Sweet's Syndrome UK

Does anyone have problems with pathergy?

Pathergy is when lesions can develop in an area where the skin is damaged or irritated. It affects some Sweet's syndrome patients but not all, and I appear to be one of them.

In my case, SS lesions can sometimes appear when I pluck my eyebrows; wax my legs (I have to carefully shave instead); when my skin is scratched; on my scalp if I brush my hair too roughly; in areas where my skin is irritated by health & beauty, cleaning products e.t.c.

I would be really interested to know if anyone else has problems with this.

Thanks. ;-)

Pathergy and skin sensitivity in Sweet’s syndrome: helpforsweetssyndromeuk.wor...

12 Replies
oldestnewest

Yes, I do have problems with lesions forming when my skin is damaged by cuts or scrapes. My wife was the one that pointed this out to me. She would notice a cut or scrape and the next thing i knew I was treating a SS lesion there. Since I get so many nicks and cuts on my legs I usually do not notice them, but she does.

Reply

Thanks Revin4god!

It's something that drives me nuts sometimes, but at least we know why it's happening.

Reply

I also have had a cat or one of my dogs scratch me and boom leasion will be in the same spot in a couple of days. Also my razor can cause it when I shave I have had a really bad break out from shaving loads of times.

Reply

Do you have to take alot of prednisone? I take 60mg a day. I'm also on dapsone 100mg and cholchicine. My skin is like parchment paper. I've been in hospital X 5 in the last 3 months. I have a pneumonia that will not respond. Also getting IVIG monthly. Can anyone think of anything that will help. They are always thinking bacterial rather than viral?

Reply

Hi BsusieQ,

As your pneumonia isn't responding to antibiotics, it might be your Sweet's syndrome. SS that affects the lungs is sometimes misdiagnosed as pneumonia: helpforsweetssyndromeuk.wor...

Reply

Here's a full-list of SS medications: helpforsweetssyndromeuk.wor...

Reply

Thanks Tamiwild20,

Sometimes, it's good to know that I'm not going mad, and that other people have also experienced the same thing. ;-)

Reply

One of my children think im doing it to myself, thats also maddening

Reply

It is! Sometimes Sweeties are accused of causing their own lesions.

Reply

Blog information on pathergy updated: helpforsweetssyndromeuk.wor...

Reply

my hands get bad lesions but as soon as I see the smallest spot with a black dot use the cortisone seems to be cat and the garden but my tongue and joints burn also, not good for your mental state.

Reply

Hi grannyjones,

Cat scratches can sometimes trigger my lesions too. Joint pain is a fairly common symptom of SS, and in some people can affect the mouth, including the tongue: helpforsweetssyndromeuk.wor...

SS negatively affecting mental state is so true, and you often find yourself worrying over the smallest spot or rash because you know that it might be the start of a flare-up: skinsupport.org.uk/

Reply

You may also like...