It started November 2013 small lumps at the side of my face , then large round spots on my hand and painful joints my fingers and wrists where swollen. The red spots then moved to my chest and upper arms . In December I was referred to the hospital rehumatoid arthritis clinc They where not convinced that arthritis was the problem blood tests on a massive scale where ordered .steroid injection was given to ease the painful joints and get me through Xmas .i was admitted to hospital New Years eve very ill and found to be aneaimic and so the tests commenced I'm sure from then to June I had every scan ,scope and blood test known to man all showing nothing other then aneamia and very high inflammatory markers .i had bone marrow tests nothing my test results where sent to various places for checking still a mystery . Then I had a skin biopsy and in June I was informed I had acute myloid leukieamia I was devastated apparently it was only in my skin .chemo was started to which I had an extreme reaction making my very ill three weeks later I reacted to a drug given along side the chemo resulting in my skin being like that of someone with all over second degree burns .then followed a series of infections etc .the consultants then decided another skin biopsy was in order this being the third which was sent to London . As I was due to start chemo again the results came back to say that I did not have AML but hystiocytoid sweets with mylodyspagia . I can't say how thrilled I was however finding a treatment for what is wrong seems any ones guess no one seems to know the steroids help me feel well but do little else . The low dose chemo drug I've just started is early days I just feel tired all the time .ive looked at this forum and hope that reading other people's experiences may help me and my consultants I hope so x
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