Search
Search
About
Log in
Join
Experiences with
Alna
Posts
Communities
948 public posts
Filter results
LUPUS RASH?
Hi everyone, I have many Lupus signs, though diagnosed with CFS/ME and Fibro. I have rashing over the front of my neck. It is at its worst the more poorly days, but pretty much there to some degree all the time. Had odd occasions when it is faintly over brow of nose. My ana test comes back as 'normal
Hi everyone, I have many Lupus signs, though diagnosed with CFS/ME and Fibro. I have rashing over the front of my neck. It is at its worst the more poorly days, but pretty much there to some degree all the time. Had odd occasions when it is faintly over brow of nose. My ana test comes back as 'normal
jellynpain
in
LUPUS UK
10 years ago
Are sticky blood and APS the same thing?
As I am trying to understand this condition and looking to getting tests done, I want to understand the terms. Is sticky blood the same thing as APS? Is low vitamin D a common symptom? I guess mine is very low. Strange as I have a pretty nice tan ;>) I guess I will list other symptoms I have: Extreme
As I am trying to understand this condition and looking to getting tests done, I want to understand the terms. Is sticky blood the same thing as APS? Is low vitamin D a common symptom? I guess mine is very low. Strange as I have a pretty nice tan ;>) I guess I will list other symptoms I have: Extreme
iskihard
in
Hughes Syndrome APS Forum
10 years ago
UCTD, Joint Pain, Plaquenil
I'm a 31 y/o female. I woke up one morning back in April 2013 with achy hands and didn't understand why they felt so achy. I just lived with it until July. It wasn't horrible, just annoying, and it came and went--sometimes made worse by chopping veggies or cleaning--sometimes those activities were
I'm a 31 y/o female. I woke up one morning back in April 2013 with achy hands and didn't understand why they felt so achy. I just lived with it until July. It wasn't horrible, just annoying, and it came and went--sometimes made worse by chopping veggies or cleaning--sometimes those activities were
hperkins26
in
LUPUS UK
10 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
ANA Blood test & swollen glands & neck stiffness
Hey all! I'm currently waiting on my ANA blood test results, they were done on Sept 23rd and they still aren't back. I ring the GP almost everyday, nothing. They keep promising to ring me up and say what's is happening, but they keep delaying & delaying. I was told they'd call today, needless to say
Hey all! I'm currently waiting on my ANA blood test results, they were done on Sept 23rd and they still aren't back. I ring the GP almost everyday, nothing. They keep promising to ring me up and say what's is happening, but they keep delaying & delaying. I was told they'd call today, needless to say
kittyIM
in
LUPUS UK
10 years ago
A quick question
I have been diagonisrd with conective tissue disease and fibro ( positive ana speckled, positive anti RNP and DsDna). I am on plaquenil 200 mg per day and lyrica 150 mg per day My question is i have noticed a rash on my cheaks and nose after being in the sun for short periods then it seems to lighten
I have been diagonisrd with conective tissue disease and fibro ( positive ana speckled, positive anti RNP and DsDna). I am on plaquenil 200 mg per day and lyrica 150 mg per day My question is i have noticed a rash on my cheaks and nose after being in the sun for short periods then it seems to lighten
Hopey
in
LUpus Patients Understanding and Support
10 years ago
Opinions Please!!!
Hi :) I need everyones opinions & input but first let me fill you in on my family medical history with autoimmune disease as well as my own. Family History: Twin Sister: Eczema, Raynauds (Not severe), Erythema Nodosum Grandfather: Protein C deficiency & Factor 5 Leiden Mutation "Sticky Blood" (Blood
Hi :) I need everyones opinions & input but first let me fill you in on my family medical history with autoimmune disease as well as my own. Family History: Twin Sister: Eczema, Raynauds (Not severe), Erythema Nodosum Grandfather: Protein C deficiency & Factor 5 Leiden Mutation "Sticky Blood" (Blood
Hidden
in
LUPUS UK
10 years ago
Just a quick question
Had my rhematology appointment a month ago my thuemy was happy that plaquenil seems to be working blood results back within normal limits rhuemy says ctd and fibro (lyrica for fibro) my question is anti rnp, dsdna, ana positive does this indicate sle or mctd? no malar rash so am just trying to work out
Had my rhematology appointment a month ago my thuemy was happy that plaquenil seems to be working blood results back within normal limits rhuemy says ctd and fibro (lyrica for fibro) my question is anti rnp, dsdna, ana positive does this indicate sle or mctd? no malar rash so am just trying to work out
Hopey
in
LUPUS UK
10 years ago
Diagnosis
I have Bronchiectasis, MAC,Tia's, AT3, and Barretts disease, excuse the spelling..I have been very sick on the right side and thought it was a lung discomfort. My liver panel has been elevated for a long time. Now that I have the right Dr's in place they decided to do a series of blood work. Results
I have Bronchiectasis, MAC,Tia's, AT3, and Barretts disease, excuse the spelling..I have been very sick on the right side and thought it was a lung discomfort. My liver panel has been elevated for a long time. Now that I have the right Dr's in place they decided to do a series of blood work. Results
shirley29485
in
Lung Conditions Community Forum
10 years ago
Im giving up!
I have the butterfly rash and joint pain and inflamation along with raynods and I have days lim extremly tired and I have a lot of kidney infections. Anyway iv been dealing with joint pain for 9 years. Iv had blood work and ana was negative I had blood work again and I had an ana positive but it was
I have the butterfly rash and joint pain and inflamation along with raynods and I have days lim extremly tired and I have a lot of kidney infections. Anyway iv been dealing with joint pain for 9 years. Iv had blood work and ana was negative I had blood work again and I had an ana positive but it was
kkgirl
in
LUpus Patients Understanding and Support
10 years ago
ANA Curiousity question?
Hi! Friends, You know how they say there is a small percent of the population that are healthy but have positive ANA tests, or there ANA is always that way, or whatever it is they say about that... MY question is...those healthy individuals that are positive, what does their test look like? Does it have
Hi! Friends, You know how they say there is a small percent of the population that are healthy but have positive ANA tests, or there ANA is always that way, or whatever it is they say about that... MY question is...those healthy individuals that are positive, what does their test look like? Does it have
dgleds
in
LUPUS UK
10 years ago
My story
Following Ivonnepf's message to me I shall tell you all my story: I had been suffering a lot of stress at work and woke up one night with my heart pounding. My GP referred me to a cardiologist, who subsequently diagnosed paroxysmal atrial fibrillation (AF) and prescribed flecainide, which controlled
Following Ivonnepf's message to me I shall tell you all my story: I had been suffering a lot of stress at work and woke up one night with my heart pounding. My GP referred me to a cardiologist, who subsequently diagnosed paroxysmal atrial fibrillation (AF) and prescribed flecainide, which controlled
Hidden
in
HFI Connect - Hepatitis
10 years ago
Positive ANA doesn't necessarily mean I have lupus?
Is this possible? My rheumatologist looked at me and said he doesn't think I have lupus even with a positive ANA. Has anyone heard of this? I would love to not have lupus, but seem to have a lot of the symptoms and have to wait 6 weeks for results...ugh!
Is this possible? My rheumatologist looked at me and said he doesn't think I have lupus even with a positive ANA. Has anyone heard of this? I would love to not have lupus, but seem to have a lot of the symptoms and have to wait 6 weeks for results...ugh!
Natura
in
LUPUS UK
10 years ago
Rheumatoid arthritis, pain is back with new symptoms
Hello. I've been suffering from rheumatoid arthritis since 2006, after a long ordeal through doctors, drugs without any effect such as Cortisone, Chloroquine and Arava or too many side effects like Methotrexate plus strong pain that lead me to pass a long time stuck in bed, finally in 2011, I was given
Hello. I've been suffering from rheumatoid arthritis since 2006, after a long ordeal through doctors, drugs without any effect such as Cortisone, Chloroquine and Arava or too many side effects like Methotrexate plus strong pain that lead me to pass a long time stuck in bed, finally in 2011, I was given
cindy19981
in
NRAS
10 years ago
Am I a fraud?!!
Please can anyone help,I am at my wits end.4 years ago after an indepth investigation with a reumatologist who initially was convinced I had lupus,I was instead diagnosed with fibromyalgia,and discharged.I continue to have most of the symptoms of lupus at various times,and I am particularly bad at the
Please can anyone help,I am at my wits end.4 years ago after an indepth investigation with a reumatologist who initially was convinced I had lupus,I was instead diagnosed with fibromyalgia,and discharged.I continue to have most of the symptoms of lupus at various times,and I am particularly bad at the
twinx57
in
LUPUS UK
10 years ago
Hello everyone I currently have hypothyroidism diagnosed several years ago. In 2010 I went to my GP with overall joint pain, muscle aches,
tired. I felt like I couldn't do anything nor did I want too. Working my job was hard enough. The GP ran blood test, it came back with a positive ANA. I was sent to a rheumatologist that Dr ran a serious of test. She informed me that no arthritis and I would think she tested for lupus as well just not
tired. I felt like I couldn't do anything nor did I want too. Working my job was hard enough. The GP ran blood test, it came back with a positive ANA. I was sent to a rheumatologist that Dr ran a serious of test. She informed me that no arthritis and I would think she tested for lupus as well just not
Sally79
in
LUPUS UK
10 years ago
Can a diagnosis of autoimmune hepatitis be made on bloods alone?
Hi. I had a hepatic episode just over a year ago where my liver function bloods were abnormal for approx 6-8 weeks. I was mildly jaundiced and very itchy. I had a significantly positive ANA and was seen by a gastroenterologist who felt certain that I was displaying a typical picture of autoimmune hepatitis
Hi. I had a hepatic episode just over a year ago where my liver function bloods were abnormal for approx 6-8 weeks. I was mildly jaundiced and very itchy. I had a significantly positive ANA and was seen by a gastroenterologist who felt certain that I was displaying a typical picture of autoimmune hepatitis
blondie76
in
British Liver Trust
10 years ago
newby - Hydroxy - week three and still struggling.....
Hi everybody so as a starter, I'm currently got diagnosis of fibro, CFS, trigeminal neuralgia since I was 30. 16 years on (chostochondritis),tennis elbows, sore feet and writst and am struggling with photosensitivity again - berloque dermatitis, PMLE and solar urticaria- I can actually be out in the
Hi everybody so as a starter, I'm currently got diagnosis of fibro, CFS, trigeminal neuralgia since I was 30. 16 years on (chostochondritis),tennis elbows, sore feet and writst and am struggling with photosensitivity again - berloque dermatitis, PMLE and solar urticaria- I can actually be out in the
Tessi
in
LUPUS UK
10 years ago
Is it fine giving pegInterferon injection and erythropoitin 40,000 IU on same day?
My mother got anemia during HCV treatment with PegInterferon alfa 2b 100 mg and ribavarin 1000 mg/day
My mother got anemia during HCV treatment with PegInterferon alfa 2b 100 mg and ribavarin 1000 mg/day
arunbansal504
in
British Liver Trust
10 years ago
What over the counter meds for stomach upset can I take with Warfarin? Before Warfarin I took Alka Seltzer and Pepto Bismol.
I was told I can take gas x and imodium. Are there any other OTC meds I can take without aspirin? Thank you.
I was told I can take gas x and imodium. Are there any other OTC meds I can take without aspirin? Thank you.
loretta1106
in
Hughes Syndrome APS Forum
10 years ago
very much in limbo land
hi new to this site confused and frustrated sorry for the essay but think it's good to write down my history started 2007 with dead arms had physio acupuncture and bi lateral carpel tunnel release.Ganglyon removed in 2011 then dead arms again.Lots on electric shock feelings up my back.electricstudy
hi new to this site confused and frustrated sorry for the essay but think it's good to write down my history started 2007 with dead arms had physio acupuncture and bi lateral carpel tunnel release.Ganglyon removed in 2011 then dead arms again.Lots on electric shock feelings up my back.electricstudy
ny209769b
in
LUPUS UK
10 years ago
1
...
40
41
42
...
48
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
LUPUS UK
500 results
Thyroid UK
77 results
Scleroderma & Raynaud's UK (SRUK)
48 results
View top 10 communities
Sort by
Most Relevant
Newest