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The CLL Medicine Cabinet - Choosing the Right Treatment for You
acalabrutinib
- duvelisib - ibrutinib - idelalisib - pirtobrutinib - zanabrutinib rituximab - obinutuzumab - venetoclax - Learn More Managing Common Side Effects Chemoimmunotherapy Drug Types and Classes Clinical Trials
acalabrutinib
- duvelisib - ibrutinib - idelalisib - pirtobrutinib - zanabrutinib rituximab - obinutuzumab - venetoclax - Learn More Managing Common Side Effects Chemoimmunotherapy Drug Types and Classes Clinical Trials
lankisterguy
Volunteer
in
CLL Support
9 months ago
New gold standard for first line treatment UK?
She stated that the first line treatment in the uk is now 3 months of Ibrutinib/
Acalabrutinib
, followed by 12 months of Ibrutinib/
Acalabrutinib
and Venotoclax.
She stated that the first line treatment in the uk is now 3 months of Ibrutinib/
Acalabrutinib
, followed by 12 months of Ibrutinib/
Acalabrutinib
and Venotoclax.
headjog
in
CLL Support
1 year ago
Question: Any difference in Calquence (Acalabrutinib) capsules vs tablets
Recently, when we picked up my hubby's
acalabrutinib
pills and the pharmacy gave him pills vs capsules. My husband is doing quite well on the capsules. Should we be concerned? I'm wondering if this has happened to anyone and did you notice any changes?
Recently, when we picked up my hubby's
acalabrutinib
pills and the pharmacy gave him pills vs capsules. My husband is doing quite well on the capsules. Should we be concerned? I'm wondering if this has happened to anyone and did you notice any changes?
spi3
in
CLL Support
1 year ago
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Acalabrutinib and Surgery
Have been on
Acalabrutinib
for past 6 months seems to be working ok. Have previous BR treatment 4 years ago.My hemo oncol said to go off treatment for 2 weeks. My question is does this affect my overall program. Why is it necessary to cease treatment. MALE. 78. Joffre1
Have been on
Acalabrutinib
for past 6 months seems to be working ok. Have previous BR treatment 4 years ago.My hemo oncol said to go off treatment for 2 weeks. My question is does this affect my overall program. Why is it necessary to cease treatment. MALE. 78. Joffre1
Joffre1
in
CLL Support
1 year ago
Haematoma floor of mouth
I am on
Acalabrutinib
. Thanks
I am on
Acalabrutinib
. Thanks
Walkingtall62
in
CLL Support
1 year ago
Faster heartbeat with acalabrutinib?
I started taking
Acalabrutinib
about 6 weeks ago. The last few days my heartbeat has kicked up a bit. Nothing extremely high just on the high end of resting, around 70 to 90 beats a minute. I used to be around 60.
I started taking
Acalabrutinib
about 6 weeks ago. The last few days my heartbeat has kicked up a bit. Nothing extremely high just on the high end of resting, around 70 to 90 beats a minute. I used to be around 60.
albie58
in
CLL Support
1 year ago
PROPAFENONE, anti arhythmia meds to counter the side effect of Acalabrutinib on the heart.
Has anyone been treated for arhythmia while being on Calquence -
Acalabrutinib
to avoid going to ER?
Has anyone been treated for arhythmia while being on Calquence -
Acalabrutinib
to avoid going to ER?
unairdefamille
in
CLL Support
1 year ago
Holding Acalabrutinib for procedures, etc.
I’ve been on
Acalabrutinib
for 3+ mos and doing ok (still with high WBCs and lymphs but they’re starting to come down.) Bruising is worsening recently and so is joint pain! I have arthritis in both hands/thumb joints (as do so many post menopausal women.)
I’ve been on
Acalabrutinib
for 3+ mos and doing ok (still with high WBCs and lymphs but they’re starting to come down.) Bruising is worsening recently and so is joint pain! I have arthritis in both hands/thumb joints (as do so many post menopausal women.)
Islandjewel23
in
CLL Support
1 year ago
Calquence / acalabrutinib and Brukinsa / zanubrutinib Adverse Event Comparison for Chronic Lymphocytic Leukaemia / CLL from clinical trials
show an improved AE (Adverse Event) profile with
acalabrutinib
and zanubrutinib compared to ibrutinib.
show an improved AE (Adverse Event) profile with
acalabrutinib
and zanubrutinib compared to ibrutinib.
AussieNeil
Partner
in
CLL Support
1 year ago
VENOTOCLAX +
Because of afib due to Ibrutinib and
Acalabrutinib
and visits in ER, my oncologist is thinking of a combo of Venotoclax paired with another med. Is anyone here on this treatment?
Because of afib due to Ibrutinib and
Acalabrutinib
and visits in ER, my oncologist is thinking of a combo of Venotoclax paired with another med. Is anyone here on this treatment?
unairdefamille
in
CLL Support
1 year ago
MRD Test
After 14 months on
Acalabrutinib
and Venetoclax, C91.10 Chronic lymphocytic leukemia of B-cell type not having achieved remission. Looks like I failed. 😷
After 14 months on
Acalabrutinib
and Venetoclax, C91.10 Chronic lymphocytic leukemia of B-cell type not having achieved remission. Looks like I failed. 😷
Lavinia-Blue
in
CLL Support
1 year ago
anybody achieved good blood results with venclexta in 6 months and stopped treatment?
I was on
acalabrutinib
for 1,5 years, then dr switched me on venclexta. My blood results are completely normal for 3 months and I want to stop treatmentbecause of side effects. My next appointment with dr in august , I hope he will take me off the drug. Any thoughts? Thanks.
I was on
acalabrutinib
for 1,5 years, then dr switched me on venclexta. My blood results are completely normal for 3 months and I want to stop treatmentbecause of side effects. My next appointment with dr in august , I hope he will take me off the drug. Any thoughts? Thanks.
Belkin123
in
CLL Support
1 year ago
Has anyone with CLL on Acalabrutinib been prescribed Propafenone to counter highpertension and fast pulse?
I was given the option by the cardiologists I saw in ER for atrial fibrilation. for now, I take 2.5 mg of Sandoz Bisoprolol once a day. and had to half my
Acalabrutinib
dose.
I was given the option by the cardiologists I saw in ER for atrial fibrilation. for now, I take 2.5 mg of Sandoz Bisoprolol once a day. and had to half my
Acalabrutinib
dose.
unairdefamille
in
CLL Support
1 year ago
I don’t know what to expect or do 🤦🏽♀️
I am 9 weeks on
Acalabrutinib
1/2 dose. My starting labs 4/17/23; Hgb 10.8, Plts 76,WBC 81 & ALC 78 & today 7/17/23; Hgb 11.2, Plts 72 (max 118 -> lowest 40), WBC 32 & ALC 30. So the Hgb is stable but not normal, WBC/Lymph are dropping like we want but what’s up with the Platelets Dropping???
I am 9 weeks on
Acalabrutinib
1/2 dose. My starting labs 4/17/23; Hgb 10.8, Plts 76,WBC 81 & ALC 78 & today 7/17/23; Hgb 11.2, Plts 72 (max 118 -> lowest 40), WBC 32 & ALC 30. So the Hgb is stable but not normal, WBC/Lymph are dropping like we want but what’s up with the Platelets Dropping???
CoachVera55
in
CLL Support
1 year ago
sun sensitivity and acalabrutinib
Hi, I’m seeing my consultant tomorrow to choose between
acalabrutinib
and V and O as treatment options, which he suggests are likely to be equally effective. Other things being equal I would go for
acalabrutinib
as the gentler treatment option.
Hi, I’m seeing my consultant tomorrow to choose between
acalabrutinib
and V and O as treatment options, which he suggests are likely to be equally effective. Other things being equal I would go for
acalabrutinib
as the gentler treatment option.
wakewatcher
in
CLL Support
1 year ago
CLL, Alcalabrutinib, Gout & Steroids
Hi I’ve Three years on
Acalabrutinib
, I’ve developed gout and had a few episodes, some are more severe than others. The doctor prescribed a course of steroids, Prednisolone , they took a bit of time to resolve the gout but the impact on my energy levels was awesome. I almost felt normal.
Hi I’ve Three years on
Acalabrutinib
, I’ve developed gout and had a few episodes, some are more severe than others. The doctor prescribed a course of steroids, Prednisolone , they took a bit of time to resolve the gout but the impact on my energy levels was awesome. I almost felt normal.
Tomaljoe69
in
CLL Support
2 months ago
Flecanide or Propafenone when on ALCALABRUTINIB
For 6 months with [u]
+ Bisoprolol5mg +Apixaban25mg.[/u] I was OK. Then I had to go to ER twice in 2 months for dangerously elevated blood pressure and fast heart rate.
For 6 months with [u]
+ Bisoprolol5mg +Apixaban25mg.[/u] I was OK. Then I had to go to ER twice in 2 months for dangerously elevated blood pressure and fast heart rate.
unairdefamille
in
CLL Support
1 year ago
Bruising and rashes
I've been taking Calquence (
Acalabrutinib
) for CLL for 4 months now. So far few side effects apart from fatigue. I developed a kaleidoscope of bruises on my lower legs, accompanied by lumps, that have now faded, but with a few new ones reappearing.
I've been taking Calquence (
Acalabrutinib
) for CLL for 4 months now. So far few side effects apart from fatigue. I developed a kaleidoscope of bruises on my lower legs, accompanied by lumps, that have now faded, but with a few new ones reappearing.
balconygirl
in
CLL Support
5 months ago
Holding Calquence (acalabrutinib) for epidural injection.
Recommendations seem to vary about the length of time to hold calquence for an epidural injection (L3-4 facet joint for my right sided sciatic pain) or other minor procedure. I know there is a bleeding risk even without procedures such as this one, but I do not wish to discontinue a highly effective
Recommendations seem to vary about the length of time to hold calquence for an epidural injection (L3-4 facet joint for my right sided sciatic pain) or other minor procedure. I know there is a bleeding risk even without procedures such as this one, but I do not wish to discontinue a highly effective
Bluesinthenight
in
CLL Support
3 months ago
What next after Acalabrutinib
I am interested to learn what second line treatment options are available, in the UK or elsewhere, following
Acalabrutinib
as first line mono therapy. From CLL diagnosis and starting W&W in 2014 , I commenced
Acalabrutinib
in April 2021 following recovery from AIHA.
I am interested to learn what second line treatment options are available, in the UK or elsewhere, following
Acalabrutinib
as first line mono therapy. From CLL diagnosis and starting W&W in 2014 , I commenced
Acalabrutinib
in April 2021 following recovery from AIHA.
Hammerkev
in
CLL Support
1 year ago
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