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Tall Cell Agressive Papillary Thyroid Cancer
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Portugal-2
in
Thyroid Cancer Support
5 months ago
chlorella and hashimotos
Hi anyone have any knowledge as to whether it is not advisable to take chlorella if you have Hashimotos since it contains a small amount of iodine?
Hi anyone have any knowledge as to whether it is not advisable to take chlorella if you have Hashimotos since it contains a small amount of iodine?
alchemilla12
in
Thyroid UK
9 months ago
T4 over range yet again due to side effect of Amiodarone. I have no thyroid, am on 25mcg levo daily now. In a dilemma
Hi all I am aware that most people on this site will have little knowledge about the drug Amiodarone so here is a brief account of what it is used for and it's potential side effects that can alter conversion of thyroid medication such as levo or NDT so pushing levels either up or down. It can also effect
Hi all I am aware that most people on this site will have little knowledge about the drug Amiodarone so here is a brief account of what it is used for and it's potential side effects that can alter conversion of thyroid medication such as levo or NDT so pushing levels either up or down. It can also effect
DizzyD
in
Thyroid UK
9 months ago
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A study supporting long term AntiThyroid Drug usage (useful for any patients feeling pushed into having RAI/ Thyroidectomy)
just come across this , posting it in case it useful to anyone pennyannie PurpleNails https://pubmed.ncbi.nlm.nih.gov/35274339/ [u]Audit of long-term treatment outcomes of thyrotoxicosis in a single-centre virtual clinic: The utility of long-term antithyroid drugs[/u] Miles J Levy , Narendra Reddy
just come across this , posting it in case it useful to anyone pennyannie PurpleNails https://pubmed.ncbi.nlm.nih.gov/35274339/ [u]Audit of long-term treatment outcomes of thyrotoxicosis in a single-centre virtual clinic: The utility of long-term antithyroid drugs[/u] Miles J Levy , Narendra Reddy
tattybogle
in
Thyroid UK
5 months ago
RAI POST THYROID CANCER
Has anyone had radioactive iodine treatment after thyroid cancer and then experienced a dry annoying cough quite quickly after?
Has anyone had radioactive iodine treatment after thyroid cancer and then experienced a dry annoying cough quite quickly after?
ADouble
in
Thyroid UK
6 months ago
Amiriodone & NDT update
So I was put on Amiodarone post heart surgery 3 1/2 weeks ago. I thought it was a three week course but it's not. Now on 200mg per day for the next few months . And yes I think it's messing my thyroid hormones up. I did protest over taking it...due to its high iodine content and contrary indications.
So I was put on Amiodarone post heart surgery 3 1/2 weeks ago. I thought it was a three week course but it's not. Now on 200mg per day for the next few months . And yes I think it's messing my thyroid hormones up. I did protest over taking it...due to its high iodine content and contrary indications.
waveylines
in
Thyroid UK
9 months ago
help appreciated
please can anyone advise… my TSH is 40 I was hyperthyroidism and had radio active iodine in march this year now I’m hypothyroidism I can’t seem to level out My meds have been changed but not started them yet as I’m waiting for my script and still feeling out of sorts
please can anyone advise… my TSH is 40 I was hyperthyroidism and had radio active iodine in march this year now I’m hypothyroidism I can’t seem to level out My meds have been changed but not started them yet as I’m waiting for my script and still feeling out of sorts
Rubydoo23
in
Thyroid UK
9 months ago
Worried
I had half my thyroid out end of September last year as it was enlarged. I was assured all along (nearly 3 years) by ENT consultant that it was 'nothing nasty' but he decided during summer 2023 it needed to be removed when it was pushing my windpipe right across to the side of my throat. Results came
I had half my thyroid out end of September last year as it was enlarged. I was assured all along (nearly 3 years) by ENT consultant that it was 'nothing nasty' but he decided during summer 2023 it needed to be removed when it was pushing my windpipe right across to the side of my throat. Results came
Catmad63
in
Thyroid UK
6 months ago
Dr Alan Christianson - Iodine Controlled Diet
Hi, Does anyone follow Dr Alan Christianson on social media or read any of his material? I find his video's very very informative and enjoy his content. He seems to be a very big supporter of an iodine controlled diet, and thyroid disease can be controlled by regulating iodine intake as appose to thyroid
Hi, Does anyone follow Dr Alan Christianson on social media or read any of his material? I find his video's very very informative and enjoy his content. He seems to be a very big supporter of an iodine controlled diet, and thyroid disease can be controlled by regulating iodine intake as appose to thyroid
joey82
in
Thyroid UK
9 months ago
Airedalelady
I am about to start a course of hydrolyzed marine collagen to help my loss of hair. It is by British Supplements, and the ingredients just list Pangasius Fish. Is this okay to take with Levothyroxine? Someone has told me this would probably contain Iodine, which would not work with thyroid meds. Could
I am about to start a course of hydrolyzed marine collagen to help my loss of hair. It is by British Supplements, and the ingredients just list Pangasius Fish. Is this okay to take with Levothyroxine? Someone has told me this would probably contain Iodine, which would not work with thyroid meds. Could
airedalelady
in
Thyroid UK
9 months ago
To Thyroidectomy or Not to Thyroidectomy
Hi there! Hoping for some guidance, advice and possibly real life results from some members. I was diagnosed with Graves' Disease this time last year. I had every possible symptom you can imagine. I started on Methimazole almost immediately. My numbers have gotten better but are still not controlled.
Hi there! Hoping for some guidance, advice and possibly real life results from some members. I was diagnosed with Graves' Disease this time last year. I had every possible symptom you can imagine. I started on Methimazole almost immediately. My numbers have gotten better but are still not controlled.
TeahM602
in
Thyroid UK
6 months ago
parathyroid
Today tcpace raised a good point about the parathyroid and if surgeons aim to preserve them. This is something I’ve wondered about with relation to RAI, as I can’t imagine anything in its wake would survive. Any thoughts/knowledge?
Today tcpace raised a good point about the parathyroid and if surgeons aim to preserve them. This is something I’ve wondered about with relation to RAI, as I can’t imagine anything in its wake would survive. Any thoughts/knowledge?
Milkyway88
in
Thyroid UK
6 months ago
Hypothyroidism recovery time (Iodine deficiency induced) ?
Hi, has anyone had hypothyroidism from iodine deficiency and recovered from it? How much time does it take for all the symptoms to go away ? What about other causes of hypothyroidism ? How much time does it take to recover in general ? Hi, I had hypothyroidism from iodine deficiency and started taking
Hi, has anyone had hypothyroidism from iodine deficiency and recovered from it? How much time does it take for all the symptoms to go away ? What about other causes of hypothyroidism ? How much time does it take to recover in general ? Hi, I had hypothyroidism from iodine deficiency and started taking
PolXh
in
Thyroid UK
10 months ago
blood results
good morning, I’ve just received my advanced thyroid panel from medichecks and I hoped someone could interpret them for me please? A bit of history, I developed an overactive thyroid with graves and t.e.d in 2001, I had radio iodine which obviously knocked me underactive. I got put straight on levothyroxine
good morning, I’ve just received my advanced thyroid panel from medichecks and I hoped someone could interpret them for me please? A bit of history, I developed an overactive thyroid with graves and t.e.d in 2001, I had radio iodine which obviously knocked me underactive. I got put straight on levothyroxine
Clare78uk2002
in
Thyroid UK
10 months ago
Blood Results TSH Low need your help with adjusting Dosage
Hi everyone I need some help again with my blood test results please. Ive been to the Endocronologist recently and based on my blood tests TSH too low she has decreased my Thyroxine by 1 tablet a week ie 75mg. (I was taking 75mg/day 7 days). I also take this 2hours before breakfast to help absorption
Hi everyone I need some help again with my blood test results please. Ive been to the Endocronologist recently and based on my blood tests TSH too low she has decreased my Thyroxine by 1 tablet a week ie 75mg. (I was taking 75mg/day 7 days). I also take this 2hours before breakfast to help absorption
Anic
in
Thyroid UK
6 months ago
Just a little rant
One thing I have learned since being diagnosed with Osteo is that this medical condition is a money maker for big pharma. I would encourage everyone to look up publication on actual studies done around the world with men and women with osteo and what they were given naturally along with calcium supplementation
One thing I have learned since being diagnosed with Osteo is that this medical condition is a money maker for big pharma. I would encourage everyone to look up publication on actual studies done around the world with men and women with osteo and what they were given naturally along with calcium supplementation
TWEETYCAT
in
Osteoporosis Support
10 months ago
help please
Hello New member here . I want to help my 19year old dd . She is always cold , very dry hands ( face is oily and has a lot of acne ) , constipated ( after every 2 days ), perpetually tired ( missed all her lectures at uni as no motivation )and always has trouble waking up in the morning . She also
Hello New member here . I want to help my 19year old dd . She is always cold , very dry hands ( face is oily and has a lot of acne ) , constipated ( after every 2 days ), perpetually tired ( missed all her lectures at uni as no motivation )and always has trouble waking up in the morning . She also
CocoLoco12
in
Thyroid UK
10 months ago
Thyroidectomy
I have severe Graves for about 8 years with high antibodies and told will not be likely to achieve remission and am likely to go overactive very quickly. I have severe symptoms with bad effect on my heart, breathing etc. and have been taken into A&E by ambulance a number of times with relapses. I have
I have severe Graves for about 8 years with high antibodies and told will not be likely to achieve remission and am likely to go overactive very quickly. I have severe symptoms with bad effect on my heart, breathing etc. and have been taken into A&E by ambulance a number of times with relapses. I have
LonelyPlace
in
Thyroid UK
7 months ago
Hyperthyroidism after radio iodine treatment. Thyroid Storm.
Good morning lovely people. I am struggling with my thyroid and unfortunately doctors have not been of much help. I have Graves’ disease, had radio iodine treatment about 10 years ago. Currently have an enlarged thyroid, high blood pressure, handfuls of hair falling off, waves of unbearable heat, unable
Good morning lovely people. I am struggling with my thyroid and unfortunately doctors have not been of much help. I have Graves’ disease, had radio iodine treatment about 10 years ago. Currently have an enlarged thyroid, high blood pressure, handfuls of hair falling off, waves of unbearable heat, unable
Zee1973
in
Thyroid UK
10 months ago
Blood test results
In the past i had graves disease, then rai to correct it. This left me hypothyroid, so i now take levothyroxine. My last thyroid function test on 100mg was t.s.h 0.82. T4 25 . Does this sound good doc did nt test t3. I felt good but my t4 was above range which was 2 2
In the past i had graves disease, then rai to correct it. This left me hypothyroid, so i now take levothyroxine. My last thyroid function test on 100mg was t.s.h 0.82. T4 25 . Does this sound good doc did nt test t3. I felt good but my t4 was above range which was 2 2
Ganggywaller
in
Graves Disease Support
7 months ago
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