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Experiences with
Androgen deprivation therapy (ADT)
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Debulking Radiation Options
Short version (bio has more detail): omHSPC, started
ADT
(Lupron + Darolutamide - ARASEC Trial) in September 2022. MO has me scheduled for a consultation with RO for a planned debulking IMRT/IGRT to the prostrate and pelvis in Nov/Dec.
Short version (bio has more detail): omHSPC, started
ADT
(Lupron + Darolutamide - ARASEC Trial) in September 2022. MO has me scheduled for a consultation with RO for a planned debulking IMRT/IGRT to the prostrate and pelvis in Nov/Dec.
Heykm01
in
Advanced Prostate Cancer
2 years ago
Is Pluvicto worth pursuing?
Started
ADT
with Firmagon April, 2021, and Xtandi May, 2021. Didn't tolerate
ADT
well with extreme fatigue, weight loss, muscle loss, food tastes bad, chronic sinus inflammation.
Started
ADT
with Firmagon April, 2021, and Xtandi May, 2021. Didn't tolerate
ADT
well with extreme fatigue, weight loss, muscle loss, food tastes bad, chronic sinus inflammation.
Battle_on
in
Advanced Prostate Cancer
2 years ago
Advice please on blood results
Thyroglobulin 86.3ng/ml High Ref. range 3.5-77 I have hypothyroidism and these are my recent results. Any suggestions please on how I can reduce my thyroid globulin antibodies and TSH? I take 1 NDT per day with a range of vitamins
Thyroglobulin 86.3ng/ml High Ref. range 3.5-77 I have hypothyroidism and these are my recent results. Any suggestions please on how I can reduce my thyroid globulin antibodies and TSH? I take 1 NDT per day with a range of vitamins
Peppermints123
in
Thyroid UK
9 months ago
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NDT info request
Dear all, I would be extremely grateful for private messages with information about trustworthy sources of reliable-quality NDT in the UK (non-prescription). Many thanks in advance!
Dear all, I would be extremely grateful for private messages with information about trustworthy sources of reliable-quality NDT in the UK (non-prescription). Many thanks in advance!
lutepavan
in
Thyroid UK
9 months ago
New PSA reading update
The combination of
ADT
for the first, and Xtandi for the second is more powerful also for the castrate sensitive tumours as the rate of decline increases The oncologist also noticed that my iron values were a shade low (Hemoglobin 11.4g/dl, EVF % 0.34) but they have been low since diagnosis.
The combination of
ADT
for the first, and Xtandi for the second is more powerful also for the castrate sensitive tumours as the rate of decline increases The oncologist also noticed that my iron values were a shade low (Hemoglobin 11.4g/dl, EVF % 0.34) but they have been low since diagnosis.
Stoneartist
in
Advanced Prostate Cancer
2 years ago
The Lancet - Treatment options for metastatic hormone-sensitive prostate cancer - Comment by Louise Kostos & Declan G Murphy, Pub: 09/05/22
In this Lancet comment article by Louise Kostos & Declan Murphy, both at PeterMac in AU, they update the current treatment options/recommendations for metastatic, hormone-sensitive PCa in light of the Phase III results from the CHART trial comparing
ADT
plus the new ARI agent rezvilutamide vs
ADT
plus
In this Lancet comment article by Louise Kostos & Declan Murphy, both at PeterMac in AU, they update the current treatment options/recommendations for metastatic, hormone-sensitive PCa in light of the Phase III results from the CHART trial comparing
ADT
plus the new ARI agent rezvilutamide vs
ADT
plus
cujoe
in
Fight Prostate Cancer
2 years ago
How to add adrenal support (on NDT)
I think I need to add adrenal support to my NDT but looking for some help on the practicalities and open to ideas about whether this is my problem. Specifically, do I need to stop NDT first? If so, how slowly should I taper off? I'd really like to spend as little time as necessary feeling so hypo!
I think I need to add adrenal support to my NDT but looking for some help on the practicalities and open to ideas about whether this is my problem. Specifically, do I need to stop NDT first? If so, how slowly should I taper off? I'd really like to spend as little time as necessary feeling so hypo!
FoggyThinker
in
Thyroid UK
9 months ago
Low Testosterone Linked to Hospitalization for COVID - By Kristen Monaco, Staff Writer, MedPage Today, September 2, 2022
[/i] If this is applicable to those PCa patients on
ADT
, then we can add one more major SE to the many already on the list for SOC
ADT
. Surely, someday in the distant future
ADT
will be looked upon as a near-medieval treatment to extend the lives on men with PCa.
[/i] If this is applicable to those PCa patients on
ADT
, then we can add one more major SE to the many already on the list for SOC
ADT
. Surely, someday in the distant future
ADT
will be looked upon as a near-medieval treatment to extend the lives on men with PCa.
cujoe
in
Fight Prostate Cancer
2 years ago
Improvement then worsening thyroid
I'm on 3.5 Grain NDT. I get a improment in sleep and depression. In the 5 week my depression worsen and i got daily nightmares. Now I reached week 6 and the worsening is still there.What does this mean? On levo 162 i had the worsening also in week 5 and in week 8 the depression (nightmares and interupted
I'm on 3.5 Grain NDT. I get a improment in sleep and depression. In the 5 week my depression worsen and i got daily nightmares. Now I reached week 6 and the worsening is still there.What does this mean? On levo 162 i had the worsening also in week 5 and in week 8 the depression (nightmares and interupted
charley123
in
Thyroid UK
9 months ago
Endocrinologists and NDT Lancashire
Good morning I wonder if anyone could message me please regarding any endocrinologists who deal with NDT in the Lancashire area and advise me of their experiences. Many thanks
Good morning I wonder if anyone could message me please regarding any endocrinologists who deal with NDT in the Lancashire area and advise me of their experiences. Many thanks
Joeybobs
in
Thyroid UK
9 months ago
Endocrinologists and NDT Lancashire
Good morning I'm just wondering if anyone has any recomendations for endocrinologists preferably East Lancashire otherwise Lancashire in general who have an understanding of NDT. I see Simon Howell a Consultant at Preston is on the list - if anyone could advise me I would be grateful Julie
Good morning I'm just wondering if anyone has any recomendations for endocrinologists preferably East Lancashire otherwise Lancashire in general who have an understanding of NDT. I see Simon Howell a Consultant at Preston is on the list - if anyone could advise me I would be grateful Julie
Joeybobs
in
Thyroid UK
9 months ago
NDT or porcine thyroid
Hello I have had Hashies for about 2 years now. I am completely gluten free. My TSH levels hover around 4.8 so doctor won’t give me Levo. My antibodies are well out of range My CRP is just over 5. My ferritin is also way out of range. I've had constipation, bloating and gas for many years. Muscle and
Hello I have had Hashies for about 2 years now. I am completely gluten free. My TSH levels hover around 4.8 so doctor won’t give me Levo. My antibodies are well out of range My CRP is just over 5. My ferritin is also way out of range. I've had constipation, bloating and gas for many years. Muscle and
ChickieBaker
in
Thyroid UK
9 months ago
First results after switching to NDT. Help pls ...
Hi beautiful people, I shared a number of posts here about my thyroid journey. I switched to Erfa brand NDT 2 weeks ago after being on levo for 2 decades. I started from 0.5 grain, increased to 1 grain and then to 1,5 grains. I've been on 1,5 grains for about 5 days now. I checked my bloods 2 weeks
Hi beautiful people, I shared a number of posts here about my thyroid journey. I switched to Erfa brand NDT 2 weeks ago after being on levo for 2 decades. I started from 0.5 grain, increased to 1 grain and then to 1,5 grains. I've been on 1,5 grains for about 5 days now. I checked my bloods 2 weeks
Juliet_22
in
Thyroid UK
9 months ago
Porcine supplements or NDT ?
Hello I have had Hashies for about a year now. I am completely gluten free. My TSH levels hover around 4.8 so doctor won’t give me Levo. My antibodies are well out of range My CRP is just over 5. My ferritin is also way out of range. I’ve just bought some 40mg porcine thyroid tablets but only because
Hello I have had Hashies for about a year now. I am completely gluten free. My TSH levels hover around 4.8 so doctor won’t give me Levo. My antibodies are well out of range My CRP is just over 5. My ferritin is also way out of range. I’ve just bought some 40mg porcine thyroid tablets but only because
ChickieBaker
in
Thyroid UK
9 months ago
Vit B12 extremely high
About 5% of people have this at age 60, though few know. 1%/year move on to multiple myeloma, which (interestingly) has rather similar symptoms to prostate cancer and
ADT
. My numbers aren't too high so this probably is not an issue.
About 5% of people have this at age 60, though few know. 1%/year move on to multiple myeloma, which (interestingly) has rather similar symptoms to prostate cancer and
ADT
. My numbers aren't too high so this probably is not an issue.
rsgdmd
in
Advanced Prostate Cancer
2 years ago
PSA hovering around 1 even after a year on ADT + Enza, should we insist on Triplet Therapy ?
Hi All, My Father was diagnosed with Advanced PCa with extensive bone mets but no visceral spread last November. His PSA at dx was 325 and Gleason was 4+5 with all cores positive. His treatment started off with 10 sessions of Palliative RT followed by combination of Degarelix + Enzaluatmide + Denosumab
Hi All, My Father was diagnosed with Advanced PCa with extensive bone mets but no visceral spread last November. His PSA at dx was 325 and Gleason was 4+5 with all cores positive. His treatment started off with 10 sessions of Palliative RT followed by combination of Degarelix + Enzaluatmide + Denosumab
dudubaya
in
Advanced Prostate Cancer
1 year ago
Recurrence after radiation.
I was on Eligard IN 2017 for 6 months and hated the side effects do
ADT
.
I was on Eligard IN 2017 for 6 months and hated the side effects do
ADT
.
Yacky
in
Prostate Cancer Network
2 years ago
L/T vs S/T ADT post SRT & WPLNs?
RO seems to think pre
ADT
of 16 months with 2 months post, and low volume disease on PET scan with intermediate Decipher suggests that is enough hormone therapy. I see MO Monday. Any recommendations on length of
ADT
post SRT very much appreciated, thank you.
RO seems to think pre
ADT
of 16 months with 2 months post, and low volume disease on PET scan with intermediate Decipher suggests that is enough hormone therapy. I see MO Monday. Any recommendations on length of
ADT
post SRT very much appreciated, thank you.
jjpeabody
in
Advanced Prostate Cancer
2 years ago
Dental problems
I have over the past couple of years had trouble with a dry burning mouth , which has caused gum problems which I have never had before also just recently my eyes have been very dry and itchy does anyone else suffer with these symptoms are they another Fibromyalgia gift !
I have over the past couple of years had trouble with a dry burning mouth , which has caused gum problems which I have never had before also just recently my eyes have been very dry and itchy does anyone else suffer with these symptoms are they another Fibromyalgia gift !
Thornthorpe
in
Fibromyalgia Action UK
8 months ago
actual castration instead of ADT
I am told I will be on these or some form of
ADT
for the rest of my life. Since the goal is to eliminate testosterone wouldn’t it make sense to remove the source of it? By doing so one could avoid all the nasty inevitable side effects. Thoughts?
I am told I will be on these or some form of
ADT
for the rest of my life. Since the goal is to eliminate testosterone wouldn’t it make sense to remove the source of it? By doing so one could avoid all the nasty inevitable side effects. Thoughts?
OldGuysRule
in
Advanced Prostate Cancer
2 years ago
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