Pathergy is when lesions can develop in an area where the skin is damaged or irritated. It affects some Sweet's syndrome patients but not all, and I appear to be one of them.
In my case, SS lesions can sometimes appear when I pluck my eyebrows; wax my legs (I have to carefully shave instead); when my skin is scratched; on my scalp if I brush my hair too roughly; in areas where my skin is irritated by health & beauty, cleaning products e.t.c.
I would be really interested to know if anyone else has problems with this.
Yes, I do have problems with lesions forming when my skin is damaged by cuts or scrapes. My wife was the one that pointed this out to me. She would notice a cut or scrape and the next thing i knew I was treating a SS lesion there. Since I get so many nicks and cuts on my legs I usually do not notice them, but she does.
I also have had a cat or one of my dogs scratch me and boom leasion will be in the same spot in a couple of days. Also my razor can cause it when I shave I have had a really bad break out from shaving loads of times.
Do you have to take alot of prednisone? I take 60mg a day. I'm also on dapsone 100mg and cholchicine. My skin is like parchment paper. I've been in hospital X 5 in the last 3 months. I have a pneumonia that will not respond. Also getting IVIG monthly. Can anyone think of anything that will help. They are always thinking bacterial rather than viral?
Shell567AdministratorSweet's Syndrome UK in reply to BsusieQ
Hi BsusieQ,
As your pneumonia isn't responding to antibiotics, it might be your Sweet's syndrome. SS that affects the lungs is sometimes misdiagnosed as pneumonia: helpforsweetssyndromeuk.wor...
my hands get bad lesions but as soon as I see the smallest spot with a black dot use the cortisone seems to be cat and the garden but my tongue and joints burn also, not good for your mental state.
Cat scratches can sometimes trigger my lesions too. Joint pain is a fairly common symptom of SS, and in some people can affect the mouth, including the tongue: helpforsweetssyndromeuk.wor...
SS negatively affecting mental state is so true, and you often find yourself worrying over the smallest spot or rash because you know that it might be the start of a flare-up: skinsupport.org.uk/
my last 2 blood tests are showing something like I am drinking alcohol which I don't could this be something to do with my sweets and my red cells are large
Large red blood cells (macrocytosis) are not a symptom of Sweet's syndrome. Large red blood cells can be caused by something other than too much alcohol.
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