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Anagrelide
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Questions about Jakafi
I had a bad reaction to Hydroxy and
Anagrelide
. Currently on aspirin and clopidigrel (Plavix) and other than lots of bruising, no other issues. However platelets at last phlebotomy were 1093 and have been that high for a while. RBC and WBC both high.
I had a bad reaction to Hydroxy and
Anagrelide
. Currently on aspirin and clopidigrel (Plavix) and other than lots of bruising, no other issues. However platelets at last phlebotomy were 1093 and have been that high for a while. RBC and WBC both high.
Bluetoday1
in
MPN Voice
2 years ago
Bmb confirms ET mpl
Heamatolgist can only prescribe interferon HU
Anagrelide
not suitable for me. Referral for Professor Harrison done,fingers crossed that won't take too long. H
Heamatolgist can only prescribe interferon HU
Anagrelide
not suitable for me. Referral for Professor Harrison done,fingers crossed that won't take too long. H
ciye
in
MPN Voice
2 years ago
Gum Hyperplasia/Bleeding
He has said previously that my medication (
Anagrelide
) is to blame for my problems. Previously I was on Hydroxy for a few years before developing horrendous foot ulcers which only healed when I was changed to
Anagrelide
, which I’ve been on for nearly 5 years.
He has said previously that my medication (
Anagrelide
) is to blame for my problems. Previously I was on Hydroxy for a few years before developing horrendous foot ulcers which only healed when I was changed to
Anagrelide
, which I’ve been on for nearly 5 years.
lizzziep
in
MPN Voice
2 years ago
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Do these results suggest that the MF is progressing?
For the past 3.5 years my wife has been stable platelet wise with her counts at around 300 while on hydroxycarbamide every other day and
Anagrelide
3 times a day, when things have gone awry it's been because of major bleeds or "experimentation" by her haematologist consultant.
For the past 3.5 years my wife has been stable platelet wise with her counts at around 300 while on hydroxycarbamide every other day and
Anagrelide
3 times a day, when things have gone awry it's been because of major bleeds or "experimentation" by her haematologist consultant.
jointpain
in
MPN Voice
2 years ago
On to Vonjo
My wife was diagnosed with ET in the early 90's and started on Hydrea then moved to
Anagrelide
. Then it progressed to MF and she was on Jakafi and then Inrebic which stopped because of very low platelets and hemoglobin.
My wife was diagnosed with ET in the early 90's and started on Hydrea then moved to
Anagrelide
. Then it progressed to MF and she was on Jakafi and then Inrebic which stopped because of very low platelets and hemoglobin.
Pte82
in
MPN Voice
2 years ago
New Member
Treated initially with hydroxycarbamide and then
anagrelide
. Really struggled with the side effects of these and I was offered interferon. At this point I just stopped going to the hospital.
Treated initially with hydroxycarbamide and then
anagrelide
. Really struggled with the side effects of these and I was offered interferon. At this point I just stopped going to the hospital.
jacquelineruth2000
in
MPN Voice
2 years ago
SIDE EFFECTS OF ANAGRELIDE
Good and bad comments re
Anagrelide
would be appreciated. Many thanks.
Good and bad comments re
Anagrelide
would be appreciated. Many thanks.
Heather270240
in
MPN Voice
2 years ago
Side effects of Anagrelide
However today I saw my Haematologist who told me that for health reasons I could not have this medication and said the only option open to me is
Anagrelide
. I can't say I'm happy with this option and it's side effects. Can I have some feedback please from those that take it, Good and bad.
However today I saw my Haematologist who told me that for health reasons I could not have this medication and said the only option open to me is
Anagrelide
. I can't say I'm happy with this option and it's side effects. Can I have some feedback please from those that take it, Good and bad.
Heather270240
in
Fight MPN
2 years ago
Warm foot
I'm 34 years old, diagnosed with ET in 2019 and recently been put on
anagrelide
1.5mg/day to decrease platelets level. Its slowly but surely doing its job I was told by my specialist that
anagrelide
would be something smoother to start of on.
I'm 34 years old, diagnosed with ET in 2019 and recently been put on
anagrelide
1.5mg/day to decrease platelets level. Its slowly but surely doing its job I was told by my specialist that
anagrelide
would be something smoother to start of on.
Maella
in
MPN Voice
2 years ago
Taking Plavix (generic clopidogrel) for PV
I have tried Hydroxyurea and
Anagrelide
but both of them were intolerable for me. I was getting ready to go on Jakafi (very expensive as others have pointed out). My HCT seems to be under control with an occasional phlebotomy but platelets are still very, very high.
I have tried Hydroxyurea and
Anagrelide
but both of them were intolerable for me. I was getting ready to go on Jakafi (very expensive as others have pointed out). My HCT seems to be under control with an occasional phlebotomy but platelets are still very, very high.
Bluetoday1
in
MPN Voice
2 years ago
URGENT - Frustration with Haematologist over Urgent Question
(I have ET and take aspirin and
Anagrelide
). By Sunday morning I was so weak and my nose was still bleeding so after a call to 111, my husband took me to the local A&E on Sunday morning. The ENT Doctor said that I have burst a blood vessel and inserted a balloon into my nostril to stop the flow.
(I have ET and take aspirin and
Anagrelide
). By Sunday morning I was so weak and my nose was still bleeding so after a call to 111, my husband took me to the local A&E on Sunday morning. The ENT Doctor said that I have burst a blood vessel and inserted a balloon into my nostril to stop the flow.
Gaithersburg
in
MPN Voice
2 years ago
Wrong culprit?
Had some reservations re
anagrelide
. Anyway, about the same time I started atorvastatin. Then the peripheral neuropathy came with a bang! Of course I automatically assumed hydroxy was the culprit until I saw a post about atorvastatin and peripheral neuropathy.
Had some reservations re
anagrelide
. Anyway, about the same time I started atorvastatin. Then the peripheral neuropathy came with a bang! Of course I automatically assumed hydroxy was the culprit until I saw a post about atorvastatin and peripheral neuropathy.
Cokopops
in
MPN Voice
2 years ago
Is change good?
His suggestion is to drop the HU for two weeks to see if the symptoms abate and research
Anagrelide
and Peg. My questions are Do symptoms get worse with time? Are the side effects of the other treaments any less annoying? Has this approach worked for anyone else?
His suggestion is to drop the HU for two weeks to see if the symptoms abate and research
Anagrelide
and Peg. My questions are Do symptoms get worse with time? Are the side effects of the other treaments any less annoying? Has this approach worked for anyone else?
Hidden
in
MPN Voice
2 years ago
Covid booster jab done
Been on daily
anagrelide
and aspirin for ET jak2+ for 18 months. It's been slow progress but platelets are now sitting at 570 (from 850). Consultant wants them down to around 400 before he would consider me taking a break from immunosuppressants.
Been on daily
anagrelide
and aspirin for ET jak2+ for 18 months. It's been slow progress but platelets are now sitting at 570 (from 850). Consultant wants them down to around 400 before he would consider me taking a break from immunosuppressants.
Redsab7
in
MPN Voice
3 years ago
Thanks to the MPN Voice Community Had Empowering Appt with my MPN Specialist
He did tell me that he had a slight preference, for ease of administering and approval for
Anagrelide
, but that he would support my choice...
He did tell me that he had a slight preference, for ease of administering and approval for
Anagrelide
, but that he would support my choice...
Solyesh
in
MPN Voice
3 years ago
Change of treatment!
He would like to try another treatment called
anagrelide
but before I need to have my heart tested. Or he said I could try interferon. I asked about ruxolitinib but I was told that this drug is not licensed in the UK. My question is, has anyone had adverse symptoms with
anagrelide
or interferon?
He would like to try another treatment called
anagrelide
but before I need to have my heart tested. Or he said I could try interferon. I asked about ruxolitinib but I was told that this drug is not licensed in the UK. My question is, has anyone had adverse symptoms with
anagrelide
or interferon?
Cokopops
in
MPN Voice
3 years ago
Pegasys update
I'm now dropping my 9
anagrelide
and 3 of my 17 hydroxicarbmide a week. Last night I took another 90 units of interferon and paracetamol and went to bed waiting for the nausea to kick in. Nothing, no nausea no headache. No 5-2 diet!!!
I'm now dropping my 9
anagrelide
and 3 of my 17 hydroxicarbmide a week. Last night I took another 90 units of interferon and paracetamol and went to bed waiting for the nausea to kick in. Nothing, no nausea no headache. No 5-2 diet!!!
Wyebird
in
MPN Voice
3 years ago
GI bleeds
My wife has been on 3
anagrelide
a day and 1 hydroxycarbamide every other day for quite a while now, they both work very well at keeping her platelets in the normal range.
My wife has been on 3
anagrelide
a day and 1 hydroxycarbamide every other day for quite a while now, they both work very well at keeping her platelets in the normal range.
jointpain
in
MPN Voice
3 years ago
Hydroxycarbamide and hayfever
I was fine while taking
anagrelide
and found that hayfever tabs did the trick, this year am on HU (it's been 6 months now) and man am I suffering with hayfever, big time!!! Have anti histamine from dr that arent touching the sides!! Any ideas, advice or experiences greatly welcomed.
I was fine while taking
anagrelide
and found that hayfever tabs did the trick, this year am on HU (it's been 6 months now) and man am I suffering with hayfever, big time!!! Have anti histamine from dr that arent touching the sides!! Any ideas, advice or experiences greatly welcomed.
GK40
in
MPN Voice
3 years ago
HU maximum dose
This has been upped each time since I started on HU in December 2020 after 14 years on
anagrelide
whihc was suddenly stopped as consultant didnt like using
anagrelide
.
This has been upped each time since I started on HU in December 2020 after 14 years on
anagrelide
whihc was suddenly stopped as consultant didnt like using
anagrelide
.
GK40
in
MPN Voice
3 years ago
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