please can anyone advise… my TSH is 40 I was hyperthyroidism and had radio active iodine in march this year now I’m hypothyroidism I can’t seem to level out
My meds have been changed but not started them yet as I’m waiting for my script and still feeling out of sorts
Welcome to the group.
How have you meds changed? What were you taking and what have you now been prescribed? I would assume you have been prescribed Levothyroxine.
At TSH 40 you won't be feeling well at all but in time, once you've been taking Levothyroxine regularly and your dose increased you will begin to feel more normal.
It's ideal if you can always get the same brand of levo at every prescription. You can do this by getting GP to write the brand you prefer in the first line of the prescription. Many people find that different brands are not interchangeable.
Always take Levo on an empty stomach an hour away from food or caffeine containing drinks & other meds. Many people find taking it at bedtime works well for them.
When hypo we get low stomach acid which means we cannot absorb vitamins well from our food, regardless of a great diet. For thyroid hormone to work well we need OPTIMAL levels of vitamins. Have you recently or could you ask your GP to test levels of ferritin, folate, B12 & D3? Private tests are available, see link for companies offering private blood tests & discount codes, some offer a blood draw service at an extra cost. thyroiduk.org/help-and-supp...
There is also a new company offering walk in (includes free blood draw) & mail order blood tests in London, Kent, Sussex & Surrey areas. Check to see if there is a blood test company near you. onedaytests.com/products/ul...
Only do private tests on a Monday or Tuesday to avoid postal delays.
How much levothyroxine are you currently taking
How long on this dose and which brand
On levothyroxine TSH should always be below 2
Most people when adequately treated will have TSH around 1
Levothyroxine is an extremely fussy hormone and should always be taken on an empty stomach and then nothing apart from water for at least an hour after
Many people take Levothyroxine soon after waking, but it may be more convenient and perhaps more effective taken at bedtime
verywellhealth.com/best-tim...
markvanderpump.co.uk/blog/p...
markvanderpump.co.uk/blog/p...
No other medication or supplements at same as Levothyroxine, leave at least 2 hour gap.
Some like iron, calcium, magnesium, HRT, omeprazole or vitamin D should be four hours away
(Time gap doesn't apply to Vitamin D mouth spray)
If you normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test
If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal
Essential to test vitamin D, folate, ferritin and B12
What vitamin supplements are you taking
Hello Rubydoo and welcome to the forum :
The TSH post RAI thyroid ablation is not a reliable measure of anything and you must be dosed and monitored on your Free T3 and Free T4 readings ;
Everyone's journey with Graves is unique to them which is why this is a poorly understood and badly treated auto immune disease - no 2 Graves patients present in the same way - though stress and anxiety would appear to be common triggers to the AI disease.
There's not much of you profile page - so when were you diagnosed with Graves - did the Anti Thyroid drugs work - did you find relief of symptoms being experienced - did you relapse - and were you offered a thyroidectomy or RAI thyroid ablation ?
I went through RAI back in 2005 and was immediately placed on 100 mcg T4 Levothyroxine daily - what dose were you on and what dose is your new prescription ?
RAI slowly burns out the thyroid in situ and it can take a few months to be fully effective but - in a nutshell - by disabling your thyroid - you have been ' flipped ' from hyperthyroid to hypothyroid and can't go ' hyper ' again and will become hypothyroid and require thyroid hormone replacement for the rest of your life.
What symptoms are you currently dealing with ?
Do you have a print out of your discharge letter from the hospital detailing your T3 and T4 readings and ranges post RAI treatment ?
In fact do you have any readings of your T3 and T4 results and ranges at diagnosis including the antibody results - probably reading as a Thyroid Receptor blocking - TR ab reading. - and any blood test results and ranges since back in primary care with your doctor overseeing your care.
Help much appreciated!
Any help would be appreciated
Help with results would be appreciated
Support and help appreciated 
thyroid results help appreciated
