Search
Search
About
Log in
Join
Experiences with
Abdine
Posts
Communities
3,520 public posts
Filter results
Got all my results- what to do next??
I now have all my results back and not sure what to do next? 2003 I had graves and then took RAI. I’ve currently been on 125mg Levothyroxine per day. I’m 42 and I feel awful, fatigue, weight gain, moods, lack of interest, brain fog... joints aches, neck pain- few to mention. I’m sick of feeling like
I now have all my results back and not sure what to do next? 2003 I had graves and then took RAI. I’ve currently been on 125mg Levothyroxine per day. I’m 42 and I feel awful, fatigue, weight gain, moods, lack of interest, brain fog... joints aches, neck pain- few to mention. I’m sick of feeling like
yolobrass
in
Thyroid UK
4 years ago
Advice please
Recently, I've been experiencing hyperthyroid symptoms that are a bit extreme. I had RAI in January 2019, was diagnosed with Graves. Had a terrible conversion issue on levothyroxine, high reverse T3, high antibodies, and generally terrible time until February 2020. I've been seeing a functional medicine
Recently, I've been experiencing hyperthyroid symptoms that are a bit extreme. I had RAI in January 2019, was diagnosed with Graves. Had a terrible conversion issue on levothyroxine, high reverse T3, high antibodies, and generally terrible time until February 2020. I've been seeing a functional medicine
ReneeC76
in
Thyroid UK
4 years ago
Hello, I have been asked to weigh up treatments for Graves Disease. I am being offered either RAI or a thyroidectomy. Advise appreciated
Having had lemtrada treatment I developed Graves’ disease and have taken 20 mg of carbimazole for 2 years but things are still not settling down
Having had lemtrada treatment I developed Graves’ disease and have taken 20 mg of carbimazole for 2 years but things are still not settling down
Mrsegg
in
Thyroid UK
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Critique of Hypothyroidism Basics
Hi Could I get your thoughts on this summary: BACKGROUND A healthy thyroid gland produces thyroid hormones which regulate body, brain growth, development, body temperature, energy levels and metabolic functions. Hypothyroidism is when the thyroid gland doesn’t produce enough of hormone T4 and T3, with
Hi Could I get your thoughts on this summary: BACKGROUND A healthy thyroid gland produces thyroid hormones which regulate body, brain growth, development, body temperature, energy levels and metabolic functions. Hypothyroidism is when the thyroid gland doesn’t produce enough of hormone T4 and T3, with
BrendaSmith
in
Thyroid UK
4 years ago
High TSH, mid f T4 graves ablated thyroid now on thyroxine
Hi I had overactive graves thyrotoxicosis which was ablated using Radioactive iodine. The TSH levels are currently (Aug 19) 4.42 (range 0.3-5) and free T4 12.2 (7.9-16). I have gained weight and also have PCOS but heard that ideally TSH should be lower than 2 to be optimal. My doctor said as it’s in
Hi I had overactive graves thyrotoxicosis which was ablated using Radioactive iodine. The TSH levels are currently (Aug 19) 4.42 (range 0.3-5) and free T4 12.2 (7.9-16). I have gained weight and also have PCOS but heard that ideally TSH should be lower than 2 to be optimal. My doctor said as it’s in
jsy_girl
in
Thyroid UK
4 years ago
3rd time lucky??
Just managed to talk my consultat about not having RAI and Give the block and replace another go. He said if I have another relapse that i will have to go for it. Why do they push RAI over block and replace? Surely as we know that once it's done it's done and no going back. I am 42 and dont want to give
Just managed to talk my consultat about not having RAI and Give the block and replace another go. He said if I have another relapse that i will have to go for it. Why do they push RAI over block and replace? Surely as we know that once it's done it's done and no going back. I am 42 and dont want to give
Silverlion
in
Thyroid UK
4 years ago
Monthly inj
Hi everyone, hope your all coping with lockdown. The new consultant (same clinic) I've been seeing since January after reading my notes put me on monthly inj....I think it's because other consultant kept me on 8 weekly even though they stopped inj in left eye due to scarring ( I was told)...although
Hi everyone, hope your all coping with lockdown. The new consultant (same clinic) I've been seeing since January after reading my notes put me on monthly inj....I think it's because other consultant kept me on 8 weekly even though they stopped inj in left eye due to scarring ( I was told)...although
JJnan
in
Macular Society
4 years ago
Bleed during Eylea Injection
Hi, hubby had his 17th Eylea injection yesterday for BRVO. Good Covid arrangements in place and he was the first appointment 👍👍 or so we thought. He zoomed in after a temp check but patients came out and he didn’t appear! The usual excellent nurse injectors were there, who fill him with much needed
Hi, hubby had his 17th Eylea injection yesterday for BRVO. Good Covid arrangements in place and he was the first appointment 👍👍 or so we thought. He zoomed in after a temp check but patients came out and he didn’t appear! The usual excellent nurse injectors were there, who fill him with much needed
smiler6044
in
Macular Society
4 years ago
Thyroid/Afib issues
Hi, I need some help please! I have PAF so on daily dose of 5mg warfarin but for years I've had thyroid issues which are dealt with by taking 100 mcg of thyroxin every day. Been speaking with a Naturopath lately and she told me to do an iodine test which involved dropping some iodine onto my wrist
Hi, I need some help please! I have PAF so on daily dose of 5mg warfarin but for years I've had thyroid issues which are dealt with by taking 100 mcg of thyroxin every day. Been speaking with a Naturopath lately and she told me to do an iodine test which involved dropping some iodine onto my wrist
Chris1945
in
AF Association
4 years ago
Pregnant (4 yrs infertility and recurring miscarriage) with (?) Hashimotos - SCARED!
I've had two miscarriages in the past in 2017 (have posted before)! Had bloods 15th June 2019: TSH 0.02 T3 7.9 T4 32 and a bunch of other stuff - I basically had everything tested prior to starting IVF. Couldn't start IVF because my thyroid was crazy. Further blood tests November 2019: TSH 3.76 T4
I've had two miscarriages in the past in 2017 (have posted before)! Had bloods 15th June 2019: TSH 0.02 T3 7.9 T4 32 and a bunch of other stuff - I basically had everything tested prior to starting IVF. Couldn't start IVF because my thyroid was crazy. Further blood tests November 2019: TSH 3.76 T4
sarahjels
in
Thyroid UK
4 years ago
Starting dose for NDT after ablative radioactive iodine treatment
I am a (normally) fit man of 64 years and have had recurring cases of hyperthryroidism over the years so finally last June I had ablative radioactive iodine treatment to kill my thyroid Started on 100 mcg levothyroxine gradually increasing to 150mcg until my TSH was 1.63 and T4 was 4.4. However, I felt
I am a (normally) fit man of 64 years and have had recurring cases of hyperthryroidism over the years so finally last June I had ablative radioactive iodine treatment to kill my thyroid Started on 100 mcg levothyroxine gradually increasing to 150mcg until my TSH was 1.63 and T4 was 4.4. However, I felt
Pablobiscuit
in
Thyroid UK
4 years ago
Do we have Graves antibodies forever, even after RAI?
I was hyper in 1987, and in my medical records one endo mentioned Graves, and one mentioned Hashimotos thyroiditis. There's no record of any antibody tests, just high T4 and low TSH. I had carbimazole and PTU, but relapsed afterwards, so was given RAI in 1989, and have been very hypo ever since. I
I was hyper in 1987, and in my medical records one endo mentioned Graves, and one mentioned Hashimotos thyroiditis. There's no record of any antibody tests, just high T4 and low TSH. I had carbimazole and PTU, but relapsed afterwards, so was given RAI in 1989, and have been very hypo ever since. I
TaraJR
in
Graves Disease Support
4 years ago
Hyperthyroidism and treatment question
I recently got diagnosed with hyperthyroidism. My doctor has told me it's either RAI or surgery and I am trying to understand whether this is the normal course of action or whether people would tend to be put on medication first. My doctor seemed very reluctant to give medication. I live in Japan, so
I recently got diagnosed with hyperthyroidism. My doctor has told me it's either RAI or surgery and I am trying to understand whether this is the normal course of action or whether people would tend to be put on medication first. My doctor seemed very reluctant to give medication. I live in Japan, so
Pineapplepen
in
Thyroid UK
4 years ago
Please could I have some guidance regarding my recent bloods?
Started with Graves treated with RAI now on Hypo taking T4 125 a day. Sulplements B12 plus folate (stopped taking a few weeks before test) Vitamin D high high strength prescribed Magnesium Folate levels werent included in result as not quite enough blood provided. Inflamation level was high as it
Started with Graves treated with RAI now on Hypo taking T4 125 a day. Sulplements B12 plus folate (stopped taking a few weeks before test) Vitamin D high high strength prescribed Magnesium Folate levels werent included in result as not quite enough blood provided. Inflamation level was high as it
BitterSweetS
in
Thyroid UK
4 years ago
ask and insist
monthly injections in both eyes for over 4 years now. Gradually the "after" pain was getting worse and worse . I would mention it to Doctor who brushed me off . The last 5 injections where almost unbearable, swollen , burning eyes. The last injection kept me in a dark room with eyes closed for 36 hours
monthly injections in both eyes for over 4 years now. Gradually the "after" pain was getting worse and worse . I would mention it to Doctor who brushed me off . The last 5 injections where almost unbearable, swollen , burning eyes. The last injection kept me in a dark room with eyes closed for 36 hours
Augenstern
in
Macular Society
4 years ago
Monthly injection continuing
I had my monthly injection on Thursday. Differences were I was given anti biotic eye drops to use 4 times a day for 4 days also iodine was in eyelid for a timed 3 minutes before removal. They are changing those not already in Eylea to that drug and then their next appointment is 8 weeks time. I already
I had my monthly injection on Thursday. Differences were I was given anti biotic eye drops to use 4 times a day for 4 days also iodine was in eyelid for a timed 3 minutes before removal. They are changing those not already in Eylea to that drug and then their next appointment is 8 weeks time. I already
tallyho
in
Macular Society
4 years ago
Help
I don’t seem to tolerate levothyroxine so been using iodine and was doing fine on it for a while then started feeling not good. I’d used NDT for some months two years ago but hair started dropping and also tried T3 only but same with hair fall. I’ve ordered LDN as I’ve read many people with hashis take
I don’t seem to tolerate levothyroxine so been using iodine and was doing fine on it for a while then started feeling not good. I’d used NDT for some months two years ago but hair started dropping and also tried T3 only but same with hair fall. I’ve ordered LDN as I’ve read many people with hashis take
ter1461
in
Thyroid UK
4 years ago
Too many unanswered questions - Myxedema
I thought this article would be illuminating. Yet the writers seem to be unaware of a couple of issues that we patients know about. For example, that taking iodine, if you are not tested to be low in it, can be harmful if you have hypothyroidism. For another thing, can a "poor converter" end up with
I thought this article would be illuminating. Yet the writers seem to be unaware of a couple of issues that we patients know about. For example, that taking iodine, if you are not tested to be low in it, can be harmful if you have hypothyroidism. For another thing, can a "poor converter" end up with
vocalEK
in
Thyroid UK
4 years ago
Advicecregarding prescribing and Armour availability please?
Hi does can anyone advise me please? I struggled hugely on levo when diagnosed with hypothyroidism after radio iodine treatment. My endo worked between two health boards Cardiff and Vale and Aneurin Bevan (both in Wales). As I was struggling hugely on levo (despite constant increases in meds) I was referred
Hi does can anyone advise me please? I struggled hugely on levo when diagnosed with hypothyroidism after radio iodine treatment. My endo worked between two health boards Cardiff and Vale and Aneurin Bevan (both in Wales). As I was struggling hugely on levo (despite constant increases in meds) I was referred
Shredder
in
Thyroid UK
4 years ago
Should I reduce Levo for a few days?
I have Graves. I had iodine treatment 2 years ago. GP practice not offering thyroid checks during Covid 19. For a number of weeks I have been sweating profusely and my scalp and skin has excessive lesions/dryness. I take 100mg levo x 4 days a week and 125mg x 3 days a week (after 2 years of trial and
I have Graves. I had iodine treatment 2 years ago. GP practice not offering thyroid checks during Covid 19. For a number of weeks I have been sweating profusely and my scalp and skin has excessive lesions/dryness. I take 100mg levo x 4 days a week and 125mg x 3 days a week (after 2 years of trial and
Gravety
in
Thyroid UK
4 years ago
1
...
46
47
48
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
2974 results
NRAS
59 results
Macular Society
56 results
View top 10 communities
Sort by
Most Relevant
Newest