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Bone Pain
I have been having significant bone pain in my shoulder that keeps me awake at night. I thought that maybe I was just being a hypochondriac and assuming that every ache or pain was due to "my cancer". Or maybe I fell but forgot about it. Well it has been getting a lot worse and I just had a PSMA scan
I have been having significant bone pain in my shoulder that keeps me awake at night. I thought that maybe I was just being a hypochondriac and assuming that every ache or pain was due to "my cancer". Or maybe I fell but forgot about it. Well it has been getting a lot worse and I just had a PSMA scan
spencoid2
in
Advanced Prostate Cancer
6 months ago
PSA & T is up
We started this journey in June 2022 and hit this PC with triple therapy to stop the cancer that had already attacked his whole skeleton. My husband has now developed a cancerous tumor in his head in the sinus cavity and behind his eye which has caused him double vision and pain. It’s wrapped around
We started this journey in June 2022 and hit this PC with triple therapy to stop the cancer that had already attacked his whole skeleton. My husband has now developed a cancerous tumor in his head in the sinus cavity and behind his eye which has caused him double vision and pain. It’s wrapped around
Izzygirl1
in
Advanced Prostate Cancer
6 months ago
Post Transplant psoriatic arthritis treatment
So, here goes! I'm 48 and just "celebrated" 3 years Kidney-versary September 14th! I have PKD and was having a lot of pain and other issues before, so even though I was still around 17% function I was listed for transplant. I was very fortunate though to have a living donor come forward to donate and
So, here goes! I'm 48 and just "celebrated" 3 years Kidney-versary September 14th! I have PKD and was having a lot of pain and other issues before, so even though I was still around 17% function I was listed for transplant. I was very fortunate though to have a living donor come forward to donate and
PKDPostXplant2020
in
Kidney Transplant
6 months ago
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Treatment options
Hi- I have posted a few times about my brother who was diagnosed in March 2021. For 18 months he did really well on Abiterone. His PSA went from his initial diagnosis of 52 to under 0.03 for several months. He has Kaiser HMO and unfortunately his oncologist retired at the time his PSA starting trending
Hi- I have posted a few times about my brother who was diagnosed in March 2021. For 18 months he did really well on Abiterone. His PSA went from his initial diagnosis of 52 to under 0.03 for several months. He has Kaiser HMO and unfortunately his oncologist retired at the time his PSA starting trending
TerryR123
in
Advanced Prostate Cancer
6 months ago
UCLA RO says that since it's been only 4 mo since stop of 4 ms RT & 4ms orgo and my T is 80 - more t than baseline (286) may trigger cancer
I thought that you could take TRT of 100 ml and you would be safe from reoccurrence.
Oncologist today at UCLA says he wants me to work with a specialist in TRT and he would only feel comfortable then giving his OK if ONLY if the testosterone specialist takes my testosterone back to ONLY my baseline
I thought that you could take TRT of 100 ml and you would be safe from reoccurrence.
Oncologist today at UCLA says he wants me to work with a specialist in TRT and he would only feel comfortable then giving his OK if ONLY if the testosterone specialist takes my testosterone back to ONLY my baseline
JWS13
in
Advanced Prostate Cancer
6 months ago
PSA Rising Dx 06/2022 PSA 864.42 to 01/2023 <0.06 now no longer undetectable, I won’t see DR until next month, What will the Dr do?
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
Clarity Pharmaceuticals achieves recruitment target for phase II SAR-Bombesin prostate cancer trial
https://themarketherald.com.au/clarity-pharmaceuticals-achieves-recruitment-target-for-phase-ii-sar-bombesin-prostate-cancer-trial-2023-11-07/ for cancer expressing low PSA levels
https://themarketherald.com.au/clarity-pharmaceuticals-achieves-recruitment-target-for-phase-ii-sar-bombesin-prostate-cancer-trial-2023-11-07/ for cancer expressing low PSA levels
Maxone73
in
Advanced Prostate Cancer
6 months ago
Quite happy with ADT
Almost 83 years old, living presently in Germany, RT and PT not possible, ADT during the last 9 months (Lupron quarterly), PSA down to undetectable, quite happy with that.
Almost 83 years old, living presently in Germany, RT and PT not possible, ADT during the last 9 months (Lupron quarterly), PSA down to undetectable, quite happy with that.
EBBEFLUT
in
Advanced Prostate Cancer
6 months ago
Thinking of taking an ADT vacation
Hi, just got my latest PSA result yesterday...it was 0.07 ug/l down from 0.14 ug/l one month ago. I'm almost at the 6 month mark of my ADT journey. Six months ago, my PSA was 14.9 ug/l. I'm thinking of taking a break from the ADT because of the side effects. Is it too risky? Would the PSA start
Hi, just got my latest PSA result yesterday...it was 0.07 ug/l down from 0.14 ug/l one month ago. I'm almost at the 6 month mark of my ADT journey. Six months ago, my PSA was 14.9 ug/l. I'm thinking of taking a break from the ADT because of the side effects. Is it too risky? Would the PSA start
John347
in
Advanced Prostate Cancer
6 months ago
What to do ?
Hi All , I wonder if you have any any insight to this ? my husband started chemo (Docetaxel on the 9/10/23 and is coming up to his 3rd treatment due on 20/11/23 he has tolerated the chemo well and is still working which is great . he was dehydrated and his haemoglobin was quite low so they gave him a
Hi All , I wonder if you have any any insight to this ? my husband started chemo (Docetaxel on the 9/10/23 and is coming up to his 3rd treatment due on 20/11/23 he has tolerated the chemo well and is still working which is great . he was dehydrated and his haemoglobin was quite low so they gave him a
palser1
in
Advanced Prostate Cancer
6 months ago
Seal49
Started with pmr diagnosed and Rheumatologist decided it is PsA. HD it since April. Started prednisone at 25 mg and reducing. Now at 10 mg and started on methotrexate to speed up the prednisone reduction. Rheumatologist wants it done asap. Most days ok but still some leg thighs, neck and shoulders
Started with pmr diagnosed and Rheumatologist decided it is PsA. HD it since April. Started prednisone at 25 mg and reducing. Now at 10 mg and started on methotrexate to speed up the prednisone reduction. Rheumatologist wants it done asap. Most days ok but still some leg thighs, neck and shoulders
Seal49
in
NRAS
6 months ago
ADT for almost 2 years
Hi everyone, It is the first time I post in this network and I still feel a bit strange and with my heart beating stronger ... sorry for this! Well, I have gone through surgery, radiotherapy, ADT, since my diagnosis in February 2018. It will be 2 years in February next since I started ADT and PSA has
Hi everyone, It is the first time I post in this network and I still feel a bit strange and with my heart beating stronger ... sorry for this! Well, I have gone through surgery, radiotherapy, ADT, since my diagnosis in February 2018. It will be 2 years in February next since I started ADT and PSA has
Paulo1968
in
Advanced Prostate Cancer
6 months ago
QoLmost like being in Love. PSA steady at 2.9!
What a day it has been... https://youtu.be/DRVpLut8oCw?si=if9UYuzKJRuOTtdW Busy QoLing weekend😂 Friday night in Bakersfield went to the Bakersfield Fox Theater to see the World Ballet Series performance of Cinderella. What an exquisite performance with sumptuous costumes, athletic dancers, and the
What a day it has been... https://youtu.be/DRVpLut8oCw?si=if9UYuzKJRuOTtdW Busy QoLing weekend😂 Friday night in Bakersfield went to the Bakersfield Fox Theater to see the World Ballet Series performance of Cinderella. What an exquisite performance with sumptuous costumes, athletic dancers, and the
dockam
in
Advanced Prostate Cancer
6 months ago
Things I Like About ADT
I know that no one, like NO ONE, actually wants to be on ADT. There are a lot of downsides to it, and complaints about the fatigue, lack of sex drive, etc. are a common theme on this forum. I'm about a year out now from starting on Zoladex shots (a drug that works in the same way as Lupron), and I
I know that no one, like NO ONE, actually wants to be on ADT. There are a lot of downsides to it, and complaints about the fatigue, lack of sex drive, etc. are a common theme on this forum. I'm about a year out now from starting on Zoladex shots (a drug that works in the same way as Lupron), and I
32Percenter
in
Advanced Prostate Cancer
6 months ago
History of my cancer becoming castrate resistant
Thinking that some people might be interested to know how my metastatic cancer became castrate resistant I posting a brief history. When on Lupron break, my PSA reached 1.1 on June 1, 2022. I had a CT scan which found a new lymph node enlargement [Retrocaval lymph node measures 0.5 x 1.1 cm (series
Thinking that some people might be interested to know how my metastatic cancer became castrate resistant I posting a brief history. When on Lupron break, my PSA reached 1.1 on June 1, 2022. I had a CT scan which found a new lymph node enlargement [Retrocaval lymph node measures 0.5 x 1.1 cm (series
dac500
in
Advanced Prostate Cancer
6 months ago
FYI: from the VA research information on Veterans
➤ Prostate cancer Prostate cancer is the most common malignancy affecting men in the United States. It is also the most commonly diagnosed solid tumor in VA. In 2016, VA and the Prostate Cancer Foundation established a partnership to promote prevention, screening, and research to find new treatments
➤ Prostate cancer Prostate cancer is the most common malignancy affecting men in the United States. It is also the most commonly diagnosed solid tumor in VA. In 2016, VA and the Prostate Cancer Foundation established a partnership to promote prevention, screening, and research to find new treatments
MouseAddams
in
Advanced Prostate Cancer
6 months ago
Health Anxiety
I am a hypochondriac. I don't invent my symptoms (a lump here, a funny mole there), I get in a panic until I get resolution. I had an elevated PSA in September - not past the limit usually set, but higher and my Dr's said they wanted to check further. I'm waiting for my 3rd blood test (a much more
I am a hypochondriac. I don't invent my symptoms (a lump here, a funny mole there), I get in a panic until I get resolution. I had an elevated PSA in September - not past the limit usually set, but higher and my Dr's said they wanted to check further. I'm waiting for my 3rd blood test (a much more
Worrier1960
in
Anxiety and Depression Support
6 months ago
5 months after stopping the 4 mos of taking orgovyx still very symptomatic of low t (miserable)..told t may never recover (79),take trt? ?
Stopped taking 4 months of orgovyx may 28th. It is now 5 months after stop taking pills. Still very symptomatic of low t, (i.e. fatigue getting worse,(tired as hell) , cognitive issues getting worse, weight gain, (exercising but still), joint aches, sugars climbing...MISERABLE. need my life back..
Stopped taking 4 months of orgovyx may 28th. It is now 5 months after stop taking pills. Still very symptomatic of low t, (i.e. fatigue getting worse,(tired as hell) , cognitive issues getting worse, weight gain, (exercising but still), joint aches, sugars climbing...MISERABLE. need my life back..
JWS13
in
Advanced Prostate Cancer
6 months ago
Metastasized to Bones
I have been seeing post saying poeple being diagnosed with metastasized PC. I was diagnosed with PC metastasized to my bones, after being under urologist care for 18 months I am wondering if poeple who get initially diagnosed with metastasized PC, whether it is because they were not under medical care
I have been seeing post saying poeple being diagnosed with metastasized PC. I was diagnosed with PC metastasized to my bones, after being under urologist care for 18 months I am wondering if poeple who get initially diagnosed with metastasized PC, whether it is because they were not under medical care
hopefull99
in
Advanced Prostate Cancer
6 months ago
MOST RECENT PSA and TESTOSTERONE TEST
My PSA and testosterone test results have been PSA .01 and T 11 since July of 2022. I had my quarterly test done yesterday and my PSA is at .02 and T is at 21.5. They are still undetectable, but not sure what caused the rise. I've only been on Firmagon for 1 year and 4 months so I hope it doesn't
My PSA and testosterone test results have been PSA .01 and T 11 since July of 2022. I had my quarterly test done yesterday and my PSA is at .02 and T is at 21.5. They are still undetectable, but not sure what caused the rise. I've only been on Firmagon for 1 year and 4 months so I hope it doesn't
GMan-62
in
Advanced Prostate Cancer
6 months ago
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