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Actemra
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SharonY
Wondering if anyone has had dental extraction while on
Actemra
. I was told by my dentist that it affects the jaw and I would need to see a specialist since an extraction would be problematic? I am in the UK and have weekly
Actemra
injections. Thx
Wondering if anyone has had dental extraction while on
Actemra
. I was told by my dentist that it affects the jaw and I would need to see a specialist since an extraction would be problematic? I am in the UK and have weekly
Actemra
injections. Thx
WaltzG
in
PMRGCAuk
1 year ago
Actemra..any problems when taking this..
Was wondering what problems people have when taking
Actemra
weekly. I have been on it for a couple of months, slowly reducing Prednezone. Would like some information if anyone has noticed any side effects or changes. Thanks
Was wondering what problems people have when taking
Actemra
weekly. I have been on it for a couple of months, slowly reducing Prednezone. Would like some information if anyone has noticed any side effects or changes. Thanks
Wilson1952
in
PMRGCAuk
1 year ago
Anxiety again?
Am also getting monthly
Actemra
infusions and have been since last fall. I don’t know why my body/mind are reacting as they are. I also don’t know why my legs and arms still feel tight and tired, which how they became when I came down with PMR more than 2 years ago. Any thoughts?
Am also getting monthly
Actemra
infusions and have been since last fall. I don’t know why my body/mind are reacting as they are. I also don’t know why my legs and arms still feel tight and tired, which how they became when I came down with PMR more than 2 years ago. Any thoughts?
Greytree
in
PMRGCAuk
1 year ago
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Stopping Tocilizumab/Actemra injections
I have been told by my Rheumy in a letter to my GP that I will not be prescribed any more
Actemra
injections once I have finished with my months supply. She also mentions that half of the patients who stop taking this medication will have a flare up.
I have been told by my Rheumy in a letter to my GP that I will not be prescribed any more
Actemra
injections once I have finished with my months supply. She also mentions that half of the patients who stop taking this medication will have a flare up.
Antschi
in
PMRGCAuk
1 year ago
just a hello, an update
i stopped my
actemra
before surgery in case i needed any antibiotics ---just resumed--- and have decided to stay put at 3 mg pred...don't need any added stress, i do have 20 hours of home help per week...50% mental lift and 50% physical need or you would get a wiff of me in london!
i stopped my
actemra
before surgery in case i needed any antibiotics ---just resumed--- and have decided to stay put at 3 mg pred...don't need any added stress, i do have 20 hours of home help per week...50% mental lift and 50% physical need or you would get a wiff of me in london!
Grammy80
in
PMRGCAuk
1 year ago
OK! I'm starting to prednisone taper again...
I remained at the three milligrams to be on the safe side but had to discontinue my
Actemra
on two occasions and have only been back on it for 3 weeks.
I remained at the three milligrams to be on the safe side but had to discontinue my
Actemra
on two occasions and have only been back on it for 3 weeks.
Grammy80
in
PMRGCAuk
10 months ago
GPs and Actemra
Can CGPs prescribe
Actemra
? What are your experiences? I’m in the US, and have had 3 bad experiences with rheumatologists. One good one who listened, but she left. My GP has been prescribing my prednisone, but not really managing the dose.
Can CGPs prescribe
Actemra
? What are your experiences? I’m in the US, and have had 3 bad experiences with rheumatologists. One good one who listened, but she left. My GP has been prescribing my prednisone, but not really managing the dose.
Mstiles
in
PMRGCAuk
1 year ago
COVID and discontinuing Actemra
I am still taking my weekly
Actemra
injections, the last was Friday. The
Actemra
information sheet suggests discontinuing shots if ill.
I am still taking my weekly
Actemra
injections, the last was Friday. The
Actemra
information sheet suggests discontinuing shots if ill.
Abikitty
in
PMRGCAuk
1 year ago
GFR dropping
(on prednisone for 13 years) ,
Actemra
infusion, 600 mg. monthly , Valsartan 80 mg. twice daily. Verapimil 40mg once daily Hydrochlorthiazide, 25mg. once daily (I just called my primary, who is newly returned from vacation.
(on prednisone for 13 years) ,
Actemra
infusion, 600 mg. monthly , Valsartan 80 mg. twice daily. Verapimil 40mg once daily Hydrochlorthiazide, 25mg. once daily (I just called my primary, who is newly returned from vacation.
phebamom
in
Kidney Disease
1 year ago
Actemra
I’ve just been reading about
Actemra
for PMR. Wondering how many of you are taking this and at what dosage of Pred.
I’ve just been reading about
Actemra
for PMR. Wondering how many of you are taking this and at what dosage of Pred.
Sumojo
in
PMRGCAuk
1 year ago
Biphosphonates Questions
Currently at 2mg prednisone from 60 , and
Actemra
every other week. Just tapered to 2 mg quickly (one year) maybe because I’ve had GCA before? Now for the Biphosphonates question.
Currently at 2mg prednisone from 60 , and
Actemra
every other week. Just tapered to 2 mg quickly (one year) maybe because I’ve had GCA before? Now for the Biphosphonates question.
Pamk1949
in
PMRGCAuk
1 year ago
Actemra frequency query
Hi Everyone, I’m wondering if there is anyone on here who is managing their
Actemra
injection pen shots four-weekly? I’m interested to know why your shots are spaced out to 4 weekly (or more), and for how long and how successfully you are managing this. Thanks. 😘
Hi Everyone, I’m wondering if there is anyone on here who is managing their
Actemra
injection pen shots four-weekly? I’m interested to know why your shots are spaced out to 4 weekly (or more), and for how long and how successfully you are managing this. Thanks. 😘
LemonZest11
in
PMRGCAuk
1 year ago
methotrexate
I am to continue with weekly
Actemra
as well....
I am to continue with weekly
Actemra
as well....
Joseph14612
in
PMRGCAuk
10 months ago
Neutrophils
Hi everyone new here. I've just got my bloods back from gp and I have low white cell count (neutrophils) this leaves me open to infection as I'm sure your all aware that is a side effect of Roactemra. The consultant has now stopped my injection for 1 week and then repeat bloods in 4 weeks. My question
Hi everyone new here. I've just got my bloods back from gp and I have low white cell count (neutrophils) this leaves me open to infection as I'm sure your all aware that is a side effect of Roactemra. The consultant has now stopped my injection for 1 week and then repeat bloods in 4 weeks. My question
Headpain24
in
PMRGCAuk
19 days ago
still no answers
I have a question not connected to the above - is anyone on
Actemra
? does it work better with fewer side effects to Methotrexate? I so want to taper to 5mg. And the doctors are all saying I must start alendronic acid. Soon.
I have a question not connected to the above - is anyone on
Actemra
? does it work better with fewer side effects to Methotrexate? I so want to taper to 5mg. And the doctors are all saying I must start alendronic acid. Soon.
Bennijax
in
PMRGCAuk
1 year ago
Starting Tocilizumab
Hello, mighty warriors 😃 Looking for anyone with experience of Tocilizumab (
Actemra
) infusions ….I’m due to start in a week, just read all the possible side effects ( as you do when starting new drug ) and so looking for people with experience of it good or bad , so I can be bit more prepared 😅 Thank
Hello, mighty warriors 😃 Looking for anyone with experience of Tocilizumab (
Actemra
) infusions ….I’m due to start in a week, just read all the possible side effects ( as you do when starting new drug ) and so looking for people with experience of it good or bad , so I can be bit more prepared 😅 Thank
Sunshine-star5
in
NRAS
9 months ago
Actemra
Does anyone know if
Actemra
should be stopped for a UTI...? I suspect I might have one....on my 17th injection today....still waiting for Doc to submit authorization for urine sample
Does anyone know if
Actemra
should be stopped for a UTI...? I suspect I might have one....on my 17th injection today....still waiting for Doc to submit authorization for urine sample
Joseph14612
in
PMRGCAuk
1 year ago
Has anyone had to stop actemra?
Anyways I’m back up to 10mg of prednisone and not going back on
Actemra
because of diverticulitis. I was wondering if anyone else had a similar situation of having to abruptly stop
Actemra
and how did it go?
Anyways I’m back up to 10mg of prednisone and not going back on
Actemra
because of diverticulitis. I was wondering if anyone else had a similar situation of having to abruptly stop
Actemra
and how did it go?
pmac22
in
PMRGCAuk
1 year ago
Increase Prednisone?
They put me on antibiotic Augmentin for 10 days...rheummy said skip
Actemra
this week,,,By Thursday, I got medical center to look at my foot, and after imaging, etc., they said i have a torn achilles tendon...foot is swollen, black and blue...they want to avoid surgery since I am on plavix and countless
They put me on antibiotic Augmentin for 10 days...rheummy said skip
Actemra
this week,,,By Thursday, I got medical center to look at my foot, and after imaging, etc., they said i have a torn achilles tendon...foot is swollen, black and blue...they want to avoid surgery since I am on plavix and countless
Joseph14612
in
PMRGCAuk
1 year ago
GCA flair?
I have been on
Actemra
since October. I recently reduced my prednisone to 1mg a day. I am starting to get sharpe pain, they only last for a second but come and go mostly at night. One night they actually woke me up. I notice if I sleep on my right side my head feels odd in the morning.
I have been on
Actemra
since October. I recently reduced my prednisone to 1mg a day. I am starting to get sharpe pain, they only last for a second but come and go mostly at night. One night they actually woke me up. I notice if I sleep on my right side my head feels odd in the morning.
Plains
in
PMRGCAuk
1 year ago
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