Monthly inj

[JJnan]

Hi everyone, hope your all coping with lockdown. The new consultant (same clinic) I've been seeing since January after reading my notes put me on monthly inj....I think it's because other consultant kept me on 8 weekly even though they stopped inj in left eye due to scarring ( I was told)...although my first scan with new con he asked why did they stop injections ..hmm.

They have trained nurses now to do injections, I was a bit nervous at first but they are doing a good job, yesterday was my 5th inj ....first 2 were by consultant ( he was brilliant) ..last 3 have been with nurses....first nurse was horrendous, fumbled with eye clamp, didn't ask me to look up or down, and squirted iodine straight in eye at the end ..eye was so painful for 2 days even though I washed it out when I got home......second one was good but still had the picky feeling for 3 days which I have to keep closed but then I cant read, watch TV, etc as other eye has no central vision.......3 nurse yesterday was so good ...the only thing I noticed different was as she took needle out she had what I thought was a cotton bud ( I may be wrong) and she held it over injection site for few seconds.....my eye is the best it's been..no picking at all , ...any idea what it was she did.? I will certainly asked next time 🙂 ....wishing you all well with your eyes x

[springcross]

Hi JJnan. Yes, I have that every time. I wondered what the feeling of pressure was after the needle was removed each time and then I realised that they are preventing leakage of fluid. I sometimes get a bleed afterwards (only a little) but I have just had a look to find out if this could be described better than my words and found this:-

Generally, just as the needle is withdrawn, a dry sterile cotton bud is pressed over the injection site, the aim being to provide a tamponade to stop the egress of vitreous humour, which could 'wick' bacteria into the vitreous. Some advocate using an iodine-soaked cotton bud for this purpose.

Hope this answers your question.

Are they flushing your eye afterwards yet? xx

[JJnan in reply to springcross]

Thanks Springcross, answers my question as to cotton bud ...but the picky feeling is like when you've scratched eyeball it picks when blinking ....but if this is what eased it for me then I'm happy 🙂👍x

[springcross in reply to JJnan]

I did edit my reply to you actually JJnan asking whether they flush our eye afterwards now as I don't think they did it before did they and I am wondering if that's why. It may be the iodine which hasn't been properly flushed away - just a thought. xx

[JJnan in reply to springcross]

No they never flush eye....consultant used cotton bud in Jan and Feb , then I had 3 trained nurses but only last one used cotton bud.....I've been going to clinic(different consultants) nearly 6 yrs...never had it done before ......same consultant trained them but obviously some have missed that class or choose not to bother...🤔...thanks for info x

[springcross in reply to JJnan]

That's why then, Ask them next time you attend and explain that every time you have any injection you get extreme discomfort and ask them to flush your eye afterwards to remove the iodine - they are supposed to do that anyway. Do you see an Opthalmologist before you have your injection?

[tallyho]

Yes she was preventing bleeding from your eye

[Maryvic]

Request extra flushes, ALWAYS!!, and consider having them put a patch over the injected eye. It helps a lot to keep the eyelid as immobile as possible. 🌷

[JJnan in reply to Maryvic]

Are you in UK Maryvic ?.....I can ask for flushes but never seen anyone with patch ....I find lying down with eyes closed for hour or 2 helps and use my dry eye drops same time ..xx

[Maryvic in reply to JJnan]

I am in USA. But, thanks to this site, the recommendation of a patch was offered. Before that it took more than 12 hours of extreme pain before any relief. I took a “selfie” 2 days after shot once and showed it to MD at next visit. I was given a steroid eye drop that worked one time.

Do not use it anymore.

Now I request (and it is noted in my chart) extra rinses and a patch. The patch makes sense. Still rest for about 4-5 hours after treatment.

Hope things improve for you! You must advocate for yourself! 🌷

[Bobbie915 in reply to Maryvic]

Keeping the eyelid immobile makes sense but never heard of a patch to do that. Going to sleep to stop the blinking certainly works. Usually gets better overnight.

[Maryvic in reply to Bobbie915]

Try it! You’ll like it! I keep it on for about 4-5 hours. Along with extra flushes, the patch allows eye to rest. 🌷

[Maryvic in reply to Bobbie915]

Also, concentrate on keeping eye moist with gel drops a couple days before treatment seems to help. A dry eye may cause increased discomfort...🌷

[Shimano]

I had the same experience after injections. Like barbed wire in my eye for a couple of days. Minimal iodine has made a difference. Also, when I complained about the pain of the injections they kept increasing the anaesthetic drops. This made the after effects even worse without reducing the pain of the injection. Since discovered they dry up the eyes so, in addition to the iodine , and dry eyes to start with, could not move my eyelids without pain. Clinatis gel afterwards has been helpful to me. Ask for some. Very best of luck JJan.

[JJnan in reply to Shimano]

Yes that's exactly what it's like ....I to find extra anaesthetic drops make eye worse ...but no pain during injection...I have very dry eyes I've gone from Viscotears to hylo forte ..which helped for few weeks (despite being the best) isn't helping much lately...I'll certainly ask for climatic gel ....when I wake up it hurts to open eyes, so I tried Optrex mist, which i find a great help, it eases straight away...( i have arthritic hands so hubby does eye drops for me) but the mist i find easy.....I also have psoriatic athritis which I'm told can affect eyes....I did mention to clinic but all I got was ..hmm......don't know if anyone else has same ....but If I can get the gel

[springcross in reply to JJnan]

Hi JJnan. I have been using Hylo Forte too for the last few months and I feel that they are not working so well now, maybe it's because I don't use them four times a day or it could possibly be the RA. Nevertheless, I think I may try a different one next time. Do you make sure that the drops are preservative free? I have extra anaesthetic drops too so maybe that's what is drying my eye out more. Take care. xx

[JJnan in reply to springcross]

Yes always preservative free, the dry eye mist is also preservative free, I hate it when they give to much anaesthetic drops , wish they'd all read of the same page xx

[JJnan in reply to Shimano]

Sorry Shimano I pressed reply before I had chance to thank you x

[Shimano]

No problem. For clinatis you need docs Or opticians prescription. They may have gel at the Clinic so ask prior to injection if you can have it so they can’t fob you off if no doc available afterwards. I now get it on repeat prescription from GP. You can’t use it prior to injection.....on same day.....but can a couple of hours afterwards. Am trying using it today to see if it eases pain of injection tomorrow. Good luck JJnan.

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[JJnan in reply to Shimano]

Thank you...really hope it helps you xx

[Bobbie915]

Hi JJnan, My clinic stopped treatment to my right eye a couple of years ago. After being put on "wait and see" for about 5 to 6 months, I ended up with bleeds in both eyes and lost central vision in right eye. They said no point in treating the eye with loss of central vision. All this time later, I am still very angry as I think it was an unnecessary risk and I have been left with very poor sight in just one eye.

[JJnan in reply to Bobbie915]

I think that's what happened to me to love, as soon as new consultant turned up and asked why did they stop inj , then he started me on monthly inj for 'good's eye.....which is what Macula society suggested for 'bad ' eye..but they insisted it was because of scarring....they stopped inj 2 yrs ago in that eye, so praying this is going to last longer ...understand your anger to love ...I a lso feel because I was questioning their decision I was put under different consultant....wishing you good luck for the future xx