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My worst chemo day so far -- major grump time
Sorry its a grump blog. Those ladies nervous about chemo may wish to not read on. Its not nasty I promise-- just a great example of how things don't always go to plan which has happened today in spades. This is now officially my worst chemo day ever. I thought last week was bad with 8 attempts to
Sorry its a grump blog. Those ladies nervous about chemo may wish to not read on. Its not nasty I promise-- just a great example of how things don't always go to plan which has happened today in spades. This is now officially my worst chemo day ever. I thought last week was bad with 8 attempts to
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in
My Ovacome
12 years ago
Best nebulisers
Hello everyone. I have bronchiectasis. I nebulise hypertonic saline, then breathing exercises before inhaling nebulised colomycin twice a day. My question is to find out from those of you who perform this routine, what are the best nebulisers? I have been loaned one from the NHS, but it is heavy
Hello everyone. I have bronchiectasis. I nebulise hypertonic saline, then breathing exercises before inhaling nebulised colomycin twice a day. My question is to find out from those of you who perform this routine, what are the best nebulisers? I have been loaned one from the NHS, but it is heavy
risotto
in
Lung Conditions Community Forum
12 years ago
A Tale of Two Kidneys: Yet more continued monthly ramblings.........
This month I have discovered that when it comes to pain there is something even worse than meningitis, child birth and even a 7.5 hour half ironman triathlon. I find the child birth one hard to believe as I didn't feel anything when my children were born with the exception of discovering my wife had
This month I have discovered that when it comes to pain there is something even worse than meningitis, child birth and even a 7.5 hour half ironman triathlon. I find the child birth one hard to believe as I didn't feel anything when my children were born with the exception of discovering my wife had
Jonad724
in
Meningitis Now
12 years ago
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Some causes of excess mucus and a few ideas on how to thin it out
Hi Folks! I had a strange thing happen to me recently so I thought I'd pass along what I discovered. I had such a problem with mucus in my nose and throat I could hardly breathe. I tried saline sprays, neti pots, nasal decongestants, etc but nothing helped. I happened to do a web search for
Hi Folks! I had a strange thing happen to me recently so I thought I'd pass along what I discovered. I had such a problem with mucus in my nose and throat I could hardly breathe. I tried saline sprays, neti pots, nasal decongestants, etc but nothing helped. I happened to do a web search for
copdliving
in
Lung Conditions Community Forum
12 years ago
any advice on what to do next? My mum has just been diagnosed with PPC and the doctors at our Hospital have already given up?! HELP?!
My mum is 61 years old and this has come on very very quickly. She has been in and out of hospital for the last two months, originally with pneumonia which we now realise was fluid in her lungs from the cancer and a blood clot. Before this she was healthy. Four weeks ago she was diagnosed with Primary
My mum is 61 years old and this has come on very very quickly. She has been in and out of hospital for the last two months, originally with pneumonia which we now realise was fluid in her lungs from the cancer and a blood clot. Before this she was healthy. Four weeks ago she was diagnosed with Primary
amaliag
in
My Ovacome
12 years ago
Carpal Tunnel Syndrome
In need of advice...I was diagnosed with SLE at the age iof 17...some 24 years ago, and until recently ( 4 years ago) received no treatment except for painkillers. I now have also been diagnosed with RA, Sjorgrens Disease and Reynauds...and also tenosynovitis..over the last few weeks I have been experiencing
In need of advice...I was diagnosed with SLE at the age iof 17...some 24 years ago, and until recently ( 4 years ago) received no treatment except for painkillers. I now have also been diagnosed with RA, Sjorgrens Disease and Reynauds...and also tenosynovitis..over the last few weeks I have been experiencing
cathbw
in
LUPUS UK
12 years ago
02 assessment.
Back from having my blood gases and walk test done, outcome is to increase the oxygen to 3L from 2L when sitting and sleeping, to increase from 2L to 6L ambulatory/walking about. (Was having real trouble just getting from room to room) Hope this helps and I can get back to work soon, also tried saline
Back from having my blood gases and walk test done, outcome is to increase the oxygen to 3L from 2L when sitting and sleeping, to increase from 2L to 6L ambulatory/walking about. (Was having real trouble just getting from room to room) Hope this helps and I can get back to work soon, also tried saline
valm
in
Lung Conditions Community Forum
12 years ago
Chemist having a bad day
Just been to chemist to pick up nebules of ventollin and saline. Got home to find been given ventollin 5mg nebules and salbutamol nebules 2.5mg in 5mg but no saline nebules... So been back to get them changed, good job I spotted it. Getting a little concerned as this is the second time they have issued
Just been to chemist to pick up nebules of ventollin and saline. Got home to find been given ventollin 5mg nebules and salbutamol nebules 2.5mg in 5mg but no saline nebules... So been back to get them changed, good job I spotted it. Getting a little concerned as this is the second time they have issued
Hidden
in
Asthma Community Forum
12 years ago
My story- It may not be all rosy but it is as it is
One day 8 years or so ago I was looking forward to a first time trip to America. I had never been so far before and it was a once in a lifetime tour of California and the Gold Coast. I had been having a bit of trouble with fluid retention in my legs so, worried about D.V.T. I thought I would go
One day 8 years or so ago I was looking forward to a first time trip to America. I had never been so far before and it was a once in a lifetime tour of California and the Gold Coast. I had been having a bit of trouble with fluid retention in my legs so, worried about D.V.T. I thought I would go
tfc5
in
Kidney Transplant Patient Support
12 years ago
GP and information
Been to the GP to find out what is available in the community regarding IV antibiotics. He is going to look into what is available here - hospital at home entails a nurse visiting up to 2 times a day plus social care - home carer's. But they do not do IV’s! The consultant said when I get these bad infections
Been to the GP to find out what is available in the community regarding IV antibiotics. He is going to look into what is available here - hospital at home entails a nurse visiting up to 2 times a day plus social care - home carer's. But they do not do IV’s! The consultant said when I get these bad infections
valm
in
Lung Conditions Community Forum
12 years ago
Bronchitol
I saw Tyniesha's post on this so thought I would update everyone. Bronchitol has been extensively trialled in the UK and I was on the bronchiectasis trial at the Brompton & am now getting it on compassionate grounds. It's amazing! I haven't had a single chest infection in the 2 yrs I've been on it
I saw Tyniesha's post on this so thought I would update everyone. Bronchitol has been extensively trialled in the UK and I was on the bronchiectasis trial at the Brompton & am now getting it on compassionate grounds. It's amazing! I haven't had a single chest infection in the 2 yrs I've been on it
Hidden
in
Lung Conditions Community Forum
12 years ago
Work
Went to visit a couple of the women from work today, usual chit chat until one of them said was speaking to Paul (boss) asking him if he had heard anything form you? His reply - oh don't know if Val is going to get back this time! (but they must have already discussed it) She said you can come and
Went to visit a couple of the women from work today, usual chit chat until one of them said was speaking to Paul (boss) asking him if he had heard anything form you? His reply - oh don't know if Val is going to get back this time! (but they must have already discussed it) She said you can come and
valm
in
Lung Conditions Community Forum
12 years ago
Sore Nose
I use O2 24/7 and my nose gets really dry and sore. I have tried several creams and found nothing helps. I get a slight relief from using Boots saline nasal spray but the relief isn't long lasting. My nose seems permanently blocked with dried blood and mucous. If you have any suggestions I'd be truly
I use O2 24/7 and my nose gets really dry and sore. I have tried several creams and found nothing helps. I get a slight relief from using Boots saline nasal spray but the relief isn't long lasting. My nose seems permanently blocked with dried blood and mucous. If you have any suggestions I'd be truly
maureenv
in
Lung Conditions Community Forum
12 years ago
Freeman
Well outcome of my visit to the Freeman Hospital, he has basically said a transplant is not for me 1) both lungs stuck to my chest wall due to previous operations. 2) Fungal ball/infection in one of my lungs. He will ask the surgeons if there is anything they can do but he also said don't hold your breath
Well outcome of my visit to the Freeman Hospital, he has basically said a transplant is not for me 1) both lungs stuck to my chest wall due to previous operations. 2) Fungal ball/infection in one of my lungs. He will ask the surgeons if there is anything they can do but he also said don't hold your breath
valm
in
Lung Conditions Community Forum
12 years ago
Saline in a nebuliser
Anyone use saline in their nebuliser? Does it help your breathing? Many thanks Val
Anyone use saline in their nebuliser? Does it help your breathing? Many thanks Val
valm
in
Lung Conditions Community Forum
12 years ago
Mucus Hypersecretion & Irratic Breathing Muscles
Hiya, I've recently been told that after a CT scan of my lungs they have found that I have Asthma with Mucus Hypersecretion and Irratic Breathing Muscles and I was wondering if anyone had heard of these before or have them themselves??? I am being treated for the Mucus Hypersecretion with daily 7%
Hiya, I've recently been told that after a CT scan of my lungs they have found that I have Asthma with Mucus Hypersecretion and Irratic Breathing Muscles and I was wondering if anyone had heard of these before or have them themselves??? I am being treated for the Mucus Hypersecretion with daily 7%
Hidden
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Asthma Community Forum
12 years ago
my husband has continual breathing difficulties. Has anyone any advice on what treatments help, especially with the agitation and distress.
We already use Carbocystene, Salbutamol and saline nebules in the nebuliser and Oxazipine tablets when the distress gets really bad.
We already use Carbocystene, Salbutamol and saline nebules in the nebuliser and Oxazipine tablets when the distress gets really bad.
teena2
in
PSP Association
12 years ago
Sjogrens-just how dry can your mouth get?
I take nothing for the Sjogrens at present, do have
artificial
saliva
but could get through a bottle in a couple of days quite easily. As it is I try to carry water and have some citrus sweets on me.
I take nothing for the Sjogrens at present, do have
artificial
saliva
but could get through a bottle in a couple of days quite easily. As it is I try to carry water and have some citrus sweets on me.
tim47
in
Hughes Syndrome APS Forum
13 years ago
DIFFERING OPINIONS HAVE LEFT ME CONFUSED.
hello. My 15 month old son has had three hospital admissions since 3 months old. He was born at 32 weeks and was a bruiser!! After a month in scbu we went home and started family life. At 3 months he had bronchiolitis and was admitted for a week, a one off virus we hoped. Two further colds triggered
hello. My 15 month old son has had three hospital admissions since 3 months old. He was born at 32 weeks and was a bruiser!! After a month in scbu we went home and started family life. At 3 months he had bronchiolitis and was admitted for a week, a one off virus we hoped. Two further colds triggered
Hidden
in
Asthma Community Forum
13 years ago
which hospital
Hi, Alfie used to be seen at our local hospital in hastings. When we were there the problem was that they couldn't give intravenous salbutamol because it sends his heart so fast and they had no paed person who was comfortable venting a small child. They used to have to get an intensive care retreval
Hi, Alfie used to be seen at our local hospital in hastings. When we were there the problem was that they couldn't give intravenous salbutamol because it sends his heart so fast and they had no paed person who was comfortable venting a small child. They used to have to get an intensive care retreval
Hidden
in
Asthma Community Forum
17 years ago
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