Search
Search
About
Log in
Join
Experiences with
Alna
Posts
Communities
935 public posts
Filter results
As for me....
I have been given an official title of POTS. My specialist still thinks my low positive ANA is "incidental"😕. He's referred me on to a POTS clinic at a major teaching hospital locally. So it will be nice to be able to go by car to my appointments instead of plane!! At this stage I'm inclined to accept
I have been given an official title of POTS. My specialist still thinks my low positive ANA is "incidental"😕. He's referred me on to a POTS clinic at a major teaching hospital locally. So it will be nice to be able to go by car to my appointments instead of plane!! At this stage I'm inclined to accept
1985mum
in
LUPUS UK
7 years ago
Getting a confirmed diagnosis
Hello everyone! I was wondering if anyone may have some advice. I have had symptoms of lupus for several years now which entail kidney disease, Tia during pregnancy, degenerative disc and joint disease, pleurisy, asthma, gout, an enlarged liver and pancreas, low grade fevers, a positive ANA and fatigue
Hello everyone! I was wondering if anyone may have some advice. I have had symptoms of lupus for several years now which entail kidney disease, Tia during pregnancy, degenerative disc and joint disease, pleurisy, asthma, gout, an enlarged liver and pancreas, low grade fevers, a positive ANA and fatigue
Avesmommy57
in
LUPUS UK
7 years ago
Barely Lupus
Hi, I recently tested positive for antinuclear antibodies, and my GP, or regular doctor, has said that it's highly probable that I have Lupus. Meanwhile, I'm just waiting to see the Rheumatologist on June 22, to under go more testing and get a definite diagnosis. My GP is a DO or Doctor of Osteopathy
Hi, I recently tested positive for antinuclear antibodies, and my GP, or regular doctor, has said that it's highly probable that I have Lupus. Meanwhile, I'm just waiting to see the Rheumatologist on June 22, to under go more testing and get a definite diagnosis. My GP is a DO or Doctor of Osteopathy
AmyCV
in
LUPUS UK
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Meds for chronic fatigue
I've been in bed for about 3 yrs now. I can barely get up to brush my teeth I'm so exhausted! I have lupus, fibromyalgia, chronic pain, severe DDD (bone on bone from L3 thru S1) bilateral hip pain, headaches, deep bone pain and toxoplasmosis (since birth). I have also had stomach issues all my life.
I've been in bed for about 3 yrs now. I can barely get up to brush my teeth I'm so exhausted! I have lupus, fibromyalgia, chronic pain, severe DDD (bone on bone from L3 thru S1) bilateral hip pain, headaches, deep bone pain and toxoplasmosis (since birth). I have also had stomach issues all my life.
Cynthiabydesign405
in
LUPUS UK
7 years ago
Fear of lupus diagnosis
Im new with lupus UK -i would love some encouraging words- i had a positive ANA about 3 years ago after seeing my regular doc for painful swollen finger joints- she said i had lupus and sent me to rheum doc- rheum doc wanted to repeat the labwork to make sure cuz she had doubts about it being lupus-
Im new with lupus UK -i would love some encouraging words- i had a positive ANA about 3 years ago after seeing my regular doc for painful swollen finger joints- she said i had lupus and sent me to rheum doc- rheum doc wanted to repeat the labwork to make sure cuz she had doubts about it being lupus-
Lannsutt
in
LUPUS UK
7 years ago
ANA positive, but comp. negative
I have had a positive ANA add I have 9 of the 11 symptoms of lupus; however, when my doctor done the ANA comp. test it came back negative. I was, also, diagnosed with fibromyalgia in 1998. Has anyone else had this to happen and still had a lupus diagnosis and, if so, how did you get the diagnosis?
I have had a positive ANA add I have 9 of the 11 symptoms of lupus; however, when my doctor done the ANA comp. test it came back negative. I was, also, diagnosed with fibromyalgia in 1998. Has anyone else had this to happen and still had a lupus diagnosis and, if so, how did you get the diagnosis?
Jennwebb2006
in
LUPUS UK
7 years ago
The ANA test
Lab Tests Online have a very good section on ANA testing and how the results may be used. Thought this might help those with indefinite diagnoses understand why that might be.
Lab Tests Online have a very good section on ANA testing and how the results may be used. Thought this might help those with indefinite diagnoses understand why that might be.
Rubylu
in
LUPUS UK
7 years ago
Some Advice please for my Granddaughter
I am Chapter, I have also posted this on the Vasculitis Page. My grand-daughter, Madison, will be 14 years old in June. For the last 6 months she has been having days of severe fatigue and nausea that lasts 2 or 3 days and then is fine for 3 or 4 weeks and then happens again. Three months ago her mother
I am Chapter, I have also posted this on the Vasculitis Page. My grand-daughter, Madison, will be 14 years old in June. For the last 6 months she has been having days of severe fatigue and nausea that lasts 2 or 3 days and then is fine for 3 or 4 weeks and then happens again. Three months ago her mother
Chapter
in
LUPUS UK
7 years ago
Help please for my granddaughter 💜
I am Chapter, from the Lupus Community, and I am hoping that they will see this post as well. My grand-daughter, Madison, will be 14 years old in June. For the last 6 months she has been having days of severe fatigue and nausea that lasts 2 or 3 days and then is fine for 3 or 4 weeks and then happens
I am Chapter, from the Lupus Community, and I am hoping that they will see this post as well. My grand-daughter, Madison, will be 14 years old in June. For the last 6 months she has been having days of severe fatigue and nausea that lasts 2 or 3 days and then is fine for 3 or 4 weeks and then happens
Chapter
in
Vasculitis UK
7 years ago
Just diagnosed with pbc
Hello all. I am 46 and female. I was just diagnosed with pbc. My ama level is 2.3. My biopsy shows inflammation in liver but no scarring yet so... (early stage). My alkaline phosphatate is 350. My alt is 126 and my ast is 117. I had a positive Ana also but low titer. My doctor thinks I may also have
Hello all. I am 46 and female. I was just diagnosed with pbc. My ama level is 2.3. My biopsy shows inflammation in liver but no scarring yet so... (early stage). My alkaline phosphatate is 350. My alt is 126 and my ast is 117. I had a positive Ana also but low titer. My doctor thinks I may also have
Vera70
in
PBC Foundation
7 years ago
Anybody out there with lupus or shortens with vestibulitis/vulvadynia?
Hi there, I was only recently diagnosed with an autoimmune disease in the last couple of years although I've had a positive ANA for many. About 2-3 years ago I started having a whole range of symptoms including mouth ulcers, skin rashes, ear issues, joint pain and swelling, fatigue etc. I've been on
Hi there, I was only recently diagnosed with an autoimmune disease in the last couple of years although I've had a positive ANA for many. About 2-3 years ago I started having a whole range of symptoms including mouth ulcers, skin rashes, ear issues, joint pain and swelling, fatigue etc. I've been on
Belleo
in
LUPUS UK
7 years ago
Ana positive but not clear about the diagnosis
Hello first time to post. I went to the rheumatologist yesterday for the second visit. And I forgot to mention I get these clear blister type bumps on my fingers and hands, they itch! My Ana 640 speckled and positive. They ran some other test too, AnTi Scl 4.0 But I left office uncertain what exactly
Hello first time to post. I went to the rheumatologist yesterday for the second visit. And I forgot to mention I get these clear blister type bumps on my fingers and hands, they itch! My Ana 640 speckled and positive. They ran some other test too, AnTi Scl 4.0 But I left office uncertain what exactly
Kfrankie
in
LUPUS UK
7 years ago
Long overdue diagnosis(s)
I finally found out helpful information about what has been causing many problems I'd associated my thyroid with incorrectly. I'm so fortunate to have been referred to a Rheumatologist who noticed many things wrong at first glance that my other doctors either didn't notice, or more likely couldn't have
I finally found out helpful information about what has been causing many problems I'd associated my thyroid with incorrectly. I'm so fortunate to have been referred to a Rheumatologist who noticed many things wrong at first glance that my other doctors either didn't notice, or more likely couldn't have
SLWS
in
Thyroid UK
7 years ago
In desperate need of help - symptoms baffling everybody.
I am new here and looking for help and answers. Thanks in advance for any help you can give. I’ve not been diagnosed with coeliac but I do wonder if it's the cause of all my issues. I have myriad life altering symptoms and I'm desperately trying to get to my root cause. I’ve been really quite sick since
I am new here and looking for help and answers. Thanks in advance for any help you can give. I’ve not been diagnosed with coeliac but I do wonder if it's the cause of all my issues. I have myriad life altering symptoms and I'm desperately trying to get to my root cause. I’ve been really quite sick since
Nunezhall
in
Gluten Free Guerrillas
7 years ago
Need some help – terrible symptoms baffling everybody.
I am new here and looking for help and answers. Thanks in advance for any help you can give. I’ve not been diagnosed with Lupus but I do wonder if it's the cause of all my issues. I have myriad life altering symptoms and I'm desperately trying to get to my root cause. I’ve been really quite sick since
I am new here and looking for help and answers. Thanks in advance for any help you can give. I’ve not been diagnosed with Lupus but I do wonder if it's the cause of all my issues. I have myriad life altering symptoms and I'm desperately trying to get to my root cause. I’ve been really quite sick since
Nunezhall
in
LUPUS UK
7 years ago
Struggling to get diagnosed!
Hi, everyone! I'm new here, to the lupus community. Like many before me, I've been struggling to get an accurate diagnosis. It's been a long process so far. My symptoms started back in October, with random swelling of my right forearm. I went to the ER, where the doctors agree it was probably tendinitis
Hi, everyone! I'm new here, to the lupus community. Like many before me, I've been struggling to get an accurate diagnosis. It's been a long process so far. My symptoms started back in October, with random swelling of my right forearm. I went to the ER, where the doctors agree it was probably tendinitis
wanderingunicorn
in
LUPUS UK
7 years ago
I'm confused
I'm still not sure if I have lupus or not because I still haven't gotten results back. I only have a positive ANA of 1:40... my hair has been falling since July 2015, now I'm noticing eye brow loss too. But when my hair started falling in July up until now I had ZER0 other symptoms... just now I started
I'm still not sure if I have lupus or not because I still haven't gotten results back. I only have a positive ANA of 1:40... my hair has been falling since July 2015, now I'm noticing eye brow loss too. But when my hair started falling in July up until now I had ZER0 other symptoms... just now I started
Hidden
in
LUPUS UK
7 years ago
Rheumatologist Update
I've been trying to catch up IRL with everything that happened during my appointment and I wanted to thank all of you for your help and guidance. Dr. Collins has started me on Hydroxychloroquine 200mg twice a day and written a recommendation as well as reasoning for my hematologist to raise my target
I've been trying to catch up IRL with everything that happened during my appointment and I wanted to thank all of you for your help and guidance. Dr. Collins has started me on Hydroxychloroquine 200mg twice a day and written a recommendation as well as reasoning for my hematologist to raise my target
Morganslone
in
Hughes Syndrome APS Forum
7 years ago
A long death update .the results are in guys. Any advice greatly appreciated.
I waited a bit longer for the results so I could have the doctors input. I'm a bit apprehensive about returning to the Gp as he has dismissed every request. He's done the run of the mill tests and over the space of 6 months of infections I have come back with Vit d deficient , low folate , crp raised
I waited a bit longer for the results so I could have the doctors input. I'm a bit apprehensive about returning to the Gp as he has dismissed every request. He's done the run of the mill tests and over the space of 6 months of infections I have come back with Vit d deficient , low folate , crp raised
Littlewitch
in
Thyroid UK
7 years ago
Letter from Respiratory clinic & some test results.
Would appreciate opinions on the following. Last summer GP referred me to Respiratory clinic ( due to shortness of breath that was obviously part of the B12 def he ignored) Waited 8 months for an appointment by which time no breathlessness, walking 2 miles with no problems thanks to S.i . Letter arrived
Would appreciate opinions on the following. Last summer GP referred me to Respiratory clinic ( due to shortness of breath that was obviously part of the B12 def he ignored) Waited 8 months for an appointment by which time no breathlessness, walking 2 miles with no problems thanks to S.i . Letter arrived
Hidden
in
Pernicious Anaemia Society
7 years ago
1
...
27
28
29
...
47
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
LUPUS UK
494 results
Thyroid UK
76 results
Scleroderma & Raynaud's UK (SRUK)
46 results
View top 10 communities
Sort by
Most Relevant
Newest