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The ongoing battle to be well
Since I had Graves diagnosed years ago have struggled with levothyroxine alone..had RAI ...although my previous doctor gave me a private prescription for Thybon Henning Liothyronine. Which I have got - but due to house move changed doctors..present one said it would not help so I did not take it!!
Since I had Graves diagnosed years ago have struggled with levothyroxine alone..had RAI ...although my previous doctor gave me a private prescription for Thybon Henning Liothyronine. Which I have got - but due to house move changed doctors..present one said it would not help so I did not take it!!
Hurtlocker
in
Thyroid UK
4 months ago
Iodine - no thyroid.
I had my thyroid removed in 2003 due to papillary cancer. I have struggled ever since finding the right dosage/supplements. I have just watched Dr Sarah Myhilll's thyroid video for the umpteenth time and have purchased some of her supplements even though some of them contain iodine. Any thoughts
I had my thyroid removed in 2003 due to papillary cancer. I have struggled ever since finding the right dosage/supplements. I have just watched Dr Sarah Myhilll's thyroid video for the umpteenth time and have purchased some of her supplements even though some of them contain iodine. Any thoughts
Margo
in
Thyroid UK
8 months ago
Urgent help please - feeling total despair - think I'm going crazy after stopping and restarting levothyroxine - blood results included
Hi, This won't be the full story as I don't want to to make the post too long and hard/annoying to read. It's already going to be too long. RAI for Graves around 11 years ago. Never felt good on T4 since. Normal dose around 100 micrograms plus around 12.5 micrograms a couple of times a week. Mostly stopped
Hi, This won't be the full story as I don't want to to make the post too long and hard/annoying to read. It's already going to be too long. RAI for Graves around 11 years ago. Never felt good on T4 since. Normal dose around 100 micrograms plus around 12.5 micrograms a couple of times a week. Mostly stopped
Cat4444
in
Thyroid UK
4 months ago
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What to ask Endo?
Hi all Sorry this is quite long. I'm looking for some advice about next steps and what to ask my Endo when I see him next week. Background: I spoke to my GP in March 22 because I was exhausted and anxious and people I barely knew were commenting how awful I looked! She ordered a load of tests which
Hi all Sorry this is quite long. I'm looking for some advice about next steps and what to ask my Endo when I see him next week. Background: I spoke to my GP in March 22 because I was exhausted and anxious and people I barely knew were commenting how awful I looked! She ordered a load of tests which
Sesameseed82
in
Thyroid UK
4 months ago
sea moss
my 30 year old daughter had been treated for hypothyroidism for the last 8 years and takes 125 mcg Liothyronine. Recently a friend in Hong Kong where she lives as suggested sea moss supplement and she feels she has more energy and less brain fog. I’m concerned about the iodine in it but other components
my 30 year old daughter had been treated for hypothyroidism for the last 8 years and takes 125 mcg Liothyronine. Recently a friend in Hong Kong where she lives as suggested sea moss supplement and she feels she has more energy and less brain fog. I’m concerned about the iodine in it but other components
59Blue
in
Thyroid UK
8 months ago
T3 Trial and feeling worse
Medichecks end Jan 2024 Hypothyroid (after RAI in c2004) Spent 2023 improving folate, B12, Vit D although ferritin still poor. Came off PPIs and now take Gaviscon twice daily. Gastritis issues ongoing though. Officially a poor converter (dud DIO2) so really wanted to try T3 Dec 2023 - Trial of T3
Medichecks end Jan 2024 Hypothyroid (after RAI in c2004) Spent 2023 improving folate, B12, Vit D although ferritin still poor. Came off PPIs and now take Gaviscon twice daily. Gastritis issues ongoing though. Officially a poor converter (dud DIO2) so really wanted to try T3 Dec 2023 - Trial of T3
Rambling9
in
Thyroid UK
4 months ago
Your thoughts please
I was diagnosed with bilateral toxic nodules causing hyperthyroidism in Sept 22. I responded well to treatment and now take 5mg Carbimazole every other day. My endo is now pushing for definitive treatment. RAI is not an option for me and stopping meds clearly won’t work. Removing an otherwise healthy
I was diagnosed with bilateral toxic nodules causing hyperthyroidism in Sept 22. I responded well to treatment and now take 5mg Carbimazole every other day. My endo is now pushing for definitive treatment. RAI is not an option for me and stopping meds clearly won’t work. Removing an otherwise healthy
Platypus8
in
Thyroid UK
5 months ago
Alternatively this information may be helpful
Hi here is some information that might be useful black strap molasses for iron Moringa for iron and sleep with many nutrients Mangosteen for anxiety and depression Paw paw capsules for anxiety Okra Greek vegetable with many health benefits and helps the liver and kidneys how to possibly get off thyroxine
Hi here is some information that might be useful black strap molasses for iron Moringa for iron and sleep with many nutrients Mangosteen for anxiety and depression Paw paw capsules for anxiety Okra Greek vegetable with many health benefits and helps the liver and kidneys how to possibly get off thyroxine
RLSSCARER
in
Restless Legs Syndrome
8 months ago
OH sudden increase in TSH 14 years after Radioactive iodine treatment
Hi,OH (65) has been feeling really fatigued the last few months, also really feeling the cold. Treated with radioactive iodine 14 years ago and been on 100mg of levothyroxine ever since. He had a prostatectomy last June and we had put the tiredness down to that. A recent blood test has put his TSH
Hi,OH (65) has been feeling really fatigued the last few months, also really feeling the cold. Treated with radioactive iodine 14 years ago and been on 100mg of levothyroxine ever since. He had a prostatectomy last June and we had put the tiredness down to that. A recent blood test has put his TSH
Vickyswift
in
Thyroid UK
5 months ago
T3-4-Hypo trial - Netherlands
Do view the original which includes a map and various links. 16 to 20 months is so much more sensible than the few weeks so many previous studies have been based on. [i]
T3-4-Hypo trial
[/i] [i]Updated on 25 January 2024[/i] [i]CALL – study T3 / T4 combination therapy[/i] [i]In most patients
Do view the original which includes a map and various links. 16 to 20 months is so much more sensible than the few weeks so many previous studies have been based on. [i]
T3-4-Hypo trial
[/i] [i]Updated on 25 January 2024[/i] [i]CALL – study T3 / T4 combination therapy[/i] [i]In most patients
helvella
Thyroid UK
in
Thyroid UK
5 months ago
Amiodarone for a month: thyroid blood test results Looking for advice/comments Thank you!!
Hello Everyone,Connundrum. Update. So I stopped taking Amiodarone last Tuesday as advised from Consultant .At same time Lowered my Armour dose from 3 3/4 grains ( 140mcg T4 approx & 35mcg of T3). to 3grains ( 114mcg T4 & 27mcg of T3). Tachycardia stopped, HR dropped from110 to low 80s over the week
Hello Everyone,Connundrum. Update. So I stopped taking Amiodarone last Tuesday as advised from Consultant .At same time Lowered my Armour dose from 3 3/4 grains ( 140mcg T4 approx & 35mcg of T3). to 3grains ( 114mcg T4 & 27mcg of T3). Tachycardia stopped, HR dropped from110 to low 80s over the week
waveylines
in
Thyroid UK
8 months ago
Graves disease and Pregnancy
Hi guys, so I was diagnosed with graves disease causing hyperthyroidism and celiac disease in June last year. I have been on 40mg carbimazole per day and 80mg propanalol per day since. I had a consultation with my endocrinologist yesterday, she has now reduced my dose to 30mg carbimazole per day. I expressed
Hi guys, so I was diagnosed with graves disease causing hyperthyroidism and celiac disease in June last year. I have been on 40mg carbimazole per day and 80mg propanalol per day since. I had a consultation with my endocrinologist yesterday, she has now reduced my dose to 30mg carbimazole per day. I expressed
Candice197
in
Thyroid UK
5 months ago
Post Thyroidectomy and a confused GP
TSH 8.19 mIU/L (0.570 - 3.600) 251.5% Free T4 (fT4) 12.4 pmol/L (≤ 14) My results are as above , had a call from my GP who doesn’t understand my test results and is referring me to an endo. I’m post RAI (2006) post thyroidectomy (March 2024) on 125 micrograms Levo daily. Pre thyroidectomy I was
TSH 8.19 mIU/L (0.570 - 3.600) 251.5% Free T4 (fT4) 12.4 pmol/L (≤ 14) My results are as above , had a call from my GP who doesn’t understand my test results and is referring me to an endo. I’m post RAI (2006) post thyroidectomy (March 2024) on 125 micrograms Levo daily. Pre thyroidectomy I was
PittyKitty
in
Thyroid UK
5 months ago
The Iodine Debate
Hey everyone, I’ve started my hypothyroid journey/battle and wondering others thoughts on Iodine. I’ve gotten one book called The Thyroid Reset Diet (by Alan Christianson) whose believes based of his research/studies that we might have too much Iodine in our diet. Another book I got, Iodine and
Hey everyone, I’ve started my hypothyroid journey/battle and wondering others thoughts on Iodine. I’ve gotten one book called The Thyroid Reset Diet (by Alan Christianson) whose believes based of his research/studies that we might have too much Iodine in our diet. Another book I got, Iodine and
Greekcastle92
in
Thyroid UK
9 months ago
What is my status
Please could someone clarify this for me as had an overactive thyroid which was knocked out with RAI. I am Thyroxine which, thank goodness, has stabilised me so that I am Euthyridic (sp) however there are the occasional flareups of eye problems associated with Throid Eye Disease. What I am really confused
Please could someone clarify this for me as had an overactive thyroid which was knocked out with RAI. I am Thyroxine which, thank goodness, has stabilised me so that I am Euthyridic (sp) however there are the occasional flareups of eye problems associated with Throid Eye Disease. What I am really confused
JennyWrenn4
in
Thyroid UK
5 months ago
Problems with Teva?
Hi I am new on here. Never done this before. I have graves disease which was treated with radioactive iodine in 2013. Since then I have been taking Accord Levothyroxine with no problems. Two months ago the pharmacy gave me Teva I didn't think anything of it. Since then I have gradually become very ill
Hi I am new on here. Never done this before. I have graves disease which was treated with radioactive iodine in 2013. Since then I have been taking Accord Levothyroxine with no problems. Two months ago the pharmacy gave me Teva I didn't think anything of it. Since then I have gradually become very ill
Timmyroo
in
Thyroid UK
5 months ago
Tall Cell Aggressive Papillary Thyroid Cancer
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now
Portugal-2
in
Thyroid UK
5 months ago
Tall Cell Agressive Papillary Thyroid Cancer
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Portugal-2
in
Thyroid Cancer Support
5 months ago
chlorella and hashimotos
Hi anyone have any knowledge as to whether it is not advisable to take chlorella if you have Hashimotos since it contains a small amount of iodine?
Hi anyone have any knowledge as to whether it is not advisable to take chlorella if you have Hashimotos since it contains a small amount of iodine?
alchemilla12
in
Thyroid UK
9 months ago
T4 over range yet again due to side effect of Amiodarone. I have no thyroid, am on 25mcg levo daily now. In a dilemma
Hi all I am aware that most people on this site will have little knowledge about the drug Amiodarone so here is a brief account of what it is used for and it's potential side effects that can alter conversion of thyroid medication such as levo or NDT so pushing levels either up or down. It can also effect
Hi all I am aware that most people on this site will have little knowledge about the drug Amiodarone so here is a brief account of what it is used for and it's potential side effects that can alter conversion of thyroid medication such as levo or NDT so pushing levels either up or down. It can also effect
DizzyD
in
Thyroid UK
9 months ago
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