HealthUnlockedHealthUnlocked
AboutLog in

Experiences with

Acute lymphoblastic leukaemia (ALL)

Related links

Acute lymphoblastic leukaemia

Diagnosis

Treatment

Complications

HealthUnlocked contains information from NHS Digital, licensed under the current version of the Open Government Licence

  • Posts

  • Communities

2,264 public posts

Webinar 3.30pm 12th November - CAR-T therapy update

Leigh Wood, Team Lead and Senior Clinical Trial Practitioner, University College London Hospitals NHS Foundation Trust Sophie Wheldon, CAR-T treated acute lymphoblastic leukaemia (ALL) patient
Leigh Wood, Team Lead and Senior Clinical Trial Practitioner, University College London Hospitals NHS Foundation Trust Sophie Wheldon, CAR-T treated acute lymphoblastic leukaemia (ALL) patient
HAIRBEAR_UK profile image
HAIRBEAR_UK
Administratorin Leukaemia CARE

Webinar 11th August 12.30pm, CAR - T therapy update

Luminita Keating, CAR-T Clinical Nurse Specialist, Addenbrooke's, Cambridge University Hospitals NHS Foundation Trust Deborah Sims, CAR-T treated chronic lymphocytic leukaemia (CLL) patient Sophie Wheldon, CAR-T treated acute lymphoblastic leukaemia (ALL) patient
Luminita Keating, CAR-T Clinical Nurse Specialist, Addenbrooke's, Cambridge University Hospitals NHS Foundation Trust Deborah Sims, CAR-T treated chronic lymphocytic leukaemia (CLL) patient Sophie Wheldon, CAR-T treated acute lymphoblastic leukaemia (ALL) patient
HAIRBEAR_UK profile image
HAIRBEAR_UK
Administratorin Leukaemia CARE

Wednesday is the start of Blood Cancer Awareness Month - Help raise awareness of the signs and symptoms of leukaemia to save lives

The highest emergency presentation rates for any cancer type occur in acute lymphoblastic leukaemia (ALL), at 66% of patients. This is a huge difference when compared with the overall cancer emergency presentation percentage (21%).
The highest emergency presentation rates for any cancer type occur in acute lymphoblastic leukaemia (ALL), at 66% of patients. This is a huge difference when compared with the overall cancer emergency presentation percentage (21%).
HAIRBEAR_UK profile image
HAIRBEAR_UK
Administratorin Leukaemia CARE
Want to take advantage of all our features? Just log in!
or

Webinar 3.30pm, Tuesday 6th April - Acute lymphoblastic leukaemia (ALL) treatment update

Please join us for the 3rd in the series of acute leukaemia treatment updates. This webinar will update on how ALL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions. The webinar
Please join us for the 3rd in the series of acute leukaemia treatment updates. This webinar will update on how ALL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions. The webinar
HAIRBEAR_UK profile image
HAIRBEAR_UK
Administratorin Leukaemia CARE

Waiting for Pirtobrutinib

My husband has been on venetoclax for 3 years and a recent bone marrow biopsy shows cancer is growing and is up to 60%. His oncologist wants to put him on Pirtobrutinib, but it isn’t available yet. Does anyone know we can gain early access to this drug? He is 76 , diagnosed 13 years ago. He was
My husband has been on venetoclax for 3 years and a recent bone marrow biopsy shows cancer is growing and is up to 60%. His oncologist wants to put him on Pirtobrutinib, but it isn’t available yet. Does anyone know we can gain early access to this drug? He is 76 , diagnosed 13 years ago. He was
KLWC profile image
KLWC
in CLL Support

Ruxolitinib

Husband has PV and MPN currently on Ruxolitinib which for him has been amazing and life saving. Only drawback is having had some skin cancers. Presently he has a lot of sores on head and face that will not clear and having problems with doctors not recognising that these sores and scabs can yet again
Husband has PV and MPN currently on Ruxolitinib which for him has been amazing and life saving. Only drawback is having had some skin cancers. Presently he has a lot of sores on head and face that will not clear and having problems with doctors not recognising that these sores and scabs can yet again
waddles22 profile image
waddles22
in MPN Voice

BESREMI ACHIEVES PATIENT-SPECIFIC TREATMENT GOALS IN POLYCYTHEMIA VERA: FINAL RESULTS FROM THE PROUD-PV/CONTINUATION-PV STUDIES

« No phlebotomies were required to maintain hematocrit <45% in the 6th year of treatment in 81.4% of patients receiving Besremi compared with 60.0% of patients in the control arm (p=0.005). Depletion of the JAK2V617F alle burden, which may lower the risk of progression to myelofibrosis, was observed
« No phlebotomies were required to maintain hematocrit <45% in the 6th year of treatment in 81.4% of patients receiving Besremi compared with 60.0% of patients in the control arm (p=0.005). Depletion of the JAK2V617F alle burden, which may lower the risk of progression to myelofibrosis, was observed
Manouche profile image
Manouche
in MPN Voice

Questions about Jakafi

Good morning everyone, I have PV. I am 75 and was diagnosed about 5 years ago. For the most part I feel fine. My Hematologist would like me to try Jakafi. I had a bad reaction to Hydroxy and Anagrelide. Currently on aspirin and clopidigrel (Plavix) and other than lots of bruising, no other issues
Good morning everyone, I have PV. I am 75 and was diagnosed about 5 years ago. For the most part I feel fine. My Hematologist would like me to try Jakafi. I had a bad reaction to Hydroxy and Anagrelide. Currently on aspirin and clopidigrel (Plavix) and other than lots of bruising, no other issues
Bluetoday1 profile image
Bluetoday1
in MPN Voice

Hydroxyurea-induced ankle ulcers

85, been on 1000 mg/day of Urea for five years fighting essential thrombocytosis. Now have a nasty ankle ulcer and my doc wants me to switch to Jakafi....disinclined to do that until I exhaust all the alternatives (cost, worry about taking a drug that kills RBC when I'm already ~40% below the lower
85, been on 1000 mg/day of Urea for five years fighting essential thrombocytosis. Now have a nasty ankle ulcer and my doc wants me to switch to Jakafi....disinclined to do that until I exhaust all the alternatives (cost, worry about taking a drug that kills RBC when I'm already ~40% below the lower
veryoldman profile image
veryoldman
in MPN Voice

Anyone with Exon 12 mutation out there?

Hi Everyone, I was diagnosed a year and a half ago with polycythemia vera with a negative v617f mutation and a positive Exon 12 mutation. The literature says that about 95% of the p-vera cases are positive for v617f while 3% have one of many Exon 12 mutations. The disease presents itself a little
Hi Everyone, I was diagnosed a year and a half ago with polycythemia vera with a negative v617f mutation and a positive Exon 12 mutation. The literature says that about 95% of the p-vera cases are positive for v617f while 3% have one of many Exon 12 mutations. The disease presents itself a little
gvibes profile image
gvibes
in MPN Voice

World Blood Cancer Day May 28th

Please help promote knowledge about Blood Cancers and Stem Cell Transplant Matching. Help support the become a donor campaigns! Global event! Please see link for more information They have various downloads that can be used on social media like Facebook https://www.worldbloodcancerday.org/en/media
Please help promote knowledge about Blood Cancers and Stem Cell Transplant Matching. Help support the become a donor campaigns! Global event! Please see link for more information They have various downloads that can be used on social media like Facebook https://www.worldbloodcancerday.org/en/media
Dovme profile image
Dovme
in MPN Voice

2022 NCCN Guidelines for MPNs

Another good resource posted by our friends from the MPN Research Foundation. 2022 National Comprehensive Cancer Network Guidelines - Myeloproliferative Neoplasms. Nice summary on a number of MPN topics written for patients. Great for someone new to MPNs, and a good review for all. https://www.nccn.org
Another good resource posted by our friends from the MPN Research Foundation. 2022 National Comprehensive Cancer Network Guidelines - Myeloproliferative Neoplasms. Nice summary on a number of MPN topics written for patients. Great for someone new to MPNs, and a good review for all. https://www.nccn.org
hunter5582 profile image
hunter5582
in MPN Voice

Jakafi (Rux) vs Besremi Side Effects

Edited to show PV - Rux (rather than MF-Rux ) effects info I started Besremi INF last Feb, as discussed in recent posts. My Dr said it is good medicine. But his 1st choice is Rux. He said it has fewer side effects and is best for symptom relief. I have PV Dx with ET features. I opted to go with
Edited to show PV - Rux (rather than MF-Rux ) effects info I started Besremi INF last Feb, as discussed in recent posts. My Dr said it is good medicine. But his 1st choice is Rux. He said it has fewer side effects and is best for symptom relief. I have PV Dx with ET features. I opted to go with
EPguy profile image
EPguy
in MPN Voice

Green tea

A 2020 database reviewTrusted Source of epidemiological and experimental studies in humans produced inconsistent results as well as limited evidence of the benefit of green tea consumption for lowering the risk of cancer. The researchers assessed 142 completed studies, including 1.1 million participants
A 2020 database reviewTrusted Source of epidemiological and experimental studies in humans produced inconsistent results as well as limited evidence of the benefit of green tea consumption for lowering the risk of cancer. The researchers assessed 142 completed studies, including 1.1 million participants
Mostew profile image
Mostew
in MPN Voice

Introduction with questions - MPNs & Crispr Cas9 Gene editing

Hello everyone, I am new here. I am 27 Male and as of last week Jak2 positive. I have my bone marrow biopsy tomorrow to see whats what. My Platelets fluctuate between 550 & 600 and I have really no other symptoms other then the platelets, I wouldn't have known if not for random blood work. I am going
Hello everyone, I am new here. I am 27 Male and as of last week Jak2 positive. I have my bone marrow biopsy tomorrow to see whats what. My Platelets fluctuate between 550 & 600 and I have really no other symptoms other then the platelets, I wouldn't have known if not for random blood work. I am going
Hello94 profile image
Hello94
in MPN Voice

What genetic / genomic information does a BMB give that bloods don’t?

Hi. I’ve been dipping getting in and out of this friendly and helpful group since I discovered it I have PMF, diagnosed 5 years ago and am having a hard time getting accurate information about my mutation status. The last two BMBs were poor samples - short or crushed cores. Only found out when
Hi. I’ve been dipping getting in and out of this friendly and helpful group since I discovered it I have PMF, diagnosed 5 years ago and am having a hard time getting accurate information about my mutation status. The last two BMBs were poor samples - short or crushed cores. Only found out when
Rachelthepotter profile image
Rachelthepotter
in MPN Voice

MPN Advocacy & Education international - Patient & Caregivers Conference April 15, 2022

For those who could not attend, here are the links to the presentations. Topic: The 4 W's of Enrolling in a Clinical Trial, Laura Michaelis, MD https://www.youtube.com/watch?v=5W9L104Xr6M Topic: New Approved MPN Drugs and Others, Ruben Mesa, MD https://www.youtube.com/watch?v=WdtM0CA-17A Topic: Demystifying
For those who could not attend, here are the links to the presentations. Topic: The 4 W's of Enrolling in a Clinical Trial, Laura Michaelis, MD https://www.youtube.com/watch?v=5W9L104Xr6M Topic: New Approved MPN Drugs and Others, Ruben Mesa, MD https://www.youtube.com/watch?v=WdtM0CA-17A Topic: Demystifying
hunter5582 profile image
hunter5582
in MPN Voice

Paraneoplastic disorder associated with MF

I was diagnosed with MF last year and from around that time I've suffered tingling which has spread from my extremities to most of my body. In case it was made worse by ruxolitinib, I've paused that but the tingling has continued. I've had most of the other tests to make sure it is not due to vitamin
I was diagnosed with MF last year and from around that time I've suffered tingling which has spread from my extremities to most of my body. In case it was made worse by ruxolitinib, I've paused that but the tingling has continued. I've had most of the other tests to make sure it is not due to vitamin
Scaredy_cat profile image
Scaredy_cat
in MPN Voice

Jakavi and Paxlovid interaction

Jakavi and Paxlovid interaction I have been trying unsuccessfully to find information online to my question. Does anybody know if a patient currently taking Jakafi can be prescribed Paxlovid in case of a Covid infection? My husband had intermediate Myelofibrosis. So far the Jakafi has done wonders
Jakavi and Paxlovid interaction I have been trying unsuccessfully to find information online to my question. Does anybody know if a patient currently taking Jakafi can be prescribed Paxlovid in case of a Covid infection? My husband had intermediate Myelofibrosis. So far the Jakafi has done wonders
Ticotopia profile image
Ticotopia
in MPN Voice

no successful with accessing local CMDU for antivirals

Tested positive for Covid on Saturday. I have ET and take hydroxycarbamide so I contacted 111 after logging my positive LFT on the NHS website. I followed all the advice on MPN voice and blood cancer UK. Told that I would be contacted in roughly 24 hours by my local CMDU and given an assessment ,.
Tested positive for Covid on Saturday. I have ET and take hydroxycarbamide so I contacted 111 after logging my positive LFT on the NHS website. I followed all the advice on MPN voice and blood cancer UK. Told that I would be contacted in roughly 24 hours by my local CMDU and given an assessment ,.
JabON profile image
JabON
in MPN Voice
  • 1
  • 2
  • ...
  • 100
  • Next page
  • 10
  • 20
  • 30
  • 40
  • 50
  • 60
  • 70
  • 80
  • 90
  • 100
Filter results
Posted in
Sort by
HealthUnlocked
© 2022 All rights reserved.

Company

About Us

Our Team

Partner with us

Careers

Product

Health terms A to Z

Communities A to Z

Start a Community

Support

Help Centre

Community Guidelines

Contact us

Cookies settings