Hi all my friends I'm having difficulty on my Madical condition with scleroderma with raynouds with kidney lots and others more problems with oesophagus which is some time bleeding from my mouth when I splitting ! And get breathless and chest pains I Ben compliance to my GP about my chest pains and breathless shine long time ! As I'm having more difficult shine last 2 week which is bleeding from my mouth when I split ! which I did not butter be coz when ever I ask GP I'm having any kind off my body problems my GP just keep saying me ( be coz you got scleroderma chronic diseases ! so many things connect on your body ! ) that's ways you having all different different kinds of problems ! But still I rings my GP he check and he rings hospital and arrange to go with my own transport be coz hospital don't provide transport ! So GP sand me to CDU unit. I want with my partner who's also disable ! with my 2 children one 12 years old and one is 7 years boy. Gerls who's posh in my wheelchair from car to CDU until as we handover all my Madical condition report to Maine desk which my doctor gave to me to handover to hospital doctor. after nurse check my all details she check blood parser check ecu and take my blood samples and after take my chest X-ray. I'm still on the wheelchair ! After two hours my partner ask nurse how long to wait be coz his tiered on wheelchair his gating so much pain ! So please can you confirm how long. ! nurse told to my partner sorry they're is no time limit ! After 30 or 40 minutes I'm not sure but my partner asked again then nurse said you are next. ! after some more time my partner asked other nurse she said after 1 patients but I can ask Dr. If he can take you ! I side please I'm not comfortable on my wheelchair more than 3 hours please if I'm okay late me go home ! So she said no wait I'm confirm to DR. ! I'm Still waiting for doctors ! Nurse Staff swift change ! Again my partner asked new staffing nurse then after some more time After (A) doctor come to me and he told me to I check your Report and look to me you got problems on your oesophagus probably so you need to see your oesophagus DR. ! But still I need to ask my senior DR. (B) which he take time to see you about 45 minutes. ! as I request to dr. A please you know my Madical condition if is okay to go home be coz I can't be a staying on this wheelchair any more ! So he told me you can go home but you need to shine to your are discussing by your self ! So I said okay and nurse tokens other 10 to 20 minutes ! So I was on the wheelchair about 5 hours or more ! So I can only say to all my friends know one knows what kind of difficulty in you body and what you suffering for what's you passing through on your Madical condition ! I'm just surprised if nurse don't know your illness but DR. ? They don't know what is scleroderma sclerosis ? Basically I'm ignored by qualified doctors and nurses ! I'm still getting bled from my oesophagus ! I already past one more week after hospital ! Still not respond any thing from my GP ! Or hospital When I compline any thing to my GP they not bother me and they probably think I'm depressed ! So This is my filling. When I get this kind of difficulty then I'm thinking to not to see any doctor or go to any hospital ! Be coz is no point? If is no treatment for patients way patients need to suffers with all this? So there is no hope with other accept good ! Just I'm looking after my shelf ! I hope you all my friends don't mind if I wrote anything wrong . And thank you for reading my concern kind regard.
Last edited by Nurmohammed
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