Search
Search
About
Log in
Join
Experiences with
Atrial myxoma
Posts
Communities
10,535 public posts
Filter results
Supporting Children Suffering from Narcolepsy
This week, we hear from FACES of Narcolepsy founder Erin Carey's - this is a truly inspiring story of love, support and fearless devotion. -------- I created FACES of Narcolepsy in 2017 when I joined forces with four other moms from across the U.S. to fill a need in the pediatric narcolepsy community
This week, we hear from FACES of Narcolepsy founder Erin Carey's - this is a truly inspiring story of love, support and fearless devotion. -------- I created FACES of Narcolepsy in 2017 when I joined forces with four other moms from across the U.S. to fill a need in the pediatric narcolepsy community
SaskiaHU
HealthUnlocked
in
HealthUnlocked Blog
1 year ago
New Here — Most Recent Arrhythmia
Hi, all — I initially posted this to the Afib Forum but just found this group, which seems more appropriate. I was experiencing episodes of tachycardia sometimes lasting up to a half hour or so. Being a non-cardiologist, my first thought was Afib and, indeed, that’s what my Apple Watch said. I ended
Hi, all — I initially posted this to the Afib Forum but just found this group, which seems more appropriate. I was experiencing episodes of tachycardia sometimes lasting up to a half hour or so. Being a non-cardiologist, my first thought was Afib and, indeed, that’s what my Apple Watch said. I ended
wdstk51
in
Arrhythmia Alliance
2 years ago
Dofitilide without Afib??
Hi, all — not sure this is the right place to be, since it doesn’t really appear that I have AFib. I was experiencing episodes of tachycardia sometimes lasting up to a half hour or so. Being a non-cardiologist, my first thought was Afib and, indeed, that’s what my Apple Watch said. I ended up going
Hi, all — not sure this is the right place to be, since it doesn’t really appear that I have AFib. I was experiencing episodes of tachycardia sometimes lasting up to a half hour or so. Being a non-cardiologist, my first thought was Afib and, indeed, that’s what my Apple Watch said. I ended up going
wdstk51
in
AF Association
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
KEYNOTE-B96 Clinical trial
Hello, ladies. Is anyone on the KEYNOTE-B96? It's weekly Taxol plus Avastin plus Pembrolizumab/Placebo for platinum-resistant recurrent ovarian cancer.
Hello, ladies. Is anyone on the KEYNOTE-B96? It's weekly Taxol plus Avastin plus Pembrolizumab/Placebo for platinum-resistant recurrent ovarian cancer.
Vilinew
in
My Ovacome
1 year ago
here’s my Christmas carol
🎤We 3 Kings of AF are; Bearing ectopics we traverse afar; Chest and neck, eyes and forehead ; Following AF route, oooohhhh; Star of AF, star of night , star with awful loss of sight , Palpitations leading , still proceeding , Guide us on to SINUS RHYTHM (🤞🤞🤞) 🎼🎹 Merry Christmas fellow
🎤We 3 Kings of AF are; Bearing ectopics we traverse afar; Chest and neck, eyes and forehead ; Following AF route, oooohhhh; Star of AF, star of night , star with awful loss of sight , Palpitations leading , still proceeding , Guide us on to SINUS RHYTHM (🤞🤞🤞) 🎼🎹 Merry Christmas fellow
Ossie7
in
Atrial Fibrillation Support
2 years ago
ORION -4
Wondering has anybody out there being offered the chance to do the clinical trial for a new drug called Inclisiran. It may be the answer to lower LDL cholesterol. I have been offered the chance and took up the offer anything to help.?
Wondering has anybody out there being offered the chance to do the clinical trial for a new drug called Inclisiran. It may be the answer to lower LDL cholesterol. I have been offered the chance and took up the offer anything to help.?
Sizzlerman
in
British Heart Foundation
1 year ago
Is Afib linked to anxiety ?
Hi HU'ers. This article discusses the similarity between afib and anxiety. The conclusion is interesting. [i]'Although chronic stress can affect your cardiovascular health, there isn’t enough evidence to suggest that anxiety causes AFib'[/i] I don't entirely agree with that but let's agree to disagree
Hi HU'ers. This article discusses the similarity between afib and anxiety. The conclusion is interesting. [i]'Although chronic stress can affect your cardiovascular health, there isn’t enough evidence to suggest that anxiety causes AFib'[/i] I don't entirely agree with that but let's agree to disagree
Paulbounce
in
Atrial Fibrillation Support
2 years ago
Interesting
Clinical Review of ropeginterferon alfa-2b Suggests Amended Dosing Schedule May Support Improved Clinical Outcomes in Polycythemia Vera Review of studies published in Frontiers in Oncology highlights dosing considerations that may help more patients achieve earlier complete hematological response
Clinical Review of ropeginterferon alfa-2b Suggests Amended Dosing Schedule May Support Improved Clinical Outcomes in Polycythemia Vera Review of studies published in Frontiers in Oncology highlights dosing considerations that may help more patients achieve earlier complete hematological response
wateron
in
MPN Voice
1 year ago
Better measures of disease severity needed in lupus, study says
Experts urge change in ways of assessing clinical trial outcomes by Marisa Wexler, MS | February 16, 2023
New measures are needed to assess disease severity in lupus in clinical trials, a study highlights.
One important goal in developing such measures is to include patient-reported outcomes
Experts urge change in ways of assessing clinical trial outcomes by Marisa Wexler, MS | February 16, 2023
New measures are needed to assess disease severity in lupus in clinical trials, a study highlights.
One important goal in developing such measures is to include patient-reported outcomes
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Are there any clinical trials currently using mRNA technologies to fight PC?
Still in the fight 13 years out using SBRT for tumors and Lupron and Xtandi for system wide control currently. Just wondering if there are any trials out there using mRNA technologies to harness the human immune system in the fight. Seems like a logical next step.
Still in the fight 13 years out using SBRT for tumors and Lupron and Xtandi for system wide control currently. Just wondering if there are any trials out there using mRNA technologies to harness the human immune system in the fight. Seems like a logical next step.
Rocketman1960
in
Advanced Prostate Cancer
1 year ago
What do you wish people knew about pancreatitis? | Rare Disease Day
This #RareDiseaseDay, bring awareness to chronic pancreatitis and inspire others to help find a cure by showing off your purple stripes! Leading up to #RareDiseaseDay, we'll be posting questions on our social media accounts to help others learn about the disease, starting with the question: What do you
This #RareDiseaseDay, bring awareness to chronic pancreatitis and inspire others to help find a cure by showing off your purple stripes! Leading up to #RareDiseaseDay, we'll be posting questions on our social media accounts to help others learn about the disease, starting with the question: What do you
Skye_MC
Administrator
in
Chronic Pancreatitis Support
1 year ago
Professor Kristien Boelaert appointed President-Elect of the British Thyroid Association
It might be of interest that the current President, Professor Simon Pearce (Newcastle), will be replaced sometime soon. [i]
Professor Kristien Boelaert appointed President-Elect of the British Thyroid Association
[/i] [i][/i] [i]A member of the BTA for more than 20 years, Professor Boelaert
It might be of interest that the current President, Professor Simon Pearce (Newcastle), will be replaced sometime soon. [i]
Professor Kristien Boelaert appointed President-Elect of the British Thyroid Association
[/i] [i][/i] [i]A member of the BTA for more than 20 years, Professor Boelaert
helvella
Thyroid UK
in
Thyroid UK
1 year ago
Newby wondering what medicine to take for sickness and diarrhoea?
Hello everyone 🤗, this is my first proper post after dipping in and out to read your chats which I have found invaluable to settle my nerves somewhat after being diagnosed with Afib. However, I’m suffering with sickness and diarrhoea and am aware that while on the afib drugs you have to be careful what
Hello everyone 🤗, this is my first proper post after dipping in and out to read your chats which I have found invaluable to settle my nerves somewhat after being diagnosed with Afib. However, I’m suffering with sickness and diarrhoea and am aware that while on the afib drugs you have to be careful what
Ailsablue
in
AF Association
2 years ago
Afib Wearables, capturing data for your EP and a helpful tool.
Thought I would give an update as to my personal study of my AF. For those that have not been following my posts, I consciously decided not to take medications for my AF so I could study the beast by trying alternatives to medications. One of my earliest thoughts was to set up a citizen science website
Thought I would give an update as to my personal study of my AF. For those that have not been following my posts, I consciously decided not to take medications for my AF so I could study the beast by trying alternatives to medications. One of my earliest thoughts was to set up a citizen science website
OzRob
in
AF Association
2 years ago
FILSPARI (sparsentan)
Hi All - Sorry if this has already been posted, but below is a copy and paste of an email I received from NephCure. Dear NephCure friends, Today marks an incredibly promising day for the rare kidney disease (RKD) community: the FDA has announced that the drug FILSPARI (sparsentan) has been granted
Hi All - Sorry if this has already been posted, but below is a copy and paste of an email I received from NephCure. Dear NephCure friends, Today marks an incredibly promising day for the rare kidney disease (RKD) community: the FDA has announced that the drug FILSPARI (sparsentan) has been granted
Boulder98
in
Kidney Disease
1 year ago
Aching feet at night
I’ve been taking Carvedilol for 9 months after AFIB . Had Cardioversion and Ablation but still have occasional AFIB. Now experiencing pain in my feet at night. Had anyone had the same issues and found relief?
I’ve been taking Carvedilol for 9 months after AFIB . Had Cardioversion and Ablation but still have occasional AFIB. Now experiencing pain in my feet at night. Had anyone had the same issues and found relief?
1Golf
in
AF Association
2 years ago
AF and now coronary artery disease at 47. I recently had a CT angiogram and the results aren’t great. Back to being scared and worried.
So I first came on this forum with my Afib diagnosis and was terrified and depressed about the diagnosis and medications. I had good news from my echocardiogram as I had no damage at all. The last hurdle was a CT angiogram sadly I’ve not made it so well past this hurdle. I’m absolutely gutted to be honest
So I first came on this forum with my Afib diagnosis and was terrified and depressed about the diagnosis and medications. I had good news from my echocardiogram as I had no damage at all. The last hurdle was a CT angiogram sadly I’ve not made it so well past this hurdle. I’m absolutely gutted to be honest
Dadtoalad23
in
AF Association
2 years ago
Beat Prostate Cancer
I was reading some clinical trial data the other day. To summarize, the treatment being tested did not pass muster. It worked marginally better than standard of care but not well enough to change standard of care. The irony of the study concerned overall survival and progression free survival. The control
I was reading some clinical trial data the other day. To summarize, the treatment being tested did not pass muster. It worked marginally better than standard of care but not well enough to change standard of care. The irony of the study concerned overall survival and progression free survival. The control
Todd1963
in
Advanced Prostate Cancer
1 year ago
ANY ADVICE
Hi everyone I have been AF free for nearly a year now. I have been taking 75 mg flecainide morning and night half of 125mg Bisoprolol in the morning, Apixaban and 20 mg Tamoxifen. Everything has been great. However in the past week I wake up every morning and my lips are stinging and cracked and
Hi everyone I have been AF free for nearly a year now. I have been taking 75 mg flecainide morning and night half of 125mg Bisoprolol in the morning, Apixaban and 20 mg Tamoxifen. Everything has been great. However in the past week I wake up every morning and my lips are stinging and cracked and
SilverliningsForNow
in
AF Association
2 years ago
📚 Research 101: Placebos
A placebo is a sugar pill that does not cause harm or good. In many trials testing an investigational medication, a proportion of the people recruited will receive a placebo without knowing if they are receiving the investigational medication or the placebo. [u]
When you may not get a placebo
[
A placebo is a sugar pill that does not cause harm or good. In many trials testing an investigational medication, a proportion of the people recruited will receive a placebo without knowing if they are receiving the investigational medication or the placebo. [u]
When you may not get a placebo
[
AnnaHU
HealthUnlocked
in
Research Opportunities
1 year ago
1
...
83
84
85
...
100
Next page
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Atrial Fibrillation Support
4137 results
Advanced Prostate Cancer
1379 results
CLL Support
677 results
View top 10 communities
Sort by
Most Relevant
Newest