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Omaveloxolone versus Sulforaphane. Anti-oxidants as treatment for ataxia.
Reata Pharmaceuticals has a marvelous new drug that reduces oxidative stress and helps cells survive. Initially there was concern the drug did not meet it's primary goal, but closer examination showed there was benefit in some patients so the drug is moving to a Phase III trial: - Omaveloxolone (RTA
Reata Pharmaceuticals has a marvelous new drug that reduces oxidative stress and helps cells survive. Initially there was concern the drug did not meet it's primary goal, but closer examination showed there was benefit in some patients so the drug is moving to a Phase III trial: - Omaveloxolone (RTA
sunvox
in
Ataxia UK
6 years ago
MRI of brain - cerebellum atrophy or normal?
I just had a genetic test done trying to figure out which type of Ataxia. No results yet. Anyway, I have also had an MRI which showed no cerebellum atrophy. My symptoms started close to 13-15 years ago. Has anyone had an MRI show unremarkable brain with no leisons or cerebellum atrophy and still been
I just had a genetic test done trying to figure out which type of Ataxia. No results yet. Anyway, I have also had an MRI which showed no cerebellum atrophy. My symptoms started close to 13-15 years ago. Has anyone had an MRI show unremarkable brain with no leisons or cerebellum atrophy and still been
1lazybug
in
Ataxia UK
6 years ago
A new light shines on SCA3. Far infrared light therapy?
Someone pointed me to this awhile back, and I remember being intrigued, but I never followed through on studying it. Today, I caught some conversation on the Parkinson's forum that got me back to this topic and what I found was down right incredible. Researchers in China improved the gait of mice with
Someone pointed me to this awhile back, and I remember being intrigued, but I never followed through on studying it. Today, I caught some conversation on the Parkinson's forum that got me back to this topic and what I found was down right incredible. Researchers in China improved the gait of mice with
sunvox
in
Ataxia UK
6 years ago
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ataxia hovers and i feel horrible
gait
returns to my (now) normal walk and then, even though i walk horribly, i feel fine. any thoughts?
gait
returns to my (now) normal walk and then, even though i walk horribly, i feel fine. any thoughts?
sam99a
in
Ataxia UK
6 years ago
Cerebellum atrophy
Hey am a 24 yr old lady I have cerebellum atrophy which affects my walking nd writing. So I don't have balance when walking nd I need someone to hold me when walking, I also shake (twicthing) when I stand for too long or when am walking too far.. I have been living like this since I was 12yrs old nd
Hey am a 24 yr old lady I have cerebellum atrophy which affects my walking nd writing. So I don't have balance when walking nd I need someone to hold me when walking, I also shake (twicthing) when I stand for too long or when am walking too far.. I have been living like this since I was 12yrs old nd
Chunguz
in
Ataxia UK
6 years ago
Husband with cerebella ataxia
I’m 36 yrs old and my husband being 35 was diagnosed with cerebella ataxia 3 yrs ago. The last year he has deteriorated hugely. He has a walking stick when we r out and about. He has started stumbling a lot in doors. I’m just really finding it hard being as we are a young couple. It’s stressing
I’m 36 yrs old and my husband being 35 was diagnosed with cerebella ataxia 3 yrs ago. The last year he has deteriorated hugely. He has a walking stick when we r out and about. He has started stumbling a lot in doors. I’m just really finding it hard being as we are a young couple. It’s stressing
Kirsty34
in
Ataxia UK
6 years ago
My lovely husband
My husband is Richard and I am Nicky , about 14 months ago Richard started feeling dizzy all the time , he went to the Dr which lead on to a Neurologist , and an MRI . We received a letter to say he has General Atrophy , Cerebella Atrophy a Fossa Anachroid Cyst and White Matter Lesions . No explanation
My husband is Richard and I am Nicky , about 14 months ago Richard started feeling dizzy all the time , he went to the Dr which lead on to a Neurologist , and an MRI . We received a letter to say he has General Atrophy , Cerebella Atrophy a Fossa Anachroid Cyst and White Matter Lesions . No explanation
Nichod100
in
Ataxia UK
6 years ago
Anti GAD antibodies and Gluten
Does a strict gluten free diet help get rid of Anti GAD antibodies as well has the gluten antibodies? I've got Anti GAD Ataxia, Gluten Ataxia and Stiff person syndrome.
Does a strict gluten free diet help get rid of Anti GAD antibodies as well has the gluten antibodies? I've got Anti GAD Ataxia, Gluten Ataxia and Stiff person syndrome.
Colredrovers
in
Ataxia UK
6 years ago
so much for that
went for the assessment for, is it ESA? and I was turned down, and received, like another member here.... ZERO points. I did appeal, and the decision came thru yesterday.... they are sticking to there original decision. I am taking it to the next level, a tribunal, as I do feel I was treated unfairly
went for the assessment for, is it ESA? and I was turned down, and received, like another member here.... ZERO points. I did appeal, and the decision came thru yesterday.... they are sticking to there original decision. I am taking it to the next level, a tribunal, as I do feel I was treated unfairly
peterallison
in
Ataxia UK
6 years ago
SCA Type 6 & CBD oil
Hi.... I have Spinocerebellar Type 6 heredited from my biological mother.... I am looking for anyone that has same condition ideally same type also so can maybe ask questions as not many people have my condition and type... I think my one is one of the rarest but latest to onset... 1 in 100,000 people
Hi.... I have Spinocerebellar Type 6 heredited from my biological mother.... I am looking for anyone that has same condition ideally same type also so can maybe ask questions as not many people have my condition and type... I think my one is one of the rarest but latest to onset... 1 in 100,000 people
Magicalwomanz
in
Ataxia UK
6 years ago
do you know trehalose ?
I was diagnosed with SCA3 some 4 years ago,and yet I am 25 yeas old, recently I have found a medicine named trehalose produced by Bioblast Pharma Ltd can cure SCA3,although yet it is testing,but I still want a try.Do you have any suggestions for me?Thanks sincerely.
I was diagnosed with SCA3 some 4 years ago,and yet I am 25 yeas old, recently I have found a medicine named trehalose produced by Bioblast Pharma Ltd can cure SCA3,although yet it is testing,but I still want a try.Do you have any suggestions for me?Thanks sincerely.
4ever2gether
in
Ataxia UK
6 years ago
Some good news
Some of you might have seen my previous post about lymphoma and ataxia...my brother was diagnosed with both in November. He has gone through 6 cycles of chemotherapy (he is so strong!!) and we are now waiting for the final scan to see whether he is in remission. He is already looking and feeling a lot
Some of you might have seen my previous post about lymphoma and ataxia...my brother was diagnosed with both in November. He has gone through 6 cycles of chemotherapy (he is so strong!!) and we are now waiting for the final scan to see whether he is in remission. He is already looking and feeling a lot
Larobby
in
Ataxia UK
6 years ago
Wing walk
Yes, I’ve gone and booked myself on one. Think of me at 3.00pm on Saturday 15 September at Wickenby Aerodrome. I thought I ought to do it whilst I can! Its really frustrating when doing something now which takes ages, even putting on shoes. You realise you took it for granted that you could accomplish
Yes, I’ve gone and booked myself on one. Think of me at 3.00pm on Saturday 15 September at Wickenby Aerodrome. I thought I ought to do it whilst I can! Its really frustrating when doing something now which takes ages, even putting on shoes. You realise you took it for granted that you could accomplish
Staggy1
in
Ataxia UK
6 years ago
ataxia and the workplace
Hi everybody. I am just looking for some advice. I can't tell you what I do for a living but my ataxia does affect me at work sometimes. I have SCA6 in a mild form , but the one thing I find is that if I am in a room where there is no natural light then it gives me headaches and makes the back
Hi everybody. I am just looking for some advice. I can't tell you what I do for a living but my ataxia does affect me at work sometimes. I have SCA6 in a mild form , but the one thing I find is that if I am in a room where there is no natural light then it gives me headaches and makes the back
poolboy
in
Ataxia UK
6 years ago
3 sugars. Mannitol, trehalose, and now xylitol!?
Never ever try anything based on some random internet comments. Always talk to you doctor before trying anything new. - - I am not a doctor or a researcher, but I am a highly educated patient who has spent the last several years reading literally hundreds of research papers AND as such I have developed
Never ever try anything based on some random internet comments. Always talk to you doctor before trying anything new. - - I am not a doctor or a researcher, but I am a highly educated patient who has spent the last several years reading literally hundreds of research papers AND as such I have developed
sunvox
in
Ataxia UK
6 years ago
Neta was right! Mannitol and trehalose similar.
So a year ago Neta posted research she found on a sugar called Mannitol but I was too dense to catch on until now. Chemically speaking mannitol is almost identical to trehalose and surprise, surprise it was shown to do the same thing in people with Parkinson's that trehalose is believed to be doing
So a year ago Neta posted research she found on a sugar called Mannitol but I was too dense to catch on until now. Chemically speaking mannitol is almost identical to trehalose and surprise, surprise it was shown to do the same thing in people with Parkinson's that trehalose is believed to be doing
sunvox
in
Ataxia UK
7 years ago
Meniers
Hi iv been suffering from migraines and vertigo now for several years. Over the past 18 months iv had the added symptoms of ringing in my ears all the time. The feeling of water in my ear (left side only) same with migraines. Pain like stabbing in my ear and extreme dizziness...... Gp has tried me on
Hi iv been suffering from migraines and vertigo now for several years. Over the past 18 months iv had the added symptoms of ringing in my ears all the time. The feeling of water in my ear (left side only) same with migraines. Pain like stabbing in my ear and extreme dizziness...... Gp has tried me on
Rachelbranch
in
Ataxia UK
7 years ago
Hint of a direct link. Exercise to proteins.
Anyone who has read my posts knows that I am continually harping on exercise. Exercise has been shown to delay symptoms of numerous neurological diseases, but until now I have not found any research that drew a link between exercise and the removal of mutant protein aggregations in the brain. The fact
Anyone who has read my posts knows that I am continually harping on exercise. Exercise has been shown to delay symptoms of numerous neurological diseases, but until now I have not found any research that drew a link between exercise and the removal of mutant protein aggregations in the brain. The fact
sunvox
in
Ataxia UK
7 years ago
Cerebellar Ataxia
Hi I’m Gemma and I’m 31 years old. About 2 years ago after a lot of hospital visits and scans etc.. I was finally diagnosed with severe cerebellar atrophy (ataxia)! Im just waiting for the results of my dna tests to see if they show what lies ahead?? Anyone going through the same thing it would be great
Hi I’m Gemma and I’m 31 years old. About 2 years ago after a lot of hospital visits and scans etc.. I was finally diagnosed with severe cerebellar atrophy (ataxia)! Im just waiting for the results of my dna tests to see if they show what lies ahead?? Anyone going through the same thing it would be great
AtomicBubba
in
Ataxia UK
7 years ago
Today's tiny bit of evidence supporting Niagen and Pterostilbene.
Never take anything without first consulting your doctor and doing your own research. Now to the day's news. For those not familiar with my regimen you can click on my ugly mug and read all my prior posts and replies for a better understanding of what I am doing. Suffice to say that 2 of the supplements
Never take anything without first consulting your doctor and doing your own research. Now to the day's news. For those not familiar with my regimen you can click on my ugly mug and read all my prior posts and replies for a better understanding of what I am doing. Suffice to say that 2 of the supplements
sunvox
in
Ataxia UK
7 years ago
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