs old great health except for Gleason 4+4 = 8, in 3/6 biopsy cores (one side of prostate). Not sure why they only took 6 cores. PSA 24.1 back in November. Did a bone scan and a question
LongTimeRunning
in
Prostate Cancer Network
2 years ago
Look after yourself!
Hi everyone, as you will know from previous posts, my hubby has decompensated liver and is still drinking, with an "If I die, I die" attitude. So today saw me at the GP for myself (felt a bit self indulgent tbh) and I've got low haemoglobin, low vitamin levels, possibly due to Covid a couple of months
Hi everyone, as you will know from previous posts, my hubby has decompensated liver and is still drinking, with an "If I die, I die" attitude. So today saw me at the GP for myself (felt a bit self indulgent tbh) and I've got low haemoglobin, low vitamin levels, possibly due to Covid a couple of months
MrsWorried
in
British Liver Trust
2 years ago
Exercise and Afib
I'm sure you all already know this but I discovered this recently. My cardiologist sent me to cardiac rehab because I have afib and some wall weakening in the heart. The idea is to strengthen the heart muscle to be able to handle any arrhythmia that may come my way. I always thought that talk
I'm sure you all already know this but I discovered this recently. My cardiologist sent me to cardiac rehab because I have afib and some wall weakening in the heart. The idea is to strengthen the heart muscle to be able to handle any arrhythmia that may come my way. I always thought that talk
Elsie1955
in
Atrial Fibrillation Support
2 years ago
Do you or a member of your family have or been diagnosed with AF?
Register TODAY for our 'Living with … AF'? Please register for our next 'online' patient educational series - Living with ... AF? Atrial Fibrillation is the most common arrhythmia, affecting many individuals around the world, if you would like to find out more about the latest developments in the
Register TODAY for our 'Living with … AF'? Please register for our next 'online' patient educational series - Living with ... AF? Atrial Fibrillation is the most common arrhythmia, affecting many individuals around the world, if you would like to find out more about the latest developments in the
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
2 years ago
Do you or a member of your family been diagnosed with AF?
Register TODAY for our 'Living with … AF'? Please register for our next 'online' patient educational series -
Living with ... AF?
Atrial Fibrillation is the most common arrhythmia, affecting many individuals around the world, if you would like to find out more about the latest developments
Register TODAY for our 'Living with … AF'? Please register for our next 'online' patient educational series -
Living with ... AF?
Atrial Fibrillation is the most common arrhythmia, affecting many individuals around the world, if you would like to find out more about the latest developments
TracyAdmin
Partner
in
AF Association
2 years ago
Taking part in Watchman trial to establish if it’s safe to come off anti-coagulants like Apixaban
Good afternoon everyone. On Thursday I am scheduled to go for a procedure to have a Watchman device fitted inside my heart at John Radcliffe Hospital here in Oxford under supervision of the Cardiac Research Team. I volunteered to do this as part of a world wide trial covering 3000 patients to assess
Good afternoon everyone. On Thursday I am scheduled to go for a procedure to have a Watchman device fitted inside my heart at John Radcliffe Hospital here in Oxford under supervision of the Cardiac Research Team. I volunteered to do this as part of a world wide trial covering 3000 patients to assess
JefferyW
in
Atrial Fibrillation Support
2 years ago
Grateful for any Feedback on PVI Ablation Please
Hi, My background is:- Developed Atrial Fibrillation in November 2021 (persistent from day 1). Had a cardioversion in February 2022, which lasted about 7 weeks and then back into persistent AF, looking back I carried on as normal after the cardioversion and perhaps I should have been more careful.
Hi, My background is:- Developed Atrial Fibrillation in November 2021 (persistent from day 1). Had a cardioversion in February 2022, which lasted about 7 weeks and then back into persistent AF, looking back I carried on as normal after the cardioversion and perhaps I should have been more careful.
Hidden
in
AF Association
2 years ago
AMG 509 and CC-94676 Clinical Trials
Has anyone participated in the AMG 509 (immunotherapy) clinical trial or the CC-94676 (oral hormonal therapy) clinical trial? What side effects have you experienced? Were positive results achieved? Does anyone know if you choose one over the other, are you precluded from participating in the remaining
Has anyone participated in the AMG 509 (immunotherapy) clinical trial or the CC-94676 (oral hormonal therapy) clinical trial? What side effects have you experienced? Were positive results achieved? Does anyone know if you choose one over the other, are you precluded from participating in the remaining
Coop68
in
Advanced Prostate Cancer
2 years ago
Is it worth taking magnesium supplements?
On Christmas Day our family gathered at our place and after dinner, as usual, the conversation turned to medical topics. My aunt told us that her neighbor told her that Magnesium may prime the immune system to fight cancer and infections. Dr. Hess and scientists in Switzerland have now discovered that
On Christmas Day our family gathered at our place and after dinner, as usual, the conversation turned to medical topics. My aunt told us that her neighbor told her that Magnesium may prime the immune system to fight cancer and infections. Dr. Hess and scientists in Switzerland have now discovered that
donits
in
Advanced Prostate Cancer
2 years ago
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