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severe osteoporosis and op drugs
is there people on here with L5 t12 who don't take any op drugs and take the risks of fractures, when I was dx I was told I must have zoledronic acid infusion to help me followed by prolia, I thought I was doomed unless I had treatment, I asked for another dexa scan before my 2nd infusion on the 25th
is there people on here with L5 t12 who don't take any op drugs and take the risks of fractures, when I was dx I was told I must have zoledronic acid infusion to help me followed by prolia, I thought I was doomed unless I had treatment, I asked for another dexa scan before my 2nd infusion on the 25th
Radars
in
Bone Health and Osteoporosis UK
5 months ago
Update: Tooth Extraction delayed because of risks while on Alendronic Acid
my dentist now informs me that having digitised my tooth X-ray and reconsidered, it could be saved with root canal treatment by a specialist, cost £800 to £1000, starting with a consult of £100. Alternatively I could proceed with extraction, however he will not do it, he would refer me to an NHS hospital
my dentist now informs me that having digitised my tooth X-ray and reconsidered, it could be saved with root canal treatment by a specialist, cost £800 to £1000, starting with a consult of £100. Alternatively I could proceed with extraction, however he will not do it, he would refer me to an NHS hospital
Thiago1396
in
PMRGCAuk
5 months ago
Revisiting the Zoledronic acid pros & cons
Hi folks, I was offered zoledronic acid two years ago and was so freaked out by possible side effects that I declined. At the time I was at a much lower dose of Pred and naively thought I would be off it by now, that my calcium absorption would return to normal and I'd be able to rebuild my bones naturally
Hi folks, I was offered zoledronic acid two years ago and was so freaked out by possible side effects that I declined. At the time I was at a much lower dose of Pred and naively thought I would be off it by now, that my calcium absorption would return to normal and I'd be able to rebuild my bones naturally
strawclutching
in
PMRGCAuk
5 months ago
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worst fears seem to be coming true.
Dear friends, I posted on here in March 2021 asking your advice as to whether I should even start on Teriparatide worrying about rebound fractures afterwards because I was told there was no other drug that I could safely take. The 2 years on Teriparatide ( Forsteo) passed far too quickly but interrupted
Dear friends, I posted on here in March 2021 asking your advice as to whether I should even start on Teriparatide worrying about rebound fractures afterwards because I was told there was no other drug that I could safely take. The 2 years on Teriparatide ( Forsteo) passed far too quickly but interrupted
Angelicspirit
in
Bone Health and Osteoporosis UK
5 months ago
Drug combinations
Hi all, I wonder if anyone on the forum is taking both Thyroxine and Alendronic Acid (AA)? I am taking a cocktail of drugs, as so many of us are, but have put off taking AA since diagnosed with PMR in 2022 - cannot believe where those 2 years went... I've been on Thyroxine (150 mcg/daily) for nigh
Hi all, I wonder if anyone on the forum is taking both Thyroxine and Alendronic Acid (AA)? I am taking a cocktail of drugs, as so many of us are, but have put off taking AA since diagnosed with PMR in 2022 - cannot believe where those 2 years went... I've been on Thyroxine (150 mcg/daily) for nigh
tempusfugi
in
PMRGCAuk
5 months ago
Tooth Extraction delayed because of risks while on Alendronic Acid
Went for a molar tooth extraction yesterday. It had cracked at the side of an old filling and extraction is the only option. When I told the Dentist I was on Riveroxyban, Steroids and Alendronic Acid, he immediately told me that my extraction will have to be delayed for at least several months while
Went for a molar tooth extraction yesterday. It had cracked at the side of an old filling and extraction is the only option. When I told the Dentist I was on Riveroxyban, Steroids and Alendronic Acid, he immediately told me that my extraction will have to be delayed for at least several months while
Thiago1396
in
PMRGCAuk
5 months ago
Well at least that’s one less thing to worry about.
I’m so pleased to learn that my recent dexa scan after seven years of prednisolone is normal and unchanged from three years ago. Not being a pill popper before diagnosis I have struggled to take the calcium and Vit D supplement and Alendronic Acid which were prescribed as routine by my GP. A dexa scan
I’m so pleased to learn that my recent dexa scan after seven years of prednisolone is normal and unchanged from three years ago. Not being a pill popper before diagnosis I have struggled to take the calcium and Vit D supplement and Alendronic Acid which were prescribed as routine by my GP. A dexa scan
Zebedee44
in
PMRGCAuk
5 months ago
Exciting!
CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
is everyone else not getting diagnosed or much treatment?
I’ve had severe period pain for years, when I wasn’t taking painkiller in time I would be sick and feel faint. I have tried paracetamol and ibuprofen in the pad which did nothing. I took naproxen 500mg which used to completely block my pain but now only stops it being severe. More recently I’ve been
I’ve had severe period pain for years, when I wasn’t taking painkiller in time I would be sick and feel faint. I have tried paracetamol and ibuprofen in the pad which did nothing. I took naproxen 500mg which used to completely block my pain but now only stops it being severe. More recently I’ve been
pinkie25
in
Endometriosis UK
5 months ago
AIHdx
Hi! New here. I had been experiencing vague, debilitating symptoms occasionally for a few years, fatigue, nausea, chronic back pain, itchy skin, brain fog, etc. November’23 symptoms became acute, as well as dark urine and jaundice and I was basically incapacitated. Hospitalized December’23 with ALT
Hi! New here. I had been experiencing vague, debilitating symptoms occasionally for a few years, fatigue, nausea, chronic back pain, itchy skin, brain fog, etc. November’23 symptoms became acute, as well as dark urine and jaundice and I was basically incapacitated. Hospitalized December’23 with ALT
AIGal73
in
British Liver Trust
5 months ago
Alendronic Acid and diverticulosis
since my Rheumy discovered I have two fractured vertebra, she is insisting I take AA. At my Dexa scan last summer AA was suggested but left to my decision as it showed ostopaenia not osteoporosis. I took AA last weekend and experienced heartburn, indigestion and difficulty and some pain swallowing. I
since my Rheumy discovered I have two fractured vertebra, she is insisting I take AA. At my Dexa scan last summer AA was suggested but left to my decision as it showed ostopaenia not osteoporosis. I took AA last weekend and experienced heartburn, indigestion and difficulty and some pain swallowing. I
Japsquar
in
PMRGCAuk
5 months ago
Alpha-lipoic acid
Hi! Has anyone on here used a Alpha-lipoic acid supplement, to help remove heavy metals from the body? If so . . . Did you see good results? . . . And if the results were good, can anyone recommend a brand and where they got it from? Thank you, Tracy
Hi! Has anyone on here used a Alpha-lipoic acid supplement, to help remove heavy metals from the body? If so . . . Did you see good results? . . . And if the results were good, can anyone recommend a brand and where they got it from? Thank you, Tracy
T108
in
Early CKD Support
5 months ago
To come off Hydroxychoroquine with No alternative drug replacement for it.
Hi Everyone,Gluten free chocolate chip cookie they are absolutely delish 😋 crispy top and gooey in the middle my recent baking . Thought I give you some update about my current situation that is ongoing at the moment. So , last month we (hubby and I ) saw my eye genetics consultant who felt that I
Hi Everyone,Gluten free chocolate chip cookie they are absolutely delish 😋 crispy top and gooey in the middle my recent baking . Thought I give you some update about my current situation that is ongoing at the moment. So , last month we (hubby and I ) saw my eye genetics consultant who felt that I
KnitSewPurl
in
LUPUS UK
5 months ago
First three weeks on Prednisolone !
It has been a slow start on prednisone for PMR, after three weeks there is improvement apart from right shoulder still painful, doctor thinks that could be something else, that could do with some physio . I am still feeling anxious taking the medication. Saw the doctor yesterday they have strongly
It has been a slow start on prednisone for PMR, after three weeks there is improvement apart from right shoulder still painful, doctor thinks that could be something else, that could do with some physio . I am still feeling anxious taking the medication. Saw the doctor yesterday they have strongly
Mistyfied
in
PMRGCAuk
5 months ago
shortness of breath subsequent to zoledronic acid infusion
Because of GI problems, bisphosphonate tablets are not an option for me, so I have gone down the infusion path. I had my first infusion on December 28th, and experienced about three days of bad muscle pain, which then resolved itself. It was a couple of weeks later that I noticed that my ankles were
Because of GI problems, bisphosphonate tablets are not an option for me, so I have gone down the infusion path. I had my first infusion on December 28th, and experienced about three days of bad muscle pain, which then resolved itself. It was a couple of weeks later that I noticed that my ankles were
Angel_doll
in
PMRGCAuk
5 months ago
Alendronic Acid and ears
I have chronic ear ache in one ear - seeing private consultant soon- audiologist thinks may be bones problem. Have takes AA for 5 years. Saw on Google could damage ears like jaw - believe should not take before and after extraction. It’s rare - should I stop AA for now - scans showed bone density borderline
I have chronic ear ache in one ear - seeing private consultant soon- audiologist thinks may be bones problem. Have takes AA for 5 years. Saw on Google could damage ears like jaw - believe should not take before and after extraction. It’s rare - should I stop AA for now - scans showed bone density borderline
Daffodilia
in
PMRGCAuk
5 months ago
Endometriosis
I've had period pain since I was 15 and each year the pain only gets worse. When I became 18, the pain became crippling. The pain will start mildly a week or two before I start my period. Then when I start my period the pain intensifies. I find it hard to walk, I feel like I have a fever then have an
I've had period pain since I was 15 and each year the pain only gets worse. When I became 18, the pain became crippling. The pain will start mildly a week or two before I start my period. Then when I start my period the pain intensifies. I find it hard to walk, I feel like I have a fever then have an
Tigerlily34
in
Women's Health
5 months ago
Endo diagnosis
I've had period pain since I was 15 and each year the pain only gets worse. When I became 18, the pain became crippling. The pain will start mildly a week or two before I start my period. Then when I start my period the pain intensifies. I find it hard to walk, I feel like I have a fever then have an
I've had period pain since I was 15 and each year the pain only gets worse. When I became 18, the pain became crippling. The pain will start mildly a week or two before I start my period. Then when I start my period the pain intensifies. I find it hard to walk, I feel like I have a fever then have an
Tigerlily34
in
Endometriosis UK
5 months ago
zoledronic acid infusion and osteoarthritis
I have been reading about zoledronic acid does not help with osteoarthritis and may make it worse, I have marked facet arthropathy in the lower lumbar spine arthritis, anyone know anything about this.
I have been reading about zoledronic acid does not help with osteoarthritis and may make it worse, I have marked facet arthropathy in the lower lumbar spine arthritis, anyone know anything about this.
Radars
in
Bone Health and Osteoporosis UK
5 months ago
Immune suppression caused by Urso
Hi all, I only recently learned that Urso has suppressive effects on the immune system. One research paper I read, and there are others, lists the effects - apologies for scientific jargon! Urso suppresses the production of immunoglobulins IgA, IgG and IgM (although IgM is generally chronically raised
Hi all, I only recently learned that Urso has suppressive effects on the immune system. One research paper I read, and there are others, lists the effects - apologies for scientific jargon! Urso suppresses the production of immunoglobulins IgA, IgG and IgM (although IgM is generally chronically raised
Skypony
in
PBC Foundation
5 months ago
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