My husband is Richard and I am Nicky , about 14 months ago Richard started feeling dizzy all the time , he went to the Dr which lead on to a Neurologist , and an MRI . We received a letter to say he has General Atrophy , Cerebella Atrophy a Fossa Anachroid Cyst and White Matter Lesions . No explanation nothing just an appointment for a Neurosycometric assessment !! I didn’t know what any of it meant and googled it all . I took myself off and cried on my own , the one that stood out was the CA . I was glad at least I had an understanding but what does the future hold ? I have always joked and called my husband a male Mary Poppins ‘ practically Perfect in every way ‘ he really is the loveliest man and I count myself very lucky to have shared the last 7 years with him . Life has changed a lot in a short time in May he had to stop working because he felt unsafe to drive . We had to inform the DVLA of his condition and he has lost his licence . I feel the life he is living is not that of a 63 year old but one of an 83 year old . He is lonely and cannot get out and about much , if he could drive it would make so much difference. Because we have lost his salary and he is now getting SSP only I am working more to makes ends meet . I tell him he’s lucky as I’m a Carer so I’m trained to look after him 😉 I love my job but it’s hard work and sometimes I feel the work and home times feel blurred . Richard has felt down and dispondent and some days has a ‘what’s the point ‘ attitude . I go to work and rush in for an hour before going out again only to find small easy takes undone . I hurry to do them and take the dog out and I’m off again , only I’m angry that I’m doing everything and frustrated . Not once have I lost my temper though because as I say he is a lovely man . Although I’m 50 and I like to think I have a pretty good idea about life I have been saddened by some friends and family since this happened to Richard . I have explained his condition and told them to watch a 7 min video on YouTube as it explains it far better than me . I feel some don’t get it and some don’t seem bothered . It has added to my emotions and feelings of worry , upset , being unsure of the future to hurt , disappointment , anger and sadness . I came to a point where I had to think just keep the good ones really close and let the others go . We have an appointment today back with the Neurologist only because I’ve made a nusience of myself , she didn’t seem to have a plan to see him again anytime soon ! We also have an appointment at the CAB to find out about Medical Retirement and any benefits we could claim . I hope today we have more idea of what the future holds and have things explained . I have already got an appointment at the Ataxia clinic for December and Physio and an OT appointment is in the pipeline . I will keep on pushing forward and doing all I can for my lovely husband . This site is so useful and interesting and I’m so glad I found out about it .