Mayday! Mayday! I have scleroderma n raynauds. The warm weather has kicked in and Its kicked me.

[titanicus]

My temple is aching and throbbing and my head is banging through my ears,and I feel like I'm going to pass out. Will make an appointment with GP, but apparently your not allowed to be unwell over the weekend.

Has anyone had, or got the same thing? I would appreciate any advice/help on this subject.....I am really struggling with this....sweating and feeling faint. Thank you.

[judyt]

I have had Raynaud's for many years and it started along with Migraine. Both are vascular disorders so maybe you have a migraine. If it is that bad go to A and E and get some relief then to the Doc as soon as you can.

[suzierwp330]

hi titanicus i have Raynauds Phenomenon ? under going tests for Lupus and other things ? I have problems with the sweating and go bright red its awfull and embarrasing ,i know how you feel .I have what your describing as throbing sensation over my whole body .I can get this even when im in bed resting it wakes me up .Dont mind me asking do you get any involantry movements any where in your body or twitches as its driveing me mad at the moment ?Thankyou for your post .

[crazygrandma in reply to suzierwp330]

Suzierwp330 the sweating n redness sound like Erythromelalgia. I have it along with Raynauds too and its miserable.

[suzierwp330 in reply to crazygrandma]

my redness and sweating had reduced since i have started on Hydroclorequine im glad to say

[SRUKadmin Partner RSA]

We hope you have managed to see your doctor who has helped you with this. If you are on medication for your Raynaud's and scleroderma, you should inform your doctor of this as the headaches could be a side effect from them. As already mentioned, Raynaud's can cause migraines. We hope you are more comfortable now. Thank you.

[suzierwp330]

Hi thanks for reply think its that myself ,also on file at GP is testing for LSE and others ????.Ive been seeing Rhumytologist for about 3 years now .Hes aaid hes sure i have Lupus i have raynauds phenomenon ,Lavido reticriartis?the mid boggles .Do you have Erthromyalgia / if so whats the treatment plz ?

[titanicus]

Thank you all for your replies, I appreciate it. Sorry for the delay in reply. On my last visit with Rheumatologist he did say, ' Any problems go to A&E, ASAP.' This is the first time I have had this problem I have made an appointment to see GP, and hopefully a solution can be found. Will not be able to cope with the warmer weather otherwise.

Thank you all again for your kind comments.

[fraction]

I also have Raynauds and scleroderma (CREST) as well as fibromyalgia, arthrits, asthma, pbc amongst other things. I get an infusion of proprostanal (think thats how you spell it) for 3 days every three months, this helps to soften your skin. I still get all the splits, like paper cuts with the tightening of my skin and also use siopel cream to help keep my fingers and toes soft. I have went through the change and now again getting hot flushes/sweating, and often feel dizzy and weak. I think the sweating is with my medication. I think my dizzyness is though my vertigo or being weak as the scleroderma had tightend my esphogus and it is difficult to swollow food, it takes many hours to digest. The cold weather is the worse for me and I get in so much pain and stiff with the cold. If you are on facebook, there are many really good support groups. (mostly in America) They are very helpful. Hope this helps, in some way.