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Experiences with
Alendronic acid / Colecalciferol
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Bone Density
Since I last posted six months ago, I have tapered down to 2.5mg a day. The occasional mild discomfort in my arm remains - to remind me that PMR has not gone away - but my quality of life is fine. I will continue with a very slow taper. A few weeks ago I had a bone density scan L1-L4 is 2.7 Hip is
Since I last posted six months ago, I have tapered down to 2.5mg a day. The occasional mild discomfort in my arm remains - to remind me that PMR has not gone away - but my quality of life is fine. I will continue with a very slow taper. A few weeks ago I had a bone density scan L1-L4 is 2.7 Hip is
Glassbox
in
PMRGCAuk
1 month ago
Alendronic Acid - First Day
..... that's it! I took my first Alendronic Acid pill 70mg an hour ago... I am worried that things will go wrong but let's see. I have been getting a lot of aches and pains of late and it really is bothering me so - hey ho here we go! Hope you are all well David
..... that's it! I took my first Alendronic Acid pill 70mg an hour ago... I am worried that things will go wrong but let's see. I have been getting a lot of aches and pains of late and it really is bothering me so - hey ho here we go! Hope you are all well David
discoballs
in
PMRGCAuk
2 months ago
Alendronic Acid side effects
I've been on Prednisolone for PMR since October 2022, starting on 15mg and now down to 4.5. Reumatologist has told my GP I should be on a bisphosphonate and she's just prescribed Alendronic Acid. Reading the patient leaflet, the side-effects sound pretty grim. I'm going on a river cruise at the
I've been on Prednisolone for PMR since October 2022, starting on 15mg and now down to 4.5. Reumatologist has told my GP I should be on a bisphosphonate and she's just prescribed Alendronic Acid. Reading the patient leaflet, the side-effects sound pretty grim. I'm going on a river cruise at the
Hercules307
in
PMRGCAuk
2 months ago
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Alendronic Acid and...
Hi everyone :) I saw my lovely GP last week and we talked about my problems in a really kind manner. I said that I am in pain and aching too often these days. Paracetomol doesn't help :/ I have been on a taper from 7mg - 6mg and in achy town all the time. I told him, again, that the Rheumy ( I
Hi everyone :) I saw my lovely GP last week and we talked about my problems in a really kind manner. I said that I am in pain and aching too often these days. Paracetomol doesn't help :/ I have been on a taper from 7mg - 6mg and in achy town all the time. I told him, again, that the Rheumy ( I
discoballs
in
PMRGCAuk
2 months ago
Hello everyone
I was diagnosed with PMR at the end of January after several months of aching joints with limited mobility, particularly in my shoulders. After a week of steroids the mobility in my shoulders returned to normal and my hips and knees were fine. I was able to resume doing my weekly 30 mile cycle ride.
I was diagnosed with PMR at the end of January after several months of aching joints with limited mobility, particularly in my shoulders. After a week of steroids the mobility in my shoulders returned to normal and my hips and knees were fine. I was able to resume doing my weekly 30 mile cycle ride.
AnnaColuthon
in
PMRGCAuk
2 months ago
Finally finished prednisolone.
Hi all, after just over 7.5 years I've finally managed to stop pred. It's been a very long and slow reduction with the inevitable hiccups along the way. I ended up on 0.5mg every 2 days and finished last week, with no ill effects that I'm aware of. The last PMR symptoms I had were in 2020. What I'd like
Hi all, after just over 7.5 years I've finally managed to stop pred. It's been a very long and slow reduction with the inevitable hiccups along the way. I ended up on 0.5mg every 2 days and finished last week, with no ill effects that I'm aware of. The last PMR symptoms I had were in 2020. What I'd like
Amstel
in
PMRGCAuk
2 months ago
Private Dexa Scan
I have been on 40mg pred for 3 weeks for positive GCA.I have agreed to take weekly alendronic acid as advised by my rheumatologist, and took my first dose yesterday. I asked him about having a dexa scan. He says he will arrange a dexa scan when/if I am off steroids, which he says may be in 1 - 1.5
I have been on 40mg pred for 3 weeks for positive GCA.I have agreed to take weekly alendronic acid as advised by my rheumatologist, and took my first dose yesterday. I asked him about having a dexa scan. He says he will arrange a dexa scan when/if I am off steroids, which he says may be in 1 - 1.5
kalgoorlie
in
PMRGCAuk
2 months ago
Alendronic Acid
Hi. I've been taking Alendronic Acid for 5.5 years with no problems. Now I'm told I need a treatment break for 2 years. Why would this be? I'm on Letrozole since March 2018 and have been having bone scans every 2 years since 2020.
Hi. I've been taking Alendronic Acid for 5.5 years with no problems. Now I'm told I need a treatment break for 2 years. Why would this be? I'm on Letrozole since March 2018 and have been having bone scans every 2 years since 2020.
Walkingwizard
in
PMRGCAuk
2 months ago
GCA confirmed after Ear pain
Just to let you know that the result of my temporal artery biopsy has been confirmed as positive today. I had the biopsy on monday, just 3.5 weeks after initially going to the GP with earache. I am amazed actually as it was a result of knowledge on this forum that prompted me to go back to my GP, after
Just to let you know that the result of my temporal artery biopsy has been confirmed as positive today. I had the biopsy on monday, just 3.5 weeks after initially going to the GP with earache. I am amazed actually as it was a result of knowledge on this forum that prompted me to go back to my GP, after
kalgoorlie
in
PMRGCAuk
2 months ago
Alendronic Acid and Methotrexate
I've had PMR for about two years. All symptoms vanished completely as soon as I was put on Prednisolone (15mg per day), but I had a bad experience with trying to reduce, as advised by both GPs and my rheumatologist, by large cliff-edge steps--from 15mg to 12.5mg, then 10mg, all in a very few weeks.
I've had PMR for about two years. All symptoms vanished completely as soon as I was put on Prednisolone (15mg per day), but I had a bad experience with trying to reduce, as advised by both GPs and my rheumatologist, by large cliff-edge steps--from 15mg to 12.5mg, then 10mg, all in a very few weeks.
PressBarVet
in
PMRGCAuk
3 months ago
Osteoporosis
I had PMR from 2016-2019. Took Alendronic Acic for about 6 weeks but stopped because it was affecting my throat. Had bone density scan around 2017 which showed some osteoporosis and some osteopenia (record has been lost due to GP/house move). I was offered an Infusion of AA which I had in 2017/2018.
I had PMR from 2016-2019. Took Alendronic Acic for about 6 weeks but stopped because it was affecting my throat. Had bone density scan around 2017 which showed some osteoporosis and some osteopenia (record has been lost due to GP/house move). I was offered an Infusion of AA which I had in 2017/2018.
Urtica
in
PMRGCAuk
3 months ago
Alendronic acid
I’ve just achieved the slow taper down to 3mg and am feeling fine. But I’m just wondering about how long to stay on the AA for. (I’m taking into account the trauma of snapping a tooth off last night (a front one) when biting into a square of chocolate and not being able to see a dentist until Wednesday
I’ve just achieved the slow taper down to 3mg and am feeling fine. But I’m just wondering about how long to stay on the AA for. (I’m taking into account the trauma of snapping a tooth off last night (a front one) when biting into a square of chocolate and not being able to see a dentist until Wednesday
Doraflora
in
PMRGCAuk
3 months ago
Alendronic acid
Hello So I’ve had another telephone consultation from the latest GP saying my bloods are fine (not raised) 🙄 yes I know!! I’m tapering myself DDS and on 12.5mgs at present . I was initially diagnosed Dec 21 - and had got down to 9mg but Nov 22 had a flare and had to go back up to 15mgs - I’ve now been
Hello So I’ve had another telephone consultation from the latest GP saying my bloods are fine (not raised) 🙄 yes I know!! I’m tapering myself DDS and on 12.5mgs at present . I was initially diagnosed Dec 21 - and had got down to 9mg but Nov 22 had a flare and had to go back up to 15mgs - I’ve now been
Mercat
in
PMRGCAuk
3 months ago
Update: Tooth Extraction delayed because of risks while on Alendronic Acid
my dentist now informs me that having digitised my tooth X-ray and reconsidered, it could be saved with root canal treatment by a specialist, cost £800 to £1000, starting with a consult of £100. Alternatively I could proceed with extraction, however he will not do it, he would refer me to an NHS hospital
my dentist now informs me that having digitised my tooth X-ray and reconsidered, it could be saved with root canal treatment by a specialist, cost £800 to £1000, starting with a consult of £100. Alternatively I could proceed with extraction, however he will not do it, he would refer me to an NHS hospital
Thiago1396
in
PMRGCAuk
3 months ago
Drug combinations
Hi all, I wonder if anyone on the forum is taking both Thyroxine and Alendronic Acid (AA)? I am taking a cocktail of drugs, as so many of us are, but have put off taking AA since diagnosed with PMR in 2022 - cannot believe where those 2 years went... I've been on Thyroxine (150 mcg/daily) for nigh
Hi all, I wonder if anyone on the forum is taking both Thyroxine and Alendronic Acid (AA)? I am taking a cocktail of drugs, as so many of us are, but have put off taking AA since diagnosed with PMR in 2022 - cannot believe where those 2 years went... I've been on Thyroxine (150 mcg/daily) for nigh
tempusfugi
in
PMRGCAuk
3 months ago
Tooth Extraction delayed because of risks while on Alendronic Acid
Went for a molar tooth extraction yesterday. It had cracked at the side of an old filling and extraction is the only option. When I told the Dentist I was on Riveroxyban, Steroids and Alendronic Acid, he immediately told me that my extraction will have to be delayed for at least several months while
Went for a molar tooth extraction yesterday. It had cracked at the side of an old filling and extraction is the only option. When I told the Dentist I was on Riveroxyban, Steroids and Alendronic Acid, he immediately told me that my extraction will have to be delayed for at least several months while
Thiago1396
in
PMRGCAuk
3 months ago
Well at least that’s one less thing to worry about.
I’m so pleased to learn that my recent dexa scan after seven years of prednisolone is normal and unchanged from three years ago. Not being a pill popper before diagnosis I have struggled to take the calcium and Vit D supplement and Alendronic Acid which were prescribed as routine by my GP. A dexa scan
I’m so pleased to learn that my recent dexa scan after seven years of prednisolone is normal and unchanged from three years ago. Not being a pill popper before diagnosis I have struggled to take the calcium and Vit D supplement and Alendronic Acid which were prescribed as routine by my GP. A dexa scan
Zebedee44
in
PMRGCAuk
3 months ago
Alendronic Acid and diverticulosis
since my Rheumy discovered I have two fractured vertebra, she is insisting I take AA. At my Dexa scan last summer AA was suggested but left to my decision as it showed ostopaenia not osteoporosis. I took AA last weekend and experienced heartburn, indigestion and difficulty and some pain swallowing. I
since my Rheumy discovered I have two fractured vertebra, she is insisting I take AA. At my Dexa scan last summer AA was suggested but left to my decision as it showed ostopaenia not osteoporosis. I took AA last weekend and experienced heartburn, indigestion and difficulty and some pain swallowing. I
Japsquar
in
PMRGCAuk
3 months ago
To come off Hydroxychoroquine with No alternative drug replacement for it.
Hi Everyone,Gluten free chocolate chip cookie they are absolutely delish 😋 crispy top and gooey in the middle my recent baking . Thought I give you some update about my current situation that is ongoing at the moment. So , last month we (hubby and I ) saw my eye genetics consultant who felt that I
Hi Everyone,Gluten free chocolate chip cookie they are absolutely delish 😋 crispy top and gooey in the middle my recent baking . Thought I give you some update about my current situation that is ongoing at the moment. So , last month we (hubby and I ) saw my eye genetics consultant who felt that I
KnitSewPurl
in
LUPUS UK
3 months ago
First three weeks on Prednisolone !
It has been a slow start on prednisone for PMR, after three weeks there is improvement apart from right shoulder still painful, doctor thinks that could be something else, that could do with some physio . I am still feeling anxious taking the medication. Saw the doctor yesterday they have strongly
It has been a slow start on prednisone for PMR, after three weeks there is improvement apart from right shoulder still painful, doctor thinks that could be something else, that could do with some physio . I am still feeling anxious taking the medication. Saw the doctor yesterday they have strongly
Mistyfied
in
PMRGCAuk
3 months ago
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