I've been diagnosed with Raynauds for three years now and each winter is just horrible. I have other auto-immune illness too but I wondered if someone here might be able to relate to what's going on.
I am meant to take 20mg modified release nifedipine a day (along with 300mg lyrica and 60mg clexane injections for the other bits). I'm currently feel like the pressure in my body is huge and really constricted around the neck area with some pain (mild). Checked my blood pressure and its 101/72 which appears to be normal but what is strange is that my pulse is usually between 90-120bpm yet at the moment its 72 and beating really hard. My insides, especially my head feels horrible, yet it's so hard to describe. If I don't take my raynauds medication I have what can only be described as a TIA (last one on Christmas day ). Prior to being on the Nifedipine I was having TIA symptoms once every couple of days after a larger stroke event a few years back.
Now that the weather is getting colder things are getting much worse. Regardless of room temperature my body still seems to react badly. Come 11pm to midnight my body literally feels like its pulsing and I can't get any sleep no matter how tired I am until 5-6 in the morning. I lowered my Raynauds meds to just 10mg just in case it was 'too much' but it's not made a difference.
Oh and on a side note, I've been getting a lot of bruising in my lower calves, I now wear compression things during the day.
Any advice, help, similar stories would be much appreciated.
Hope you're all wrapped up warm. x